Marzena Samardakiewicz, Assistant Professor; Clinical Psychologist; Department of Applied Psychology; Department of Pediatric Hematology, Oncology and Transplantology, Medical University of Lublin, Poland; President of The Polish Psycho-Oncology Society (PPOS), presentation at the Second International Scientific and Practical Conference «Improving the quality of life of cancer patients through the development of cooperation between state, commercial and non-profit organizations». 2018-01-24, Minsk. Belarus.

1. 25 YEARS PSYCHO-
ONCOLOGY IN POLAND
MARZENA SAMARDAKIEWICZ PHD MA
MEDICAL UNIVERSITY, LUBLIN, POLAND
DEP. OF APPLIED PSYCHOLOGY, AND DEPT. OF HEMATOLOGY, ONCOLOGY AND TRANSPLANTOLOGY
THE POLISH PSYCHO-ONCOLOGY SOCIETY

2. Evolution in psycho-oncological care
Adults
 20’s. XX w. – radiotherapy
 50’s. – introducton of chemotherapy, increase
need of suport, and psychiatric care
 Lata 70. – bio-psychosocial model of disease
 First survivors and their testimonies from the
disease period
 Patient movements, non-profit organizations
 1984 –IPOS was founded
 Numerous scientific societies in the oncology
field
Children
 1960: most children died
 1970: combination of chemotherapy – gives new hope
 1968: SIOP was founded
 1991: SIOP Psychosocial Working Group Committee
 2010: IPOS Pediatric Special Interest Group
 National Pediatric Onco-/Hematology Research
Groups/Societies
 Pediatric Psychosocial /Psychooncology Groups
 Parent s` Groups(local&national)/ CCI
 Poland – numerous non-profit organizations
 2009-2011 – standards of psychosocial care
2

3. „..oldest living
Psycho-oncologist
in the world..”
Jimmie Holland, interview
conducted by Breitbart;
www.ipos-society.org
Pionier in Psycho-Oncology
3

4. Psycho-Oncology:
interdyscyplinary field
of medicine
SUB-DISCIPLINE
 CLINICAL ONCOLOGY
 PSYCHIATRY
 CLINICAL PSYCHOLOGY
 HEALTH PSYCHOLOGY
OR ALSO
 PALLIATIVE MEDICINE
 ONCOLOGY SURGERY
 HEMATOLOGY
 RADIOTHERAPY
 ONCOLOGY NURSING
 OTHERS?
4

5. Psycho-Oncology:
interdyscyplinary field
of medicine
1. RESEARCH IN PSYCHO -
ONCOLOGY
2. IMPLEMENTATION OF
STANDARDS OF PSYCHO-
ONCOLOGICAL CARE
5

6. Psycho-Oncology – research areas
3 groups:
 Promotion of health, with particular emphasis on behavior that
facilitates the prevention and early detection of cancer
 Removal or alleviation of the psychological consequences of
illness and treatment in oncological patients and their families
 Psychoprophylaxis, focused on medical staff employed in
oncology departments
6

7. International Psycho-Oncology Society
1984 r – IPOS was founded
Aim:
 to foster international multidisciplinary communication about
clinical, educational and research issues that relate to the subspecialty of
psycho-oncology and two primary psychosocial dimensions of cancer:
1. Response of patients, families and staff to cancer and its treatment at all
stages;
2. Psychological, social and behavioral factors that influence tumor
progression and survival.
7

8. International Psycho-Oncology Society
IPOS 30th Anniversary
People with cancer suffer from pain, fatigue,
depression and anxiety, and so do their loved ones.
Unfortunately, psychosocial care – dealing with the
emotional and supportive aspects of cancer – has
not yet been integrated into mainstream cancer care
around the world. Our goal is to change this.
In 2014, IPOS celebrated its 30th anniversary and
admission into official relations with the World
Health Organization (WHO).
33 years of IPOS
The challenge remains to
treat psychosocial care
as an integral part of
oncological treatment
8

9. Psycho-Oncology in Europie
 80’s. – development in Europe
Basic tasks of psycho-oncology:
 Improving the quality of life for patients with cancer and
their families
 Inclusion of psychological problems in the curriculum of
students and medical staff
 Research activity
9

10. Psycho-Oncology in Europie
 OPPO/Austria
 SFPO/France
 HSPO/Greece
 MPOT/Hungary
 IPAS/Israel
 SIPO/Italy
 POA/Lithuania
 NVPO/Netherlands
 PPOS/Poland
Psycho-Oncology Societies – National
 APPO/Portugal
 SPPO/Portugal
 SAPO/Serbia
 SEPO/Spain
 SWEDPOS/Sweden
 SGPO/Switzerland
 PSOG/Turkey
 BPOS/UK
10

11. Psycho-Oncology in Poland
Development psycho-oncology in Poland:
1. Since 1993, The Polish Psycho-Oncology Society - PTPO
2. Since 1997, official journal "Psychoonkologia„
3. Since 2009, Postgraduate studies in psycho-oncology (2
semesters/6 Universities)
4. Since 1996, Scientific conferences organized by PTPO
20 years of journal „Psychoonkologia”
25 years Polish Psycho-Oncology Society
11

12. Polish Psycho-Oncology Society
 www.ptpo.org.pl
 1993 was founded
 Prof. de Walden Gałuszko pionier in
Poland
 Journal: Psychoonkologia
 Trainings, conferences
 13 PTPO:
 Gdańsk, 14-15 september 2018
 Certyficates in psychooncological
skills
 2014, Psychooncologist as a new
medical profession
12

13. Paediatric psycho-oncology in Poland
13
 Polish Society of Paediatric Oncology, and Haematology, PTOiHD
 Polish Paediatric Psycho-Oncology Group, PPPG, 2006
 Polish Psycho-Oncology Society, PPOS, (polish abb.-PTPO)
 Paediatric Group, 2007
 17-20 psychologists
 Pedagogists
 Therapeutical Pedagogist
 Artetherapists
10 Years „Paediatric” Group

14. Polish Psycho-Oncology Society
Aims:
 Prevention of cancer
 Support the patients and their families
 Education of medical staff working with cancer patients
de Walden-Gałuszko K.: Psychoonkologia. Biblioteka Psychiatrii Polskiej, Kraków
2000.
14

15. Polish Psycho-Oncology Society
Aims
Zielazny P, i wsp. Psychiatr. Pol. 2016; 50(5): 1065–1073
Education of medical staff
Standards of psycho-
oncological care
15

16. Psychooncologist:
new profession
27 APR. 2014: on the classification
of professions and specialties for
the labor market
 WAS ENTERED UNDER NO
228909
 „OTHER MEDICAL
PROFESSIONS” CATEGORY
16

17. Psycho-Oncologist as a profession
 Since 2012, Polish Psycho-Oncology Society has undertaken work on
the separation of the new profession
 According to the Resolution of Ministry:
A psycho-oncologist is a person with a higher education in
psychology or medicine, who has completed higher education
and obtained a master's degree or equivalent and completed
postgraduate studies in psycho-oncology.
17

18. Psycho-Oncologist as a profession:
controversies induced
1. Anyone who has completed postgraduate psycho-oncogical
training; regardless of previous education : both medical
professionals (as, doctor, psychologist, physiotherapist), as well as
outside the medical field (as, sociologists, pedagogists, clergy, et.)
2. Only those who received PTPO’ certificate (nb. people from outside
the medical field)
3. Individuals who have completed both postgraduate training and
are certified by PTPO
18

19. Psycho-Oncologist as a profession:
introducing consensus
1. Describing different levels of psycho-oncological qualification according to
the Polish Qualification Framework (part of: Integrated Qualification System)
2. Two levels
1. Supportive care for oncologically ill patients, their families and the
environment.
2. Psycho-oncological diagnosis and psychological help for patients
oncologically ill, their families and their environment.
3. Possibility of obtaining a state certificate attesting the appropriate level of
psycho-oncological qualification under the Ministry Regulation
4. Change of the current definition of the profession of psycho-oncologist,
new regulation requared
19

20. 20

21. Challenges for the future
1. Education
2. Standards
21

22. Education
1. Preparation and implementation of training courses for
persons wishing to obtain a qualification level
1. Extension of activities of the National School of Psycho-Oncology
2. Recommending other training centers as described in
the qualification
3. Taking action to promote the weight of new certificates in
different environments
4. PTPO as Certifying Authority as described in the qualification
22

23. National Program for the Prevention of
Cancer, 2016-2024
V.4.2.3 Other education activity
 Training in psycho-oncology
conducting training physicians, nurses,
midwives, psychologists and physiotherapists in
the field of patient communication, emotional
tention reduction and burnout prevention
Monitor Polski, UCHWAŁA NR 208, RADY MINISTRÓW z dn. 3 listopada 2015 r.
23

24. Standards of psycho-
oncological care
IPOS INTERNATIONAL
STANDARD OF QUALITY
CANCER CARE
JULY 2010 (REVISED OCTOBER 2014)
1. PSYCHOSOCIAL CANCER
CARE SHOULD BE RECOGNISED
AS A UNIVERSAL HUMAN RIGHT;
2. QUALITY CANCER CARE
MUST INTEGRATE THE
PSYCHOSOCIAL DOMAIN INTO
ROUTINE CARE;
3. DISTRESS SHOULD BE
MEASURED AS THE 6TH VITAL
SIGN AFTER TEMPERATURE,
BLOOD PRESSURE, PULSE,
RESPIRATORY RATE AND PAIN.
24

25. Standards developed
Standards for the Field of Psycho-Oncology
 Formulated and developed by the Israel Psycho-Oncology Society, and approved by the Israel
National Oncology Council and Israel Ministry of health in 2003
 Standards of Psychosocial Health Services
for Persons with Cancer and their Families
Approved May 28, 2010
25

26. Wkład SIOPE
European Standards of Care for Children with Cancer, 2009, 2011
1 Organising Networks of Comprehensive Care for Children and Adolescents with Cancer
and Serious Haematological Diseases within Each Country …………………………….10
2 A National Register of Childhood Cancer………………………………….....……….…10
3 Requirements of a Paediatric Haematology and/or Oncology Unit…………………....…11
4 Recommended staffing levels for the paediatric haematology/oncology ward……….….13
5 Continuous Professional Development………………………………………………..….15
6 Components of care in a specialist facility………………………………...……………..16
7 Delivery of Therapy…………………………………………………….………...……...16
8 Monitoring the late outcomes of cancer…………………………………………....…….17
9 Psychological and Psychosocial Care……………………………………………………18
10 Palliative care…………………………………………………………………………….19
11 The rights of the hospitalised child………………………………………………..……..19
12 Social Care……………………………………………………………………………….21
13 Education……………………………………………………………………………..….22
14 The critical role of parents……………………………………………………….…….....22
15 Rehabilitation……………………………………………………………………….…....23
List of authors………………………..………………...…………………………….…..23
Contribution...………………………..………………...…………………………….…..24
Appendix 1……………………………………..……………………………….………..25
http://www.siope.eu/wp-content/uploads/2013/09/European_Standards_final_2011.pdf
26

27. The European Standards of Care for Children
with Cancer, 2011
§9
Psychological and Psychosocial Care: the parents of a child with
cancer should be provided with comprehensive information on the
diagnosis and treatment of their child by staff members including psycho-
social. All information and progress-stages should be well-documented and
explained clearly to the parents. Each child or young person with cancer
and his/her family should be offered psychological support…detailed
information on the diagnosis, therapy and overall impact should be shared
with the patients, respecting the patient’s age guaranteeing the information
provided are appropriate to the level of understanding of the child.
§12
Social care: social support for the child and their family should commence at
the time of diagnosis and be monitored along the patient pathway throughout
treatment.
§13
Education: the maintenance of on-going education for the young person
treated with cancer is vital to ensure a straightforward return to school for the
patient once recovered. The hospital teacher provides a necessary link between
the educational development during treatment and the school.
&14
Parents play a critical role in helping their child to overcome cancer and need to
be supported, with appropriate facilities at the treatment unit. They need to fulfil
the role of ‘partners’ in the treatment process of their child.
27
Overwiew
European Journal of Cancer (2014) 50, 481– 485
On-treatment

28. The European Standards of Care for Children
with Cancer, 2011
§8
Monitoring the late outcomes of cancer: data management and safety reporting of
the therapeutic programme implemented is vital, and appropriately trained medical staff are required to carry this
out. Long-term monitoring of the late outcomes of childhood cancer is essential, taking into account not
only survival but also Quality-of-Life and long-term toxicity.
§9
Psychological and Psychosocial Care: the parents of a child with cancer should be
provided with comprehensive information on the diagnosis and treatment of their child by staff members including
psycho-social advice…Post-treatment assistance should also be available to
ensure a child’s reintegration into society..
§12
Social care: social support for the child and their family should commence
at the time of diagnosis and be monitored along the patient pathway
throughout treatment.
§13
Education: the maintenance of on-going education for the young
person treated with cancer is vital to ensure a straightforward
return to school for the patient once recovered. The hospital
teacher provides a necessary link between the educational
development during treatment and the school.
28
Overwiew
European Journal of Cancer (2014) 50, 481– 485
Survivors
Realizacja standardów w PHO w Europie
J.R. Kowalczyk, M.Samardakiewicz et al. /
European Journal of Cancer 61 (2016) 11e19

29. Programme of Bio-Psychosocial Support
Wspomaganie biomedyczne
The principle of
multidisciplinary care
The principle of
monitoring of direct /
late effects
Wspomaganie
psychospołeczneThe principle of planned
psychological care
The principle of transmitting
information about cancer diagnoses
and treatment to the child
Principle of reintegration with school
and peer group
Recommendations as a result of
revised standards, Polish PHO
centres experienses; the role of
non-profit organizations
29

30. National Program for the Prevention
of Cancer, 2016-2024
V.3.2.3 Integrated care for oncological patients and their loved ones
 Action to improve health and quality of life for patients.
 Integrated care: including well-being and psychosocial
support
 The need to improve the quality of life
Monitor Polski, UCHWAŁA NR 208, RADY MINISTRÓW z dn. 3 listopada 2015 r.
Standards of care
30

31. Development psycho-oncology
in Poland
 Scientific research: multicentre and international
 Educational and Training programme according to
described quallifications
 Use of e-learning
 Certyfication of psycho-oncological skills
 Developing standards of psychological care in Poland
 Integration with National Programme for the Prevention of
Cancer
31

32. Thank you for attention!
psychonk@dsk.Lublin.pl
13 Conference of
The Polish Psycho-Oncology Society
32
 Gdańsk, 14-15 September 2018