GBSS' Jane Plumb @ MRF's Meningitis & Septicaemia in Children & Adults 2017

Meningitis Research Foundation
Meningitis Research FoundationMeningitis Research Foundation
Presented by: Jane Plumb MBE
Group B Strep Support
jplumb@gbss.org.uk / 01444 416176
UK charity, founded 1996
Dedicated to eradicating
GBS infection in babies
Provides up-to-date
evidence-based info to
families & health
professionals
Supports affected families
Expert medical advisory
panel
Explore the health, social and other
issues faced by affected families
during their baby’s EOGBS
afterwards, including subsequent
pregnancies
Online survey
(n=930):
parents/carers
of EOGBS
babies
Participants asked about:
• awareness of antenatal GBS
carriage status
• IV antibiotics in labour
• clinical presentation of
baby’s EOGBS
• longer-term health, social &
other consequences of
74% of babies first
unwell aged <12
hours
15% aged 12-24
hours
5% aged 2 days
3% aged 3 days
68% made a
full recovery
24% recovered
with long-term
health
consequences
40%
substantial
8% died
76% of
surviving
babies were
in hospital
for 7+ days
 89% respondents
(n=752) reported
practical or
financial difficulties
during baby’s
hospital stay
 30% reported
that siblings
experienced
difficulties as a
result of their
sibling’s EOGBS
 24% reported
resultant financial
difficulty
Insight into what families may be experiencing during EOGBS and afterwards,
including subsequent pregnancies
Most parents of a EOGBS baby experienced difficulties during baby’s
inpatient care
Long-term issues remain for many families, even when EOGBS babies make a
full recovery
Need for health professionals to reflect on the care, support and information
these families may need
1 of 10

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GBSS' Jane Plumb @ MRF's Meningitis & Septicaemia in Children & Adults 2017

  • 1. Presented by: Jane Plumb MBE Group B Strep Support jplumb@gbss.org.uk / 01444 416176
  • 2. UK charity, founded 1996 Dedicated to eradicating GBS infection in babies Provides up-to-date evidence-based info to families & health professionals Supports affected families Expert medical advisory panel
  • 3. Explore the health, social and other issues faced by affected families during their baby’s EOGBS afterwards, including subsequent pregnancies
  • 4. Online survey (n=930): parents/carers of EOGBS babies Participants asked about: • awareness of antenatal GBS carriage status • IV antibiotics in labour • clinical presentation of baby’s EOGBS • longer-term health, social & other consequences of
  • 5. 74% of babies first unwell aged <12 hours 15% aged 12-24 hours 5% aged 2 days 3% aged 3 days
  • 6. 68% made a full recovery 24% recovered with long-term health consequences 40% substantial 8% died
  • 7. 76% of surviving babies were in hospital for 7+ days
  • 8.  89% respondents (n=752) reported practical or financial difficulties during baby’s hospital stay
  • 9.  30% reported that siblings experienced difficulties as a result of their sibling’s EOGBS  24% reported resultant financial difficulty
  • 10. Insight into what families may be experiencing during EOGBS and afterwards, including subsequent pregnancies Most parents of a EOGBS baby experienced difficulties during baby’s inpatient care Long-term issues remain for many families, even when EOGBS babies make a full recovery Need for health professionals to reflect on the care, support and information these families may need