1. Daniel’s journey
(so far!)
Viv Cooper
The Challenging Behaviour Foundation

2. To cover..
Our family
Daniel’s pathway
Right support, right place, right time

3. What do we want for Daniel?
An interesting, happy
life
Range of experiences
Fulfilling potential

4. Remember…….
“People whose behaviour
challenges have the same needs
as everyone else, in addition to
special needs for help to overcome
the problems their behaviour
presents. They do not surrender
their needs for personal
relationships, for growth and
development or for anything else
because their behaviour presents
a challenge to services. They have
the same human rights as
everyone else.” Mansell 2, 2007

5. Early days…
Diagnosis
Information
Behaviours
School & respite

6. Looking back – what was needed?
Access to local expertise
Information and training
A holistic approach
Partnership working
Long term planning

7. Looking back – what happened?
52 week school
275 miles from home
High cost
Planning - what next?

8. What do families want?
Information
Good support
To be valued as partners

9. Their experiences…
a lack of local expertise & capability in
understanding & responding to challenging
behaviour
difficulty accessing services unless in crisis
a lack of support and training
a lack of information to plan realistically, and
hopefully, for the future;
not being included as essential partners
Scoping report: McGill Cooper & Honeyman (2010)

10. Institutional care- policy & practice
Government policy: Winterbourne View:
 Individualised and person × Not individualised or person
centred centred
 Local × Out of area
 Outcome focused × No outcomes
 Value for money × Generating profits for private
company shareholders (ave. fee
£3500 per week)
 Not institutional
 Community based
× Institutional
 Open
× Industrial estate
× Closed

11. What works?
A person centred approach
Working in partnership
Staff with knowledge and skill
Good management & planning
A focus on outcomes for the individual
“.. A successful service looks like an ordinary home or
occupation, when…it is a carefully designed & organised
service dependent on a great deal of skill &
management.”
Mansell (2007)

12. Daniel now…
Rents a bungalow (tenant)
Staff support team
Interesting and active life!
Close to family
Exploring employment
opportunities
Circle of support

13. Actions
Stop putting people in the wrong types of
service
Invest in the development of quality local
support around the person
Sort out the funding
Only register appropriate services
Strengthen safeguarding

14. Quality monitoring…..
“I want support providers to ask themselves:
‘would you like to live your life like this?
Would this be good enough for you? For
your son, daughter or relative?’ If the
answer is no, then you need to change
what you are you are doing.”
Parent

15. “Don’t keep asking me what my views are, or
consulting me about this, that or the other or the
latest new idea. All I want for my son is that he
has a good quality of life, with good quality
support and good quality services.”
Parent
“Quality means doing it right when no-one is
looking.” Henry Ford

16. Contact
The Challenging Behaviour Foundation,
C/o The Old Courthouse
New Road Avenue
Chatham
Kent
info@thecbf.org.uk
www.challengingbehaviour.org.uk
01634 838739
info@thecbf.org.uk