11th Annual Health Services Research Conference - Partnering for Better Health: Bringing Utah's Patient Voices to Research Hosted By: Community Faces of Utah ​ Description: Interactive panel discussion on what community members want research to focus on and how researchers and communities can successfully work together.

1. Diverse Culturally-Based Community Organizations and Researchers
Collaborating for Improved Health: An interactive discussion on how
Communities can Work Successfully with Researchers
A Community-Based Partnership to Reduce Health Disparities and
Promote Wellness in Diverse Women:
The Coalition for a Healthier Community (CHC) for Utah Women and Girls (UWAG)
on behalf of Community Faces of Utah and the Coalition

2. CHC- UWAG Partners
• Community Faces of Utah
– Best of Africa
– Calvary Baptist Church
– Hispanic Health Care Task Force
– Urban Indian Center
– National Tongan American Society
– University of Utah (C/E Team of the CCTS)
– Utah Department of Health
• University of Utah (COEWH and UWHC)
• Utah State University Extension Agents

3. Funding
• HHS Office on Women’s Health (OWH)
• Phase I: 1-year of funding for needs assessment and
planning
• Phase II: 5-years of funding for implementation and
evaluation of evidence-based intervention

4. Our intervention
• Community Wellness coaching program
– Co-developed by UWAG team, CFU leaders, CCTS
using CBPR and Individualized goal setting
– Motivational Interviewing: with individual goal
setting
– Practical strategies for healthy eating and active
living
– Group activities developed by each CFU
community
– Thinking holistically
• Coaches recruited by each community
– English, Spanish, Kirundi-speaking

5. OUR STUDY DESIGN
• Randomized Trial
– Participants recruited and coached by wellness
coaches from their own communities
• Is a COMMUNITY WELLNESS COACHING approach more
effective in decreasing obesity risk factors when
administered with monthly (high intensity) vs. 4 times per
year (low intensity) contacts?
• If so, does the improvement warrant the additional costs?

6. Implementation
• Questionnaire and protocols developed
• REDCap database developed
– 3 languages
– Coaching prompts
• CFU community leaders recruited community members to serve as coaches
• Coaches trained by UWAG staff
– HIPAA, CITI
– Wellness coaching
– Data collection
– REDCap

7. Data Collection
• Community Wellness Coaches collect study
data
– Relationship building is key!
• Interview questions about:
– Health knowledge and behaviors
– Perceived benefits and barriers
– Social Support
– Mental health
• Blood pressure, BMI, waist-to hip ratio
measured
• Goals set and progress tracked

8. STUDY PROGRESS
• Goals: 400 women enrolled in the program: 80
per community
– Completed Baseline Interviews: 500
– Completed 4-Month Interviews: 351
– Completed 8-Month Interviews: 308
– Completed 12-Month Interviews: 239
• Findings at 12 months: 70% successful (or
very successful with goals
• 8 months: improvement in depression
prevalence

9. 57.6%
46.7%
62.1%
50.0%
67.8%
64.4%
0.0%
10.0%
20.0%
30.0%
40.0%
50.0%
60.0%
70.0%
80.0%
90.0%
100.0%
Increased fruit/vegetable
consumption
Increased physical activity
Changes in Health Behaviors between
Baseline and Follow-Up
Baseline to 4 Months Baseline to 8 Months Baseline to 12 Months

10. 14%
20% 22%
0%
10%
20%
30%
40%
50%
60%
70%
Lost 5% or more of baseline weight
Changes in Weight between
Baseline and Follow-Up:
1 in 5 women lost 5% of baseline weight by 12 months!
Baseline to 4 Months Baseline to 8 Months Baseline to 12 Months

11. Examples of Cost Effectiveness Ratio for
Physical Activity Intervention Programs
Study Cost-Effectiveness Ratio
Reger (2002) $14,286
Lombard (1995) $27,373
Linenger (1991) $28,548
UWAG $29,146
Jeffery (1998) $29,759
Kriska (1986) $39,690
Knowler (1992) $46,914
Young (1996) $68,557
Source: Roux et al., 2008

12. LESSONS LEARNED
• Takes time to build relationships
(5 year grant)
• Bidirectional learning in everything we
do
• Put your ego aside
• Work together to solve problems
• Need face to face, phone—don’t rely
on email
• Information must go back to
community
• Collaborate on presentations, posters,
publications

14. Thanks TO:
• Best of Africa
– Valentine Mukundente, Esperance Rugamwa
• Calvary Baptist Church
– Pastor France A. Davis, Doriena Lee, Patricia
Otiede, Cathy Wolfsfeld
• Hispanic Health Care Task
Force
– Sylvia Rickard; Dee Dee Labato, Jeannette
Villalta, Natalie Gutierrezs, Ana Sanchez-
Birkhead
• National Tongan American
Society
– Fahina Tavake-Pasi, Ivoni Nash, Edris Netzler
Aiono, Se Toki
• Urban Indian Center
– Ed Napia, Penelope Pinnecoose
• Utah Department of Health
– Brenda Ralls
– Kathryn Rowley
– Kalynn Fillion
• University of Utah
– Kathleen Digre—Co-PI
– Sara Simonson – Co-PI
– Leanne Johnston
– Patricia Eisenman
– Normal Waitzman
– Cathleen Zick
– Iris Buder
– Janet Shaw
– Michael Varner
– Jenny Hoggard
– Grant Sunada, Jamie Prevedel, Julia Webber
• CCTS
– Heather Coulter
– Stephen Alder
– Louisa Stark
– Bernie LaSalle