HOPES Coordination

heHOPESprogramhelpsindividualsfindanswerstoquestions,such
Couldmyfamily’scancerhistorybeapartofahereditarycancercondi
Areothermembersofmyfamilyatincreasedriskforcancer?
Isgenetictestinganoptionforme?
SinceIhavehadcancer,howcangenetictestinginfluencemymedical
management?
Whatismyriskfordevelopingcancerbasedonmyfamilyhistory?
OPESisanonprofitadvocacyprogramthatprovidescancereducation
ndresources,casemanagementservicesandvolunteerassistanceplans
rpatientsandfamiliesaffectedbycancer.
leasecall800-345-7201orvisitwww.hopessource.orgtoreceivegui
ndsupportontakingstepstopreventcancer.
Isdesignedforanyonewhoisconcerned
theirriskofdevelopinghereditarycancer
He
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Does cancer
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entionEmpowerment
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While you don’t inherit cancer, you can
inherit a higher risk of developing it.
Know Your Family History
This Knowledge Can Be Life Saving.
Did you know?
• Approximately one in every two men and one in every
Does cancer run in your family?
1) Has cancer been diagnosed in multiple family

management?
He
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ditaryOncologyPrev
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Does cancer
run in your family?
Here
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ntionrm
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management?
He
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ditaryOncologyPrev
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Does cancer
run in your family?
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WHAT is HOPES?
Hereditary
Oncology
Preven/on
Empowerment
Services
•  HOPES is one of the services
of Hopes Source, Inc. that
coordinates care for pa/ents
concerned about hereditary
cancer risks.
•  Hopes Source, Inc. is a non-
proﬁt organiza/on that
supports pa/ents & families
aﬀected by cancer.
•  www.hopessource.org

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Does cancer
run in your family?
Here
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WHAT is involved in the Coordina(on of Care
for pa:ents interested in hereditary cancer tes:ng?
•  PATIENT EDUCATION
•  GENETIC COUNSELING PRE- AND POST-TESTING
•  INSURANCE PRIOR AUTHORIZATION
•  A PHYSICIAN PATIENT ENCOUNTER
•  PATIENT CONSENTS
•  OBTAINING THE PATIENT SALIVA SAMPLE
•  DEVELOPMENT OF A PRIMARY PREVENTION PLAN
•  ONGOING SUPPORT & GUIDANCE

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Does cancer
run in your family?
Here
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WHO are Hopes Source partners and
what are their roles?
•  Hopes Source
•  OFFERS Pa/ent Advocacy Services
•  GOALS are to provide pa/ent/family support, educa/on, outreach and coordina/on
of care
•  www.hopessource.org
•  InformedDNA
•  OFFER Gene/c Counseling
•  GOAL is to provide pa/ents access to third party gene/c counselors which is now a
requirement by most commercial payors
•  The Gene9c Medicine Clinic
•  OFFERS access to Gene/c Experts via Telemedicine
•  Goal is to provide pa/ents and providers with remote access to specialty care
•  myGenomics, D2 Gene9cs, NCF Diagnos9cs…
•  OFFER Lab Services
•  Goal is to provide access to an extensive port folio of gene/c tes/ng
•  Novus Health
•  OFFERS Sales and Management
•  Goal is to partner with tes/ng labs for sales opportuni/es

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He
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Does cancer
run in your family?
Here
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WHY was the HOPES plaAorm created?
HOPES was created out of necessity for both pa/ents and providers so they
can have easy access to ALL of the needed services surrounding the
iden/fica/on and care for pa/ents at risk of hereditary cancer.
•  Providers want to iden9fy these pa9ents. They feel a responsibility to offer this service but they
just don’t have /me or the exper/se to counsel them.
•  Unfortunately, the lab industry has pushed us to take the decision lightly and rush through
tes/ng without considering everything that is involved.
•  Prior PiZalls…. Pa/ent have been tested:
•  who don’t qualify.
•  without an understanding of costs or access to organiza/ons who provide assistance.
•  by providers who don’t understand WHICH genes even need to be tested which leads to overu/liza/on
and con/nued denials by insurance companies.
•  by providers who don’t understand the results or how to support the pa/ent in developing a primary
preven/on plan.
•  And then le^ stranded b/c the lab couldn’t run without prior authoriza/on which was then put back on
the provider OR gene/c counseling that was then put back on the pa/ent.
•  By out-of-network labs who get denials for pre-auth. but then fail to offer other solu/ons for the pa/ent.
•  HOPES was created because there was a HUGE void in the con/nuity in pa/ent care.

management?
He
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ditaryOncologyPrev
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ntionEmpowerm
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Does cancer
run in your family?
Here
e
ntionrm
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Service
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HOPES
Gene/c
Counselor
HOPES
Provider
HOPES
Pre -
Authoriza/on
HOPES
Lab
HOPES
Gene/c
Counselor

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He
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ditaryOncologyPrev
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Does cancer
run in your family?
Here
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WHEREshould the HOPES plaAorm be implemented?
•  Physician Prac/ces
•  Corporate En//es
•  Community Outreach
•  Schools
•  Family
•  Friends

management?
He
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ditaryOncologyPrev
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Does cancer
run in your family?
Here
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WHENshould a pa:ent be referred to HOPES?
If they check one of the boxes at the bo_om of the
Pa/ent Hereditary Cancer Ques/onnaire:

Grandfather

Aunts

Uncles

Cousins

Father’s Side
Father

Grandmother

Grandfather

Aunts

Uncles

Cousins

Have you or any family member had:
1. ovarian or fallopian tube cancer at any age?
2. breast cancer at age 50 or younger?
3. more than one breast cancer diagnosis?
4. both breast and ovarian cancer?
5. triple negative breast cancer?
6. Eastern European (Ashkenazi) Jewish ancestry
and a history of breast or ovarian cancer?
7. male breast cancer?
8. renal cell (kidney) cancer at age 50 or younger?
9. colorectal cancer at age 50 or younger?
10. personal history or first degree relative with
thyroid cancer?
11. personal history of parathyroid cancer <30 yo?
12. personal history of multiple endocrine tumors?
13. personal history of gastric cancer?
14. personal history of primary melanoma >2 times?
15. >1 cases of pancreatic cancer in close relatives?
Have more than one member on
the same side of the family had:

1. breast cancer?
2. ovarian or fallopian tube cancer?
3. prostate cancer?
4. melanoma or pancreatic cancer?
5. gastric cancer?
6. melanoma?
7. multiple and/or unknown types
of cancers in one person?
If you answered “yes” to any of
these questions, you may
consider further evaluation of
your risk of developing a
hereditary cancer with a
genetic counselor.

management?
He
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ditaryOncologyPrev
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ntionEmpowerm
en
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Does cancer
run in your family?
Here
e
ntionrm
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Service
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HOW do you refer a pa:ent to HOPES?
For the prac/ce…

•  Pa/ent receives a HOPES Pa/ent Ques/onnaire at Check-in and
returns it to the nurse when they are taken to the room.
•  If one of the boxes are checked at the bo_om, they should be
referred to HOPES.
•  Referral involves the comple/on and faxing of:
•  A^er the pa/ent has completed their GC appt. and prior auth. (when
indicated), HOPES will provide the informa/on to the referring
physician and they have the op/on to proceed with ordering any
recommended test(s).
•  HOPES will facilitate sending the pa/ent a test kit and guiding them
through taking the sample and submicng it to the lab OR the pa/ent
can have the sample taken at the physician’s oﬃce.
HOPES Referral Form Pa/ent Hereditary Cancer Risk Assessment
Demographic Sheet Insurance Card (Front/Back)

management?
He
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ditaryOncologyPrev
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ntionEmpowerm
en
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Service
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Does cancer
run in your family?
Here
e
ntionrm
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For all other en//es…

•  Pa/ent receives a HOPES Pa9ent Referral Packet that includes
the same informa/on:
•  HOPES Pa/ent Hereditary Cancer Risk Assessment
•  HOPES Referral Pa/ent Informa/on Form
•  Copy of Insurance Card (Front/Back)
•  The pa/ent completes the screening ques/onnaire at home
and if one of the boxes are checked at the bo_om, they should
fax the informa/on to HOPES.

management?
He
re
ditaryOncologyPrev
e
ntionEmpowerm
en
t
Service
TM
Does cancer
run in your family?
Here
e
ntionrm
en
t
Service
TM
For all other en//es…

•  Aêr the pa/ent has completed their GC appt. and prior auth. (when
indicated), HOPES will reach out to the pa/ent’s physician to execute
the ordering of the test. The physician will receive the full GC
recommenda/on and Prior Auth. with the requisi/on request to
demonstrate all appropriate steps have been taken for their pa/ent.
•  HOPES will take this opportunity to introduce the HOPES program to
the prac/ce and will send a Welcome Packet in the mail to include
marke/ng tents and ques/onnaires.
•  Aêr receiving the physician signed requisi/on, HOPES will include all
paperwork in the pa/ent’s tes/ng kit and mail it to the pa/ent OR
send the kit to the physician’s office to be tested during an in-person
appt. if requested.
•  If the test kit is sent to the pa/ent’s home, the advocate will follow
up with the pa/ent the day of arrival and walk them through
obtaining the sample.

management?
He
re
ditaryOncologyPrev
e
ntionEmpowerm
en
t
Service
TM
Does cancer
run in your family?
Here
e
ntionrm
en
t
Service
TM
Here
entionEmpowerment
Service
TM
While you don’t inherit cancer, you can
inherit a higher risk of developing it.
Know Your Family History
This Knowledge Can Be Life Saving.
Did you know?
• Approximately one in every two men and one in every
three woman will develop some type of cancer in
their lifetime?
• 1 in 10 people (including children) who develop
cancer have had the diagnosis because of an
inherited risk factor?
• Over 50 different types of cancer may be hereditary?
• Detecting cancer early is one of the most important
things you can do to protect your health and that in
many cases cancer be prevented entirely?
• The lifetime cancer risk for patients with identified
gene mutations, is significantly increased, up to a:
» 87% higher risk for breast cancer
» 44% higher risk for ovarian cancer
» 99% higher risk for colon cancer
» 71% higher risk for uterine
» 76% higher risk for melanoma
» 36% higher risk for pancreatic
» 80% higher risk for gastric
» 44% higher risk for prostrate
Does cancer run in your family?
1) Has cancer been diagnosed in multiple family
members across generations?
2) Have any family members been diagnosed with
cancer before the age of 50?
3) Have any family members had the same or
related types of cancer?
4) Have any family members been diagnosed with
a rare cancer; for example: breast cancer in a
man or cancer of the colon, uterus, thyroid or
stomach?
5) Have you or any family member had ovarian or
fallopian tube cancer at any age?
6) Are you of the Ashkenazi Jewish ancestry?
If you have answered “YES” to any of the
questions above, you may benefit from a
Hereditary Cancer Assessment.

management?
He
re
ditaryOncologyPrev
e
ntionEmpowerm
en
t
Service
TM
Does cancer
run in your family?
Here
e
ntionrm
en
t
Service
TM
Does cancer
run in your family?
Here
entionEmpowerment
Service
TM

management?
He
re
ditaryOncologyPrev
e
ntionEmpowerm
en
t
Service
TM
Does cancer
run in your family?
Here
e
ntionrm
en
t
Service
TM
The HOPES program helps individuals find answers to questions, such as:
• Could my family’s cancer history be a part of a hereditary cancer condition?
• Are other members of my family at increased risk for cancer?
• Is genetic testing an option for me?
• Since I have had cancer, how can genetic testing influence my medical
management?
• What is my risk for developing cancer based on my family history?
HOPES is a nonprofit advocacy program that provides cancer education
and resources, case management services and volunteer assistance plans
for patients and families affected by cancer.
Please call 800-345-7201 or visit www.hopessource.org to receive guidance
and support on taking steps to prevent cancer.
Is designed for anyone who is concerned about
their risk of developing hereditary cancer.
Here
entionEmpowerment
Service
TM

management?
He
re
ditaryOncologyPrev
e
ntionEmpowerm
en
t
Service
TM
Does cancer
run in your family?
Here
e
ntionrm
en
t
Service
TM
HEREDITARY ONCOLOGY PREVENTION EMPOWERMENT SERVICES
Who should have a
Hereditary Cancer Risk Assessment?
• A person having two or more close relatives on the same side of the family with the same or
related cancers, especially if the cancer occurred before age 50.
• A person who either has cancer before the age of 50, who has more than one kind of cancer,
or who has a close family member with the above.
• A person from a family that is known to have a inherited cancer syndrome.
• A person with a rare cancer; for example, breast cancer in a man or a person with an adrenal
gland tumor, cancer of the uterus, stomach or thyriod.
• A person who is very anxious about their risk based on their family history.
If you are concerned about your hereditary cancer risk, please ask your health care provider
about the HOPES program and make arrangements to speak to a genetic expert today.
Call 800-345-7201 or schedule your appointment online at www.hopessource.org.

management?
He
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ditaryOncologyPrev
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ntionEmpowerm
en
t
Service
TM
Does cancer
run in your family?
Here
e
ntionrm
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Service
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Pre-screen
• Ask each patient to complete the Patient Hereditary
Cancer Risk Assessment
Prepare
• Ask each patient to provide information about their family’s
health history
• Provide educational resources for patients to learn more about
hereditary cancer and genetic testing
Hopes Source Advocates will:
Pre-set
• Will schedule an appointment for the patient to consult with a licensed
genetic expert
• Will assist the patient with the saliva collection and submission process as needed
Pre-authorization
• Will assist with insurance pre-authorization for any recommended testing
HEREDITARY ONCOLOGY PREVENTION EMPOWERMENT SERVICES
Provide
• Will supply patient and family members with ongoing educational resources and
advocacy support in developing a Personalized Prevention Plan
Here
entionEmpowerment
Service
TM

management?
He
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ditaryOncologyPrev
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ntionEmpowerm
en
t
Service
TM
Does cancer
run in your family?
Here
e
ntionrm
en
t
Service
TM
Other Resources?
www.hopessource.org

HOPES Coordination

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