Cathy Ficker's presentation from TAI 2014

1. Measuring Outcomes
What Really Matters
Cathy Ficker Terrill, CEO, CQL

2. o In the 60’s…….plants
o In the 70’s and 80’s …treated us like pets
o In the 90’s …. Treated us like people
o And now its 2014, it is time to really listen ……
A Story from Dirk

3. o One Voice.
o A voice to be heard by someone who cannot speak a
word.
o We express our feelings in many ways,
o by what we do and
o what we say.
o A voice that is heard is a voice that is true,
o So lets all share our one voice, too!
 Source: In Our Words
One Voice
by Doris Clark

4.  Moving from process to outcomes
 Grants and staff activities
 Data on Outcomes about people can:
Inform person centered plans
Motivate organizational change
Drive state policy
Collecting Information

5.  Using data to inform:
Strategic Plan
Budget
Public Policy
Organizational Change
What data do you collect?

6. Personal Outcome Measures®
2003 2006 + or -
People Choose Services 47% 87% +40%
People Realize Goals 63% 100% +37%
Connected to Natural Sup. 52% 81% +29%
Different Social Roles 21% 50% +29%
People Have Friends 58% 81% +23%
Use their Environment 78% 100% +22%
Source: Ray Graham Association

7. OUTCOMES AND STORIES

8. oPersonally defined quality of life
outcomes that people want in their
lives.
oThe set of 21 POMs is a scientifically valid
metric.
Personal Outcome Measures®

9. o It is only through interaction and exchange that we
can begin to understand each person as a unique
individual.
o Appreciative Inquiry: Listen and learn from
everything the person says and does.
o If the person does not use words to speak, find the
person who knows that person best. Observe the
person in different environments.
First listen

10.  How often do you listen to people with disability?
 What data do you have from listening to them?
 Is the data you collect reliable and valid?
 How do you use this data to inform your state plan?
 How do you use this data to show your impact at a
person, local, and state level?
Listening on a regular basis

11. My Self: Who I am as a result of my unique heredity, life
experiences and decisions.
o People are connected to natural support networks
o People have intimate relationships
o People are safe
o People have the best possible health
o People exercise rights
o People are treated fairly
o People are free from abuse and neglect
o People experience continuity and security
o People decide when to share personal information
21 Personal Outcome Measures®:
Three Factors

12. My World: Where I work, live, socialize, belong or
connect.
o People choose where and with whom they live
o People choose where they work
o People use their environments
o People live in integrated environments
o People interact with other members of the community
o People perform different social roles
o People choose services
21 Personal Outcome Measures®:
Three Factors

13. My Dreams: How I want my life (self and world) to be.
o People choose personal goals
o People realize personal goals
o People participate in the life of the community
o People have friends
o People are respected
21 Personal Outcome Measures®:
Three Factors

14. 20 years of
data?
What do we
know?

15. 32.5%
37.5%
40.6%
46.2%
49.8%
50.3%
51.3%
55.7%
56.3%
61.7%
70.0%
70.4%
72.2%
74.4%
76.7%
78.2%
78.5%
78.7%
82.7%
84.0%
86.5%
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
People Perform Different Social Roles
People Live in Integrated Environments
People Choose Where they Work
People Choose Where and With Whom they Live
People Exercise Rights
People Choose Services
People Choose Personal Goals
People are Treated Fairly
People have Friends
People Remain Connected to Natural Support…
People Participate in the Life of the Community
People have Intimate Relationships
People Interact with Other Members of the…
People have the Best Possible Health
People Use Their Environments
People Decide When to Share Personal Information
People Experience Continuity and Security
People are Respected
People Realize Personal Goals
People are Free From Abuse and Neglect
People are Safe
Personal Outcome Measures® January 2010 (N=7,879)

17. o Fewer than ½ of the people interviewed were
exercising choices in a way that was meaningful to
them.
o Participation and interaction in the community were
present for about 70%
o 56% reported having friends
o Less than 40% are fully integrated in the community
o 8 out of 10 report being safe and free from abuse and
neglect
20 Years of Evidence Based Learning
and Listening

18. o 70% experiencing continuity and security
o 70% Best possible health
o 50% report able to exercise their rights
o 56% Treated fairly
o 70% Accessible environments available to them
20 Years of Evidence Based Learning

19. When we listen we
discover……people want:
o To be participants in their community
o To be empowered to make choices
o To do paid or volunteer work
o To participate in self-directed services
o To define their own quality of life with outcomes
o To be connected to friends & family

20. Cathy Ficker Terrill
President & CEO
cfterrill@thecouncil.org
For more information, visit:
www.thecouncil.org
CONTACT INFORMATION

21. A world of dignity, opportunity and community for all people
www.c-q-l.org
Cathy Ficker Terrill (cfterrill@thecouncil.org)