3. PLIDA
The Pregnancy Loss and Infant Death Alliance
• Events: international conferences
• Information sharing: eblasts
• Resources: practice guidelines
Presentations available online
www.plida.org & on CD from
grace.osullivan@hospicefoundation.ie
4. Variations
Life-threatening prenatal diagnosis
• Options & bereavement support
Formal perinatal hospice programmes in hospitals
“Specialty dedicated to providing health care to fetuses diagnosed
prenatally with life-limiting conditions along with supportive care to
parents and family members”(Munson & Leuthner), 2007
Training courses for healthcare providers
http://perinatalhospice.org/
5. Similarities
Advocacy is an important aspect of practitioners role
Keepsakes & mementos
• Photography, video, memory boxes & song www.singmeastory.org
Communication & language
Support for siblings
• Children’s Bereavement Centre of South Texas http://cbcst.org