CYPMH conference 2016 Future in Mind Vision to Implementation
Delivering a digitally enhanced service to support a transformation in integrated Children’s Health Services in Berkshire - Berkshire CAMHS with young service users
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Delivering a digitally enhanced service - Workshop
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2. Support-from others and the moderators
Hope-that it can and will get better
And Recovery-others showing the way
On-Line-accessible, private, anywhere, anytime
Network-sharing experiences together
3. If SHaRON was a building?..
• There is only one key to open the building.
• There are rooms within the building, all locked.
• Rooms are full of service users, ex service users, clinicians,
volunteers.
• Each room has a different key, service users cannot move rooms.
• Every one else (moderators both clinical and peer/volunteers) in the
rooms can.
4. • SHaRON is a safe and secure social network.
• Moderated by experienced clinicians and ex-service users (Peer
Moderators)
• Therapeutic support and advice, but NOT a crisis service
• Features;
• Service User created profile pages
• Upload images
• Instant messaging
• Chat rooms
• Forums
• Blogs
• Access from all devices
• Opportunity to provide some teaching sessions
• Access to the right information from trusted sources
• Support from others who have been through the same or
similar experiences
5. Unexpected Benefits of SHaRON Development
• A significant number of ex service user / Peer Moderators expanding
staff numbers.
• The service now operates 24/7 everyday at very little extra cost
• A much greater exposure to patients normal life than previously available
• SHaRON BEDS has a return to service referral rate in single figures
compared to national averages of between 30% - 40%
6. What do members think & feel about
SHaRON BEDS
Members mood status
xxxxxx is eternally grateful to SHaRON for always making me feel loved and less
alone xxx
Members message to a clinical moderator
but i couldn't have got as far as i've gotten so far without your (and sue's and
clare's and sharon's) help. and i know that i'm not better, but i can see that one
day i will be. and i'm fairly certain that a yearish ago there is no way that i could've
seen that. so thank you
Members response to a new Forum Post
- this is brilliant :) thank you to whoever posted it in the first place.... :) xx
- I truely believe in SHaRON and can honestly say that I will always be thankful of
all the help, support and advise that I have received, it is so much more than a
website its a life line and this leads me to my latest Challenge...........
90% of users answered ‘strongly agree’ or ‘agree’, when asked if they found
their ‘experience on SHaRON to be helpful’
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11. Why a Social Network?
WARWICK MEDICAL SCHOOL RESEARCH PROJECT FUNDED BY
COMIC RELIEF - OCTOBER 2010
“Young people are leading increasingly digital lives”
“At the same time, while young people welcome technology-
based services, they report wanting these to be a
complimentary provision rather than a replacement for face-to-
face approaches”
“Social networking is a rapidly evolving area with very high
uptake among young people”
12. Young SHaRON
- Moderators will include; past users, parents, voluntary sector
- Clinicians can watch and moderate named clients/families
- Moderators are not a separate workforce/resource
- There are flags for certain words
- Subnets can ‘go to sleep’
Subnet to be Implemented:
- Parents/Carers Subnet (starting with ASD Pathway)
- Maternal Wellbeing & Partners/Carers (Perinatal MH)
- Consult Me Subnet
- Age-Range Specific Subnets
13. Young SHaRON; Perinatal Mental Health
• Referrals can be from any health care professional
• Do not need to be open to mental health services to be referred
and won’t be opened to services as a result of SHaRON referral
• Across the whole range of perinatal distress; Few exclusion
criteria (must not be suicidal, homicidal, infanticidal or psychotic)
• It is not a CRISIS service
• It enables us to pick up deterioration by emoji.
• It enables the women to say how they feel without fear of
exposing themselves and their vulnerability
• It is safe and governanced through moderation - we know women
access Facebook groups and use Dr Google rather than be able to
get advice from experienced clinicians and support from mums who
understand
14. I would like to say what a wonderful support
SHaRON has been for me whilst I recover from
depression. The relative anonymity it provides
has allowed me to express how I’m feeling
without having to hide and pretend everything is
‘fine’. I have received support from the
Moderators when I’ve felt at my lowest and even
had phone calls from my health visitor in
response to some of my comments. The site has
also allowed me to support other Mums who are
having difficult times and hopefully they have
found the comments from one Mum to another
reassuring. I cannot thank the Perinatal team and
SHaRON enough for this amazing online facility
which I know is contributing to my recovery.
Would it be possible
to have more emojis
as I personally, find
them a really easy
way to express how
I'm feeling without
having to think of the
words.
I like the anonymity that
SHaRON provides and find it
useful to be able to write how
I'm honestly feeling without
having to pretend that things
are fine when actually they are
not. It's a good supportive site.