"Patients at the core of medical research & development", presented by Emma Law, Scottish Dementia Clinical Research Network, at the EUPATI-UK Network Conference on 6 March 2014 in Leeds, UK

1. Patients at the core of medical
research & development
EUPATI-UK Network Key
Stakeholder Conference
Emma Law - Manager
Scottish dementia Clinical
Research Network
6th
March 2014
SDCRN

2. SDCRN
To increase the number of people
with dementia and their carers who
are part of high-quality research
projects in Scotland
SDCRN

4. The importance of Patient and
public involvement

5. Focus group quotes 2012/13
“ Sometimes I don’t
want to hear another
word about dementia”
“ I think that new
research is to find
out what does help “
“ I’m pro any organisation
or any person that will do
anything to help us with
the problem we have “
“I would be very
interested to know what
is being done and what
might be being done”
“The
downside to
participation
is that we
haven’t ever
had results”
SDCRN
“You’re not looking for
gain but you don’t want
to be out of pocket.”
“sometimes we’re lucky
that my husband is at a
day centre today but if he
wasn’t I would have to
arrange care “

10. SHARE PROGRESS

11. Shona Brearley
National Programme Manager
MacKenzie Building
Kirsty Semple Way
Dundee
tel 01382 383723
mob 07969551154

12. Contact us
Emma Law
emma.law@nhs.net
Scottish Dementia Clinical Research Network
www.sdcrn.org.uk
Contact-us@sdcrn.org.uk
Twitter: @TheSDCRN
Facebook Page: SDCRN
01738 562322
SDCRN