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Training, TBI

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Training, TBI

  1. 1. Andrea Buening IL Special Projects Coordinator The Independent Living Center March 9, 2012 Traumatic Brain Injury After Rehabilitation What next?
  2. 2.  I am just like every one of your patients  I continue to experience limitations caused by my brain injury  I choose to make something good from something very bad  This is who I am
  3. 3. Video
  4. 4.  Life Experience  May 16, 1997, began my journey  I have nearly 15 years of life with TBI  Rehab for 11.5 months  Successful Outcome  Advocacy – local and legislative Drawing From the Past
  5. 5.  Like children  Impressionable  Vulnerable  Impulsive  Fragile  Provide Education  Former teacher  Current disability advocate  IL Skills Training  Support group facilitator  Been there/done that  Brain Injury Association of Missouri Board member, 2nd term  Be available for INR  Missouri Brain Injury Advisory Council member  Systems Change
  6. 6.  ICANB  Exposure to many venues  Abilities  Availability  Flexibility with employer  Graduate Certificate – George Washington Univ.  Proving ground  EXAMPLE TO OTHERS  Survivors  Non Survivors Lead, Follow, or Get out of the Way!
  7. 7.  Financial  Emotional – Mental Health Issues  What is primary?  Brain Injury is  Lack of support  Lack of control  Being a burden  Spousal exhaustion “BI isn’t for sissys”
  8. 8.  Supporting the survivor  Financially  Emotionally  Dealing with the survivor  Lack of support for themselves  Acceptance Counseling for both  High percentage of relationship failure  Lack of control over the survivor and situation  Role change in the family  Dealing with the burden of caregiving  Spousal exhaustion  Focus Change  Children?  Friends and family?
  9. 9.  Survivors  Locate a Center for Independent Living  Four Core Services  INR – Information and Referral  IL Skills Training – EDUCATION  Peer Support – Support Groups/Social Activities, etc.  Advocacy – Individually, legislatively  Loss of control  Find a therapist  Behavior Modification Specialist  Goal Setting  If you/they set expectations high, the achievements will be higher – within reason Ameliorating the Struggles
  10. 10.  Find respite  Adult Day Care  National organizations  http://www.aoa.gov/  Find a volunteer position  Numerous opportunities  BIAMO  Locate Support Groups
  11. 11.  Survivors:  How capable are they?  Driving?  Vocational Rehabilitation  Only one Certified Evaluator in the State  Neuropsychology  What is their predicted outcome?  Functional Outcome  Be sure prediction is not the expectation  Teacher’s rule  If you set your expectations low, the achievement will be low The Unknown
  12. 12.  Continued therapy becomes “education”  If no long-term cognitive rehabilitation is available  Family support and training  Hobbies  Planners, i.e. Smartphones and pocket PDA’s  DVBIC.org  Lash and Associates Publishing  The internet  Computer training  Accommodations through Mo Assistive Technology  Utilize specific software
  13. 13.  Therapy IS education  IF No long term therapy IS available  Brain Injuries are NOT progressive  Survivors CAN learn  Through various methods identified through Neuropsychological evaluation  Find what motivates them
  14. 14.  decision-making  self-reliance  self-confidence  Malingering  Illnesses not taken seriously
  15. 15. SOMETHING they can do that is positive
  16. 16.  SSDI  Benefit Specialists assist those who wish to work  SSI  Limited income potential  Available to survivors injured before age 22  Retirement  If previously employed long-term?  MO. HEALTHNET  PRIVATE INSURANCE  PART-TIME EMPLOYMENT  VR  Testing  Driving
  17. 17.  The Independent Living Center, Joplin  George Washington University  Coursework for the Graduate Certificate in Educational and Transition Services  Experience  PROFESSIONALS LIKE YOU

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