A Presentation delivered to Member of Sickle Cell Society Kano on the Myth, Stigma and Truth about Sickle Cell

1. The Myth, Stigma & Truth
About
Sickle Cell
By
Murtala Lawal Kazaure
Convener
Sickle Cell Survivors Forum
08030584263, mlkazaure97@yahoo.com
© Sickle Cell Survivors Forum 2015

2. Presentation Outline
• Personal Introduction
• Presentation Goal
• About SCSForum
• The Myth
• The Stigma
• The Truth
• My Story
• Q and A
© Sickle Cell Survivors Forum 2015

3. Personal Introduction
• Name: Murtala Lawal Kazaure
• Age: 36 years
• Marital Status: Married (Father of 2 Muhammads)
• Hobby: Reading, Writing and Struggle
• Professions: I.T and Farming
• Education:
B.Sc Computer Science (U.D.U Sokoto)
M.M e-Learning Tech and Knowledge Mgt (Multimedia University Malaysia)
Cisco Certified Network Associate (Cisco Systems USA)
C-Tech Certified Instructor (C-Tech Inc USA)
© Sickle Cell Survivors Forum 2015

4. Presentation Goal
To Clear the General Misconceptions
about
Sickle Cell
© Sickle Cell Survivors Forum 2015

5. About SCSForum
• What? SCSForum stands for: Sickle Cell Survivors Forum
• Where? The Headquarters of SCSForum is located @ Kazaure
• When? SCSForum was initiated in the year 2015
• Why?
The aims of the Forum are:
• To have an avenue where Sickle Cell Patients and their Family and Friends meet
to share experiences and exchange ideas
• To help and encourage affected individuals through Advises, Mentoring and
Inspirations
• To reduce the harmful misconceptions about the disease
• To promote unity and fellowship among Sickle Cell Patients
• To educate general public about the significance of testing their Genotype before
marriage
© Sickle Cell Survivors Forum 2015

6. The Myth
• I cannot have children with Sickle Cell because I do not
have Sickle Cell and no one in my family does either
• We are both carriers, so if we have 4 children only 1 of
them will be Sick
• SCD is a Communicable Disease
• SCD Patients are drug addicts
• SCD Patients do not grow to adulthood
• SCD Patients are mentally challenged
• THERE IS NO CURE FOR SCD !!!
© Sickle Cell Survivors Forum 2015
Myth is an idea or story
that is believed by many people
BUT THAT IS NOT TRUE

7. The Stigma
The general misperceptions of patients with SCD are;
• They are victims and cannot do the things that most
people do
• They are going to die younger, so no need to struggle for
life
• Nobody is going to marry them (both males and females)
© Sickle Cell Survivors Forum 2015
Stigma is a mark of disgrace associated
with a particular circumstance,
quality or person

8. The Truth
• Sickle Cell Patients are WARRIORS when they decides to be
• They can ACHIEVE whatever they want if they develop the mindset
• Sickle Cell is not a COMMUNICABLE Disease
• People with Sickle Cell can LIVE UP TO 60 and beyond
• Mostly Sickle Cell Patients are very intelligent and have virtuous
mental capabilities
• THERE ARE SEVERAL CURES FOR SICKLE CELL
(Bone-Marrow Transplant, Stem-Cell Transplant, Genetic Cloning…………)
© Sickle Cell Survivors Forum 2015

9. My Story 1
Kazaure 1979 Rano 1983
Magwan SPS Kano 1985-1991
Science Collage Lautai Gumel 1994-1997
GSS Kazaure 1991-1994
U.D.U Sokoto 1999-2005
DeltaState2007
InformaticsInstitute2006
CCNA 2010
Working with both IIITKzr and HAFEDPOLY 2006-2010
Malaysia2013-2014
Cyberjaya Malaysia

10. My Story 2
My Family, My Backbone, My Pillars, My Strength
As a WARRIOR I do unusual things that are not common among SICKLERS

11. COMING SOON………. Ga ta nan a cikin jini na,
ta nakasta Varaguzai na,
ta kasarta bagauniya na,
ta dusashe kazarniya na,
da ruwan Vargon jiki na
Raxaxi a cikin qashi na,
Xingishi tafiya a guna,
Bani bacci don na kwana,
Da'iman zogi da quna,
Wa ya sanya wuta jiki
naaaaa!

12. Q and A