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THE WEISS FAMILY
PATRICK, MEAGAN & AVERY
Type 1 Diabetes Management of a Baby and Toddler
Through Real-Time Data and Technology
AVERY WEISS, 3 YEARS OLD
 Diagnosed with Type 1 Diabetes in
February 2014 at age 13 months
 No awareness or ability to communicate
low or high blood sugars at any point since
diagnosis
 Preschool was willing to learn Type 1
Diabetes management in order for Avery
to stay in school
 Within 3 months after diagnosis, Avery
had a Continuous Glucose Monitor
(Dexcom/CGM) and insulin pump
(Medtronic MiniMed)
REQUIREMENT FOR REMOTE MONITORING
 It is typical for at least one parent of a Type
1 child to stop working to manage the
disease after diagnosis
 We utilized Remote Monitoring technologies
to allow Avery to return to preschool full-time
and both of us to return to work full-time
after diagnosis
 The Nighscout Project is a community-
developed software to allow parents to
monitor their child’s blood sugar readings
from the CGM via a web browser or smart
watch (in real-time)
NIGHTSCOUT SETUP
NIGHTSCOUT WEBSITE
ADDITIONAL OVERNIGHT MONITORING
o Dexcom Share transmits to both
of our iPhones
o Will alarm to wake us if Avery’s
blood sugar goes too high or low
o Allows us to sleep more normally
and not wake every night for a 2
AM blood sugar check (meant to
prevent dead-in-bed syndrome)
TECHNOLOGY FOR INSULIN RATES/RATIO
ADJUSTMENT

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HIMMS Presentation Weiss Family

  • 1. THE WEISS FAMILY PATRICK, MEAGAN & AVERY Type 1 Diabetes Management of a Baby and Toddler Through Real-Time Data and Technology
  • 2. AVERY WEISS, 3 YEARS OLD  Diagnosed with Type 1 Diabetes in February 2014 at age 13 months  No awareness or ability to communicate low or high blood sugars at any point since diagnosis  Preschool was willing to learn Type 1 Diabetes management in order for Avery to stay in school  Within 3 months after diagnosis, Avery had a Continuous Glucose Monitor (Dexcom/CGM) and insulin pump (Medtronic MiniMed)
  • 3. REQUIREMENT FOR REMOTE MONITORING  It is typical for at least one parent of a Type 1 child to stop working to manage the disease after diagnosis  We utilized Remote Monitoring technologies to allow Avery to return to preschool full-time and both of us to return to work full-time after diagnosis  The Nighscout Project is a community- developed software to allow parents to monitor their child’s blood sugar readings from the CGM via a web browser or smart watch (in real-time)
  • 6. ADDITIONAL OVERNIGHT MONITORING o Dexcom Share transmits to both of our iPhones o Will alarm to wake us if Avery’s blood sugar goes too high or low o Allows us to sleep more normally and not wake every night for a 2 AM blood sugar check (meant to prevent dead-in-bed syndrome)
  • 7. TECHNOLOGY FOR INSULIN RATES/RATIO ADJUSTMENT