Presentation delivered at the United Nations Headquarters on “The right to enjoy scientific progress and the freedom indispensable for scientific research” (February 2018).

2. Article 15 of the International Covenant on Economic, Social and Cultural
Rights requires states to:
- recognize the right of everyone to enjoy the benefits of scientific
progress and its applications
- conserve, develop, and diffuse science
- respect the freedom indispensable for scientific research, and recognize the
benefits of international contacts and co-operation in the scientific field.

3. o Right to access
 the material benefits of science
 scientific knowledge
 the means to access (internet)
state obligations

4. o Diffusion of science
o Dissemination
o Public awareness
o Libraries, databases, infrastructures
state obligations

5. o Policy that reflects the best science available
state obligations

6. the right offers opportunities for
countries that are not producers of knowledge
to enjoy scientific advancements

8. human
genomics
plant
genomics

9. the right offers opportunities for
countries that are not producers of knowledge
to enjoy scientific advancements
a human rights framework balances the interests of the
public with the interests of scientists

10. the right offers opportunities for
countries that are not producers of knowledge
to enjoy scientific advancements
a human rights framework balances the interests of the
public with the interests of scientists

11. responsible sharing of human genomic and health-related
data
explicitly guided by the human rights to science, privacy,
non-discrimination and by procedural fairness

12. duty of data producers and users
- to engage in responsible scientific inquiry and
- to access and share genomic and health-related data
across the translation continuum, from basic research
through practical applications.
rights of data producers and users to be recognized for
their contributions to research, balanced by the rights of
those who donate their data.

13. the right of everyone to enjoy the benefits of scientific
progress and its applications
offers opportunities for
countries that are not producers of knowledge
to enjoy scientific advancements
balances the interests of the public with the interests of
scientists

14. Andrea Boggio
Bryant University
aboggio@bryant.edu
http://www.freedomofresearch.org/