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ANNUAL
REVIEW
 2 012
— PAGE 5 —




                       JODI’S STORY



SIT TING YOUR CHILDREN DOWN TO TELL THEM YOU’RE
GOING TO DIE IS SOMETHING NO PARENT SHOULD
HAVE TO FACE – BUT IT WAS THE DEVASTATING TRUTH
FOR JODI LEE.



Jodi and Nick had been happily together for 10 years when in 2006
they embarked on an exciting chapter and moved to Vietnam with
their two children Jack, four and Arabella, two. They were having the
time of their lives.


Nick was away working when Jodi rang complaining of constipation,
abdominal pain and some bloating. The next morning, Jodi’s doctor
recognised an obstruction in her bowel and ordered scans. Jodi had
bowel cancer and the tumour had all but blocked her bowel. She was
only 39 years old.


Just before midnight she was airlifted from Ho Chi Minh to Bangkok for
emergency surgery. She was flown at low level due to the risk of her
bowel bursting from altitude pressure.


The operation was very successful but three days later Nick and Jodi
received the worst news possible – Jodi was diagnosed with Stage IV
bowel cancer and it had spread to her lymph and liver. At best, she
only had two years to live.


The hardest thing of all was telling their children that their mum was
going to die. Jodi passed away on 16 January 2010.


Before Jodi’s diagnosis she was fit and healthy. She had no symptoms
whatsoever, which is typical of bowel cancer.


Jodi is deeply missed. Her smile, sparkling eyes and her wicked sense
of humour drew people to her. She was a truly special person who
gave so much of herself to others. The saddest part of all is that Jodi’s
story could have had a different outcome if her cancer had been
detected early.


With that simple fact as the driving force, The Jodi Lee Foundation was
established in 2010, in honour of Jodi, with the sole purpose of saving
lives through increasing awareness and encouraging early detection
for the prevention of bowel cancer.
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                  — PAGE 7 —




                                                                                      CONTENTS




                                                                                        CEO’S LETTER


                                                                            ABOUT THE JODI LEE FOUNDATION

                                                                                        OUR OBJECTIVES


                                                                                          OUR VALUES


                                                                                     OUR YEAR IN REVIEW


                                                                                       THE YEAR AHEAD



                                                                                T H E E A R LY D E T E C T I O N O F
                                                                              B OW E L C A N CE R SAV ES L I V ES


                                                                                        TOM’S STORY


                                                                                     OUR INITIATIVES


                                                                             OUR PEOPLE AND SUPPORTERS


                                                                                            EVENTS


                                                                               REPORT FROM DIRECTORS


                                                                                 FINANCIAL STATEMENTS
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                                        — PAGE 9 —




                     CEO’S LETTER



ONCE AGAIN, I HAVE BEEN OVERWHEL MED BY THE                                              I thank the Foundation’s Directors for their ongoing and tireless
REM ARK ABLE           ACHIEVEMENTS                  OF       THE       JODI       LEE   contribution and support throughout the year. Their level of engagement
FOUNDATION, ALL OF WHICH HAVE SURPASSED MY                                               is very much appreciated. Recent changes have seen Andrew Luck
EXPECTATIONS. WE ARE A SM ALL TEA M M AKING A                                            replace Jim Young as our medical expert and Mark Butcher is soon to
BIG DIFFERENCE THANKS TO THE L ARGE A MOUNT OF                                           replace Chris Lee. Both Jim and Chris have made significant contributions
SUPPORT WE RECEIVE. TOGETHER WE CAN M AKE A                                              on a personal and professional level from the very beginning and we
DIFFERENCE TO THE HEALTH AND WELLBEING OF SO                                             welcome their ongoing support of the Foundation.
M ANY PEOPLE.
                                                                                         It is very important to us that we can clearly justify and substantiate how
                                                                                         we spend the donations we receive. At $585,659 our income from
In less than two years we have raised close to $1 million at a time when                 fundraising and grants exceeded our budget for the year. Although our
many not for profit organisations are feeling the effects of an uncertain                 operating costs remain competitive within the industry, at 13 per cent of
economic environment. We have a strong and engaged community;                            gross income it is the one delierable we did not achieve this year. Our
we’ve implemented initiatives focussed on improving the early detection                  target was 9 per cent and over the next 12 months we will implement
of bowel cancer; and have been recognised by the Australian Federal                      processes to improve efficiency and look for increased corporate
Government for our work in this area.                                                    support to help keep these costs on target.

The success of the Foundation would not be possible without the input of                 You will see some exciting initiatives from the Foundation as we expand
our many supporters who play key roles in our early detection drive. I am                our fight against bowel cancer, however rest assured our overriding
constantly amazed at how generous and passionate many organisations                      strategy and direction for the next year will not change. We know early
are towards this cause. We owe them our thanks and gratitude.                            detection is the best way to save lives and for that reason it remains our
                                                                                         primary focus.
Through our events we not only raise money for our initiatives, but
also awareness of bowel cancer. Personally, I get great satisfaction                     Above all, I urge you to take a screening test - it might just save your life!
from the positive life changing stories told by so many of the athletes
participating in our events. One which particularly resonates with me is
Tom’s incredible story which we encourage everyone to read. Hopefully
it will help drive home that age is irrelevant in some cases, and everyone
should be encouraged to take a simple bowel screening test.


Stories like Tom’s and others increase our resolve to save more lives.
I am frustrated that we haven’t been able to encourage more people                       NICK LEE

to screen through our Corporate Bowel Screening Program, but will
focus on improving participation in the coming year. I had definitely
underestimated the enormity of this challenge! Even friends that know
Jodi’s struggle well neglect to take the test. It’s hard to comprehend.
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                               — P A G E 11 —




                                                                                      ABOUT
                                                                             THE JODI LEE FOUNDATION



                                                                                                 OUR OBJECTIVES



                                                                            Our key objectives are focussed on reducing the prevalence of
                                                                            bowel cancer in Australia. We are commtted to:


                                                                                Promoting awareness about the high incidence of bowel cancer
                                                                                in Australia


                                                                                Educating our community about the importance of bowel
                                                                                screening and the tests available


                                                                                Improving the uptake of regular and appropriate screening
                                                                                for bowel cancer by all people from age 40




                                                                            To achieve these objectives, we channel our resources into the
                                                                            following initiatives:


                                                                                Advertising, public relations campaigns and our events which raise
                                                                                awareness about the high incidence of bowel cancer in Australia
                                                                                and promote early detection as a solution


                                                                                Our Corporate Bowel Screening Program through which
                                                                                businesses and organisations can educate individuals about
                                                                                bowel cancer and distribute bowel screening tests


                                                                                Know Your Risk – a website that allows people to record their
                                                                                family history of bowel cancer and self assess whether their risk of
                                                                                developing the disease is elevated


                                                                                Research projects to improve the early detection of bowel cancer
                                                                                and participation in screening programs
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                         — PA G E 13 —




                            O U R VA L U ES                                                 OUR YEAR IN REVIEW



                                  VITALIT Y                                                            HIGHLIGHTS

Vitality defines who we are and what we do. As well as the exuberance
and energy expressed by the people around us, vitality is demonstrated                                       J U LY
through our events in many ways – the challenge to push personal                               RELAUNCHED THE WEBSITE
boundaries; the commitment to train; the support shown by family and
friends and the sense of achievement on completing an event.
                                                                                                        SEPTEMBER
                                                                                       EVENT PAGES GO LIVE ON OUR WEBSITE



                                INTEGRITY                                                               NOVEMBER
                                                                                             NEW YORK MARATHON RAISES
We commit to act with integrity all times. We will consistently strive to
achieve our objectives and will invest in those initiatives we believe
will improve the uptake of bowel screening in Australia. It is important
                                                                                                      $230,174
that our supporters, both financial and those providing non-monetary
support, are confident their money will be invested in the best possible                                  DECEMBER
way and will achieve the best possible results.                                    TOM’S STO RY – THANK YO U FO R SAVIN G MY LIFE



                                                                                                         FEBRUARY
                                                                                       LIT TLE BL ACK DRESS PART Y IN ADEL AIDE
                           TRANSPARENC Y

We will be transparent about what we do, how we choose to invest                                           MARCH
in bowel cancer initiatives and the results expected and achieved.
                                                                                      RIDE FOR THE LITTLE BLACK DRESS RAISES
Through transparency we can build public trust and confidence in
The Jodi Lee Foundation.
                                                                                                      $183,652
                                                                                                             M AY
                                                                                    FEDERAL GOVERNMENT ANNOUNCES GRANT OF


                                                                                                       $50,000
                                                                                                             JUNE
                                                                                      CORPORATE BOWEL SCREENING PROGRAM
                                                                                      O FFI C I A L LY L AU N C H E D I N S A , V I C & N SW
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                                                                   — P A G E 15 —




                                                                    2012
                                                                                                                                                        WE ARE PLEASED TO BE ABLE TO REPORT A SUCCESSFUL
                                                                                                                                                        YEAR IN 2012, OUR FIRST FULL YEAR OF OPER ATION.
                                                                                                                                                        OUR FUNDR AISING EXCEEDED OUR PROJECTIONS IN
                                                                                                                                                        L ARGE PART DUE TO THE 2011 NEW YORK M AR ATHON
                                            FINANCIAL RESULTS & PROJECTIONS                                                                             AND RIDE FOR THE LIT TLE BL ACK DRESS R AISING AN
                                                                                                                                                        INCREDIBLE $230,174 AND $183,652 RESPECTIVELY.


                                              PROJEC TIONS             GROSS            YEAR ENDED              GROSS           11 MONTHS TO    GROSS
                                                 2012                 INCOME           30 JUNE 2012            INCOME           30 JUNE 2011   INCOME   The numbers were also buoyed by the $50,000 grant announced
                                                  ($)                    %                  ($)                   %                  ($)          %     in May by Deputy Prime Minister and Treasurer, the Hon Wayne
                                                                                                                                                        Swan MP and Minister for Health, the Hon Tanya Plibersek MP. The
                                                                                                                                                        announcement came as a complete surprise to us and is a wonderful
GROSS FUNDRAISING AND GRANT INCOME                564,000                                585,659                                    298,520
                                                                                                                                                        recognition of the work we are doing to raise awareness of bowel
                                                                                                                                                        cancer in Australia.
ALLOCATED TO:
                                                                                                                                                        Importantly, exceeding our fundraising target for the year meant we
PROGRAMS & INITIATIVES                            380,000                67%              378,118                 65%                27,614     9%      were able to fund our initiatives and operations predominantly with
                                                                                                                                                        money raised through the year resulting in the retention of valuable
                                                                                                                                                        cash resources at year end. This also ensures the sustainability of The
FUNDRAISING & EVENTS                              146,000                26%              149,224                 25%                87,449     29%
                                                                                                                                                        Jodi Lee Foundation into the 2013 year.

OTHER OPERATING COSTS                             51,000                 9%               73,244                  13%                19,631     7%      As a percentage of gross income, our operating costs were slightly
                                                                                                                                                        higher than the projected 9 per cent. This is largely due to the
                                                                                                                                                        rapid increase in our activities. In our second year we have already
TOTAL COSTS                                       577,000                                600,586                                    134,694
                                                                                                                                                        achieved some of the milestones set for our third and fourth year of
                                                                                                                                                        operating. With this has come an increased volume in general office
                                                                                                                                                        tasks. However, we have made appropriate changes to our resourcing
                         Not e: T he t able includes t he cost of capit alised as set s and excludes interest income and depreciat ion
                                                                                                                                                        to keep these costs to around 10 per cent of gross income and will
                                                                                                                                                        monitor them closely during the 2013 year.
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                                                 — P A G E 17 —




                                              THE YEAR AHEAD                                                                                           INITIATIVES


                        We have set some tough but achieveable targets for the year ahead.                                        Screen 5000 people through expansion of our Corporate Bowel
                        Our income target of $725,000 will be challenging and is dependant                                        Screening Program
                        on us attracting new participants in our events and a greater level of
                        corporate sponsorship for both our events and importantly, our initiatives.                               Launch the Know Your Risk website


                        We continue to focus on the early detection of bowel cancer as our                                        Stakeholder engagement to expand the network of organisations

                        key message. The message is consistently reinforced through our online                                    supporting the Foundation

                        presence and public relations activities and defines our initiatives –
                                                                                                                                  Lobby Federal and State Governments to increase public
                        our research projects, Know Your Risk website and Corporate Bowel
                                                                                                                                  awareness of bowel cancer and the importance of early detection
                        Screening Program – all focussed on the early detetcion of bowel cancer.

                                                                                                                                  Online campaigns to increase awareness of bowel cancer and
                        Growth of the Foundation’s business to the eastern states during 2013 is
                                                                                                                                  promote early detection as a solution
                        in line with our five year business strategy. We have already had some
                        success with the Corporate Bowel Screening Program interstate and will
                                                                                                                                  Research project in conjunction with the Federal Government’s
                        continue to promote its benefits to businesses in Melbourne and Sydney
                                                                                                                                  Department of Health and Ageing to discover why so few people
                        through the 2013 year.
                                                                                                                                  aged 45 to 55 participate in home screening programs




                                                 PROJECTED COSTS                                                                                           EVENTS


                                                                                                                                                   AUGUST & APRIL
                              OPER ATING EXPENSES
                                                                                                                                          RIDE FOR THE LITTLE BLACK DRESS
                                      $88,117
                                                                                                                                                              VIETNAM



                                                                                                           COMMUNIT Y AWARENESS                         NOVEMBER
                                                                                                           $278,354                               NEW YORK MARATHON
                                                       11%
                                                                                                                                       AUGUST, SEPTEMBER, JANUARY
                                                                               35%                                                            LIT TLE BL ACK DRESS PARTIES
FUNDR AISING & EVENTS
        $210,150                        26%                                                                                                 VIETNAM, SINGAPORE AND ADELAIDE



                                                                                                                                                           MARCH
                                                                                                                                          RIDE FOR THE LITTLE BLACK DRESS
                                             2%                        16%
                                                     10%                                                                                              BYRON BAY TO BONDI



                                                                                                                                                              JUNE
                   KNOW YOUR RISK
                        $17,850                                                                                                               SIMPSON DESERT CHALLENGE

                                      RESEARCH PROJEC TS                    CORPOR ATE BOWEL SCREENING PROGR AM
                                      $81,450                               $121,300
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                              — PA G E 19 —




 T HE E ARLY DE T EC T ION OF                                                      The thousands of Australians diagnosed and dying from bowel
                                                                                   cancer every year is unacceptably high for a cancer that typically

BOWEL C ANCER SAVES LIVES                                                          develops slowly and is 90 per cent curable if diagnosed early. We
                                                                                   are determined to reduce the incidence of bowel cancer based on
                                                                                   undisputed evidence that early detection of the disease saves lives.




                                                                                                E A R LY S TA G E B O W E L C A N C E R
ONE IN 12 AUSTRALIANS WILL DEVELOP BOWEL CANCER
                                                                                              C A N B E S U C C E S S F U L LY T R E AT E D
IN THEIR LIFETIME AND 5,000 DIE FROM THE DISEASE EVEY
                                                                                                       THROUGH SURGERY
YEAR. BOWEL CANCER IS AUSTRALIA’S SINGLE MOST
COMMON INTERNAL CANCER AND IS THE SECOND                                                          E A R LY S TAG E D I AG N O S I S
LEADING CAUSE OF CANCER-RELATED DEATH AFTER
LUNG CANCER. IT IS THE SECOND MOST COMMONLY
DIAGNOSED INTERNAL CANCER AFTER BREAST CANCER
                                                                                                                 90%
IN WOMEN AND PROSTATE CANCER IN MEN. PEOPLE                                                      CHANCE OF SURVIVING 5 YEARS

UNDERSTAND              THE       IMPORTANCE                OF       FREQUENTLY
SCREENING FOR BREAST AND PROSTATE CANCER YET,                                                      L ATE STAGE DIAGNOSIS
DESPITE THE STATISTICS, VERY FEW PEOPLE TAKE ACTION
TO PROTECT THEMSELVES AGAINST BOWEL CANCER.
                                                                                                                 15%
                                                                                                 CHANCE OF SURVIVING 5 YEARS
    Over 14,000 people were diagnosed with bowel cancer in
    2008 – that’s 274 new cases every week


    This is projected to increase to 20,000 cases diagnosed
    annually by 2020


Typically, bowel cancer does not present with symptoms and often
once symptoms start to develop, the cancer has spread to other parts
of the body making it more difficult to treat and cure.                                        Reportedly, up to 15 per cent of patients
                                                                                              with a positive screening test result had
                                                                                              experienced significant symptoms which
                                                                                               they had not acted upon. Knowing the
           A positive FOB test result doesn’t always                                          symptoms and acting on them quickly is
            mean cancer. There’s up to 50 per cent                                              equally as important as screening for
             chance that it’s a polyp and less that                                             the early detection of bowel cancer.
           10 per cent chance that it’s bowel cancer
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                                                                                   — PAGE 21 —




               OUR RECOM MENDATION



WE RECOGNISE THAT PEOPLE MAY CHOSE TO PARTICIPATE                                                                            When fully implemented the NBCSP will offer biennial screening to all
IN    THE      N AT I O N A L       B OW EL        C A N C ER        S C R EEN I N G                                         Australians aged between 50 and 74 and will undoubtedly improve
PROGRAM (NBCSP) OR PREFER TO SCREEN THROUGH                                                                                  the early detection of bowel cancer in Australia. It is believed that
COLONOSCOPY FROM AGE 50. WHILST WE FULLY SUPPORT                                                                             it could save as many as 30 Australian lives every week. However,
THESE SCREENING PROGRAMS, OUR RECOMMENDATION                                                                                 the full expansion of the program is not currently scheduled until after
IS THAT PEOPLE SCREEN FOR BOWEL CANCER USING A                                                                               2018. We strongly encourage people to take responsibility for
FAECAL OCCULT BLOOD (FOB) TEST (*) ANNUALLY FROM                                                                             their own health now – make the choice to protect yourself against
AGE 40 FOR THE FOLLOWING REASONS:                                                                                            bowel cancer.



1. The risk of developing bowel cancer increases four-fold between                                                              FOB TESTS ARE READILY AVAIL ABLE FROM YOUR LOCAL
     the ages of 40 and 50 and rises sharply after that. Jodi was                                                               PHAR M ACY. OUR CHALLENGE REM AINS IN CONVINCING
     only 39 when she was diagnosed with advanced Stage IV                                                                                   PEOPLE IT IS WORTH TAKING THE TEST.
     bowel cancer.


2. Although a minority age group, almost 1,000 people under age
     50 were diagnosed with bowel cancer in 2008 representing
     7 per cent of all diagnoses. Of the 4,047 lives bowel cancer
     claimed, 184 people were aged between 15 and 49.                                                                                                                                                                                                    800
                                                                                                   2000

3. The National Health and Medical Research Council (NHMRC)                                                                                      DIAGNOSES
     and Gastroenterological Society of Australia (GESA) recommend                                                                                                                                                                                       600
                                                                                                   1500
     screening from age 50 at least every second year, but                                                                                       DEATHS




                                                                                       DIAGNOSIS
     preferrably anually.
                                                                                                   1000                                                                                                                                                  400
4. FOB tests are not conclusive. They can detect 65 to 90 per
     cent of cancers and advanced polyps. Screening every year
     improves the likelihood of the test detecting polyps or bowel                                  500                                                                                                                                                  200
     cancer in its infancy.


5. Forming screening habits in your 40s will improve your chances of                                  0                                                                                                                                                  0
     early detection in your early 50s.                                                                   0-4    5-9    10-14    15-19   20-24   25-29   30-34   35-39   40-44   45-49   50-54   55-59   60-64   65-69   70-74    75-79   80-84    85+

                                                                                                                                                                            AGE
                                                                                                            Gast roenterological Societ y of A ust ralia, Early Detec t ion, S creening and Sur veillance for Bowel Cancer, T hird Edit ion 2003

      Regular screening is not the only way to prevent
      bowel cancer. A healthy lifstyle will help reduce
     your risk – including regular exercise, a low-fat diet
         that is high in vegetables and dietary fibre,                                                                       * FOB tests may not be suitable for people with symptoms or a family history of bowel cancer,
        no smoking and avoiding excessive alcohol.                                                                             or people with bowel cancer, polyps, ulcerative colitis or Chroh’s colitis. No matter what their
                                                                                                                               age, we encourage people in this higher risk category to speak to their doctor immediately
                                                                                                                               about appropriate screening.
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                                      — PAGE 23 —




                          TOM’S STORY

                                                                                       commitment to the principles of the JLF and the underlying question of what if
                                                                                       something was wrong prevailed and led me to complete the test in the middle
                                                                                       of October.


                                                                                       The test results arrived on October 21st and read positive for showing blood in
                                                                                       my stool. This came as a shock especially being only a couple of weeks until
                                                                                       the race and overseas travel. I immediately contacted my GP and made an
                                                                                       appointment prior to travel in an effort to calm my nerves.


                                                                                       My GP had reassured me that it was unlikely that anything was wrong but
                                                                                       due to the positive result he had to refer me to a colorectal specialist where a
                                                                                       surveillance colonoscopy would be likely. There was no immediate urgency for
                                                                                       this to take place and so I made an appointment with the specialist in early
                                                                                       December following the race and overseas travel.


                                                                                       Early in November I travelled to the United States of America and completed
                                                                                       the NYC marathon in 4 hours 28 minutes and 41 seconds raising a total
                                                                                       of $4,935 for the JLF. Sponsors included generous family, friends and work
                                                                                       colleagues who were all more than happy to support such a great cause.


                                                                                       During my two week trip overseas my upcoming specialist appointment was
                                                                                       far from my mind as I was enjoying the sights of NYC and Chicago with my
                                                                                       girlfriend and having a great time. Running in the NYC marathon and being
                                                                                       involved with the JLF was overall lots of fun and a great experience.
Dear Nick,
                                                                                       After returning to Australia I met with a colorectal specialist who like my GP
When I was offered a position to run for the Jodi Lee Foundation (JLF) in the          reassured me that it was unlikely anything was wrong. However, he explained
New York City (NYC) Marathon, I could never have imagined I would be                   the importance of undertaking a surveillance colonoscopy due to the positive
writing you a letter such as this.                                                     result of the bowel screen test.


Early in April 2011 I was advised of an opportunity to run in the NYC Marathon         A colonoscopy procedure was conducted with the preparation routine and
for the JLF. Little did I know at this stage what a profound impact this invitation    going under general anesthetic an unsettling experience. For all concerned
and involvement with the JLF would have on my life.                                    the results were expected to be all clear with no issues. Unforfunately this was
                                                                                       not the case.
From this date general preparations commenced such as training, travel
arrangements and fundraising; and throughout the year the JLF maintained               To my shock, I was advised by the surgeon after the procedure that too many
good communication on all these matters. Amongst the communications from               polyps had been found to be removed and counting had stopped at 50. No
the JLF was a request that as ambassadors for the Foundation we would                  cancer was identified, however eight polyps had been removed for biopsy
undertake a pharmacy available bowel screen test.                                      and it was likely that some of my lower bowel would have to be removed.


I was reluctant to conduct this test due to my age (at the time I was 28 years         The following week I met with the surgeon to discuss the colonoscopy and the
old) and my good health. Furthermore, I had not ever had any symptoms of               pathology results. The discussion was confronting and difficult to accept. In
bowel cancer and thought that doing the test would be unnecessary. However,            my lower bowel are up to 100 polyps of which some are common and some
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —   — PAGE 25 —




are a much less common polyp which are more likely to develop into bowel
cancer in an accelerated manner. Amongst all the facts, research, pathology
and discussion I was advised that the only course of action was to remove my
lower bowel to prevent the highly likely chance of developing bowel cancer
in the near future.


A second opinion was sought prior to new years eve where a conservative
estimate was that I had a 50 to 100 percent chance of developing bowel
cancer in my thirties and that due to the amount of polyps it was more likely to
be closer to 100 percent. The advice was clear and the same as the surgeons,
removal of the lower bowel was necessary to prevent bowel cancer.


I recently met again with the surgeon and will have major surgery to remove
my lower bowel. This operation will see me in St Andrews Hospital for
approximately five days and recovering at home for at least one month.


I share my story with you Nick and The Jodi Lee Foundation as a way of saying
thank you.


Thank you for saving my life.
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                                                             — PAGE 27 —




                                      OUR INITIATIVES                                                                                            COMMUNIT Y AWARENESS



              RAISING             AWA R EN ES S                OF         B OW EL            C A N C ER       AND              Much of what we do every day is talk … we talk about bowel cancer in person,
              EN CO U R AG I N G R E G U L A R A N D A P P RO P R I AT E S C R EEN I N G                                       in the media, on our social media platforms and as part of our events. We talk to
              I S T H E K E Y TO AC H I E V I N G O U R M I S S I O N – TO SAV E L I V ES                                      people every day about how they can help improve the awareness of bowel cancer
              T H RO U G H T H E E A R LY D E T E C T I O N O F B OW EL C A N C ER .                                           and the importance of screening.
              WE      B EL I E V E     T H AT      WITH          ED U C AT I O N           WILL      CO M E     AN
              I N C R E A S ED U P TA K E I N B OW EL S C R EEN I N G P RO G R A M S.                                          There is a desperate need in Australia for education about bowel cancer and that
              T H ER E A R E A VA R I E T Y O F WAYS T H AT W E WO R K TO                                                      screening can start by taking a simple test at home. Surveys have shown that only
              I N C R E A S E T H E E A R LY D E T E C T I O N O F B OW EL C A N C ER I N                                      nine per cent of people nominated bowel cancer as the cancer they new most
              AU S T R A L I A , M O S T O F W H I C H R EQ U I R E A V ERY H A N D S O N                                      about. Even in a survey of our own community, less than half of the people knew
              A N D D ED I C AT ED A P P ROAC H .                                                                              the death rate from bowel cancer ranked above breast and prostate cancers, and
                                                                                                                               only 22 per cent knew the procedure for the bowel screening test we recommend.


                                                                                                                               This lack of knowledge leads to low compliance rates in screening programs.
                                                                                                                               One of the main reasons cited for not participating in the Government’s NBCSP


                                                        2012                                                                   was feeling well and lacking symptoms, even though we know that bowel cancer
                                                                                                                               generally presents without symptoms. This insight verifies our need to improve the
                                                                                                                               level of bowel cancer awareness in Australia.

                    COST OF INITIATIVES, FUNDRAISING AND EVENTS
                                                                                                                               During 2012 we have developed many valuable communication tools including
                                                                                                                               brochures about The Jodi Lee Foundation, our key messages, initiatives and events,

                                       DIREC T COSTS                                    RESOURCING                             and materials to promote our Corporate Bowel Screening Program in the workplace.



                                                     GROSS                                                 GROSS
                                                    INCOME                                  HOURS         INCOME       TOTAL
                                     ($)               %                   ($)                               %          ($)                                        WEBSITE

                                                                                                                               Our website is a powerful and important tool in raising community awareness.
INITIATIVES                                                                                                                    We have continued to invest in our website to include important information about
                                                                                                                               bowel cancer, personal stories that inspire us every day and an events page, which
                                                                                                                               provides participants with their own fundraising site. This functionality was important
COMMUNITY AWARENESS            154,918               26.5%            63,686                  915          19%       218,604
                                                                                                                               to us as it drives event supporters to our website, exposing them to our key messages
                                                                                                                               and leaving them with a little more knowledge about bowel cancer.
CORPORATE BOWEL
SCREENING PROGRAM               69,856               12.0%             46,125                 724          7%        115,981

                                                                                                                                         UNIQUE WEBSITE VISITS (JAN – JUNE)
RESEARCH PROJECTS              26,500                 4.5%              5,829                 77           1.0%       32,329

KNOW YOUR RISK                    790                 0.1%             10,414                 143          1.7%       11,204
                                                                                                                                                                   5,934
EVENT & FUNDRAISING COSTS       81,430                13.9%            67,794                1,220        11.0%      149,224

TOTAL                        333,492                                193,848                                          527,340

                                       Not e: Direc t cost s includes capit alised website cost s
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                                — PAGE 29 —




                            SOCIAL MEDIA                                                                PUBLIC REL ATIONS

Our key social media platform and focus to date has been Facebook                  More than 15 million Australians read or heard about The Jodi Lee
where our community has grown to over 1,500 people. We have                        Foundation this year. We featured in 110 stories, averaging eight per
established an engaged community and communicate with them daily                   month, across print, radio and online media. Images accompanied
– posting messages about bowel cancer, our events and updates on                   56 per cent of these stories making the stories more likely to be read.
our initiatives. Each of our posts are successfully reaching up to 4,000           Just over half of the stories appeared in South Australia, with the others
Facebook users, some even more.                                                    interstate and 10 per cent in national print media. Over time this will
                                                                                   change as we expand our presence in the Eastern states.
These messages reach far in excess of our core group of Facebook
friends and were seen by more than 724,430 people this year. Our                   We were also thrilled that an interview with Nick Lee on Radio Adelaide
messages were displayed on Facebook pages over 4,800,000                           Breakfast with Tim Brunero won an award from the Colorectal Surgery
times, the most popular posts being during the week following the                  Society of Australia and New Zealand.
Federal Government press conference in May and Ride for the Little
Black Dress event.                                                                 We are extremely proud of the strong brand awarenss we have
                                                                                   built over the past two years and The Jodi Lee Foundation’s public
Our social media platforms have expanded to include Twitter, LinkedIn,             association with bowel cancer. This gives us a solid foundation to
Flickr, YouTube, Vimeo and SlideShare pages. Our increased focus on                increase community awareness across Australia over the coming years.
Twitter has enabled us to deliver our bowel cancer and early detection
messages to an entirely new online community. We already have over                 Importantly, we have built relationships directly with four Federal
300 followers and are particularly proud of our Twitter Klout (*) score            Government Ministers and are working to expand this network
which rated as high as 47 during the year. In the last few months, our             in 2013. Our Ride for the Little Black Dress event was opened in
tweets have reached nearly 50,000 people and appeared 289,000                      Canberra by Dr Andrew Leigh MP and ACT Chief Minister, Ms Katy
times on Twitter.                                                                  Gallagher. Andrew Leigh went on to later speak about the event and
                                                                                   The Jodi Lee Foundation in his parliamentary address for which we
                                                                                   owe him many thanks.
                          FACEBOOK LIKES
                                                                                   This relationship had much to do with our invitation for Nick to join

                                   1,522                                           the Deputy Prime Minister and Treasurer, The Hon Wayne Swan MP,
                                                                                   and Minister for Health, The Hon Tanya Plibersek MP, in a national
                                                                                   pre-budget announcement to expand the NBSCP. The Foundation was
                           TWITTER REACH
                                                                                   also presented with a $50,000 Federal Government grant to continue

                                 48,989                                            to promote the importance of early detection.




               (*) Klout measures engagement with our Twitter content.
                                                                                                           MEDIA STORIES

                                                                                                                   110
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —   — PAGE 31 —




                             ADVERTISING

The Porcelain Doll advertising campaign appeared in The Weekend
Australian Magazine, WISH Magazine and The Canberra Times. The
campaign aimed to raise awareness about bowel cancer and provide
early detection as a solution.


We were pleased to hear that the campaign, created pro bono by
ShowPony Advertising, was a finalist in the prestigeous Adelaide
Advertising and Design Club Awards.



              NATIONAL ADVERTISEMENTS

                                         7
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                               — PAGE 33 —




                 CORPOR ATE BOWEL
                SCREENING PROGRAM


                                                                                   We have set ourselves a huge challenge – to screen 5000 people.




SCREEN 5000
                                                                                   The program has been presented to numerous businesses, large and
                                                                                   small, and we are confident the Program will be implemented by
                                                                                   several of them.


                                                                                   Following a successful pilot program in South Australia, the Program
                                                                                   was officially launched during Bowel Cancer Awareness Week in June
                                                                                   2012. The multi-faceted launch included a mailout to 250 of Australia’s
                                                                                   largest employers; advertising in HR Monthly, the Australian Financial
OUR GOAL FOR THE CORPORATE BOWEL SCREENING                                         Review and Business Review Weekly; online advertising campaigns;
PROGRAM IN 2012 WAS TO PARTNER WITH AT LEAST                                       and building relationships with corporate networking groups. On top if
SIX ORGANISATIONS ACROSS SOUTH AUSTRALIA AND                                       this, we took bowel cancer to the streets in Adelaide, Melbourne and
DISTRIBUTE 400 TESTS. FAR EXCEEDING OUR EXPECTATIONS,                              Sydney with 12 lifesized cardboard cutouts in each city, representing
A TOTAL OF 1,235 TESTS WERE DISTRIBUTED DURING THE                                 the one in 12 people who will develop bowel cancer in their lifetime.
YEAR BY SIX BUSINESS ES IN SOUTH AUSTRALIA AND
VICTORIA. AN ADDITIONAL 400 TESTS WERE PURCHASED
AND DISTRIBUTED BY THE FOUNDATION.
                                                                                               NEW VISITORS TO OUR WEBSITE

The Program has been very well received by organisations that
understand the importance of investing in the health and wellbeing of
                                                                                                                  197
their employees. Disappointingly, of the 1,235 tests distributed, only
112 were completed. This rate is much lower than we had hoped for                          ONLINE ADVERTISEMENTS APPEARED ON:
but with a larger than expected number of positive test results returned,
we have no doubt that the program is saving lives.                                                             LINKEDIN

Clearly, our challenge is convincing people to complete the test and
we are looking at several ways to improve compliance. Uptake of the
                                                                                                       82,467 TIMES
NBCSP was reportedly 39 per cent for males and 47 per cent for
                                                                                                                GOOGLE
females (in 2008). Our goal is to achieve greater than 60 per cent
return rate on tests distributed through our Corporate Bowel Screening
Program and by continuing to raise awarenss of the disease, we’d
                                                                                                      503,682 TIMES
hope to see similar results achieved by the NBCSP.
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                                                                                               — PAGE 35 —




                                                                                                                                                                                TESTIMONIALS

                  1 in 12 Australians will
                  develop bowel cancer
                  in their lifetime
                  Second most common cause of cancer-related




                                                                                                                                                                                SIMON BROWN
                                                                                                                                                                M ANAGING DIRECTOR, RESOURCECO PT Y LTD

                                                                                                                                                        The health and wellbeing of our staff is integral to ResourceCo.
                                                                                                                                                        Understanding the prevalence of bowel cancer, there was no question
                                                                                                                                                        about providing this screening service to our employees when you
What are                                                                                                                                                comprehend that this type of cancer may be prevented if detected early.
                                                                                                                                                        When offering this service to employees we looked at the extended
the odds?                                                                                                                                               family impact of having a member affected by cancer and subsequently
                                                                                                                                                        included screening of employees’ partners in the offer. The care and
                                                                                                                                                        concern offered by ResourceCo through the provision of this service
                                                                                                                                                        certainly aides in maintaining our employees’ satisfaction and morale.




                                                                                                                                                                                  REG NELSON
                                                                                                                                                                 M ANAGING DIRECTOR, BEACH ENERGY LTD
                                                                                         1 in 12 Australians will
                                                                                         develop bowel cancer                                           Beach Energy is proud to support The Jodi Lee Foundation and the
                                                                                         It’s the second most common cause of cancer-related death in

                                                                                                                                                        work it’s doing in relation to building awareness around bowel cancer
                                                                                                                                                        and helping with the early detection of bowel cancer. Beach recently
                                                                                                                                                        provided all employees, and their respective partners, with bowel cancer
                                                                                                                                                        screening kits. The feedback to date has been strongly supportive of the
                                                                                                                                                        screening kits and how easy they are to use. Beach looks forward
                                                                                                                                                        to continuing to support The Jodi Lee Foundation and the outstanding
                                                                                                                                                        results it has achieved to date in building bowel cancer awareness.




                                                                                        What are
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —   — PAGE 37 —




                        KNOW YOUR RISK



IF YOU HAVE HAD CLOSE REL ATIVES DIAGNOSED WITH
BOWEL CANCER, YOUR RISK OF DEVELOPING THE DISEASE
M AY BE ELEVATED. KNOW YOUR RISK IS A SIMPLE AND
INTER ACTIVE WEBSITE THAT WILL HELP PEOPLE SELF- ASSESS
THEIR RISK OF DEVELOPING BOWEL CANCER BASED ON A
SERIES OF QUESTIONS ABOUT THEIR FA MILY HISTORY.



After working through the website, the user will be provided with a personalised
assessment of their bowel cancer risk which they are encouraged to discuss
with their doctor and other family members.


We are grateful to the CSIRO for working through the complex algorithms that
calculate whether a person has an elevated risk. This challenge has delayed
the project but with the development phase now largely completed, we are
moving towards testing the website before it is launched later this year.


We also thank the Cancer Council SA for their invaluable knowledge and
management of the project. The collaboration on this project has been
enjoyable and we look forward to working with them on future stages of
the website.
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —            — PAGE 39 —




                      RESEARCH PROJECTS



                  THE JODI LEE FOUNDATION
                  PHD RESEARCH FELLOWSHIP

T H E J O D I L EE F O U N DAT I O N P H D R ES E A RC H FEL LOWS H I P
AT    CU RT I N     U N I V ERS I T Y       IS    A     T H R EE      YEAR        P ROJ E C T
I N V ES T I GAT I N G T H E RO L E O F T H E PH A R M AC I S T I N T H E
E A R LY D E T E C T I O N O F B OW EL C A N C ER .



Many people approach their pharmacist with symptoms like diarrhoea,
rectal bleeding and constipation and unfortunately these complaints are not
recognised as symptoms of bowel cancer by the patient or pharmacists. In
fact, 19 per cent of people have lower bowel symptoms and yet only one in
three will consult their doctor.


The project will develop an effective method for pharmacists to promote
medical consultation to patients who visit pharmacies seeking treatment for
significant symptoms of chronic and life limiting lower bowel disease.




                            MARKET RESEARCH

The grant awarded to us by the Federal Government presented a unique
opportunity to research the behaviour that motivates or prevents people from
participating in home bowel screening programs. Working with the Bowel
Screening Section of the Australian Government Department of Health and
Ageing, the project focuses on the behaviour of people aged 45 to 55 and
will give us insight into how we can improve the uptake of screening in this
age group.


The research is due to be completed in December 2012 and will no doubt
influence the communications strategy of The Jodi Lee Foundation as well as
the NBCSP.
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                                   — PA GE 41 —




OUR PEOPLE AND SUPPORTERS                                                                                      CONSULTANT S

                                                                                       We have continued to work with the same fabulous team of public relations,
                                                                                       social media and advertising consultants. After two years, they are well
                                  OUR TEAM                                             versed in our key messages and business strategy. They have been invaluable
                                                                                       and are a joy to work with.

                                      NICK LEE                                         As well, Rebecca Dowling has offered her services as our bookkeeper.
                                   FOUNDER & CEO                                       Rebecca has her own bookkeeping business but takes time out of her busy
                                                                                       schedule to manage our accounts.
Nick is primarily responsible for promoting our Corporate Bowel Screening
Program and developing stakeholder relationships. So far, he has participated
                                                                                       We have been especially overwhelmed by the pro-bono support received
in every one of our events … the Simpson Desert Challenge might test him!
                                                                                       from 50 Kaliber Films. The team at 50 Kaliber have created three beautiful
                                                                                       short films to help us spread our early detetcion message and they are
                                                                                       working on another to be released soon. The films are invaluable and we

                               TIFFANY YOUNG                                           cannot thank them enough.

                       COMMUNICATIONS & FINANCE

Tiffany’s responsibilities include building and managing our brand and
communications. She also manages our legal and finance roles. It is high
time Tiffany pulled on a tutu and hopped on a bike!




                            NICOLE ANDERSON
             FUNDRAISING & PROGRAMS COORDINATOR

Nicole joined us in February 2012 and has been a valuable addition to our
team. She is busy coordinating our Corporate Bowel Screening Program and                                      THE $20K CLUB
liaises with our event participants to make sure they are well equipped to
fundraise and build awareness of bowel cancer.
                                                                                       These people have individually raised over $20,000 for The Jodi Lee
                                                                                       Foundation – an incredible feat. This year’s outstanding achievement came
                                                                                       from Sam Fischer, riding over 1,000kms from Canberra to Melbourne and
                           ELISSA O’DONOHUE                                            raising $32,220.
             EVENTS & ADMINISTRATION COORDINATOR

As well as organising our events and performing an administration function,
                                                                                                                      TODD BROWN
Elissa has taken responsibility for our social media platforms. She also
                                                                                                                     ALISTAIR CAVILL
coordinates the development and distribution of all of our promotional materials.
                                                                                                                      SCOT T ELVISH
                                                                                                                      SA M FISCHER
                                                                                                               ROSEM ARY HOCKING
                                                                                                                        NICK LEE
                                                                                                             ANDY AND SA M MCK AY
                                                                                                                     ANDREW POOLE
                                                                                                                     RICHARD TURNER
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                                 — PAGE 43 —




               MEDICAL PROFESSIONALS                                                             PROFESSIONAL ADVISERS

We are proud to have the support of some of Adelaide’s most recognised                The Jodi Lee Foundation relies on the professional advice provided by
colorectal specialists behind The Jodi Lee Foundation. We work closely with           the following companies. Their services are provided pro bono, for
each of them to ensure that the information we provide is relevant, accurate          which we are very grateful.
and current. Their assistance is provided on a voluntary basis.
                                                                                                                       AUDIT

                                                                                                     MARCUS LOJSZCZYK,
                            DR ANDREW LUCK                                                        RE OUANO & TRISTAN SHAW
                                                                                                       PRICEWATERHOUSECOOPERS
                            COLORECTAL SURGEON
LY E L L M C E W I N H O SP I TA L A N D P RE S I D E N T O F T H E CO L O REC TA L
        SURGICAL SOCIETY OF AUSTRALIA & NEW ZEALAND
                                                                                                                       LEGAL

                                                                                             GARRY WINTER, CAMILLA MITTIGA
                 PROFESSOR GRAEME YOUNG
                                                                                                    & DANIEL KILEY
        PROFESSOR OF GLOBAL GASTROINTESTINAL HE ALTH
                                                                                                                    K E L LY & CO
                             FLINDERS UNIVERSITY


                                                                                           ACCOUNTING AND COMPANY SECRETARIAL SERVICES
                                 MOYEZ JIWA
               PROFESSOR OF HE ALTH INNOVATION AT
                                                                                               BEN L ATHLEAN, KYLIE OSBORNE
                 CURTIN UNIVERSITY OF TECHNOLOGY
                                                                                                      & AGNES DOSTAN
                                                                                                         C AVILL P OWER PRO DUC T S


                         DR TABITHA HEALEY
                                                                                                        STRATEGIC BUSINESS ADVICE
                       NORTH ADELAIDE ONCOLOGY
                                                                                                       JULIANNE PARKINSON
                                                                                                              ERNST & YOUNG
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                                            — PAGE 45 —




                        OUR DIRECTORS



THE    JODI      LEE     FOUNDATION                 IS    GOVERNED                 BY    A                          DR. ANDREW LUCK
CORPOR ATE TRUSTEE WHICH HAS FIVE DIRECTORS. THE
DIRECTORS MEET QUARTERLY AND ARE REPONSIBLE                                                   Andrew replaced Dr Jim Young as our medical consultant from May
FOR    REVIEWING             PROPOSALS             FROM         THE      JODI           LEE   2012. He brings to our Board a wealth of knowledge and passion for
FOUNDATION EXECUTIVE TEA M, CONDUCTING SAL ARY                                                the early detection of bowel cancer through screening. Andrew is a
BENCHM ARKING                AND       MONITORING                 THE      OVER ALL           colorectal surgeon at the Lyell McEwin Hospital in Adelaide’s north. He
FINANCIAL PERFOR M ANCE OF THE FOUNDATION TO                                                  is the President of the Colorectal Surgical Society of Australia and
ENSURE ITS ONGOING SUSTAINABILIT Y.                                                           New Zealand and currently holds positions on the Training Board in
                                                                                              Colorectal Surgery (Australia and New Zealand) and the Federation of
                                                                                              Gastrointestinal Societies of Australia.
                                  NICK LEE

Nick is Jodi’s husband. He and Jodi were together for 14 years and
have children, Jack and Arabella. He has 17 years experience in the
fast moving consumer goods industry and was a Director of Unilever                                                         CHRIS LEE
Australasia. He has worked in the United Kingdom, Asia and Australia.
Prior to The Jodi Lee Foundation, Nick personally raised over $50,000                         After 25 years in private legal practice, Chris served as a judge of the

for cancer by participating in Tour Down Under cycling events and the                         Industrial Court of South Australia for 10 years and then as a judge

Gold Coast Marathon.                                                                          of the District Court of South Australia for 15 years. Since retiring in
                                                                                              2006, he has served in the part time position of President of the Racing
                                                                                              Appeals Tribunal of South Australia. He resigned as a director of The
                                                                                              Jodi Lee Foundation in September 2012. Chris was Jodi’s father-in-law.

                           TIFFANY YOUNG

A friend of Jodi’s, Tiffany is dedicated to raising awareness about bowel
cancer and the importance of early detection for survival. Tiffany has a                                              MARK BUTCHER
business degree and is a member of the Institute of Chartered Accountants
with over 15 years experience in tax advisory and compliance work for                         Mark was appointed as a director in September 2012, replacing Chris

large businesses. Tiffany worked for Deloitte for many years and more                         Lee. Mark is Chair of Ernst & Young’s SA Advisory Board and Deputy

recently consulted to listed and unlisted property funds.                                     Chairman of Minter Ellison. He also an Executive Director at Penmarric
                                                                                              Capital, a boutique advisory business providing specialist solutions to
                                                                                              corporate and government clients. His commercial acumen and strategic
                                                                                              expertise will be invaluable to The Jodi Lee Foundation.

                          A L ISTA I R C AV I L L

Alistair is a friend of the Lee family and an active fundraiser for cancer
related initiatives. In June 2011, he competed in the Gobi March, a
250km foot race across China’s Gobi Desert, raising over $33,000
for The Jodi Lee Foundation. Alistair is the Managing Director of Cavill
Power Products Pty Ltd, the Caterpillar Dealer for South Australia.
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                                — PAGE 47 —




                               EVENTS




THE PAST YEAR’S EVENTS WERE OUR PRIM ARY SOURCE
OF FUNDR AISING BUT ALSO PL AYED AN IMPORTANT
ROLE IN R AISING AWARENESS ABOUT BOWEL CANCER
AND THE PROFILE OF THE JODI LEE FOUNDATION. HALF
OF THE STORIES THAT APPEARED IN THE MEDIA ABOUT
THE FOUNDATION THIS YEAR WERE DIRECTLY REL ATED
TO RIDE FOR THE LIT TLE BL ACK DRESS. THE BOYS ARE
ALWAYS HAPPY TO THROW ON A LIT TLE BL ACK TUTU
FOR THE CA MER A.



In addition to Foundation events, we are thrilled to have a number
                                                                                                             C I T Y T O B AY
of volunteers who don the t-shirt, tutu and tats (fake tatoos of course)
and run, hike and swim – sometimes all in the same event – and all                 Not all of our events involve extreme sport and cocktails! Last year, 30
in the name of bowel cancer. A special thanks to Tory Toogood,                     people (children included) participated in Adelaide’s City to Bay – easy
Anthony Hillier, Andrew Read, Ben Williams and Peter Grant for their               when you know there’s a yummy breakfast waiting for you at the end. A
unwavering support.                                                                special thank you to Graham and Susie Hooper for manning the barbeque.

Every event encapsulates the vitality of The Jodi Lee Foundation. Our
events encourge exercise, health and wellbeing which we know is a
key component to reducing the risk of bowel cancer and other diseases.
                                                                                                  BODY BAL ANCE OUTDOORS

                                                                                   On a sunny Sunday morning in October, Tim Jenner from Enjoy Fitness
                                                                                   kindly hosted Body Balance Outdoors – a pop-up mix of yoga, tai chi
          WHY THE LITTLE BLACK DRESS?                                              and pilates that builds flexibility and strength. Around 50 people had
                                                                                   fun at this energetic work-out in Richards Park, Magill.
                  Jodi loved a little black dress.
             In 2009, her friends in Vietnam threw
           a Little Black Dress Party to raise money
          for her care. Since then, Little Black Dress
         parties have been held in Adelaide, Sydney,
             Melbourne, Brisbane, Singapore and
            Ho Chi Minh. All our event participants
           wear little black tutus in her honour and
           the little black dress is fast becoming an
          iconic symbol of The Jodi Lee Foundation.
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —   — PAGE 49 —




                    NEW YORK M ARATHON
                            4 NOVEMBER 2011


                                 THE TEAM:

                             BRENDAN SHARP
                             ANDREW MCK AY
                          VICTORIA TOOGOOD
                         BRIT T HETHERINGTON
                            DONNA HARDING
                              NATALIE BA ACK
                                  KEN BASHA
                             M AT THEW BASSO
                                 TODD BROW
                            ROBERT CA MERON
                                SCOT T ELVISH
                               TOM HEDDITCH
                         NICHOL AS HOCKING
                         ROSEM ARY HOCKING
                               NICHOL AS LEE
                              LEANNE M ARCH
                               SARA MORBEY
                               RAKESH SINHA
                               JA MES YOUNG


Our team included 21 runners this year … and yes they were wearing
little black tutus! This group of incredible friends of the Foundation
raised an astonishing $230,895, far surpassing our expectations.


Some, like Nick, were seasoned runners but for most it was their first
ever marathon.


Since New York, Tory Toogood has challenged herself to run seven
marathons across seven continents and also regularly blogs about
women’s health and The Jodi Lee Foundation. Britt Hetherington has
completed in two other marathons with more to come. Keep it up girls!
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —   — PAGE 51 —




       RIDE FOR THE LITTLE BLACK DRESS
    CANBERR A TO MELBOURNE M ARCH 10TH – 16TH



                                 THE TEAM:

                                    NICK LEE
                               PAUL HOT TON
                            WAYNE HARDING
                      JUSTIN STEWART- R AT TR AY
                           M AT T Y HOPKINSON
                                SA M FISCHER
                              STEPHEN TILLEY
                                  ROB JONES
                              ROBBIE DOL AN
                             RICHARD TURNER
                              PETER MCLUCAS
                                PETER GR ANT
                                 PAUL GR ANT
                              MICHAEL LONG
                             LINCOLN HARRIS
                              JUSTIN HOT TON
                                 JA MES READ
                                 GED WALSH
                             ANDREW POOLE
                               A ARON M AYES



On Saturday 10th March, a team of 21 cyclists and four support crew
left Canberra in little black tutus bound for Melbourne. Dr Andrew
Leigh MP joined the team for an honorary lap around Parliament
House and at 10.30am ACT Chief Minister Katy Gallagher cut the
ribbon and officially sent them on their way.


Riders came from overseas and interstate to participate, with many
sticking a small picture of Jodi on their handlebars as a reminder of
why they were there. These special blokes raised over $183,000 to
support our initiatives.
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                                    — PAGE 53 —




                                                                            The route covered over 1,000km and travelled through some of the most
                                                                            spectacular and challenging terrain across New South Wales and Victoria
                                                                            including the Snowy Mountains and a full day on Mount Buller. It finished
                                                                            with a rip-roaring Little Black Dress Party in Melbourne on the final day.


                                                                            The event was kindly captured by 50 Kaliber Films and can be seen on
                                                                            our YouTube and Vimeo channels. This film has been invaluable in raising
                                                                            awareness of bowel cancer – a big thank you to 50 Kaliber Films.


                                                                            A special thank you goes to Andrew Poole for organising this incredible event
                                                                            once again.




                                                                                          THE LIT TLE BL ACK DRESS PART Y

                                                                            Over 200 people attended our annual Little Black Dress Party at St Mark’s
                                                                            College in North Adelaide. Jazz band Seventh Day Miracles were fabulous
                                                                            and a great night was had by all despite the ominous February weather.


                                                                            As major sponsor, Art Equity hosted an exhibition of Australia’s emerging artists,
                                                                            including big names such as Ping Chen, Morten Lassen and Jasper Knight.


                                                                            Hamish McLachlan, Master of Ceremonies, kept guests on their toes all night
                                                                            and almost $15,000 was raised through our silent auction which included:


                                                                                A renovation package by ResourceCo


                                                                                Men’s watch by James Thredgold Jeweller


                                                                                Jasper Knight painting by Art Equity


                                                                                AFL footy experience


                                                                                Adelaide Fringe tickets.


                                                                            Once again, we were treated to cocktails donated by Diageo, sparkling by
                                                                            Bird in Hand and Mosquito Hill Wines and delicious canapés prepared by
                                                                            Extreme Cuisine. Wines were kindly donated by Fox Gordon and Reschke.
— T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W —                                — PAGE 55 —




                    REPORT FROM
                   THE DIRECTORS



OVER THE PAST YEAR, THE DIRECTORS FOCUSSED THEIR                                    are comfortable that the remuneration paid is comparable to similar
  AT TENTION ON THE FOLLOWING RESPONSIBILITIES:                                     sized organisations and is commensurate with the value delivered to
                                                                                    the Foundation. Our management team and staff have delivered in
    Reviewing the Foundation’s business strategy to ensure delivery of              spades and are unquestionably committed to our cause.
    our key objectives
                                                                                    We are pleased that Nick Lee has agreed to continue to devote his
    Ensuring we have the right management team in place to deliver                  time and energy to the work of the Foundation for another year. His
    the strategy                                                                    firsthand experience with the devastating consequences of bowel
                                                                                    cancer and his determination to see a marked improvement in survival
    Ensuring the effective investment of money entrusted to us                      rates make him the very best choice for the CEO position.

    Ensuring transparency of our activities and performance to key                  Transparency is one of our core values and we place a great level
    stakeholders                                                                    of importance on ensuring we earn the trust and confidence of the
                                                                                    community through impeccable governance and transparent activity.
We are confident this report delivers information that supports our view
that the Foundation is delivering results and operating in a way that               In the year ahead, we will focus on expanding the geographical base
will sustain its activities in the future.                                          of our fundraising activities and soliciting greater corporate support for
                                                                                    our initiatives. The Foundation’s Corporate Bowel Screening Program
From a financial perspective we have had a remarkably successful
                                                                                    is successfully introducing screening to a larger number of people than
year. Income nearly doubled to $585,659 in a tough market for
                                                                                    would otherwise have been exposed to the test and we are working
fundraising. This has allowed the Foundation to expand its programs
                                                                                    hard on ways to improve participation rates. Positive tests are resulting
and deliver some outstanding results. Our activities will save more lives
                                                                                    in early action being taken by people to prevent the onset of bowel
as we gain momentum.
                                                                                    cancer which aligns with our mission.

We can only deliver these results with financial support and we will
                                                                                    On behalf of the Directors of The Jodi Lee Foundation, I thank all of
continue to muster greater levels of support in the year ahead. We were
                                                                                    our supporters for their contribution to our success. Bowel cancer is
thrilled to be awarded the Federal Government grant of $50,000 to
                                                                                    the second leading cause of cancer-related death in Australia despite
help us further promote the importance of bowel screening. This is a
                                                                                    being 90 per cent curable if detected early. The level of awareness
clear vote of confidence in our ability to engage with the community
                                                                                    surrounding bowel cancer in the community is unacceptably low, but
and spread our key message – the early detection of bowel cancer
                                                                                    will be improved with your help.
saves lives. We are particularly proud of this recognition and the
exposure this success has given bowel cancer screening in Australia.


Of course, our bowel cancer initiatives come at a cost. The Directors
are committed to ensuring each initiative is result-oriented and
delivered at a reasonable cost. A key component of our costs is staff
remuneration which is reviewed annually by an independent director
committee and supported by reports from external consultants. We                    ALISTAIR C AVILL
                                                                                    DIRECTOR
2012 Annual Review
2012 Annual Review
2012 Annual Review
2012 Annual Review
2012 Annual Review
2012 Annual Review
2012 Annual Review
2012 Annual Review
2012 Annual Review
2012 Annual Review
2012 Annual Review

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2012 Annual Review

  • 2.
  • 3. — PAGE 5 — JODI’S STORY SIT TING YOUR CHILDREN DOWN TO TELL THEM YOU’RE GOING TO DIE IS SOMETHING NO PARENT SHOULD HAVE TO FACE – BUT IT WAS THE DEVASTATING TRUTH FOR JODI LEE. Jodi and Nick had been happily together for 10 years when in 2006 they embarked on an exciting chapter and moved to Vietnam with their two children Jack, four and Arabella, two. They were having the time of their lives. Nick was away working when Jodi rang complaining of constipation, abdominal pain and some bloating. The next morning, Jodi’s doctor recognised an obstruction in her bowel and ordered scans. Jodi had bowel cancer and the tumour had all but blocked her bowel. She was only 39 years old. Just before midnight she was airlifted from Ho Chi Minh to Bangkok for emergency surgery. She was flown at low level due to the risk of her bowel bursting from altitude pressure. The operation was very successful but three days later Nick and Jodi received the worst news possible – Jodi was diagnosed with Stage IV bowel cancer and it had spread to her lymph and liver. At best, she only had two years to live. The hardest thing of all was telling their children that their mum was going to die. Jodi passed away on 16 January 2010. Before Jodi’s diagnosis she was fit and healthy. She had no symptoms whatsoever, which is typical of bowel cancer. Jodi is deeply missed. Her smile, sparkling eyes and her wicked sense of humour drew people to her. She was a truly special person who gave so much of herself to others. The saddest part of all is that Jodi’s story could have had a different outcome if her cancer had been detected early. With that simple fact as the driving force, The Jodi Lee Foundation was established in 2010, in honour of Jodi, with the sole purpose of saving lives through increasing awareness and encouraging early detection for the prevention of bowel cancer.
  • 4. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 7 — CONTENTS CEO’S LETTER ABOUT THE JODI LEE FOUNDATION OUR OBJECTIVES OUR VALUES OUR YEAR IN REVIEW THE YEAR AHEAD T H E E A R LY D E T E C T I O N O F B OW E L C A N CE R SAV ES L I V ES TOM’S STORY OUR INITIATIVES OUR PEOPLE AND SUPPORTERS EVENTS REPORT FROM DIRECTORS FINANCIAL STATEMENTS
  • 5. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 9 — CEO’S LETTER ONCE AGAIN, I HAVE BEEN OVERWHEL MED BY THE I thank the Foundation’s Directors for their ongoing and tireless REM ARK ABLE ACHIEVEMENTS OF THE JODI LEE contribution and support throughout the year. Their level of engagement FOUNDATION, ALL OF WHICH HAVE SURPASSED MY is very much appreciated. Recent changes have seen Andrew Luck EXPECTATIONS. WE ARE A SM ALL TEA M M AKING A replace Jim Young as our medical expert and Mark Butcher is soon to BIG DIFFERENCE THANKS TO THE L ARGE A MOUNT OF replace Chris Lee. Both Jim and Chris have made significant contributions SUPPORT WE RECEIVE. TOGETHER WE CAN M AKE A on a personal and professional level from the very beginning and we DIFFERENCE TO THE HEALTH AND WELLBEING OF SO welcome their ongoing support of the Foundation. M ANY PEOPLE. It is very important to us that we can clearly justify and substantiate how we spend the donations we receive. At $585,659 our income from In less than two years we have raised close to $1 million at a time when fundraising and grants exceeded our budget for the year. Although our many not for profit organisations are feeling the effects of an uncertain operating costs remain competitive within the industry, at 13 per cent of economic environment. We have a strong and engaged community; gross income it is the one delierable we did not achieve this year. Our we’ve implemented initiatives focussed on improving the early detection target was 9 per cent and over the next 12 months we will implement of bowel cancer; and have been recognised by the Australian Federal processes to improve efficiency and look for increased corporate Government for our work in this area. support to help keep these costs on target. The success of the Foundation would not be possible without the input of You will see some exciting initiatives from the Foundation as we expand our many supporters who play key roles in our early detection drive. I am our fight against bowel cancer, however rest assured our overriding constantly amazed at how generous and passionate many organisations strategy and direction for the next year will not change. We know early are towards this cause. We owe them our thanks and gratitude. detection is the best way to save lives and for that reason it remains our primary focus. Through our events we not only raise money for our initiatives, but also awareness of bowel cancer. Personally, I get great satisfaction Above all, I urge you to take a screening test - it might just save your life! from the positive life changing stories told by so many of the athletes participating in our events. One which particularly resonates with me is Tom’s incredible story which we encourage everyone to read. Hopefully it will help drive home that age is irrelevant in some cases, and everyone should be encouraged to take a simple bowel screening test. Stories like Tom’s and others increase our resolve to save more lives. I am frustrated that we haven’t been able to encourage more people NICK LEE to screen through our Corporate Bowel Screening Program, but will focus on improving participation in the coming year. I had definitely underestimated the enormity of this challenge! Even friends that know Jodi’s struggle well neglect to take the test. It’s hard to comprehend.
  • 6. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — P A G E 11 — ABOUT THE JODI LEE FOUNDATION OUR OBJECTIVES Our key objectives are focussed on reducing the prevalence of bowel cancer in Australia. We are commtted to: Promoting awareness about the high incidence of bowel cancer in Australia Educating our community about the importance of bowel screening and the tests available Improving the uptake of regular and appropriate screening for bowel cancer by all people from age 40 To achieve these objectives, we channel our resources into the following initiatives: Advertising, public relations campaigns and our events which raise awareness about the high incidence of bowel cancer in Australia and promote early detection as a solution Our Corporate Bowel Screening Program through which businesses and organisations can educate individuals about bowel cancer and distribute bowel screening tests Know Your Risk – a website that allows people to record their family history of bowel cancer and self assess whether their risk of developing the disease is elevated Research projects to improve the early detection of bowel cancer and participation in screening programs
  • 7. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PA G E 13 — O U R VA L U ES OUR YEAR IN REVIEW VITALIT Y HIGHLIGHTS Vitality defines who we are and what we do. As well as the exuberance and energy expressed by the people around us, vitality is demonstrated J U LY through our events in many ways – the challenge to push personal RELAUNCHED THE WEBSITE boundaries; the commitment to train; the support shown by family and friends and the sense of achievement on completing an event. SEPTEMBER EVENT PAGES GO LIVE ON OUR WEBSITE INTEGRITY NOVEMBER NEW YORK MARATHON RAISES We commit to act with integrity all times. We will consistently strive to achieve our objectives and will invest in those initiatives we believe will improve the uptake of bowel screening in Australia. It is important $230,174 that our supporters, both financial and those providing non-monetary support, are confident their money will be invested in the best possible DECEMBER way and will achieve the best possible results. TOM’S STO RY – THANK YO U FO R SAVIN G MY LIFE FEBRUARY LIT TLE BL ACK DRESS PART Y IN ADEL AIDE TRANSPARENC Y We will be transparent about what we do, how we choose to invest MARCH in bowel cancer initiatives and the results expected and achieved. RIDE FOR THE LITTLE BLACK DRESS RAISES Through transparency we can build public trust and confidence in The Jodi Lee Foundation. $183,652 M AY FEDERAL GOVERNMENT ANNOUNCES GRANT OF $50,000 JUNE CORPORATE BOWEL SCREENING PROGRAM O FFI C I A L LY L AU N C H E D I N S A , V I C & N SW
  • 8. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — P A G E 15 — 2012 WE ARE PLEASED TO BE ABLE TO REPORT A SUCCESSFUL YEAR IN 2012, OUR FIRST FULL YEAR OF OPER ATION. OUR FUNDR AISING EXCEEDED OUR PROJECTIONS IN L ARGE PART DUE TO THE 2011 NEW YORK M AR ATHON FINANCIAL RESULTS & PROJECTIONS AND RIDE FOR THE LIT TLE BL ACK DRESS R AISING AN INCREDIBLE $230,174 AND $183,652 RESPECTIVELY. PROJEC TIONS GROSS YEAR ENDED GROSS 11 MONTHS TO GROSS 2012 INCOME 30 JUNE 2012 INCOME 30 JUNE 2011 INCOME The numbers were also buoyed by the $50,000 grant announced ($) % ($) % ($) % in May by Deputy Prime Minister and Treasurer, the Hon Wayne Swan MP and Minister for Health, the Hon Tanya Plibersek MP. The announcement came as a complete surprise to us and is a wonderful GROSS FUNDRAISING AND GRANT INCOME 564,000 585,659 298,520 recognition of the work we are doing to raise awareness of bowel cancer in Australia. ALLOCATED TO: Importantly, exceeding our fundraising target for the year meant we PROGRAMS & INITIATIVES 380,000 67% 378,118 65% 27,614 9% were able to fund our initiatives and operations predominantly with money raised through the year resulting in the retention of valuable cash resources at year end. This also ensures the sustainability of The FUNDRAISING & EVENTS 146,000 26% 149,224 25% 87,449 29% Jodi Lee Foundation into the 2013 year. OTHER OPERATING COSTS 51,000 9% 73,244 13% 19,631 7% As a percentage of gross income, our operating costs were slightly higher than the projected 9 per cent. This is largely due to the rapid increase in our activities. In our second year we have already TOTAL COSTS 577,000 600,586 134,694 achieved some of the milestones set for our third and fourth year of operating. With this has come an increased volume in general office tasks. However, we have made appropriate changes to our resourcing Not e: T he t able includes t he cost of capit alised as set s and excludes interest income and depreciat ion to keep these costs to around 10 per cent of gross income and will monitor them closely during the 2013 year.
  • 9. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — P A G E 17 — THE YEAR AHEAD INITIATIVES We have set some tough but achieveable targets for the year ahead. Screen 5000 people through expansion of our Corporate Bowel Our income target of $725,000 will be challenging and is dependant Screening Program on us attracting new participants in our events and a greater level of corporate sponsorship for both our events and importantly, our initiatives. Launch the Know Your Risk website We continue to focus on the early detection of bowel cancer as our Stakeholder engagement to expand the network of organisations key message. The message is consistently reinforced through our online supporting the Foundation presence and public relations activities and defines our initiatives – Lobby Federal and State Governments to increase public our research projects, Know Your Risk website and Corporate Bowel awareness of bowel cancer and the importance of early detection Screening Program – all focussed on the early detetcion of bowel cancer. Online campaigns to increase awareness of bowel cancer and Growth of the Foundation’s business to the eastern states during 2013 is promote early detection as a solution in line with our five year business strategy. We have already had some success with the Corporate Bowel Screening Program interstate and will Research project in conjunction with the Federal Government’s continue to promote its benefits to businesses in Melbourne and Sydney Department of Health and Ageing to discover why so few people through the 2013 year. aged 45 to 55 participate in home screening programs PROJECTED COSTS EVENTS AUGUST & APRIL OPER ATING EXPENSES RIDE FOR THE LITTLE BLACK DRESS $88,117 VIETNAM COMMUNIT Y AWARENESS NOVEMBER $278,354 NEW YORK MARATHON 11% AUGUST, SEPTEMBER, JANUARY 35% LIT TLE BL ACK DRESS PARTIES FUNDR AISING & EVENTS $210,150 26% VIETNAM, SINGAPORE AND ADELAIDE MARCH RIDE FOR THE LITTLE BLACK DRESS 2% 16% 10% BYRON BAY TO BONDI JUNE KNOW YOUR RISK $17,850 SIMPSON DESERT CHALLENGE RESEARCH PROJEC TS CORPOR ATE BOWEL SCREENING PROGR AM $81,450 $121,300
  • 10. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PA G E 19 — T HE E ARLY DE T EC T ION OF The thousands of Australians diagnosed and dying from bowel cancer every year is unacceptably high for a cancer that typically BOWEL C ANCER SAVES LIVES develops slowly and is 90 per cent curable if diagnosed early. We are determined to reduce the incidence of bowel cancer based on undisputed evidence that early detection of the disease saves lives. E A R LY S TA G E B O W E L C A N C E R ONE IN 12 AUSTRALIANS WILL DEVELOP BOWEL CANCER C A N B E S U C C E S S F U L LY T R E AT E D IN THEIR LIFETIME AND 5,000 DIE FROM THE DISEASE EVEY THROUGH SURGERY YEAR. BOWEL CANCER IS AUSTRALIA’S SINGLE MOST COMMON INTERNAL CANCER AND IS THE SECOND E A R LY S TAG E D I AG N O S I S LEADING CAUSE OF CANCER-RELATED DEATH AFTER LUNG CANCER. IT IS THE SECOND MOST COMMONLY DIAGNOSED INTERNAL CANCER AFTER BREAST CANCER 90% IN WOMEN AND PROSTATE CANCER IN MEN. PEOPLE CHANCE OF SURVIVING 5 YEARS UNDERSTAND THE IMPORTANCE OF FREQUENTLY SCREENING FOR BREAST AND PROSTATE CANCER YET, L ATE STAGE DIAGNOSIS DESPITE THE STATISTICS, VERY FEW PEOPLE TAKE ACTION TO PROTECT THEMSELVES AGAINST BOWEL CANCER. 15% CHANCE OF SURVIVING 5 YEARS Over 14,000 people were diagnosed with bowel cancer in 2008 – that’s 274 new cases every week This is projected to increase to 20,000 cases diagnosed annually by 2020 Typically, bowel cancer does not present with symptoms and often once symptoms start to develop, the cancer has spread to other parts of the body making it more difficult to treat and cure. Reportedly, up to 15 per cent of patients with a positive screening test result had experienced significant symptoms which they had not acted upon. Knowing the A positive FOB test result doesn’t always symptoms and acting on them quickly is mean cancer. There’s up to 50 per cent equally as important as screening for chance that it’s a polyp and less that the early detection of bowel cancer. 10 per cent chance that it’s bowel cancer
  • 11. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 21 — OUR RECOM MENDATION WE RECOGNISE THAT PEOPLE MAY CHOSE TO PARTICIPATE When fully implemented the NBCSP will offer biennial screening to all IN THE N AT I O N A L B OW EL C A N C ER S C R EEN I N G Australians aged between 50 and 74 and will undoubtedly improve PROGRAM (NBCSP) OR PREFER TO SCREEN THROUGH the early detection of bowel cancer in Australia. It is believed that COLONOSCOPY FROM AGE 50. WHILST WE FULLY SUPPORT it could save as many as 30 Australian lives every week. However, THESE SCREENING PROGRAMS, OUR RECOMMENDATION the full expansion of the program is not currently scheduled until after IS THAT PEOPLE SCREEN FOR BOWEL CANCER USING A 2018. We strongly encourage people to take responsibility for FAECAL OCCULT BLOOD (FOB) TEST (*) ANNUALLY FROM their own health now – make the choice to protect yourself against AGE 40 FOR THE FOLLOWING REASONS: bowel cancer. 1. The risk of developing bowel cancer increases four-fold between FOB TESTS ARE READILY AVAIL ABLE FROM YOUR LOCAL the ages of 40 and 50 and rises sharply after that. Jodi was PHAR M ACY. OUR CHALLENGE REM AINS IN CONVINCING only 39 when she was diagnosed with advanced Stage IV PEOPLE IT IS WORTH TAKING THE TEST. bowel cancer. 2. Although a minority age group, almost 1,000 people under age 50 were diagnosed with bowel cancer in 2008 representing 7 per cent of all diagnoses. Of the 4,047 lives bowel cancer claimed, 184 people were aged between 15 and 49. 800 2000 3. The National Health and Medical Research Council (NHMRC) DIAGNOSES and Gastroenterological Society of Australia (GESA) recommend 600 1500 screening from age 50 at least every second year, but DEATHS DIAGNOSIS preferrably anually. 1000 400 4. FOB tests are not conclusive. They can detect 65 to 90 per cent of cancers and advanced polyps. Screening every year improves the likelihood of the test detecting polyps or bowel 500 200 cancer in its infancy. 5. Forming screening habits in your 40s will improve your chances of 0 0 early detection in your early 50s. 0-4 5-9 10-14 15-19 20-24 25-29 30-34 35-39 40-44 45-49 50-54 55-59 60-64 65-69 70-74 75-79 80-84 85+ AGE Gast roenterological Societ y of A ust ralia, Early Detec t ion, S creening and Sur veillance for Bowel Cancer, T hird Edit ion 2003 Regular screening is not the only way to prevent bowel cancer. A healthy lifstyle will help reduce your risk – including regular exercise, a low-fat diet that is high in vegetables and dietary fibre, * FOB tests may not be suitable for people with symptoms or a family history of bowel cancer, no smoking and avoiding excessive alcohol. or people with bowel cancer, polyps, ulcerative colitis or Chroh’s colitis. No matter what their age, we encourage people in this higher risk category to speak to their doctor immediately about appropriate screening.
  • 12. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 23 — TOM’S STORY commitment to the principles of the JLF and the underlying question of what if something was wrong prevailed and led me to complete the test in the middle of October. The test results arrived on October 21st and read positive for showing blood in my stool. This came as a shock especially being only a couple of weeks until the race and overseas travel. I immediately contacted my GP and made an appointment prior to travel in an effort to calm my nerves. My GP had reassured me that it was unlikely that anything was wrong but due to the positive result he had to refer me to a colorectal specialist where a surveillance colonoscopy would be likely. There was no immediate urgency for this to take place and so I made an appointment with the specialist in early December following the race and overseas travel. Early in November I travelled to the United States of America and completed the NYC marathon in 4 hours 28 minutes and 41 seconds raising a total of $4,935 for the JLF. Sponsors included generous family, friends and work colleagues who were all more than happy to support such a great cause. During my two week trip overseas my upcoming specialist appointment was far from my mind as I was enjoying the sights of NYC and Chicago with my girlfriend and having a great time. Running in the NYC marathon and being involved with the JLF was overall lots of fun and a great experience. Dear Nick, After returning to Australia I met with a colorectal specialist who like my GP When I was offered a position to run for the Jodi Lee Foundation (JLF) in the reassured me that it was unlikely anything was wrong. However, he explained New York City (NYC) Marathon, I could never have imagined I would be the importance of undertaking a surveillance colonoscopy due to the positive writing you a letter such as this. result of the bowel screen test. Early in April 2011 I was advised of an opportunity to run in the NYC Marathon A colonoscopy procedure was conducted with the preparation routine and for the JLF. Little did I know at this stage what a profound impact this invitation going under general anesthetic an unsettling experience. For all concerned and involvement with the JLF would have on my life. the results were expected to be all clear with no issues. Unforfunately this was not the case. From this date general preparations commenced such as training, travel arrangements and fundraising; and throughout the year the JLF maintained To my shock, I was advised by the surgeon after the procedure that too many good communication on all these matters. Amongst the communications from polyps had been found to be removed and counting had stopped at 50. No the JLF was a request that as ambassadors for the Foundation we would cancer was identified, however eight polyps had been removed for biopsy undertake a pharmacy available bowel screen test. and it was likely that some of my lower bowel would have to be removed. I was reluctant to conduct this test due to my age (at the time I was 28 years The following week I met with the surgeon to discuss the colonoscopy and the old) and my good health. Furthermore, I had not ever had any symptoms of pathology results. The discussion was confronting and difficult to accept. In bowel cancer and thought that doing the test would be unnecessary. However, my lower bowel are up to 100 polyps of which some are common and some
  • 13. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 25 — are a much less common polyp which are more likely to develop into bowel cancer in an accelerated manner. Amongst all the facts, research, pathology and discussion I was advised that the only course of action was to remove my lower bowel to prevent the highly likely chance of developing bowel cancer in the near future. A second opinion was sought prior to new years eve where a conservative estimate was that I had a 50 to 100 percent chance of developing bowel cancer in my thirties and that due to the amount of polyps it was more likely to be closer to 100 percent. The advice was clear and the same as the surgeons, removal of the lower bowel was necessary to prevent bowel cancer. I recently met again with the surgeon and will have major surgery to remove my lower bowel. This operation will see me in St Andrews Hospital for approximately five days and recovering at home for at least one month. I share my story with you Nick and The Jodi Lee Foundation as a way of saying thank you. Thank you for saving my life.
  • 14. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 27 — OUR INITIATIVES COMMUNIT Y AWARENESS RAISING AWA R EN ES S OF B OW EL C A N C ER AND Much of what we do every day is talk … we talk about bowel cancer in person, EN CO U R AG I N G R E G U L A R A N D A P P RO P R I AT E S C R EEN I N G in the media, on our social media platforms and as part of our events. We talk to I S T H E K E Y TO AC H I E V I N G O U R M I S S I O N – TO SAV E L I V ES people every day about how they can help improve the awareness of bowel cancer T H RO U G H T H E E A R LY D E T E C T I O N O F B OW EL C A N C ER . and the importance of screening. WE B EL I E V E T H AT WITH ED U C AT I O N WILL CO M E AN I N C R E A S ED U P TA K E I N B OW EL S C R EEN I N G P RO G R A M S. There is a desperate need in Australia for education about bowel cancer and that T H ER E A R E A VA R I E T Y O F WAYS T H AT W E WO R K TO screening can start by taking a simple test at home. Surveys have shown that only I N C R E A S E T H E E A R LY D E T E C T I O N O F B OW EL C A N C ER I N nine per cent of people nominated bowel cancer as the cancer they new most AU S T R A L I A , M O S T O F W H I C H R EQ U I R E A V ERY H A N D S O N about. Even in a survey of our own community, less than half of the people knew A N D D ED I C AT ED A P P ROAC H . the death rate from bowel cancer ranked above breast and prostate cancers, and only 22 per cent knew the procedure for the bowel screening test we recommend. This lack of knowledge leads to low compliance rates in screening programs. One of the main reasons cited for not participating in the Government’s NBCSP 2012 was feeling well and lacking symptoms, even though we know that bowel cancer generally presents without symptoms. This insight verifies our need to improve the level of bowel cancer awareness in Australia. COST OF INITIATIVES, FUNDRAISING AND EVENTS During 2012 we have developed many valuable communication tools including brochures about The Jodi Lee Foundation, our key messages, initiatives and events, DIREC T COSTS RESOURCING and materials to promote our Corporate Bowel Screening Program in the workplace. GROSS GROSS INCOME HOURS INCOME TOTAL ($) % ($) % ($) WEBSITE Our website is a powerful and important tool in raising community awareness. INITIATIVES We have continued to invest in our website to include important information about bowel cancer, personal stories that inspire us every day and an events page, which provides participants with their own fundraising site. This functionality was important COMMUNITY AWARENESS 154,918 26.5% 63,686 915 19% 218,604 to us as it drives event supporters to our website, exposing them to our key messages and leaving them with a little more knowledge about bowel cancer. CORPORATE BOWEL SCREENING PROGRAM 69,856 12.0% 46,125 724 7% 115,981 UNIQUE WEBSITE VISITS (JAN – JUNE) RESEARCH PROJECTS 26,500 4.5% 5,829 77 1.0% 32,329 KNOW YOUR RISK 790 0.1% 10,414 143 1.7% 11,204 5,934 EVENT & FUNDRAISING COSTS 81,430 13.9% 67,794 1,220 11.0% 149,224 TOTAL 333,492 193,848 527,340 Not e: Direc t cost s includes capit alised website cost s
  • 15. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 29 — SOCIAL MEDIA PUBLIC REL ATIONS Our key social media platform and focus to date has been Facebook More than 15 million Australians read or heard about The Jodi Lee where our community has grown to over 1,500 people. We have Foundation this year. We featured in 110 stories, averaging eight per established an engaged community and communicate with them daily month, across print, radio and online media. Images accompanied – posting messages about bowel cancer, our events and updates on 56 per cent of these stories making the stories more likely to be read. our initiatives. Each of our posts are successfully reaching up to 4,000 Just over half of the stories appeared in South Australia, with the others Facebook users, some even more. interstate and 10 per cent in national print media. Over time this will change as we expand our presence in the Eastern states. These messages reach far in excess of our core group of Facebook friends and were seen by more than 724,430 people this year. Our We were also thrilled that an interview with Nick Lee on Radio Adelaide messages were displayed on Facebook pages over 4,800,000 Breakfast with Tim Brunero won an award from the Colorectal Surgery times, the most popular posts being during the week following the Society of Australia and New Zealand. Federal Government press conference in May and Ride for the Little Black Dress event. We are extremely proud of the strong brand awarenss we have built over the past two years and The Jodi Lee Foundation’s public Our social media platforms have expanded to include Twitter, LinkedIn, association with bowel cancer. This gives us a solid foundation to Flickr, YouTube, Vimeo and SlideShare pages. Our increased focus on increase community awareness across Australia over the coming years. Twitter has enabled us to deliver our bowel cancer and early detection messages to an entirely new online community. We already have over Importantly, we have built relationships directly with four Federal 300 followers and are particularly proud of our Twitter Klout (*) score Government Ministers and are working to expand this network which rated as high as 47 during the year. In the last few months, our in 2013. Our Ride for the Little Black Dress event was opened in tweets have reached nearly 50,000 people and appeared 289,000 Canberra by Dr Andrew Leigh MP and ACT Chief Minister, Ms Katy times on Twitter. Gallagher. Andrew Leigh went on to later speak about the event and The Jodi Lee Foundation in his parliamentary address for which we owe him many thanks. FACEBOOK LIKES This relationship had much to do with our invitation for Nick to join 1,522 the Deputy Prime Minister and Treasurer, The Hon Wayne Swan MP, and Minister for Health, The Hon Tanya Plibersek MP, in a national pre-budget announcement to expand the NBSCP. The Foundation was TWITTER REACH also presented with a $50,000 Federal Government grant to continue 48,989 to promote the importance of early detection. (*) Klout measures engagement with our Twitter content. MEDIA STORIES 110
  • 16. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 31 — ADVERTISING The Porcelain Doll advertising campaign appeared in The Weekend Australian Magazine, WISH Magazine and The Canberra Times. The campaign aimed to raise awareness about bowel cancer and provide early detection as a solution. We were pleased to hear that the campaign, created pro bono by ShowPony Advertising, was a finalist in the prestigeous Adelaide Advertising and Design Club Awards. NATIONAL ADVERTISEMENTS 7
  • 17. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 33 — CORPOR ATE BOWEL SCREENING PROGRAM We have set ourselves a huge challenge – to screen 5000 people. SCREEN 5000 The program has been presented to numerous businesses, large and small, and we are confident the Program will be implemented by several of them. Following a successful pilot program in South Australia, the Program was officially launched during Bowel Cancer Awareness Week in June 2012. The multi-faceted launch included a mailout to 250 of Australia’s largest employers; advertising in HR Monthly, the Australian Financial OUR GOAL FOR THE CORPORATE BOWEL SCREENING Review and Business Review Weekly; online advertising campaigns; PROGRAM IN 2012 WAS TO PARTNER WITH AT LEAST and building relationships with corporate networking groups. On top if SIX ORGANISATIONS ACROSS SOUTH AUSTRALIA AND this, we took bowel cancer to the streets in Adelaide, Melbourne and DISTRIBUTE 400 TESTS. FAR EXCEEDING OUR EXPECTATIONS, Sydney with 12 lifesized cardboard cutouts in each city, representing A TOTAL OF 1,235 TESTS WERE DISTRIBUTED DURING THE the one in 12 people who will develop bowel cancer in their lifetime. YEAR BY SIX BUSINESS ES IN SOUTH AUSTRALIA AND VICTORIA. AN ADDITIONAL 400 TESTS WERE PURCHASED AND DISTRIBUTED BY THE FOUNDATION. NEW VISITORS TO OUR WEBSITE The Program has been very well received by organisations that understand the importance of investing in the health and wellbeing of 197 their employees. Disappointingly, of the 1,235 tests distributed, only 112 were completed. This rate is much lower than we had hoped for ONLINE ADVERTISEMENTS APPEARED ON: but with a larger than expected number of positive test results returned, we have no doubt that the program is saving lives. LINKEDIN Clearly, our challenge is convincing people to complete the test and we are looking at several ways to improve compliance. Uptake of the 82,467 TIMES NBCSP was reportedly 39 per cent for males and 47 per cent for GOOGLE females (in 2008). Our goal is to achieve greater than 60 per cent return rate on tests distributed through our Corporate Bowel Screening Program and by continuing to raise awarenss of the disease, we’d 503,682 TIMES hope to see similar results achieved by the NBCSP.
  • 18. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 35 — TESTIMONIALS 1 in 12 Australians will develop bowel cancer in their lifetime Second most common cause of cancer-related SIMON BROWN M ANAGING DIRECTOR, RESOURCECO PT Y LTD The health and wellbeing of our staff is integral to ResourceCo. Understanding the prevalence of bowel cancer, there was no question about providing this screening service to our employees when you What are comprehend that this type of cancer may be prevented if detected early. When offering this service to employees we looked at the extended the odds? family impact of having a member affected by cancer and subsequently included screening of employees’ partners in the offer. The care and concern offered by ResourceCo through the provision of this service certainly aides in maintaining our employees’ satisfaction and morale. REG NELSON M ANAGING DIRECTOR, BEACH ENERGY LTD 1 in 12 Australians will develop bowel cancer Beach Energy is proud to support The Jodi Lee Foundation and the It’s the second most common cause of cancer-related death in work it’s doing in relation to building awareness around bowel cancer and helping with the early detection of bowel cancer. Beach recently provided all employees, and their respective partners, with bowel cancer screening kits. The feedback to date has been strongly supportive of the screening kits and how easy they are to use. Beach looks forward to continuing to support The Jodi Lee Foundation and the outstanding results it has achieved to date in building bowel cancer awareness. What are
  • 19. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 37 — KNOW YOUR RISK IF YOU HAVE HAD CLOSE REL ATIVES DIAGNOSED WITH BOWEL CANCER, YOUR RISK OF DEVELOPING THE DISEASE M AY BE ELEVATED. KNOW YOUR RISK IS A SIMPLE AND INTER ACTIVE WEBSITE THAT WILL HELP PEOPLE SELF- ASSESS THEIR RISK OF DEVELOPING BOWEL CANCER BASED ON A SERIES OF QUESTIONS ABOUT THEIR FA MILY HISTORY. After working through the website, the user will be provided with a personalised assessment of their bowel cancer risk which they are encouraged to discuss with their doctor and other family members. We are grateful to the CSIRO for working through the complex algorithms that calculate whether a person has an elevated risk. This challenge has delayed the project but with the development phase now largely completed, we are moving towards testing the website before it is launched later this year. We also thank the Cancer Council SA for their invaluable knowledge and management of the project. The collaboration on this project has been enjoyable and we look forward to working with them on future stages of the website.
  • 20. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 39 — RESEARCH PROJECTS THE JODI LEE FOUNDATION PHD RESEARCH FELLOWSHIP T H E J O D I L EE F O U N DAT I O N P H D R ES E A RC H FEL LOWS H I P AT CU RT I N U N I V ERS I T Y IS A T H R EE YEAR P ROJ E C T I N V ES T I GAT I N G T H E RO L E O F T H E PH A R M AC I S T I N T H E E A R LY D E T E C T I O N O F B OW EL C A N C ER . Many people approach their pharmacist with symptoms like diarrhoea, rectal bleeding and constipation and unfortunately these complaints are not recognised as symptoms of bowel cancer by the patient or pharmacists. In fact, 19 per cent of people have lower bowel symptoms and yet only one in three will consult their doctor. The project will develop an effective method for pharmacists to promote medical consultation to patients who visit pharmacies seeking treatment for significant symptoms of chronic and life limiting lower bowel disease. MARKET RESEARCH The grant awarded to us by the Federal Government presented a unique opportunity to research the behaviour that motivates or prevents people from participating in home bowel screening programs. Working with the Bowel Screening Section of the Australian Government Department of Health and Ageing, the project focuses on the behaviour of people aged 45 to 55 and will give us insight into how we can improve the uptake of screening in this age group. The research is due to be completed in December 2012 and will no doubt influence the communications strategy of The Jodi Lee Foundation as well as the NBCSP.
  • 21. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PA GE 41 — OUR PEOPLE AND SUPPORTERS CONSULTANT S We have continued to work with the same fabulous team of public relations, social media and advertising consultants. After two years, they are well OUR TEAM versed in our key messages and business strategy. They have been invaluable and are a joy to work with. NICK LEE As well, Rebecca Dowling has offered her services as our bookkeeper. FOUNDER & CEO Rebecca has her own bookkeeping business but takes time out of her busy schedule to manage our accounts. Nick is primarily responsible for promoting our Corporate Bowel Screening Program and developing stakeholder relationships. So far, he has participated We have been especially overwhelmed by the pro-bono support received in every one of our events … the Simpson Desert Challenge might test him! from 50 Kaliber Films. The team at 50 Kaliber have created three beautiful short films to help us spread our early detetcion message and they are working on another to be released soon. The films are invaluable and we TIFFANY YOUNG cannot thank them enough. COMMUNICATIONS & FINANCE Tiffany’s responsibilities include building and managing our brand and communications. She also manages our legal and finance roles. It is high time Tiffany pulled on a tutu and hopped on a bike! NICOLE ANDERSON FUNDRAISING & PROGRAMS COORDINATOR Nicole joined us in February 2012 and has been a valuable addition to our team. She is busy coordinating our Corporate Bowel Screening Program and THE $20K CLUB liaises with our event participants to make sure they are well equipped to fundraise and build awareness of bowel cancer. These people have individually raised over $20,000 for The Jodi Lee Foundation – an incredible feat. This year’s outstanding achievement came from Sam Fischer, riding over 1,000kms from Canberra to Melbourne and ELISSA O’DONOHUE raising $32,220. EVENTS & ADMINISTRATION COORDINATOR As well as organising our events and performing an administration function, TODD BROWN Elissa has taken responsibility for our social media platforms. She also ALISTAIR CAVILL coordinates the development and distribution of all of our promotional materials. SCOT T ELVISH SA M FISCHER ROSEM ARY HOCKING NICK LEE ANDY AND SA M MCK AY ANDREW POOLE RICHARD TURNER
  • 22. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 43 — MEDICAL PROFESSIONALS PROFESSIONAL ADVISERS We are proud to have the support of some of Adelaide’s most recognised The Jodi Lee Foundation relies on the professional advice provided by colorectal specialists behind The Jodi Lee Foundation. We work closely with the following companies. Their services are provided pro bono, for each of them to ensure that the information we provide is relevant, accurate which we are very grateful. and current. Their assistance is provided on a voluntary basis. AUDIT MARCUS LOJSZCZYK, DR ANDREW LUCK RE OUANO & TRISTAN SHAW PRICEWATERHOUSECOOPERS COLORECTAL SURGEON LY E L L M C E W I N H O SP I TA L A N D P RE S I D E N T O F T H E CO L O REC TA L SURGICAL SOCIETY OF AUSTRALIA & NEW ZEALAND LEGAL GARRY WINTER, CAMILLA MITTIGA PROFESSOR GRAEME YOUNG & DANIEL KILEY PROFESSOR OF GLOBAL GASTROINTESTINAL HE ALTH K E L LY & CO FLINDERS UNIVERSITY ACCOUNTING AND COMPANY SECRETARIAL SERVICES MOYEZ JIWA PROFESSOR OF HE ALTH INNOVATION AT BEN L ATHLEAN, KYLIE OSBORNE CURTIN UNIVERSITY OF TECHNOLOGY & AGNES DOSTAN C AVILL P OWER PRO DUC T S DR TABITHA HEALEY STRATEGIC BUSINESS ADVICE NORTH ADELAIDE ONCOLOGY JULIANNE PARKINSON ERNST & YOUNG
  • 23. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 45 — OUR DIRECTORS THE JODI LEE FOUNDATION IS GOVERNED BY A DR. ANDREW LUCK CORPOR ATE TRUSTEE WHICH HAS FIVE DIRECTORS. THE DIRECTORS MEET QUARTERLY AND ARE REPONSIBLE Andrew replaced Dr Jim Young as our medical consultant from May FOR REVIEWING PROPOSALS FROM THE JODI LEE 2012. He brings to our Board a wealth of knowledge and passion for FOUNDATION EXECUTIVE TEA M, CONDUCTING SAL ARY the early detection of bowel cancer through screening. Andrew is a BENCHM ARKING AND MONITORING THE OVER ALL colorectal surgeon at the Lyell McEwin Hospital in Adelaide’s north. He FINANCIAL PERFOR M ANCE OF THE FOUNDATION TO is the President of the Colorectal Surgical Society of Australia and ENSURE ITS ONGOING SUSTAINABILIT Y. New Zealand and currently holds positions on the Training Board in Colorectal Surgery (Australia and New Zealand) and the Federation of Gastrointestinal Societies of Australia. NICK LEE Nick is Jodi’s husband. He and Jodi were together for 14 years and have children, Jack and Arabella. He has 17 years experience in the fast moving consumer goods industry and was a Director of Unilever CHRIS LEE Australasia. He has worked in the United Kingdom, Asia and Australia. Prior to The Jodi Lee Foundation, Nick personally raised over $50,000 After 25 years in private legal practice, Chris served as a judge of the for cancer by participating in Tour Down Under cycling events and the Industrial Court of South Australia for 10 years and then as a judge Gold Coast Marathon. of the District Court of South Australia for 15 years. Since retiring in 2006, he has served in the part time position of President of the Racing Appeals Tribunal of South Australia. He resigned as a director of The Jodi Lee Foundation in September 2012. Chris was Jodi’s father-in-law. TIFFANY YOUNG A friend of Jodi’s, Tiffany is dedicated to raising awareness about bowel cancer and the importance of early detection for survival. Tiffany has a MARK BUTCHER business degree and is a member of the Institute of Chartered Accountants with over 15 years experience in tax advisory and compliance work for Mark was appointed as a director in September 2012, replacing Chris large businesses. Tiffany worked for Deloitte for many years and more Lee. Mark is Chair of Ernst & Young’s SA Advisory Board and Deputy recently consulted to listed and unlisted property funds. Chairman of Minter Ellison. He also an Executive Director at Penmarric Capital, a boutique advisory business providing specialist solutions to corporate and government clients. His commercial acumen and strategic expertise will be invaluable to The Jodi Lee Foundation. A L ISTA I R C AV I L L Alistair is a friend of the Lee family and an active fundraiser for cancer related initiatives. In June 2011, he competed in the Gobi March, a 250km foot race across China’s Gobi Desert, raising over $33,000 for The Jodi Lee Foundation. Alistair is the Managing Director of Cavill Power Products Pty Ltd, the Caterpillar Dealer for South Australia.
  • 24. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 47 — EVENTS THE PAST YEAR’S EVENTS WERE OUR PRIM ARY SOURCE OF FUNDR AISING BUT ALSO PL AYED AN IMPORTANT ROLE IN R AISING AWARENESS ABOUT BOWEL CANCER AND THE PROFILE OF THE JODI LEE FOUNDATION. HALF OF THE STORIES THAT APPEARED IN THE MEDIA ABOUT THE FOUNDATION THIS YEAR WERE DIRECTLY REL ATED TO RIDE FOR THE LIT TLE BL ACK DRESS. THE BOYS ARE ALWAYS HAPPY TO THROW ON A LIT TLE BL ACK TUTU FOR THE CA MER A. In addition to Foundation events, we are thrilled to have a number C I T Y T O B AY of volunteers who don the t-shirt, tutu and tats (fake tatoos of course) and run, hike and swim – sometimes all in the same event – and all Not all of our events involve extreme sport and cocktails! Last year, 30 in the name of bowel cancer. A special thanks to Tory Toogood, people (children included) participated in Adelaide’s City to Bay – easy Anthony Hillier, Andrew Read, Ben Williams and Peter Grant for their when you know there’s a yummy breakfast waiting for you at the end. A unwavering support. special thank you to Graham and Susie Hooper for manning the barbeque. Every event encapsulates the vitality of The Jodi Lee Foundation. Our events encourge exercise, health and wellbeing which we know is a key component to reducing the risk of bowel cancer and other diseases. BODY BAL ANCE OUTDOORS On a sunny Sunday morning in October, Tim Jenner from Enjoy Fitness kindly hosted Body Balance Outdoors – a pop-up mix of yoga, tai chi WHY THE LITTLE BLACK DRESS? and pilates that builds flexibility and strength. Around 50 people had fun at this energetic work-out in Richards Park, Magill. Jodi loved a little black dress. In 2009, her friends in Vietnam threw a Little Black Dress Party to raise money for her care. Since then, Little Black Dress parties have been held in Adelaide, Sydney, Melbourne, Brisbane, Singapore and Ho Chi Minh. All our event participants wear little black tutus in her honour and the little black dress is fast becoming an iconic symbol of The Jodi Lee Foundation.
  • 25. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 49 — NEW YORK M ARATHON 4 NOVEMBER 2011 THE TEAM: BRENDAN SHARP ANDREW MCK AY VICTORIA TOOGOOD BRIT T HETHERINGTON DONNA HARDING NATALIE BA ACK KEN BASHA M AT THEW BASSO TODD BROW ROBERT CA MERON SCOT T ELVISH TOM HEDDITCH NICHOL AS HOCKING ROSEM ARY HOCKING NICHOL AS LEE LEANNE M ARCH SARA MORBEY RAKESH SINHA JA MES YOUNG Our team included 21 runners this year … and yes they were wearing little black tutus! This group of incredible friends of the Foundation raised an astonishing $230,895, far surpassing our expectations. Some, like Nick, were seasoned runners but for most it was their first ever marathon. Since New York, Tory Toogood has challenged herself to run seven marathons across seven continents and also regularly blogs about women’s health and The Jodi Lee Foundation. Britt Hetherington has completed in two other marathons with more to come. Keep it up girls!
  • 26. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 51 — RIDE FOR THE LITTLE BLACK DRESS CANBERR A TO MELBOURNE M ARCH 10TH – 16TH THE TEAM: NICK LEE PAUL HOT TON WAYNE HARDING JUSTIN STEWART- R AT TR AY M AT T Y HOPKINSON SA M FISCHER STEPHEN TILLEY ROB JONES ROBBIE DOL AN RICHARD TURNER PETER MCLUCAS PETER GR ANT PAUL GR ANT MICHAEL LONG LINCOLN HARRIS JUSTIN HOT TON JA MES READ GED WALSH ANDREW POOLE A ARON M AYES On Saturday 10th March, a team of 21 cyclists and four support crew left Canberra in little black tutus bound for Melbourne. Dr Andrew Leigh MP joined the team for an honorary lap around Parliament House and at 10.30am ACT Chief Minister Katy Gallagher cut the ribbon and officially sent them on their way. Riders came from overseas and interstate to participate, with many sticking a small picture of Jodi on their handlebars as a reminder of why they were there. These special blokes raised over $183,000 to support our initiatives.
  • 27. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 53 — The route covered over 1,000km and travelled through some of the most spectacular and challenging terrain across New South Wales and Victoria including the Snowy Mountains and a full day on Mount Buller. It finished with a rip-roaring Little Black Dress Party in Melbourne on the final day. The event was kindly captured by 50 Kaliber Films and can be seen on our YouTube and Vimeo channels. This film has been invaluable in raising awareness of bowel cancer – a big thank you to 50 Kaliber Films. A special thank you goes to Andrew Poole for organising this incredible event once again. THE LIT TLE BL ACK DRESS PART Y Over 200 people attended our annual Little Black Dress Party at St Mark’s College in North Adelaide. Jazz band Seventh Day Miracles were fabulous and a great night was had by all despite the ominous February weather. As major sponsor, Art Equity hosted an exhibition of Australia’s emerging artists, including big names such as Ping Chen, Morten Lassen and Jasper Knight. Hamish McLachlan, Master of Ceremonies, kept guests on their toes all night and almost $15,000 was raised through our silent auction which included: A renovation package by ResourceCo Men’s watch by James Thredgold Jeweller Jasper Knight painting by Art Equity AFL footy experience Adelaide Fringe tickets. Once again, we were treated to cocktails donated by Diageo, sparkling by Bird in Hand and Mosquito Hill Wines and delicious canapés prepared by Extreme Cuisine. Wines were kindly donated by Fox Gordon and Reschke.
  • 28. — T H E J O D I L E E F O U N D A T I O N 2 012 A N N U A L R E V I E W — — PAGE 55 — REPORT FROM THE DIRECTORS OVER THE PAST YEAR, THE DIRECTORS FOCUSSED THEIR are comfortable that the remuneration paid is comparable to similar AT TENTION ON THE FOLLOWING RESPONSIBILITIES: sized organisations and is commensurate with the value delivered to the Foundation. Our management team and staff have delivered in Reviewing the Foundation’s business strategy to ensure delivery of spades and are unquestionably committed to our cause. our key objectives We are pleased that Nick Lee has agreed to continue to devote his Ensuring we have the right management team in place to deliver time and energy to the work of the Foundation for another year. His the strategy firsthand experience with the devastating consequences of bowel cancer and his determination to see a marked improvement in survival Ensuring the effective investment of money entrusted to us rates make him the very best choice for the CEO position. Ensuring transparency of our activities and performance to key Transparency is one of our core values and we place a great level stakeholders of importance on ensuring we earn the trust and confidence of the community through impeccable governance and transparent activity. We are confident this report delivers information that supports our view that the Foundation is delivering results and operating in a way that In the year ahead, we will focus on expanding the geographical base will sustain its activities in the future. of our fundraising activities and soliciting greater corporate support for our initiatives. The Foundation’s Corporate Bowel Screening Program From a financial perspective we have had a remarkably successful is successfully introducing screening to a larger number of people than year. Income nearly doubled to $585,659 in a tough market for would otherwise have been exposed to the test and we are working fundraising. This has allowed the Foundation to expand its programs hard on ways to improve participation rates. Positive tests are resulting and deliver some outstanding results. Our activities will save more lives in early action being taken by people to prevent the onset of bowel as we gain momentum. cancer which aligns with our mission. We can only deliver these results with financial support and we will On behalf of the Directors of The Jodi Lee Foundation, I thank all of continue to muster greater levels of support in the year ahead. We were our supporters for their contribution to our success. Bowel cancer is thrilled to be awarded the Federal Government grant of $50,000 to the second leading cause of cancer-related death in Australia despite help us further promote the importance of bowel screening. This is a being 90 per cent curable if detected early. The level of awareness clear vote of confidence in our ability to engage with the community surrounding bowel cancer in the community is unacceptably low, but and spread our key message – the early detection of bowel cancer will be improved with your help. saves lives. We are particularly proud of this recognition and the exposure this success has given bowel cancer screening in Australia. Of course, our bowel cancer initiatives come at a cost. The Directors are committed to ensuring each initiative is result-oriented and delivered at a reasonable cost. A key component of our costs is staff remuneration which is reviewed annually by an independent director committee and supported by reports from external consultants. We ALISTAIR C AVILL DIRECTOR