Be Your Own Patient Advocate (Really!)

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A deck built for a women's event in Richmond VA. It exhorts people, particularly women, to be their own patient advocates. Don't be a meat puppet!

Health & Medicine Business

Women + Healthcare
This presentation was built for
HCA Virginia's Spirit of Women
Girls' Day Out on Oct. 7, 2011
(the message works for ALL women!)

... 'cause you'll do the best job. Really.
Be Your Own
Patient Advocate

Without Patients
Customers
A doctor's just
another dude
(or dude-ette)
in a white
coat.

Who makes 80%+ of all
household decisions?
I'll give you
three
guesses.
1st two don't
count...

Act like a CUSTOMER,
get treated like one.

Ask friends.
Ask colleagues.
Use the web.

If you're not comfortable
with the healthcare
shopping metaphor ...

Healthcare is ...
Collaboration
Teamwork
Research
Project management
Data management
A WORKING
RELATIONSHIP!

Data, data, who's got my
data?
If doctors and
patients could
freely exchange
information and
data,
who knows what
might
happen?

Doctors + Patients
X Data Sharing =
REAL Health Care
Reform

Alphabet soup is an issue
HIPAA
HIE
FHITSOP
HITRUST
HITECH
BHIE
CCHIT
E-I-E-I-O

So what's a grrl to do?
Know your
history
Know your risk
factors
Keep your own
records

Family History
Diabetes
Cancer
Stroke
Hypertension
Asthma
Cataracts
Heart disease
Glaucoma

Personal History
Smoking
Weight
Activity level
Stress level
Geographic
location (this is
MUCH bigger than
you'd expect)
Geographic history
(where did you
grow up? where
have you lived?)

Record Keeping
Excel spreadsheets
are AWESOME tools
RIP Google Health:
build your own on
Mozy.com or Box.net
If your provider has
an online patient
portal: USE IT

"Airplane Rules"
Take care of
YOURSELF first
Monitor your
habits: what can
you change?
You are what
you eat

Become an e-Patient
Empowered
Equal
Engaged
Enabled
Equipped
Emancipated
Expert

"My doctor won't play"
Two words:
YOU'RE FIRED.

Digital Patients
Bill of Rights
Shared access to my data
Attitude of collaboration and mutual respect
The patient is the largest stakeholder
Transparency and authenticity across all areas
Voice of the patient is a legitimate (clinical) source
The right to efficient communication with providers
who utilize the technology that we need
~Philadelphia PA, September 19, 2011
(I was there!)

Let's review:
Ask questions
Work to understand the
answers
If you don't understand, keep
asking
Don't be a diva, but do be
fierce on your own behalf
Keep your own records
Ask for copies of everything
Don't be a meat-puppet
Stay INSIDE the car
YOU
healthcare system

Resources
e-Patients movement: e-patients.net
WEGO Health: WEGOhealth.com
Health Central: HealthCentral.com
Dept. of Health + Human Services: Health.gov
Condition-related pages:
Cancer.gov/.org
Diabetes.org
[name-that-disease].org

Our Bodies, Ourselves?
YOUR body.
YOUR self.
YOUR responsibility.

?
Have questions?
Contact me!
casey@mightycasey.com

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