3. John came to us in the ‘80s with new
and different messages of hope
“In order to teach the goodness and power of
human presence and the reward inherent therein,
caregivers need to become teachers of human
presence and reward. This can be accomplished by
structuring the person's day in such a way so as to
provide multiple opportunities throughout the day
which involve teaching new skills or maintaining
current skills (behaviors which can be rewarded and
which enable the caregiver to teach human
interactions).
4. These ideas resonated with what we
knew and were practicing
. . . caregivers need to apply a range of teaching
techniques which preclude the use of
punishment. Initially this requires a structure to
the day and, depending on the needs of the
person, sufficient caregivers present to carry out
these "programs." Within this context caregivers
present structured tasks to the person and
ensure success as much as possible to make
their presence and the rewards given positive
and meaningful.”
5. In our 20th year we took on this
project, to research the networks of
folks we supported
17. Working with about 140 self advocates, we heard
stories about the importance of relationships
18. Our strategic plan focused on relationships at all
levels as a way of strengthening capacity
19. Our strategic plan focused on relationships at all
levels as a way of strengthening capacity
20. Some people were not interested
• So, what’s the alternative?
– Living in isolation / being lonely
– Reduces the lifespan
– Increases incidence of illness
– Decreases the likelyhood of recovery
– Decreases the executive functioning of the brain
– Decreases opportunities in every way
– A health risk equal to smoking
• These are not well considered alternatives
People were not as connected as we thought
Staff were not as aware as we expected
People’s networks and how to support them was not a living conversation in the homes we supported
Around the province other agencies found similar states of isolation
Lots of people wanted to know how… which led to “facilitate making friends”