+III Workshop on Technologyfor HealthCare and Healthy Life Polytechnic University of Valencia Looking forward the “classical” e- patient: approach to a typology PSINET Research Group Open University of Catalonia. email@example.com @armayones
+ Challenges in Health Social Networks We need to know more about “Law of attrition” here is the observation that in any eHealth trial/tool a substantial proportion of users drop out before completion or stop using the application. (Eynsebach;2005) “Our user (APTIC) shows a high level of self-efficacy, perceived social supports in the PRE analysis” …Can we improve more the “key variables”? What about the rest of patients? Our (unrealistic) vision: “If I create a “wonderful” Social Network , people will come”. Not taking in account the role of Facilitator/ Community manager? …Are you specialist in human behavior? ….Captology.
+ Do you have questions like?... Why the people “hate” my Social Network? Why they don’t are “active users” with a high level of participation? Why they don’t come? It’s “Free” and “Wonderful tool for the patients” Why we are working for only a part o population? At list……
+ We need to know more about ePatients: Evaluating all their characteristics: Educational level Age Attitudes Informatics skills Informational skills Reading level Writing skills Social skills Expectative about health/disease Interest in collaborate in research
+ Our approach Survey/Focus Group/In-deep interviews about demographic and social information Use of two specific Scales (or create one) -eHeals Scale: eHealth Literacy Scale -Patient Activation Measure Scale.
+ eHealth Literacy Scale I know what health resources are accessible through the Internet. I know where to find useful health resources on the Internet. I know how to find useful health resources on the Internet. I know how to use the Internet to find answers to health issues. I know how to use the information you find on the Internet about health for me to be helpful. I have the skills to assess health resources found on the Internet. I can distinguish in Internet health resources of good quality of poor quality I feel safe when using Internet information in making health decisions.
+ Patient Activation Measure (PAM) When all is said and done, I am the person who is responsible for managing my health condition. I am confident that I can take actions that will help prevent or minimize some symptoms or problems associated with my health condition. I know what each of my medications do. I am confident that I can tell when I need to go get medical care and when I can handle a health problem myself.
+ I know the different medical treatment options available for my health condition. I have been able to maintain the lifestyle changes for my health that I have made. I know how to prevent further problems with my health conditions. I am confident I can figure out solutions when new situations or problems arise with my health. I am confident that I can maintain lifestyle changes like diet and exercise even during times of stress.
+ At the end…The Personalized intervention with ePatients can be a good strategy to improve our knowledge about PersonalizedMedicine: Right Drug, Right Patient, Right Moment Personalized ePatient Intervention Right Social Media Tool, Right Person, Right Moment
+ Thanks for your attention! firstname.lastname@example.org @armayones