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Advancing HIV and Hepatitis PreventionAdvancing HIV and Hepatitis Prevention
for Drug Usersfor Drug Users
Ending the Ban on Federal Funding forEnding the Ban on Federal Funding for
Syringe Service Programs: newSyringe Service Programs: new
environments, new data, new messages,environments, new data, new messages,
new messengersnew messengers
Why should anyoneWhy should anyone
care?care?
• Here in the US, 8% of new HIV infections are due to IDU.Here in the US, 8% of new HIV infections are due to IDU.
• That’s 11 people per day.That’s 11 people per day.
• IDUs are twice as likely to be unaware of their HIV statusIDUs are twice as likely to be unaware of their HIV status
than the general public.than the general public.
• Outside of Sub-Saharan Africa, three out of ten newOutside of Sub-Saharan Africa, three out of ten new
infections are due to IDU.infections are due to IDU.
• No $$ will go to SSPs outside the US until the ban hasNo $$ will go to SSPs outside the US until the ban has
been lifted.been lifted.
• Here in the US, Hep C is the leading cause of deathHere in the US, Hep C is the leading cause of death
among those living with HIV.among those living with HIV.
• Hep C is the leading cause of liver transplants.Hep C is the leading cause of liver transplants.
• The epidemic of prescription drug use and IDU.The epidemic of prescription drug use and IDU.
• There are more deaths due to drug overdose than autoThere are more deaths due to drug overdose than auto
accidents.accidents.
• Health care is a right.Health care is a right.
o In 2009, Congress removed a 21-year prohibition on theIn 2009, Congress removed a 21-year prohibition on the
use of federal funds to support SSPs.use of federal funds to support SSPs.11
Two years later,Two years later,
Congress re-imposed the ban on federal funding forCongress re-imposed the ban on federal funding for
SSPs.SSPs.22
o While the ban was lifted, federal dollars were used toWhile the ban was lifted, federal dollars were used to
support SSPs in California, Connecticut, Delaware,support SSPs in California, Connecticut, Delaware,
Illinois, Massachusetts, Minnesota, New Jersey, NewIllinois, Massachusetts, Minnesota, New Jersey, New
Mexico, New York, Puerto Rico, Vermont, andMexico, New York, Puerto Rico, Vermont, and
Washington.Washington.33
o Funding came from CDC, HRSA, and SAMHSA. IHS was aFunding came from CDC, HRSA, and SAMHSA. IHS was a
potential source which wasn’t tapped.potential source which wasn’t tapped.
o Seen as a “seal of approval”, lifting the ban opened doorsSeen as a “seal of approval”, lifting the ban opened doors
from other donors.from other donors.
o These dollars were used to: expand service hours,These dollars were used to: expand service hours,
provide services in new locations, and provide additionalprovide services in new locations, and provide additional
services such as case management and overdoseservices such as case management and overdose
prevention services.prevention services.
A Brief History of the BanA Brief History of the Ban
Where are we now?Where are we now?
 This is the closest we have beenThis is the closest we have been
since the ban was reinstated insince the ban was reinstated in
2011.2011.
 Big change: the House came up withBig change: the House came up with
the language.the language.
 House and Senate now have identicalHouse and Senate now have identical
language for a partial lift. Unlikelanguage for a partial lift. Unlike
previous years, both are underprevious years, both are under
Republican control.Republican control.
What exactly?What exactly?
 Report languageReport language
"Needle Exchange Programs.—The Committee maintains its support for federal, state and local efforts to address the abuse
of prescription painkillers and other opioids. The Committee is alarmed by trends in urban and rural communities which
indicate a transition to injection drug use, and supports state and local efforts to mitigate the spread of related
infections, such as Hepatitis and HIV/AIDS, and associated healthcare costs. The Committee believes the determination
about whether to implement needle exchange programs remains a quintessentially local function, and therefore
maintains its prohibition on the use of federal funds for the purchase of syringes or sterile needles as a title V general
provision. The provision is modified, however, to allow existing programs in hard-hit communities to access federal
funds for other program elements, including substance use counseling and referral to treatment, that support
communities in their drive to end the cycle of dependency. Eligible programs must demonstrate a need or federal
support based on actual cases of Hepatitis or HIV/AIDS or on conditions posing a significant risk for an outbreak."
 Budget languageBudget language
SEC. 520. Notwithstanding any other provision of this Act, no funds appropriated in this Act shall be used to purchase sterile
needles or syringes for the hypodermic injection of any illegal drug: Provided, That such limitation does not apply to the
use of funds for elements of a program other than making such purchases if the relevant State or local health
department, in consultation with the Centers for Disease Control and Prevention, determines that the State or local
jurisdiction, as applicable, is experiencing, or is at risk for, a significant increase in hepatitis infections or an HIV
outbreak due to injection drug use, and such program is operating in accordance with State and local law.
 So what?So what?
So basically with this partial lift, federal dollars could go to all aspects of an SSP, except for the needles themselves. It's
counter-intuitive, but not a big deal since syringes are often the least expensive part of operating an SSP. It is an
improvement over how things stand now. Currently, federal dollars cannot be used for syringes, personnel, and housing
the exchange (either a vehicle or a building). The other issue (which is just FYI) is working with the CDC to define
"conditions posing a significant risk" and "hard-hit communities".
HOW DID WE GET HERE?HOW DID WE GET HERE?
NEW MESSAGES AND MESSENGERSNEW MESSAGES AND MESSENGERS
oSSPs save lives by preventing the spread of HIV and viral hepatitisSSPs save lives by preventing the spread of HIV and viral hepatitis
and by serving as a bridge to other services, including treatment forand by serving as a bridge to other services, including treatment for
substance use disorder.substance use disorder.
oBy reducing improperly disposed syringes, SSPs are good forBy reducing improperly disposed syringes, SSPs are good for
everyone: IDUs, first-responders, law enforcement, and general publiceveryone: IDUs, first-responders, law enforcement, and general public
safety.safety.
oSSPs address health disparities.SSPs address health disparities.
oIn light of prescription drug misuse and its expansion into injectionIn light of prescription drug misuse and its expansion into injection
drugs, the need for SSPs is greater than ever.drugs, the need for SSPs is greater than ever.
oSSPs enjoy broad support from medical, legal, public health, faith,SSPs enjoy broad support from medical, legal, public health, faith,
and local communities. Feds are the outlier.and local communities. Feds are the outlier.
oIt’s a matter of local control.It’s a matter of local control. State and local decision makers should haveState and local decision makers should have
flexibility in the use of federal funds to address local health concernsflexibility in the use of federal funds to address local health concerns..
oLifting the ban costs nothing and saves money.Lifting the ban costs nothing and saves money.
State, local, and faith-based organizationsState, local, and faith-based organizations
around the country already support SSPsaround the country already support SSPs
The following organizations supportThe following organizations support
SSPs:SSPs:
oAmerican Medical Student AssociationAmerican Medical Student Association
oAmerican Academy of Family PhysiciansAmerican Academy of Family Physicians
oAmerican Academy of PediatricsAmerican Academy of Pediatrics
oAmerican Bar AssociationAmerican Bar Association
oAmerican Medical AssociationAmerican Medical Association
oAmerican Public Health AssociationAmerican Public Health Association
oAmerican Society of Addiction MedicineAmerican Society of Addiction Medicine
oInternational Red Cross-Red CrescentInternational Red Cross-Red Crescent
SocietySociety
oLatino Commission on AIDSLatino Commission on AIDS
oNAACPNAACP
oNational Academy of SciencesNational Academy of Sciences
oNational Black Leadership Commission onNational Black Leadership Commission on
AIDSAIDS
oNational Black Police AssociationNational Black Police Association
oNational Institute on Drug AbuseNational Institute on Drug Abuse
oOffice of National Drug Control PolicyOffice of National Drug Control Policy
oPresidential Advisory Committee on AIDSPresidential Advisory Committee on AIDS
oUS Conference of MayorsUS Conference of Mayors
oWorld BankWorld Bank
oWorld Health OrganizationWorld Health Organization
SSPs also enjoy support from faith
communities, including:
•Central Conference of American Rabbis
•Episcopal Church
•National Council on Jewish Women
•Presbyterian Church of the United
States
•Society of Christian Ethics
•Union for Reform Judaism
•Unitarian Universalist Association
•United Church of Christ
•United Methodist Church, General
Board of Church and Society
•Regional AIDS Interfaith Network
State, local, and faith-based organizations around theState, local, and faith-based organizations around the
country already support SSPscountry already support SSPs
 "Syringe decriminalization and"Syringe decriminalization and
exchange is ...an issue ofexchange is ...an issue of
compassion and justice... As peoplecompassion and justice... As people
of faith, we are called to be theof faith, we are called to be the
embodiment of that compassion andembodiment of that compassion and
instruments of that justice in thisinstruments of that justice in this
world to offer an eternal hope. Theworld to offer an eternal hope. The
hope that someone may live anotherhope that someone may live another
day. The hope that they may beday. The hope that they may be
reconciled with their family. The hopereconciled with their family. The hope
that they can live a life free ofthat they can live a life free of
disease. The hope that they mightdisease. The hope that they might
choose to find treatment. The hopechoose to find treatment. The hope
that with that one more day, theythat with that one more day, they
might find their own hope for amight find their own hope for a
future outside of their addiction."future outside of their addiction."
- Pastor James Sizemore, Lead Pastor,- Pastor James Sizemore, Lead Pastor,
Catalyst Community Church, Fayetteville,Catalyst Community Church, Fayetteville,
North CarolinaNorth Carolina
Note: since this map was developed, there are SSPs in Indiana, Kentucky, and West Virginia
There are already a number of programs:
Most funding (82%) for SSPs is public –Most funding (82%) for SSPs is public –
Feds are the outlier when it comes to fundingFeds are the outlier when it comes to funding
Year of Operation
2012 2013
Total $$$ $19,431,912 $21,920,648
City Gov $ $5,789,118 $6,504,086
County Gov $ $1,538,358 $1,431,851
State Gov $ $8,391,180 $10,059,565
Foundation $ $1,966,688 $2,129,610
Individual Donations $696,947 $611,269
Out-of-pocket $ $50,525 $90,250
NASEN $ $4,150 $2,100
CBO Donation $ $28,740 $47,200
Corporate Donation $ $68,300 $157,500
Other $ $856,406 $887,218
The most important myth to dismantle:The most important myth to dismantle:
we can’t afford it.we can’t afford it.
Lifting the ban costs NOTHING. It simply allows localities to spendLifting the ban costs NOTHING. It simply allows localities to spend
their federal dollars as they see fit.their federal dollars as they see fit. ((In this way, it is also a state rights issueIn this way, it is also a state rights issue.).)
Every dollar invested in SSPsEvery dollar invested in SSPs
results inresults in
$7 in savings$7 in savings
just by preventing new HIVjust by preventing new HIV
infections.infections.11
Through Medicaid, Medicare, and Ryan White, the federal government is the
biggest payer of HIV care. So not only are we saving federal dollars, we are
saving entitlement (Medicaid and Medicare) and discretionary (RW) funds.
Local Data HelpsLocal Data Helps
o Between 2001 and 2011, Illinois saw a drop of nearlyBetween 2001 and 2011, Illinois saw a drop of nearly
two-thirds in new HIV cases among IDUs, averting antwo-thirds in new HIV cases among IDUs, averting an
estimated $200 million in medical expenses.estimated $200 million in medical expenses.11
o In Massachusetts, there was a 54% decrease in new HIVIn Massachusetts, there was a 54% decrease in new HIV
diagnosis between 1999 and 2012, preventing 5,699diagnosis between 1999 and 2012, preventing 5,699
infections and saving more than $2 billion in health careinfections and saving more than $2 billion in health care
costs.costs.22
o King County (Washington State) spent $1.1 million onKing County (Washington State) spent $1.1 million on
SSPs in 2008. If HIV was prevented among only 1% ofSSPs in 2008. If HIV was prevented among only 1% of
IDUs in King County, the resulting savings in HIVIDUs in King County, the resulting savings in HIV
treatment costs will be $70 million.treatment costs will be $70 million.33
o Washington, DC was allowed to spend its own money onWashington, DC was allowed to spend its own money on
SSPs in 2007. Within two years, 120 HIV infections wereSSPs in 2007. Within two years, 120 HIV infections were
averted, resulting in $45.6M in savings.averted, resulting in $45.6M in savings.44
o Miami, a city without legal SSPs,Miami, a city without legal SSPs, published study of thepublished study of the
costs of bacterial infections relating to IDU at Jacksoncosts of bacterial infections relating to IDU at Jackson
Memorial Hospital. The cost was $11.4M over 12 monthMemorial Hospital. The cost was $11.4M over 12 month
period.period.55
““I understandI understand
that there willthat there will
be questions,be questions,
but this isbut this is
commoncommon
sense.”sense.”
- Sister Maureen- Sister Maureen
Joyce, CEO of CatholicJoyce, CEO of Catholic
Charities, Albany, NYCharities, Albany, NY
Messages and Messengers:
law enforcement, faith communities, and families.
It’s not just the needle,It’s not just the needle,
it’s about the people!it’s about the people!
SSPs provide a variety of services inSSPs provide a variety of services in
addition to syringe exchangeaddition to syringe exchange11
o Onsite medical careOnsite medical care11
o Screening and counseling for HIV,Screening and counseling for HIV,
hepatitis C, and STIs (injection drughepatitis C, and STIs (injection drug
users are twice as likely as the generalusers are twice as likely as the general
public not to know their HIV status)public not to know their HIV status) 1,21,2
o Distribution of safer sex supplies, food,Distribution of safer sex supplies, food,
and clothingand clothing11
o Referrals to substance use treatment andReferrals to substance use treatment and
support groupssupport groups11
o Medications and resources to preventMedications and resources to prevent
death from drug overdosedeath from drug overdose33
o Case managementCase management
Selected Services Offered by
SSPs Nationwide
SSPs Make Communities Safer for EveryoneSSPs Make Communities Safer for Everyone
o SSPs distribute free sterile syringesSSPs distribute free sterile syringes
to injection drug users (IDUs), whichto injection drug users (IDUs), which
reduces the likelihood that users willreduces the likelihood that users will
share injecting equipment.share injecting equipment.11
o SSPs safely dispose of usedSSPs safely dispose of used
needles, a service not typicallyneedles, a service not typically
provided by distributors such asprovided by distributors such as
pharmacies.pharmacies.
o SSPs make neighborhoods safer bySSPs make neighborhoods safer by
reducing needle-stick injuries.reducing needle-stick injuries.11
LOCAL EXAMPLESLOCAL EXAMPLES
o In Baltimore, SSPs helpedIn Baltimore, SSPs helped
reduce the number ofreduce the number of
improperly discarded syringesimproperly discarded syringes
by almost 50%.by almost 50%.11
o In Portland, Oregon, theIn Portland, Oregon, the
implementation of SSPsimplementation of SSPs
reduced the number ofreduced the number of
improperly discarded syringesimproperly discarded syringes
by two-thirds.by two-thirds.22
o In 2008 and 2009, Miami (whichIn 2008 and 2009, Miami (which
had no SSPs) saw eight timeshad no SSPs) saw eight times
more improperly disposedmore improperly disposed
syringes than San Franciscosyringes than San Francisco
(where SSPs are available)(where SSPs are available)
despite the fact that Sandespite the fact that San
Francisco is thought to haveFrancisco is thought to have
twice as many IDUs.twice as many IDUs.33
SSPs Protect Those who Protect UsSSPs Protect Those who Protect Us
o Needle stick injuries to law enforcement areNeedle stick injuries to law enforcement are
a common occurrence. In San Diego, nearlya common occurrence. In San Diego, nearly
30% of officers have been stuck by a needle.30% of officers have been stuck by a needle.11
o Decriminalization of syringes (and SSPs) hasDecriminalization of syringes (and SSPs) has
been tied to reduced needle stick injuries. Inbeen tied to reduced needle stick injuries. In
South Carolina, where syringes are legal,South Carolina, where syringes are legal,
officers have experienced needle stickofficers have experienced needle stick
injuries at half the rate of their counterpartsinjuries at half the rate of their counterparts
in North Carolina, where syringes are illegal.in North Carolina, where syringes are illegal.22
o In Connecticut, police officer needle stickIn Connecticut, police officer needle stick
injuries were reduced by two-thirds after theinjuries were reduced by two-thirds after the
establishment of SSPs.establishment of SSPs.33
o ““In the cities that have adopted needleIn the cities that have adopted needle
services programs, there is a dramaticservices programs, there is a dramatic
reduction in needle sticks to firefighters whoreduction in needle sticks to firefighters who
crawl on their hands and knees throughcrawl on their hands and knees through
smoke-filled rooms in search of victims.” -smoke-filled rooms in search of victims.” -
Charles Aughenbaugh, Jr., President, New Jersey Deputy Fire ChiefsCharles Aughenbaugh, Jr., President, New Jersey Deputy Fire Chiefs
Association, Retired Deputy Fire Chief, March 2011Association, Retired Deputy Fire Chief, March 2011
Messages and Messengers:Messages and Messengers:
law enforcement, faith communities, andlaw enforcement, faith communities, and
families.families.
““By restoring the ban on federal fundingBy restoring the ban on federal funding
for syringe exchange, members offor syringe exchange, members of
Congress undoubtedly believed they wereCongress undoubtedly believed they were
striking a blow against drug use. Asstriking a blow against drug use. As
extensive experience has shown, nothingextensive experience has shown, nothing
could be further from the truth. Bycould be further from the truth. By
withholding funding for syringe exchange,withholding funding for syringe exchange,
Congress has made our communities lessCongress has made our communities less
safe, made police officers and medicalsafe, made police officers and medical
responders unsafe, undermined a vitalresponders unsafe, undermined a vital
bridge to drug treatment, and hinderedbridge to drug treatment, and hindered
national efforts to address public healthnational efforts to address public health
problems such as HIV and hepatitis C.”problems such as HIV and hepatitis C.”
- Chief James Pugel, Seattle Police Department- Chief James Pugel, Seattle Police Department
o In New York City, the growth of SSPs from 1990
to 2001 was associated with a 78% decrease in
HIV prevalence among IDUs.1
o During this time period, the same population
saw a decrease in the prevalence of hepatitis C
from 90% to 63% 2
o One study showed that within 6 months of using
federally-funded SSPs, clients saw a 45%
increase in employment.
o In addition, SSP clients were 25% more likely to
have been successfully referred to mental health
treatment and prescribed medication than other
SAMHSA grantees.3
o In New Jersey, 22% of the state’s SSP clients
have entered drug treatment.4
SSPs Bring Results
SSPs Do NOT lead to an increaseSSPs Do NOT lead to an increase
in crime or drug use.in crime or drug use.
o Neighborhoods in Baltimore with SSPs experienced anNeighborhoods in Baltimore with SSPs experienced an
11% decrease in break-ins and burglaries, while areas11% decrease in break-ins and burglaries, while areas
without SSPs saw an 8% increase in such crimes duringwithout SSPs saw an 8% increase in such crimes during
the same period.the same period.11
o In Seattle, IDUs who had used SSPs were more likely toIn Seattle, IDUs who had used SSPs were more likely to
report a significant decrease (>75%) in injection drugreport a significant decrease (>75%) in injection drug
use, to stop using injection drugs, and to remain inuse, to stop using injection drugs, and to remain in
treatment than IDUs who had never used SSPs.treatment than IDUs who had never used SSPs.22
o The same study in Seattle found that new users of theThe same study in Seattle found that new users of the
SSP were five times more likely to enter drug treatmentSSP were five times more likely to enter drug treatment
than individuals who never utilized the program.than individuals who never utilized the program.22
Local Examples
o Individuals using prescription drugs nonmedically may turn to injection as a moreIndividuals using prescription drugs nonmedically may turn to injection as a more
efficient method of drug delivery.efficient method of drug delivery.11
Additionally, the high cost of prescription drugs andAdditionally, the high cost of prescription drugs and
crackdown on prescription drug use can cause IDUs to transition to heroin use.crackdown on prescription drug use can cause IDUs to transition to heroin use.22
o A recent report by the Substance Abuse and Mental Health Services AdministrationA recent report by the Substance Abuse and Mental Health Services Administration
(SAMHSA) showed that those who reported prior use of nonmedical pain relievers were(SAMHSA) showed that those who reported prior use of nonmedical pain relievers were
19 times more likely19 times more likely to have recently begun using heroin than those who had notto have recently begun using heroin than those who had not
used nonmedical pain relievers. The report also showed thatused nonmedical pain relievers. The report also showed that 79.5%79.5% of people whoof people who
recently began using heroin had previously used prescription drugs for nonmedicalrecently began using heroin had previously used prescription drugs for nonmedical
purposes.purposes.33
o Heroin use has increased dramatically nationwide in the past several years. Whereas inHeroin use has increased dramatically nationwide in the past several years. Whereas in
2007, SAMHSA reported there to be 373,000 recent heroin users in the US,2007, SAMHSA reported there to be 373,000 recent heroin users in the US, thisthis
number jumped to 669,000 in 2012number jumped to 669,000 in 2012..44
o SSPs play an important role in addressing the needs of new IDUs. Other outlets forSSPs play an important role in addressing the needs of new IDUs. Other outlets for
these individuals to feel safe accessing care and treatment are scarce.these individuals to feel safe accessing care and treatment are scarce.
o In response, SSPs have opened in Indiana, Kentucky and West Virginia,In response, SSPs have opened in Indiana, Kentucky and West Virginia,
Prescription drug misuse leadsPrescription drug misuse leads
to a new generation of IDU.to a new generation of IDU.
Kentucky Case StudyKentucky Case Study
o A recent study has found that 35.3% of nonmedicalA recent study has found that 35.3% of nonmedical
prescription opioid users in rural Kentucky are nowprescription opioid users in rural Kentucky are now
injecting the drug.injecting the drug.11
o This value is higher than was previously reported amongThis value is higher than was previously reported among
that population, demonstrating an increase inthat population, demonstrating an increase in injectioninjection asas
the method for nonmedical prescription opioid users tothe method for nonmedical prescription opioid users to
administer their drugs.administer their drugs.11
o Kentucky has some of the highest rates of hepatitis C inKentucky has some of the highest rates of hepatitis C in
the country. It also has a high number of heart valvethe country. It also has a high number of heart valve
transplants due to endocarditis due to IDU.transplants due to endocarditis due to IDU.
o Last year it was close to legalizing syringe exchange. TheLast year it was close to legalizing syringe exchange. The
outbreak in Indiana motivated passage this year.outbreak in Indiana motivated passage this year.
Re-invigorating our traditional allies – this is a health disparity issue.Re-invigorating our traditional allies – this is a health disparity issue.
No matter how you slice it - HIV, AIDS, new infections, current infections, cumulativeNo matter how you slice it - HIV, AIDS, new infections, current infections, cumulative
infections, death rates, males, females – African-Americans and Latinos areinfections, death rates, males, females – African-Americans and Latinos are
disproportionately represented.disproportionately represented.
The prevalence of HIV among Hispanic andThe prevalence of HIV among Hispanic and
African-American IDUs is nearly twice as high as itAfrican-American IDUs is nearly twice as high as it
is for Caucasians.is for Caucasians.11
““As the Chairman of theAs the Chairman of the
National BlackNational Black
Leadership CommissionLeadership Commission
on AIDS Inc., and theon AIDS Inc., and the
resident of a state with aresident of a state with a
sizeable Latinosizeable Latino
community, I havecommunity, I have
personally witnessedpersonally witnessed
these disproportionatethese disproportionate
and devastating results.”and devastating results.”
Reverend Dr. W. James Favorite - Senior Pastor ofReverend Dr. W. James Favorite - Senior Pastor of
the historical Beulah Baptist Institutional Church andthe historical Beulah Baptist Institutional Church and
Chair of the National Black Leadership CommissionChair of the National Black Leadership Commission
on AIDS.on AIDS.
Local data helpsLocal data helps
Population Percent of population2 Current HIV infections attributable to
injection drug use3
African-Americans in California 6.6% 33.7%
African-Americans in Connecticut 11.3% 35.3%
Latinos in Connecticut 14.7% 38.5%
African-Americans in Florida 16.7% 55.1%
African-Americans in Georgia 31.4% 80.7%
African-Americans in Illinois 14.7% 67.4%
African-Americans in Kentucky 8.2% 49.7%
African-Americans in Maryland 30.1% 83.3%
African-Americans in
Massachusetts 8.1% 30.7%
Latinos in Massachusetts 10.5% 35.9%
African-Americans in New Jersey 14.7% 60.2%
African-Americans in New York 17.5% 47.5%
Latinos in New York 18.4% 38.7%
African-Americans in North
Carolina 22.0% 75.7%
African-Americans in Ohio 12.5% 56.2%
African-Americans in
Pennsylvania 11.5% 51.7%
Latinos in Pennsylvania 6.3% 23.5%
African-Americans in Texas 12.5% 51.6%
African-Americans in Washington 4.0% 22.2%
Looking atLooking at newnew
infections:infections:
African-African-
Americans areAmericans are
11X and11X and
Latinos are 5xLatinos are 5x
more likely tomore likely to
acquire HIV viaacquire HIV via
IDU than theirIDU than their
CaucasianCaucasian
counterparts.counterparts.
CDC, MMWR, HIV Infection Among Injection-CDC, MMWR, HIV Infection Among Injection-
Drug Users --- 34 States, 2004—2007, Nov 22,Drug Users --- 34 States, 2004—2007, Nov 22,
2009.2009.
Now what?Now what?
 Current status:Current status:
Right now, the budget is in a CR (continuing resolution), meaning that things are
on hold and operating as usual until Dec 11.
• Here is an update on what's happening: http://cqrcengage.com/aidsunited/app/document/9740255
• Nice summary on the budget: http://www.cqrcengage.com/aidsunited/app/document/9464743
 Our ask:Our ask:
 We are encouraged by recent Congressional action on this issue, and would like to express our appreciation for theWe are encouraged by recent Congressional action on this issue, and would like to express our appreciation for the
modification to the syringe access funding rider that you included in the House FY 16 Labor, Health and Humanmodification to the syringe access funding rider that you included in the House FY 16 Labor, Health and Human
Services, Education and Related Agencies (LHHS) Appropriations bill. Bipartisan leadership in modifying the ban onServices, Education and Related Agencies (LHHS) Appropriations bill. Bipartisan leadership in modifying the ban on
federal funding for syringe access programs will help many individuals in our communities struggling with opioid usefederal funding for syringe access programs will help many individuals in our communities struggling with opioid use
disorder access life-saving programs to avert drug overdose; access medical and substance use disorder treatment anddisorder access life-saving programs to avert drug overdose; access medical and substance use disorder treatment and
recovery services; and prevent life-threatening infections, including HIV and hepatitis C. It will also allow us to addressrecovery services; and prevent life-threatening infections, including HIV and hepatitis C. It will also allow us to address
this issue abroad where outside of Sub-Saharan Africa, three out of ten new HIV infections are because of injection drugthis issue abroad where outside of Sub-Saharan Africa, three out of ten new HIV infections are because of injection drug
use.use. Accordingly, we urge you to include this modified rider in any FY 16 Continuing Resolution, final FY 16Accordingly, we urge you to include this modified rider in any FY 16 Continuing Resolution, final FY 16
LHHS bill, and/or FY 16 LHHS omnibus appropriations bill.LHHS bill, and/or FY 16 LHHS omnibus appropriations bill.
 OrOr
 No matter what the appropriations outcome is, we ask that any final appropriations bill or continuing resolution shouldNo matter what the appropriations outcome is, we ask that any final appropriations bill or continuing resolution should
contain the language allowing states or local jurisdictions to use federal funds for syringe exchange programs if theycontain the language allowing states or local jurisdictions to use federal funds for syringe exchange programs if they
are experiencing or at risk for a significant increase in hepatitis infections or an HIV outbreak due to injection drug use.are experiencing or at risk for a significant increase in hepatitis infections or an HIV outbreak due to injection drug use.
It would also allow us to address this issue abroad where we have already enjoyed bipartisan success fighting HIV.It would also allow us to address this issue abroad where we have already enjoyed bipartisan success fighting HIV.
House ask: keep the new language they put forward (House was first)House ask: keep the new language they put forward (House was first)
regardless if there is a CR, omnibus, or final LHHS bill.regardless if there is a CR, omnibus, or final LHHS bill.
If the member is a Democrat, ask that they let Lowey know of their support.If the member is a Democrat, ask that they let Lowey know of their support.
If the member is a Republican, ask that they let Rogers know of their supportIf the member is a Republican, ask that they let Rogers know of their support
Approps subcmte on HealthApprops subcmte on Health
RepublicansRepublicans
Chairman Tom Cole (OK)Chairman Tom Cole (OK)
Mike Simpson (ID)Mike Simpson (ID)
Steve Womack (AR)Steve Womack (AR)
Chuck Fleischmann (TN)Chuck Fleischmann (TN)
Andy Harris, MD (MD)Andy Harris, MD (MD)
Martha Roby (AL)Martha Roby (AL)
Charlie Dent (PA)Charlie Dent (PA)
Scott Rigell (VA)Scott Rigell (VA)
DemocratsDemocrats
Ranking Member Rosa DeLauro (CT)Ranking Member Rosa DeLauro (CT)
Lucille Roybal-Allard (CA)Lucille Roybal-Allard (CA)
Barbara Lee (CA)Barbara Lee (CA)
Chaka Fattah (PA)Chaka Fattah (PA)
Full Approps CmteFull Approps Cmte
RepublicansRepublicans
Harold Rogers* (KY), Rodney P. FrelinghuysenHarold Rogers* (KY), Rodney P. Frelinghuysen
(NJ), Robert B. Aderholt (AL), Kay Granger (TX),(NJ), Robert B. Aderholt (AL), Kay Granger (TX),
Michael K. Simpson (ID), John Abney CulbersonMichael K. Simpson (ID), John Abney Culberson
(TX) , Ander Crenshaw (FL), John R. Carter (TX),(TX) , Ander Crenshaw (FL), John R. Carter (TX),
Ken Calvert (CA), Tom Cole (OK), Mario Diaz-Ken Calvert (CA), Tom Cole (OK), Mario Diaz-
Balart (FL), Charles W. Dent (PA), Tom GravesBalart (FL), Charles W. Dent (PA), Tom Graves
(GA), Kevin Yoder (KS), Steve Womack (AR),(GA), Kevin Yoder (KS), Steve Womack (AR),
Alan Nunnelee (MI), Jeff Fortenberry (NE), TomAlan Nunnelee (MI), Jeff Fortenberry (NE), Tom
Rooney (FL), Chuck Fleischmann (TN), JaimeRooney (FL), Chuck Fleischmann (TN), Jaime
Herrera Beutler (WA), David Joyce (OH), DavidHerrera Beutler (WA), David Joyce (OH), David
Valadao (CA), Andy Harris, MD (MD), MarthaValadao (CA), Andy Harris, MD (MD), Martha
Roby (AL), Mark Amodei (NV), Chris StewartRoby (AL), Mark Amodei (NV), Chris Stewart
(UT), Scott Rigell (VA), David Jolly (FL), David(UT), Scott Rigell (VA), David Jolly (FL), David
Young (IA), Evan Jenkins (WV)Young (IA), Evan Jenkins (WV)
DemocratsDemocrats
Nita M. Lowey* (NY), Marcy Kaptur (OH), Peter J.Nita M. Lowey* (NY), Marcy Kaptur (OH), Peter J.
Visclosky (IN), José E. Serrano (NY), Rosa L.Visclosky (IN), José E. Serrano (NY), Rosa L.
DeLauro (CT), David E. Price (NC), Lucille Roybal-DeLauro (CT), David E. Price (NC), Lucille Roybal-
Allard (CA), Sam Farr (CA), Chaka Fattah (PA),Allard (CA), Sam Farr (CA), Chaka Fattah (PA),
Sanford D. Bishop, Jr. (GA), Barbara Lee (CA),Sanford D. Bishop, Jr. (GA), Barbara Lee (CA),
Adam B. Schiff (CA), Michael M. Honda (CA),Adam B. Schiff (CA), Michael M. Honda (CA),
Betty McCollum (MN), Tim Ryan (OH), DebbieBetty McCollum (MN), Tim Ryan (OH), Debbie
Wasserman Schultz (FL), Henry Cuellar (TX),Wasserman Schultz (FL), Henry Cuellar (TX),
Chellie Pingree (ME), Mike Quigley (IL), SteveChellie Pingree (ME), Mike Quigley (IL), Steve
Israel (NY), C.A. Dutch Ruppersberger (MD),Israel (NY), C.A. Dutch Ruppersberger (MD),
Derek Kilmer, WADerek Kilmer, WA
Senate ask: keep the new language regardless if there is a CR,Senate ask: keep the new language regardless if there is a CR,
omnibus, or final LHHS bill.omnibus, or final LHHS bill.
If the Senator is a Republican, ask that they inform Cochran and Blunt of their support.If the Senator is a Republican, ask that they inform Cochran and Blunt of their support.
If the Senator is a Democrat, ask that they inform Mikulski and Murray of their support.If the Senator is a Democrat, ask that they inform Mikulski and Murray of their support.
Approps subcmte on Health:Approps subcmte on Health:
DemocratDemocrat
Ranking Member Patty Murray (WA)Ranking Member Patty Murray (WA)
Richard Durbin (IL)Richard Durbin (IL)
Jack Reed (RI)Jack Reed (RI)
Barbara Mikulski (MD)Barbara Mikulski (MD)
Jeanne Shaheen (NH)Jeanne Shaheen (NH)
Jeff Merkley (OR)Jeff Merkley (OR)
Brian Schatz (HI)Brian Schatz (HI)
Tammy Baldwin (WI)Tammy Baldwin (WI)
RepublicanRepublican
Chairman Roy Blunt (MO)Chairman Roy Blunt (MO)
Jerry Moran (KS)Jerry Moran (KS)
Richard Shelby (AL)Richard Shelby (AL)
Thad Cochran (MI)Thad Cochran (MI)
Lamar Alexander (TN)Lamar Alexander (TN)
Lindsey Graham (SC)Lindsey Graham (SC)
Mark Kirk (IL)Mark Kirk (IL)
Bill Cassidy (LA)Bill Cassidy (LA)
Shelley Moore Capito (WV)Shelley Moore Capito (WV)
James Lankford (OK)James Lankford (OK)
Full CommitteeFull Committee
Democratic MembersDemocratic Members
Vice Chairwoman Barbara Mikulski (MD),Vice Chairwoman Barbara Mikulski (MD),
Patrick J. Leahy (VT), Patty Murray (WA),Patrick J. Leahy (VT), Patty Murray (WA),
Dianne Feinstein (CA), Richard J. DurbinDianne Feinstein (CA), Richard J. Durbin
(IL), Jack Reed (RI), Jon Tester (MT), Tom(IL), Jack Reed (RI), Jon Tester (MT), Tom
Udall (NM), Jeanne Shaheen (NH), JeffUdall (NM), Jeanne Shaheen (NH), Jeff
Merkley (OR), Chris Coons (DE), BrianMerkley (OR), Chris Coons (DE), Brian
Schatz (HI), Tammy Baldwin (WI),Schatz (HI), Tammy Baldwin (WI),
Christopher Murphy (CT)Christopher Murphy (CT)
Republican MembersRepublican Members
Chairman Thad Cochran(MS), Richard C.Chairman Thad Cochran(MS), Richard C.
Shelby (AL), Jerry Moran (KS), MitchShelby (AL), Jerry Moran (KS), Mitch
McConnell (KY), Lamar Alexander (TN),McConnell (KY), Lamar Alexander (TN),
Susan Collins (ME), Lisa Murkowski (AK),Susan Collins (ME), Lisa Murkowski (AK),
Lindsey Graham (SC), Mark Kirk (IL), RoyLindsey Graham (SC), Mark Kirk (IL), Roy
Blunt (MO), Jerry Moran (KS), JohnBlunt (MO), Jerry Moran (KS), John
Hoeven (ND), Shelly Moore Capito (WV),Hoeven (ND), Shelly Moore Capito (WV),
Bill Cassidy (LA), James Lankford (OK),Bill Cassidy (LA), James Lankford (OK),
Steve Davies (MT), John Boozeman (AR)Steve Davies (MT), John Boozeman (AR)
You can’t wring your hands and roll-You can’t wring your hands and roll-
up your sleeves at the same time.up your sleeves at the same time.
- Pat Schroeder- Pat Schroedero Learn moreLearn more: visit: visit
www.amfar.org/endthebanwww.amfar.org/endtheban..
Watch the ten-minute movie, “TheWatch the ten-minute movie, “The
Exchange,” as well as the shorts,Exchange,” as well as the shorts,
“Dollars & Sense,” “Race &“Dollars & Sense,” “Race &
Drugs,” and “Addiction & You.”Drugs,” and “Addiction & You.”
o Call/ write to your repCall/ write to your rep::
http://www.cqrcengage.com/aidsuhttp://www.cqrcengage.com/aidsu
nited/app/write-a-letter?nited/app/write-a-letter?
0&engagementId=965170&engagementId=96517
o Get the word out:Get the word out: host a filmhost a film
screening, post the links onscreening, post the links on
facebook, send a tweet, and sharefacebook, send a tweet, and share
on listservs.on listservs.
o CallCall your representative in Congressyour representative in Congress
as an individual or as a group event.as an individual or as a group event.
o WriteWrite an op-ed, blog post,an op-ed, blog post,
organizational sign-on, or letter toorganizational sign-on, or letter to
your representative in Congress.your representative in Congress.
o VisitVisit your congressional office,your congressional office,
either in-state or in DC.either in-state or in DC.
o Work with your local SSPWork with your local SSP::
volunteer, donate, ask them tovolunteer, donate, ask them to
speak to your group (go tospeak to your group (go to
www.nasen.orgwww.nasen.org to find the SSPto find the SSP
nearest you). Ask yournearest you). Ask your
representative in Congress to visitrepresentative in Congress to visit
the local SSP and see it forthe local SSP and see it for
themselves.themselves.
o Not sure how?Not sure how? Go toGo to
www.coalitionforsyringeaccess.orgwww.coalitionforsyringeaccess.org
Students with Senator Blumenthal (CT).
More options for taking action:More options for taking action:
Final Talking PointsFinal Talking Points
 This policy costs nothing: Lifting the ban does not involve additional dollars. It simply allows
localities to spend their federal prevention dollars as they see fit. It may be a source of additional
federal dollars in the future if additional dollars are allocated to HIV prevention.
It's cost effective: For every additional dollar invested, an average of $7 dollars in HIV treatment
costs are saved. This does not include other associated costs such as viral hepatitis, secondary
infections (e.g. endocarditis), injection related wounds, or drug overdose.
Federal dollars open doors: Federal funding is often perceived by other donors as a "seal of
approval", leading to new funding streams. Federal grantees can also receive extensive technical
assistance at no cost.
It's about local control: States and localities know how best to respond to the epidemics of HIV,
viral hepatitis, and drug overdose.
It's about health disparities: African-Americans are 11x and Latinos are 5x more likely to contract
HIV from an infected needle than their Caucasian counterparts.
SSPs are a bridge to related services: HIV testing, viral hepatitis services, treatment for substance
use disorder, and drug overdose prevention and response services.
The changing demographics of injection drug users: Due to the crackdown on prescription drug use,
many are transitioning to heroin use. This new generation of users is more likely to be young,
female, and non-urban.,,,
SSPs make neighborhoods safer for everyone: Because they provide a safe place to dispose of used
needles, there are fewer injuries to civilians (kids playing in the park) and first responders alike.
Thank youThank you
Mary Beth Levin, MPHMary Beth Levin, MPH
Associate ProfessorAssociate Professor
Department of Family Medicine and Community HealthDepartment of Family Medicine and Community Health
Georgetown University School of MedicineGeorgetown University School of Medicine
levinmb@gmail.comlevinmb@gmail.com
Bill McCollBill McColl
Director of Health PolicyDirector of Health Policy
AIDS UnitedAIDS United
WMcColl@aidsunited.orgWMcColl@aidsunited.org

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HIV prevention conference

  • 1. Advancing HIV and Hepatitis PreventionAdvancing HIV and Hepatitis Prevention for Drug Usersfor Drug Users Ending the Ban on Federal Funding forEnding the Ban on Federal Funding for Syringe Service Programs: newSyringe Service Programs: new environments, new data, new messages,environments, new data, new messages, new messengersnew messengers
  • 2. Why should anyoneWhy should anyone care?care? • Here in the US, 8% of new HIV infections are due to IDU.Here in the US, 8% of new HIV infections are due to IDU. • That’s 11 people per day.That’s 11 people per day. • IDUs are twice as likely to be unaware of their HIV statusIDUs are twice as likely to be unaware of their HIV status than the general public.than the general public. • Outside of Sub-Saharan Africa, three out of ten newOutside of Sub-Saharan Africa, three out of ten new infections are due to IDU.infections are due to IDU. • No $$ will go to SSPs outside the US until the ban hasNo $$ will go to SSPs outside the US until the ban has been lifted.been lifted. • Here in the US, Hep C is the leading cause of deathHere in the US, Hep C is the leading cause of death among those living with HIV.among those living with HIV. • Hep C is the leading cause of liver transplants.Hep C is the leading cause of liver transplants. • The epidemic of prescription drug use and IDU.The epidemic of prescription drug use and IDU. • There are more deaths due to drug overdose than autoThere are more deaths due to drug overdose than auto accidents.accidents. • Health care is a right.Health care is a right.
  • 3. o In 2009, Congress removed a 21-year prohibition on theIn 2009, Congress removed a 21-year prohibition on the use of federal funds to support SSPs.use of federal funds to support SSPs.11 Two years later,Two years later, Congress re-imposed the ban on federal funding forCongress re-imposed the ban on federal funding for SSPs.SSPs.22 o While the ban was lifted, federal dollars were used toWhile the ban was lifted, federal dollars were used to support SSPs in California, Connecticut, Delaware,support SSPs in California, Connecticut, Delaware, Illinois, Massachusetts, Minnesota, New Jersey, NewIllinois, Massachusetts, Minnesota, New Jersey, New Mexico, New York, Puerto Rico, Vermont, andMexico, New York, Puerto Rico, Vermont, and Washington.Washington.33 o Funding came from CDC, HRSA, and SAMHSA. IHS was aFunding came from CDC, HRSA, and SAMHSA. IHS was a potential source which wasn’t tapped.potential source which wasn’t tapped. o Seen as a “seal of approval”, lifting the ban opened doorsSeen as a “seal of approval”, lifting the ban opened doors from other donors.from other donors. o These dollars were used to: expand service hours,These dollars were used to: expand service hours, provide services in new locations, and provide additionalprovide services in new locations, and provide additional services such as case management and overdoseservices such as case management and overdose prevention services.prevention services. A Brief History of the BanA Brief History of the Ban
  • 4. Where are we now?Where are we now?  This is the closest we have beenThis is the closest we have been since the ban was reinstated insince the ban was reinstated in 2011.2011.  Big change: the House came up withBig change: the House came up with the language.the language.  House and Senate now have identicalHouse and Senate now have identical language for a partial lift. Unlikelanguage for a partial lift. Unlike previous years, both are underprevious years, both are under Republican control.Republican control.
  • 5. What exactly?What exactly?  Report languageReport language "Needle Exchange Programs.—The Committee maintains its support for federal, state and local efforts to address the abuse of prescription painkillers and other opioids. The Committee is alarmed by trends in urban and rural communities which indicate a transition to injection drug use, and supports state and local efforts to mitigate the spread of related infections, such as Hepatitis and HIV/AIDS, and associated healthcare costs. The Committee believes the determination about whether to implement needle exchange programs remains a quintessentially local function, and therefore maintains its prohibition on the use of federal funds for the purchase of syringes or sterile needles as a title V general provision. The provision is modified, however, to allow existing programs in hard-hit communities to access federal funds for other program elements, including substance use counseling and referral to treatment, that support communities in their drive to end the cycle of dependency. Eligible programs must demonstrate a need or federal support based on actual cases of Hepatitis or HIV/AIDS or on conditions posing a significant risk for an outbreak."  Budget languageBudget language SEC. 520. Notwithstanding any other provision of this Act, no funds appropriated in this Act shall be used to purchase sterile needles or syringes for the hypodermic injection of any illegal drug: Provided, That such limitation does not apply to the use of funds for elements of a program other than making such purchases if the relevant State or local health department, in consultation with the Centers for Disease Control and Prevention, determines that the State or local jurisdiction, as applicable, is experiencing, or is at risk for, a significant increase in hepatitis infections or an HIV outbreak due to injection drug use, and such program is operating in accordance with State and local law.  So what?So what? So basically with this partial lift, federal dollars could go to all aspects of an SSP, except for the needles themselves. It's counter-intuitive, but not a big deal since syringes are often the least expensive part of operating an SSP. It is an improvement over how things stand now. Currently, federal dollars cannot be used for syringes, personnel, and housing the exchange (either a vehicle or a building). The other issue (which is just FYI) is working with the CDC to define "conditions posing a significant risk" and "hard-hit communities".
  • 6. HOW DID WE GET HERE?HOW DID WE GET HERE? NEW MESSAGES AND MESSENGERSNEW MESSAGES AND MESSENGERS oSSPs save lives by preventing the spread of HIV and viral hepatitisSSPs save lives by preventing the spread of HIV and viral hepatitis and by serving as a bridge to other services, including treatment forand by serving as a bridge to other services, including treatment for substance use disorder.substance use disorder. oBy reducing improperly disposed syringes, SSPs are good forBy reducing improperly disposed syringes, SSPs are good for everyone: IDUs, first-responders, law enforcement, and general publiceveryone: IDUs, first-responders, law enforcement, and general public safety.safety. oSSPs address health disparities.SSPs address health disparities. oIn light of prescription drug misuse and its expansion into injectionIn light of prescription drug misuse and its expansion into injection drugs, the need for SSPs is greater than ever.drugs, the need for SSPs is greater than ever. oSSPs enjoy broad support from medical, legal, public health, faith,SSPs enjoy broad support from medical, legal, public health, faith, and local communities. Feds are the outlier.and local communities. Feds are the outlier. oIt’s a matter of local control.It’s a matter of local control. State and local decision makers should haveState and local decision makers should have flexibility in the use of federal funds to address local health concernsflexibility in the use of federal funds to address local health concerns.. oLifting the ban costs nothing and saves money.Lifting the ban costs nothing and saves money.
  • 7. State, local, and faith-based organizationsState, local, and faith-based organizations around the country already support SSPsaround the country already support SSPs The following organizations supportThe following organizations support SSPs:SSPs: oAmerican Medical Student AssociationAmerican Medical Student Association oAmerican Academy of Family PhysiciansAmerican Academy of Family Physicians oAmerican Academy of PediatricsAmerican Academy of Pediatrics oAmerican Bar AssociationAmerican Bar Association oAmerican Medical AssociationAmerican Medical Association oAmerican Public Health AssociationAmerican Public Health Association oAmerican Society of Addiction MedicineAmerican Society of Addiction Medicine oInternational Red Cross-Red CrescentInternational Red Cross-Red Crescent SocietySociety oLatino Commission on AIDSLatino Commission on AIDS oNAACPNAACP oNational Academy of SciencesNational Academy of Sciences oNational Black Leadership Commission onNational Black Leadership Commission on AIDSAIDS oNational Black Police AssociationNational Black Police Association oNational Institute on Drug AbuseNational Institute on Drug Abuse oOffice of National Drug Control PolicyOffice of National Drug Control Policy oPresidential Advisory Committee on AIDSPresidential Advisory Committee on AIDS oUS Conference of MayorsUS Conference of Mayors oWorld BankWorld Bank oWorld Health OrganizationWorld Health Organization SSPs also enjoy support from faith communities, including: •Central Conference of American Rabbis •Episcopal Church •National Council on Jewish Women •Presbyterian Church of the United States •Society of Christian Ethics •Union for Reform Judaism •Unitarian Universalist Association •United Church of Christ •United Methodist Church, General Board of Church and Society •Regional AIDS Interfaith Network
  • 8. State, local, and faith-based organizations around theState, local, and faith-based organizations around the country already support SSPscountry already support SSPs  "Syringe decriminalization and"Syringe decriminalization and exchange is ...an issue ofexchange is ...an issue of compassion and justice... As peoplecompassion and justice... As people of faith, we are called to be theof faith, we are called to be the embodiment of that compassion andembodiment of that compassion and instruments of that justice in thisinstruments of that justice in this world to offer an eternal hope. Theworld to offer an eternal hope. The hope that someone may live anotherhope that someone may live another day. The hope that they may beday. The hope that they may be reconciled with their family. The hopereconciled with their family. The hope that they can live a life free ofthat they can live a life free of disease. The hope that they mightdisease. The hope that they might choose to find treatment. The hopechoose to find treatment. The hope that with that one more day, theythat with that one more day, they might find their own hope for amight find their own hope for a future outside of their addiction."future outside of their addiction." - Pastor James Sizemore, Lead Pastor,- Pastor James Sizemore, Lead Pastor, Catalyst Community Church, Fayetteville,Catalyst Community Church, Fayetteville, North CarolinaNorth Carolina
  • 9. Note: since this map was developed, there are SSPs in Indiana, Kentucky, and West Virginia There are already a number of programs:
  • 10. Most funding (82%) for SSPs is public –Most funding (82%) for SSPs is public – Feds are the outlier when it comes to fundingFeds are the outlier when it comes to funding Year of Operation 2012 2013 Total $$$ $19,431,912 $21,920,648 City Gov $ $5,789,118 $6,504,086 County Gov $ $1,538,358 $1,431,851 State Gov $ $8,391,180 $10,059,565 Foundation $ $1,966,688 $2,129,610 Individual Donations $696,947 $611,269 Out-of-pocket $ $50,525 $90,250 NASEN $ $4,150 $2,100 CBO Donation $ $28,740 $47,200 Corporate Donation $ $68,300 $157,500 Other $ $856,406 $887,218
  • 11. The most important myth to dismantle:The most important myth to dismantle: we can’t afford it.we can’t afford it. Lifting the ban costs NOTHING. It simply allows localities to spendLifting the ban costs NOTHING. It simply allows localities to spend their federal dollars as they see fit.their federal dollars as they see fit. ((In this way, it is also a state rights issueIn this way, it is also a state rights issue.).) Every dollar invested in SSPsEvery dollar invested in SSPs results inresults in $7 in savings$7 in savings just by preventing new HIVjust by preventing new HIV infections.infections.11 Through Medicaid, Medicare, and Ryan White, the federal government is the biggest payer of HIV care. So not only are we saving federal dollars, we are saving entitlement (Medicaid and Medicare) and discretionary (RW) funds.
  • 12. Local Data HelpsLocal Data Helps o Between 2001 and 2011, Illinois saw a drop of nearlyBetween 2001 and 2011, Illinois saw a drop of nearly two-thirds in new HIV cases among IDUs, averting antwo-thirds in new HIV cases among IDUs, averting an estimated $200 million in medical expenses.estimated $200 million in medical expenses.11 o In Massachusetts, there was a 54% decrease in new HIVIn Massachusetts, there was a 54% decrease in new HIV diagnosis between 1999 and 2012, preventing 5,699diagnosis between 1999 and 2012, preventing 5,699 infections and saving more than $2 billion in health careinfections and saving more than $2 billion in health care costs.costs.22 o King County (Washington State) spent $1.1 million onKing County (Washington State) spent $1.1 million on SSPs in 2008. If HIV was prevented among only 1% ofSSPs in 2008. If HIV was prevented among only 1% of IDUs in King County, the resulting savings in HIVIDUs in King County, the resulting savings in HIV treatment costs will be $70 million.treatment costs will be $70 million.33 o Washington, DC was allowed to spend its own money onWashington, DC was allowed to spend its own money on SSPs in 2007. Within two years, 120 HIV infections wereSSPs in 2007. Within two years, 120 HIV infections were averted, resulting in $45.6M in savings.averted, resulting in $45.6M in savings.44 o Miami, a city without legal SSPs,Miami, a city without legal SSPs, published study of thepublished study of the costs of bacterial infections relating to IDU at Jacksoncosts of bacterial infections relating to IDU at Jackson Memorial Hospital. The cost was $11.4M over 12 monthMemorial Hospital. The cost was $11.4M over 12 month period.period.55
  • 13. ““I understandI understand that there willthat there will be questions,be questions, but this isbut this is commoncommon sense.”sense.” - Sister Maureen- Sister Maureen Joyce, CEO of CatholicJoyce, CEO of Catholic Charities, Albany, NYCharities, Albany, NY Messages and Messengers: law enforcement, faith communities, and families.
  • 14. It’s not just the needle,It’s not just the needle, it’s about the people!it’s about the people! SSPs provide a variety of services inSSPs provide a variety of services in addition to syringe exchangeaddition to syringe exchange11 o Onsite medical careOnsite medical care11 o Screening and counseling for HIV,Screening and counseling for HIV, hepatitis C, and STIs (injection drughepatitis C, and STIs (injection drug users are twice as likely as the generalusers are twice as likely as the general public not to know their HIV status)public not to know their HIV status) 1,21,2 o Distribution of safer sex supplies, food,Distribution of safer sex supplies, food, and clothingand clothing11 o Referrals to substance use treatment andReferrals to substance use treatment and support groupssupport groups11 o Medications and resources to preventMedications and resources to prevent death from drug overdosedeath from drug overdose33 o Case managementCase management Selected Services Offered by SSPs Nationwide
  • 15. SSPs Make Communities Safer for EveryoneSSPs Make Communities Safer for Everyone o SSPs distribute free sterile syringesSSPs distribute free sterile syringes to injection drug users (IDUs), whichto injection drug users (IDUs), which reduces the likelihood that users willreduces the likelihood that users will share injecting equipment.share injecting equipment.11 o SSPs safely dispose of usedSSPs safely dispose of used needles, a service not typicallyneedles, a service not typically provided by distributors such asprovided by distributors such as pharmacies.pharmacies. o SSPs make neighborhoods safer bySSPs make neighborhoods safer by reducing needle-stick injuries.reducing needle-stick injuries.11
  • 16. LOCAL EXAMPLESLOCAL EXAMPLES o In Baltimore, SSPs helpedIn Baltimore, SSPs helped reduce the number ofreduce the number of improperly discarded syringesimproperly discarded syringes by almost 50%.by almost 50%.11 o In Portland, Oregon, theIn Portland, Oregon, the implementation of SSPsimplementation of SSPs reduced the number ofreduced the number of improperly discarded syringesimproperly discarded syringes by two-thirds.by two-thirds.22 o In 2008 and 2009, Miami (whichIn 2008 and 2009, Miami (which had no SSPs) saw eight timeshad no SSPs) saw eight times more improperly disposedmore improperly disposed syringes than San Franciscosyringes than San Francisco (where SSPs are available)(where SSPs are available) despite the fact that Sandespite the fact that San Francisco is thought to haveFrancisco is thought to have twice as many IDUs.twice as many IDUs.33
  • 17. SSPs Protect Those who Protect UsSSPs Protect Those who Protect Us o Needle stick injuries to law enforcement areNeedle stick injuries to law enforcement are a common occurrence. In San Diego, nearlya common occurrence. In San Diego, nearly 30% of officers have been stuck by a needle.30% of officers have been stuck by a needle.11 o Decriminalization of syringes (and SSPs) hasDecriminalization of syringes (and SSPs) has been tied to reduced needle stick injuries. Inbeen tied to reduced needle stick injuries. In South Carolina, where syringes are legal,South Carolina, where syringes are legal, officers have experienced needle stickofficers have experienced needle stick injuries at half the rate of their counterpartsinjuries at half the rate of their counterparts in North Carolina, where syringes are illegal.in North Carolina, where syringes are illegal.22 o In Connecticut, police officer needle stickIn Connecticut, police officer needle stick injuries were reduced by two-thirds after theinjuries were reduced by two-thirds after the establishment of SSPs.establishment of SSPs.33 o ““In the cities that have adopted needleIn the cities that have adopted needle services programs, there is a dramaticservices programs, there is a dramatic reduction in needle sticks to firefighters whoreduction in needle sticks to firefighters who crawl on their hands and knees throughcrawl on their hands and knees through smoke-filled rooms in search of victims.” -smoke-filled rooms in search of victims.” - Charles Aughenbaugh, Jr., President, New Jersey Deputy Fire ChiefsCharles Aughenbaugh, Jr., President, New Jersey Deputy Fire Chiefs Association, Retired Deputy Fire Chief, March 2011Association, Retired Deputy Fire Chief, March 2011
  • 18. Messages and Messengers:Messages and Messengers: law enforcement, faith communities, andlaw enforcement, faith communities, and families.families. ““By restoring the ban on federal fundingBy restoring the ban on federal funding for syringe exchange, members offor syringe exchange, members of Congress undoubtedly believed they wereCongress undoubtedly believed they were striking a blow against drug use. Asstriking a blow against drug use. As extensive experience has shown, nothingextensive experience has shown, nothing could be further from the truth. Bycould be further from the truth. By withholding funding for syringe exchange,withholding funding for syringe exchange, Congress has made our communities lessCongress has made our communities less safe, made police officers and medicalsafe, made police officers and medical responders unsafe, undermined a vitalresponders unsafe, undermined a vital bridge to drug treatment, and hinderedbridge to drug treatment, and hindered national efforts to address public healthnational efforts to address public health problems such as HIV and hepatitis C.”problems such as HIV and hepatitis C.” - Chief James Pugel, Seattle Police Department- Chief James Pugel, Seattle Police Department
  • 19. o In New York City, the growth of SSPs from 1990 to 2001 was associated with a 78% decrease in HIV prevalence among IDUs.1 o During this time period, the same population saw a decrease in the prevalence of hepatitis C from 90% to 63% 2 o One study showed that within 6 months of using federally-funded SSPs, clients saw a 45% increase in employment. o In addition, SSP clients were 25% more likely to have been successfully referred to mental health treatment and prescribed medication than other SAMHSA grantees.3 o In New Jersey, 22% of the state’s SSP clients have entered drug treatment.4 SSPs Bring Results
  • 20. SSPs Do NOT lead to an increaseSSPs Do NOT lead to an increase in crime or drug use.in crime or drug use. o Neighborhoods in Baltimore with SSPs experienced anNeighborhoods in Baltimore with SSPs experienced an 11% decrease in break-ins and burglaries, while areas11% decrease in break-ins and burglaries, while areas without SSPs saw an 8% increase in such crimes duringwithout SSPs saw an 8% increase in such crimes during the same period.the same period.11 o In Seattle, IDUs who had used SSPs were more likely toIn Seattle, IDUs who had used SSPs were more likely to report a significant decrease (>75%) in injection drugreport a significant decrease (>75%) in injection drug use, to stop using injection drugs, and to remain inuse, to stop using injection drugs, and to remain in treatment than IDUs who had never used SSPs.treatment than IDUs who had never used SSPs.22 o The same study in Seattle found that new users of theThe same study in Seattle found that new users of the SSP were five times more likely to enter drug treatmentSSP were five times more likely to enter drug treatment than individuals who never utilized the program.than individuals who never utilized the program.22 Local Examples
  • 21. o Individuals using prescription drugs nonmedically may turn to injection as a moreIndividuals using prescription drugs nonmedically may turn to injection as a more efficient method of drug delivery.efficient method of drug delivery.11 Additionally, the high cost of prescription drugs andAdditionally, the high cost of prescription drugs and crackdown on prescription drug use can cause IDUs to transition to heroin use.crackdown on prescription drug use can cause IDUs to transition to heroin use.22 o A recent report by the Substance Abuse and Mental Health Services AdministrationA recent report by the Substance Abuse and Mental Health Services Administration (SAMHSA) showed that those who reported prior use of nonmedical pain relievers were(SAMHSA) showed that those who reported prior use of nonmedical pain relievers were 19 times more likely19 times more likely to have recently begun using heroin than those who had notto have recently begun using heroin than those who had not used nonmedical pain relievers. The report also showed thatused nonmedical pain relievers. The report also showed that 79.5%79.5% of people whoof people who recently began using heroin had previously used prescription drugs for nonmedicalrecently began using heroin had previously used prescription drugs for nonmedical purposes.purposes.33 o Heroin use has increased dramatically nationwide in the past several years. Whereas inHeroin use has increased dramatically nationwide in the past several years. Whereas in 2007, SAMHSA reported there to be 373,000 recent heroin users in the US,2007, SAMHSA reported there to be 373,000 recent heroin users in the US, thisthis number jumped to 669,000 in 2012number jumped to 669,000 in 2012..44 o SSPs play an important role in addressing the needs of new IDUs. Other outlets forSSPs play an important role in addressing the needs of new IDUs. Other outlets for these individuals to feel safe accessing care and treatment are scarce.these individuals to feel safe accessing care and treatment are scarce. o In response, SSPs have opened in Indiana, Kentucky and West Virginia,In response, SSPs have opened in Indiana, Kentucky and West Virginia, Prescription drug misuse leadsPrescription drug misuse leads to a new generation of IDU.to a new generation of IDU.
  • 22. Kentucky Case StudyKentucky Case Study o A recent study has found that 35.3% of nonmedicalA recent study has found that 35.3% of nonmedical prescription opioid users in rural Kentucky are nowprescription opioid users in rural Kentucky are now injecting the drug.injecting the drug.11 o This value is higher than was previously reported amongThis value is higher than was previously reported among that population, demonstrating an increase inthat population, demonstrating an increase in injectioninjection asas the method for nonmedical prescription opioid users tothe method for nonmedical prescription opioid users to administer their drugs.administer their drugs.11 o Kentucky has some of the highest rates of hepatitis C inKentucky has some of the highest rates of hepatitis C in the country. It also has a high number of heart valvethe country. It also has a high number of heart valve transplants due to endocarditis due to IDU.transplants due to endocarditis due to IDU. o Last year it was close to legalizing syringe exchange. TheLast year it was close to legalizing syringe exchange. The outbreak in Indiana motivated passage this year.outbreak in Indiana motivated passage this year.
  • 23. Re-invigorating our traditional allies – this is a health disparity issue.Re-invigorating our traditional allies – this is a health disparity issue. No matter how you slice it - HIV, AIDS, new infections, current infections, cumulativeNo matter how you slice it - HIV, AIDS, new infections, current infections, cumulative infections, death rates, males, females – African-Americans and Latinos areinfections, death rates, males, females – African-Americans and Latinos are disproportionately represented.disproportionately represented.
  • 24. The prevalence of HIV among Hispanic andThe prevalence of HIV among Hispanic and African-American IDUs is nearly twice as high as itAfrican-American IDUs is nearly twice as high as it is for Caucasians.is for Caucasians.11 ““As the Chairman of theAs the Chairman of the National BlackNational Black Leadership CommissionLeadership Commission on AIDS Inc., and theon AIDS Inc., and the resident of a state with aresident of a state with a sizeable Latinosizeable Latino community, I havecommunity, I have personally witnessedpersonally witnessed these disproportionatethese disproportionate and devastating results.”and devastating results.” Reverend Dr. W. James Favorite - Senior Pastor ofReverend Dr. W. James Favorite - Senior Pastor of the historical Beulah Baptist Institutional Church andthe historical Beulah Baptist Institutional Church and Chair of the National Black Leadership CommissionChair of the National Black Leadership Commission on AIDS.on AIDS.
  • 25. Local data helpsLocal data helps Population Percent of population2 Current HIV infections attributable to injection drug use3 African-Americans in California 6.6% 33.7% African-Americans in Connecticut 11.3% 35.3% Latinos in Connecticut 14.7% 38.5% African-Americans in Florida 16.7% 55.1% African-Americans in Georgia 31.4% 80.7% African-Americans in Illinois 14.7% 67.4% African-Americans in Kentucky 8.2% 49.7% African-Americans in Maryland 30.1% 83.3% African-Americans in Massachusetts 8.1% 30.7% Latinos in Massachusetts 10.5% 35.9% African-Americans in New Jersey 14.7% 60.2% African-Americans in New York 17.5% 47.5% Latinos in New York 18.4% 38.7% African-Americans in North Carolina 22.0% 75.7% African-Americans in Ohio 12.5% 56.2% African-Americans in Pennsylvania 11.5% 51.7% Latinos in Pennsylvania 6.3% 23.5% African-Americans in Texas 12.5% 51.6% African-Americans in Washington 4.0% 22.2%
  • 26. Looking atLooking at newnew infections:infections: African-African- Americans areAmericans are 11X and11X and Latinos are 5xLatinos are 5x more likely tomore likely to acquire HIV viaacquire HIV via IDU than theirIDU than their CaucasianCaucasian counterparts.counterparts. CDC, MMWR, HIV Infection Among Injection-CDC, MMWR, HIV Infection Among Injection- Drug Users --- 34 States, 2004—2007, Nov 22,Drug Users --- 34 States, 2004—2007, Nov 22, 2009.2009.
  • 27. Now what?Now what?  Current status:Current status: Right now, the budget is in a CR (continuing resolution), meaning that things are on hold and operating as usual until Dec 11. • Here is an update on what's happening: http://cqrcengage.com/aidsunited/app/document/9740255 • Nice summary on the budget: http://www.cqrcengage.com/aidsunited/app/document/9464743  Our ask:Our ask:  We are encouraged by recent Congressional action on this issue, and would like to express our appreciation for theWe are encouraged by recent Congressional action on this issue, and would like to express our appreciation for the modification to the syringe access funding rider that you included in the House FY 16 Labor, Health and Humanmodification to the syringe access funding rider that you included in the House FY 16 Labor, Health and Human Services, Education and Related Agencies (LHHS) Appropriations bill. Bipartisan leadership in modifying the ban onServices, Education and Related Agencies (LHHS) Appropriations bill. Bipartisan leadership in modifying the ban on federal funding for syringe access programs will help many individuals in our communities struggling with opioid usefederal funding for syringe access programs will help many individuals in our communities struggling with opioid use disorder access life-saving programs to avert drug overdose; access medical and substance use disorder treatment anddisorder access life-saving programs to avert drug overdose; access medical and substance use disorder treatment and recovery services; and prevent life-threatening infections, including HIV and hepatitis C. It will also allow us to addressrecovery services; and prevent life-threatening infections, including HIV and hepatitis C. It will also allow us to address this issue abroad where outside of Sub-Saharan Africa, three out of ten new HIV infections are because of injection drugthis issue abroad where outside of Sub-Saharan Africa, three out of ten new HIV infections are because of injection drug use.use. Accordingly, we urge you to include this modified rider in any FY 16 Continuing Resolution, final FY 16Accordingly, we urge you to include this modified rider in any FY 16 Continuing Resolution, final FY 16 LHHS bill, and/or FY 16 LHHS omnibus appropriations bill.LHHS bill, and/or FY 16 LHHS omnibus appropriations bill.  OrOr  No matter what the appropriations outcome is, we ask that any final appropriations bill or continuing resolution shouldNo matter what the appropriations outcome is, we ask that any final appropriations bill or continuing resolution should contain the language allowing states or local jurisdictions to use federal funds for syringe exchange programs if theycontain the language allowing states or local jurisdictions to use federal funds for syringe exchange programs if they are experiencing or at risk for a significant increase in hepatitis infections or an HIV outbreak due to injection drug use.are experiencing or at risk for a significant increase in hepatitis infections or an HIV outbreak due to injection drug use. It would also allow us to address this issue abroad where we have already enjoyed bipartisan success fighting HIV.It would also allow us to address this issue abroad where we have already enjoyed bipartisan success fighting HIV.
  • 28. House ask: keep the new language they put forward (House was first)House ask: keep the new language they put forward (House was first) regardless if there is a CR, omnibus, or final LHHS bill.regardless if there is a CR, omnibus, or final LHHS bill. If the member is a Democrat, ask that they let Lowey know of their support.If the member is a Democrat, ask that they let Lowey know of their support. If the member is a Republican, ask that they let Rogers know of their supportIf the member is a Republican, ask that they let Rogers know of their support Approps subcmte on HealthApprops subcmte on Health RepublicansRepublicans Chairman Tom Cole (OK)Chairman Tom Cole (OK) Mike Simpson (ID)Mike Simpson (ID) Steve Womack (AR)Steve Womack (AR) Chuck Fleischmann (TN)Chuck Fleischmann (TN) Andy Harris, MD (MD)Andy Harris, MD (MD) Martha Roby (AL)Martha Roby (AL) Charlie Dent (PA)Charlie Dent (PA) Scott Rigell (VA)Scott Rigell (VA) DemocratsDemocrats Ranking Member Rosa DeLauro (CT)Ranking Member Rosa DeLauro (CT) Lucille Roybal-Allard (CA)Lucille Roybal-Allard (CA) Barbara Lee (CA)Barbara Lee (CA) Chaka Fattah (PA)Chaka Fattah (PA) Full Approps CmteFull Approps Cmte RepublicansRepublicans Harold Rogers* (KY), Rodney P. FrelinghuysenHarold Rogers* (KY), Rodney P. Frelinghuysen (NJ), Robert B. Aderholt (AL), Kay Granger (TX),(NJ), Robert B. Aderholt (AL), Kay Granger (TX), Michael K. Simpson (ID), John Abney CulbersonMichael K. Simpson (ID), John Abney Culberson (TX) , Ander Crenshaw (FL), John R. Carter (TX),(TX) , Ander Crenshaw (FL), John R. Carter (TX), Ken Calvert (CA), Tom Cole (OK), Mario Diaz-Ken Calvert (CA), Tom Cole (OK), Mario Diaz- Balart (FL), Charles W. Dent (PA), Tom GravesBalart (FL), Charles W. Dent (PA), Tom Graves (GA), Kevin Yoder (KS), Steve Womack (AR),(GA), Kevin Yoder (KS), Steve Womack (AR), Alan Nunnelee (MI), Jeff Fortenberry (NE), TomAlan Nunnelee (MI), Jeff Fortenberry (NE), Tom Rooney (FL), Chuck Fleischmann (TN), JaimeRooney (FL), Chuck Fleischmann (TN), Jaime Herrera Beutler (WA), David Joyce (OH), DavidHerrera Beutler (WA), David Joyce (OH), David Valadao (CA), Andy Harris, MD (MD), MarthaValadao (CA), Andy Harris, MD (MD), Martha Roby (AL), Mark Amodei (NV), Chris StewartRoby (AL), Mark Amodei (NV), Chris Stewart (UT), Scott Rigell (VA), David Jolly (FL), David(UT), Scott Rigell (VA), David Jolly (FL), David Young (IA), Evan Jenkins (WV)Young (IA), Evan Jenkins (WV) DemocratsDemocrats Nita M. Lowey* (NY), Marcy Kaptur (OH), Peter J.Nita M. Lowey* (NY), Marcy Kaptur (OH), Peter J. Visclosky (IN), José E. Serrano (NY), Rosa L.Visclosky (IN), José E. Serrano (NY), Rosa L. DeLauro (CT), David E. Price (NC), Lucille Roybal-DeLauro (CT), David E. Price (NC), Lucille Roybal- Allard (CA), Sam Farr (CA), Chaka Fattah (PA),Allard (CA), Sam Farr (CA), Chaka Fattah (PA), Sanford D. Bishop, Jr. (GA), Barbara Lee (CA),Sanford D. Bishop, Jr. (GA), Barbara Lee (CA), Adam B. Schiff (CA), Michael M. Honda (CA),Adam B. Schiff (CA), Michael M. Honda (CA), Betty McCollum (MN), Tim Ryan (OH), DebbieBetty McCollum (MN), Tim Ryan (OH), Debbie Wasserman Schultz (FL), Henry Cuellar (TX),Wasserman Schultz (FL), Henry Cuellar (TX), Chellie Pingree (ME), Mike Quigley (IL), SteveChellie Pingree (ME), Mike Quigley (IL), Steve Israel (NY), C.A. Dutch Ruppersberger (MD),Israel (NY), C.A. Dutch Ruppersberger (MD), Derek Kilmer, WADerek Kilmer, WA
  • 29. Senate ask: keep the new language regardless if there is a CR,Senate ask: keep the new language regardless if there is a CR, omnibus, or final LHHS bill.omnibus, or final LHHS bill. If the Senator is a Republican, ask that they inform Cochran and Blunt of their support.If the Senator is a Republican, ask that they inform Cochran and Blunt of their support. If the Senator is a Democrat, ask that they inform Mikulski and Murray of their support.If the Senator is a Democrat, ask that they inform Mikulski and Murray of their support. Approps subcmte on Health:Approps subcmte on Health: DemocratDemocrat Ranking Member Patty Murray (WA)Ranking Member Patty Murray (WA) Richard Durbin (IL)Richard Durbin (IL) Jack Reed (RI)Jack Reed (RI) Barbara Mikulski (MD)Barbara Mikulski (MD) Jeanne Shaheen (NH)Jeanne Shaheen (NH) Jeff Merkley (OR)Jeff Merkley (OR) Brian Schatz (HI)Brian Schatz (HI) Tammy Baldwin (WI)Tammy Baldwin (WI) RepublicanRepublican Chairman Roy Blunt (MO)Chairman Roy Blunt (MO) Jerry Moran (KS)Jerry Moran (KS) Richard Shelby (AL)Richard Shelby (AL) Thad Cochran (MI)Thad Cochran (MI) Lamar Alexander (TN)Lamar Alexander (TN) Lindsey Graham (SC)Lindsey Graham (SC) Mark Kirk (IL)Mark Kirk (IL) Bill Cassidy (LA)Bill Cassidy (LA) Shelley Moore Capito (WV)Shelley Moore Capito (WV) James Lankford (OK)James Lankford (OK) Full CommitteeFull Committee Democratic MembersDemocratic Members Vice Chairwoman Barbara Mikulski (MD),Vice Chairwoman Barbara Mikulski (MD), Patrick J. Leahy (VT), Patty Murray (WA),Patrick J. Leahy (VT), Patty Murray (WA), Dianne Feinstein (CA), Richard J. DurbinDianne Feinstein (CA), Richard J. Durbin (IL), Jack Reed (RI), Jon Tester (MT), Tom(IL), Jack Reed (RI), Jon Tester (MT), Tom Udall (NM), Jeanne Shaheen (NH), JeffUdall (NM), Jeanne Shaheen (NH), Jeff Merkley (OR), Chris Coons (DE), BrianMerkley (OR), Chris Coons (DE), Brian Schatz (HI), Tammy Baldwin (WI),Schatz (HI), Tammy Baldwin (WI), Christopher Murphy (CT)Christopher Murphy (CT) Republican MembersRepublican Members Chairman Thad Cochran(MS), Richard C.Chairman Thad Cochran(MS), Richard C. Shelby (AL), Jerry Moran (KS), MitchShelby (AL), Jerry Moran (KS), Mitch McConnell (KY), Lamar Alexander (TN),McConnell (KY), Lamar Alexander (TN), Susan Collins (ME), Lisa Murkowski (AK),Susan Collins (ME), Lisa Murkowski (AK), Lindsey Graham (SC), Mark Kirk (IL), RoyLindsey Graham (SC), Mark Kirk (IL), Roy Blunt (MO), Jerry Moran (KS), JohnBlunt (MO), Jerry Moran (KS), John Hoeven (ND), Shelly Moore Capito (WV),Hoeven (ND), Shelly Moore Capito (WV), Bill Cassidy (LA), James Lankford (OK),Bill Cassidy (LA), James Lankford (OK), Steve Davies (MT), John Boozeman (AR)Steve Davies (MT), John Boozeman (AR)
  • 30. You can’t wring your hands and roll-You can’t wring your hands and roll- up your sleeves at the same time.up your sleeves at the same time. - Pat Schroeder- Pat Schroedero Learn moreLearn more: visit: visit www.amfar.org/endthebanwww.amfar.org/endtheban.. Watch the ten-minute movie, “TheWatch the ten-minute movie, “The Exchange,” as well as the shorts,Exchange,” as well as the shorts, “Dollars & Sense,” “Race &“Dollars & Sense,” “Race & Drugs,” and “Addiction & You.”Drugs,” and “Addiction & You.” o Call/ write to your repCall/ write to your rep:: http://www.cqrcengage.com/aidsuhttp://www.cqrcengage.com/aidsu nited/app/write-a-letter?nited/app/write-a-letter? 0&engagementId=965170&engagementId=96517 o Get the word out:Get the word out: host a filmhost a film screening, post the links onscreening, post the links on facebook, send a tweet, and sharefacebook, send a tweet, and share on listservs.on listservs.
  • 31. o CallCall your representative in Congressyour representative in Congress as an individual or as a group event.as an individual or as a group event. o WriteWrite an op-ed, blog post,an op-ed, blog post, organizational sign-on, or letter toorganizational sign-on, or letter to your representative in Congress.your representative in Congress. o VisitVisit your congressional office,your congressional office, either in-state or in DC.either in-state or in DC. o Work with your local SSPWork with your local SSP:: volunteer, donate, ask them tovolunteer, donate, ask them to speak to your group (go tospeak to your group (go to www.nasen.orgwww.nasen.org to find the SSPto find the SSP nearest you). Ask yournearest you). Ask your representative in Congress to visitrepresentative in Congress to visit the local SSP and see it forthe local SSP and see it for themselves.themselves. o Not sure how?Not sure how? Go toGo to www.coalitionforsyringeaccess.orgwww.coalitionforsyringeaccess.org Students with Senator Blumenthal (CT). More options for taking action:More options for taking action:
  • 32. Final Talking PointsFinal Talking Points  This policy costs nothing: Lifting the ban does not involve additional dollars. It simply allows localities to spend their federal prevention dollars as they see fit. It may be a source of additional federal dollars in the future if additional dollars are allocated to HIV prevention. It's cost effective: For every additional dollar invested, an average of $7 dollars in HIV treatment costs are saved. This does not include other associated costs such as viral hepatitis, secondary infections (e.g. endocarditis), injection related wounds, or drug overdose. Federal dollars open doors: Federal funding is often perceived by other donors as a "seal of approval", leading to new funding streams. Federal grantees can also receive extensive technical assistance at no cost. It's about local control: States and localities know how best to respond to the epidemics of HIV, viral hepatitis, and drug overdose. It's about health disparities: African-Americans are 11x and Latinos are 5x more likely to contract HIV from an infected needle than their Caucasian counterparts. SSPs are a bridge to related services: HIV testing, viral hepatitis services, treatment for substance use disorder, and drug overdose prevention and response services. The changing demographics of injection drug users: Due to the crackdown on prescription drug use, many are transitioning to heroin use. This new generation of users is more likely to be young, female, and non-urban.,,, SSPs make neighborhoods safer for everyone: Because they provide a safe place to dispose of used needles, there are fewer injuries to civilians (kids playing in the park) and first responders alike.
  • 33. Thank youThank you Mary Beth Levin, MPHMary Beth Levin, MPH Associate ProfessorAssociate Professor Department of Family Medicine and Community HealthDepartment of Family Medicine and Community Health Georgetown University School of MedicineGeorgetown University School of Medicine levinmb@gmail.comlevinmb@gmail.com Bill McCollBill McColl Director of Health PolicyDirector of Health Policy AIDS UnitedAIDS United WMcColl@aidsunited.orgWMcColl@aidsunited.org

Editor's Notes

  1. 1Consolidated Appropriations Act, 2010. Public law 111-117. (December 16, 2009. Sections 505 and 810.) Available at: http://www.gpo.gov/fdsys/pkg/PLAW-111publ117/pdf/PLAW-111publ117.pdf. 2Consolidated Appropriations Act, 2012. Public law 112-74. (December 23, 2011. Section 523.) Available at: http://www.gpo.gov/fdsys/pkg/PLAW-112publ74/pdf/PLAW-112publ74.pdf. 3 Personal communication, state agency officials. Programs were started where there hadn’t been any before.
  2. Iterate that no additional funding is involved. Since Feds are the largest payer of HIV care (Medicaid and Medicare), the dollars saved are federal dollars (and entitlement dollars at that)! When DC was allowed to spend its own money starting in 2007, HIV incidence decreased 87% (DC DOH). Within the first two years an estimated $44M was saved in averted HIV infections. (Ruiz, 2015)
  3. Available from: http://www.amfar.org/uploadedFiles/_amfarorg/On_the_Hill/2014-SSP-Map-7-17-14.pdf
  4. Source Dave Purchase Memorial 2014 National Survey of Syringe Exchange Programs (PPTX): https://nasen.org/
  5. 1Nguyen, T. Q., Weir, B. W., Pinkerton, S. D., Des Jarlais, D.C., & Holtgrave, D. (2014). Syringe Exchange in the United States: A National Level Economic Evaluation of Hypothetical Increases in Investment, AIDS and Behavior November 2014, Volume 18, Issue 11, pp 2144-2155; abstract: http://link.springer.com/article/10.1007/s10461-014-0789-9
  6. 1AIDS Foundation of Chicago. AFC Statement on Federal Funding Ban for Syringe Exchanges. Retrieved from: http://www.aidschicago.org/national-news/416-afc-statement-on-federal-funding-ban-for-syringe-exchanges. 2AIDS Action Committee. President Obama’s Fiscal 2013 Budget Demonstrates Commitment To Ending HIV/AIDS Epidemic In America. Available at: http://www.aac.org/media/releases/president-obamas-fiscal-2013.html. 3Public Health – Seattle & King County Needle Exchange Program. Available at: http://www.kingcounty.gov/healthservices/health/communicable/hiv/resources/aboutnx.aspx. 4. Ruiz, M et al. Impact Evaluation of a Policy Intervention for HIV Prevention in Washington, DC, AIDS and Behavior, published online Sept 4, 2015. 5. Tookes, H, Chanelle Diaz, et al. A Cost Analysis of Hospitalizations for Infections Related to Injection Drug Use at a County Safety-Net Hospital in Miami, Florida Plos ONE June 15, 2015. http://journals.plos.org/plosone/article?id=10.1371%2Fjournal.pone.0129360
  7. 1Des Jarlais, D.C., Guardino, V., Nugent, A., Arasteh, K., & Purchase, D. (2012). (unpublished data) 2010 National Survey of Syringe Exchange Programs: Summary of Results. North American Syringe Exchange Network. Available at: http://nasen.org/news/2012/jul/05/2010-beth-israel-survey-results-summary/. 2National Minority AIDS Council. Federal funding for syringe exchange. Available from: harmreduction.org/wp-content/uploads/2012/01/Syringe-Exchange-June-4-NMAC.pdf 3Des Jarlais, D.C., Guardino, V., Nugent, A., Arasteh, K., & Purchase, D. 2011 National Survey of Syringe Exchange Programs: Summary of Results. Presented at the 9th National Harm Reduction Conference: “From Public Health to Social Justice,” Portland, OR, November, 2012.
  8. 1amfAR, Federal Funding for Syringe Services Programs: Saving Money, Promoting Public Safety, and Improving Public Health. Available at: http://www.amfar.org/uploadedFiles/_amfarorg/Articles/On_The_Hill/2013/issue-brief-federal-funding-for-syringe-service-programs.pdf. 2amfAR Syringe Exchange Program Coverage Map. Available from: Available at: http://www.amfar.org/uploadedFiles/_amfarorg/Articles/In_The_Community/2013/July%202013%20SEP%20Map%20.pdf
  9. 1Doherty, M.C., Junge, B., Rathouz, P., Garfein, R.S., Riley, E., & Vlahov, D. (2000). The effect of a needle exchange program on numbers of discarded needles: A 2-year follow-up. American Journal of Public Health, 90(6), 936-939. 2Oliver, K.J., Friedman, S.R., Maynard, H., Magnuson, L., & Des Jarlais, D.C. (1992). Impact of a needle exchange program on potentially infectious syringes in public places. Journal of Acquired Immune Deficiency Syndromes, 5, 534–535. 3Tookes, H.E., et al. (2012). A comparison of syringe disposal practices among injection drug users in a city with versus a city without needle and syringe programs. Drug and Alcohol Dependence, 123(1-3), 255-9.
  10. 1Lorentz, J., Hill, J., & Samini, B. (2000). Occupational needle stick injuries in a metropolitan police force. American Journal of Preventive Medicine, 18, 146–150. 2NCHRC. NC Study Reveals that Law Enforcement Want to Reform Paraphernalia Laws. Available at http://www.nchrc.org/law-enforcement/north-carolina-law-enforcement-attitudes-towards-syringe-decriminalization/ 3Groseclose, S.L., Weinstein, B., Jones, T.S., Valleroy, L.A., Fehrs, L.J., & Kassler, W.J. (1995). Impact of increased legal access to needles and syringes on practices of injecting-drug users and police officers- Connecticut, 1992-1993. Journal of Acquired Immune Deficiency Syndromes & Human Retrovirology 10(1): 82-89.
  11. 1Des Jarlais, DC, et al. (2005). HIV Incidence Among Injection Drug Users in New York City, 1990 to 2002: Use of Serologic Test Algorithm to Assess Expansion of HIV Prevention Services. American Journal of Public Health 95.8: 1439-444. 2Des Jarlais, D.C., et al. (2005). Reductions in hepatitis C virus and HIV infections among injecting drug users in New York City, 1990-2001. AIDS, 19(suppl 3), S20-S25. 3Silverman, B., Thompson, D., Baxter, B., Jimenez, A.D., Hart, C., & Hartfield, C. (July 25, 2012). First federal support for community based syringe exchange programs: A panel presentation by SAMHSA grantees (Poster--WEPE234). Presented at the International AIDS Conference Poster Session, Washington, D.C. Poster and abstract available online at http://pag.aids2012.org/abstracts.aspx?aid=20133. (date last accessed: December 12, 2012). 4New Jersey Syringe Access Program Demonstration Project. (January 2010). Interim report: Implementation of P.L. 2006, c.99, “Blood-borne Disease Harm Reduction Act.” Available online at http://www.state.nj.us/health/aids/documents/nj_sep_evaluation.pdf. (date last accessed: December 12, 2012) This 80% decrease has been seen nationwide. It is an HIV prevention success story second only to vertical transmission.
  12. 1Center for Innovative Public Policies. Needle Exchange Programs: Is Baltimore a Bust? Tamarac, Fl.: CIPP; April 2001. 2Hagan, H. et al. (2000). Reduced injection frequency and increased entry and retention in drug treatment associated with needle-exchange participation in Seattle drug injectors. Journal of Substance Abuse Treatment, 19, 247-252.
  13. 1Havens, J., Walker, R., Leukefeld, C. (2007). Prevalence of opioid analgesic injection among rural nonmedical opioid analgesic users. Drug and Alcohol Dependence 87, 98-102. Available at: http://www.ncbi.nlm.nih.gov/pubmed/16959437. 2Elinson, Z., & Campo-Flores, A. (2013). Heroin Makes a Comeback. The Wall Street Journal. http://online.wsj.com/article/SB10001424127887323997004578640531575133750.html. 3Muhuri, P.K., Gfroerer, J.C., & Davis, M.C. (2013). Associations of Nonmedical Pain Reliever Use and Initiation of Heroin Use in the United States. SAMHSA, CBHSQ Data Review. http://www.samhsa.gov/data/2k13/DataReview/DR006/nonmedical-pain-reliever-use-2013.pdf 4Substance Abuse and Mental Health Services Administration, Results from the 2012 National Survey on Drug Use and Health: Summary of National Findings, NSDUH Series H-46, HHS Publication No. (SMA) 13-4795. Rockville, MD: Substance Abuse and Mental Health Services Administration, 2013.
  14. 1Havens, J., Walker, R., Leukefeld, C. (2007). Prevalence of opioid analgesic injection among rural nonmedical opioid analgesic users. Drug and Alcohol Dependence 87, 98-102. Available at: http://www.ncbi.nlm.nih.gov/pubmed/16959437.
  15. 1CDC. (2012). HIV Infection and HIV-Associated Behaviors Among Injecting Drug Users — 20 Cities, United States, 2009, Morbidity and Mortality Weekly Report, March 2, 2012 / 61(08);133-138 Available from: http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6108a1.htm
  16. 1CDC. (2012). HIV Infection and HIV-Associated Behaviors Among Injecting Drug Users — 20 Cities, United States, 2009, Morbidity and Mortality Weekly Report, March 2, 2012 / 61(08);133-138 Available from: http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6108a1.htm
  17. 1CDC. (2012). HIV Infection and HIV-Associated Behaviors Among Injecting Drug Users — 20 Cities, United States, 2009, Morbidity and Mortality Weekly Report, March 2, 2012 / 61(08);133-138 Available from: http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6108a1.htm Mention case of New Mexico: Latinos and NA are more likely to get HIV from IDU; they are also more likely to access services when made available
  18. Of all ethnicities, Native Americans are the most disproportionately impacted by IDU when it comes to HIV acquisition. http://www.cdc.gov/hiv/risk/racialEthnic/aian/index.html
  19. Reach out to Andy Harris!!!!!
  20. It is not enough to ask for their support, but to fight for it. Make a specific ask.
  21. Nguyen, T. Q., Weir, B. W., Pinkerton, S. D., Des Jarlais, D.C., & Holtgrave, D. (2014). Syringe Exchange in the United States: A National Level Economic Evaluation of Hypothetical Increases in Investment, AIDS and Behavior November 2014, Volume 18, Issue 11, pp 2144-2155. Abstract available at: http://link.springer.com/article/10.1007/s10461-014-0789-9amfAR, Federal Funding for Syringe Services Programs: Saving Money, Promoting Public Safety, and Improving Public Health. Available at: http://www.amfar.org/uploadedFiles/_amfarorg/Articles/On_The_Hill/2013/IB%20SSPs%20031413.pdf.CDC (2009). HIV Infection Among Injection-Drug Users – 34 States, 2004-2007. MMWR 58:1291-1295.amfAR, Federal Funding for Syringe Services Programs: Saving Money, Promoting Public Safety, and Improving Public Health. Available at: http://www.amfar.org/uploadedFiles/_amfarorg/Articles/On_The_Hill/2013/IB%20SSPs%20031413.pdf.Havens, J., Walker, R., Leukefeld, C. (2007). Prevalence of opioid analgesic injection among rural nonmedical opioid analgesic users. Drug and Alcohol Dependence 87, 98-102. Available at: http://www.ncbi.nlm.nih.gov/pubmed/16959437.Elinson, Z., & Campo-Flores, A. (2013). Heroin Makes a Comeback. The Wall Street Journal.Muhuri, P.K., Gfroerer, J.C., & Davis, M.C. (2013). Associations of Nonmedical Pain Reliever Use and Initiation of Heroin Use in the United States. SAMHSA, CBHSQ Data Review. http://www.samhsa.gov/data/2k13/DataReview/DR006/nonmedical-pain-reliever-use-2013.pdfSubstance Abuse and Mental Health Services Administration, Results from the 2012 National Survey on Drug Use and Health: Summary of National Findings, NSDUH Series H-46, HHS Publication No. (SMA) 13-4795. Rockville, MD: Substance Abuse and Mental Health Services Administration, 2013.amfAR, Federal Funding for Syringe Services Programs: Saving Money, Promoting Public Safety, and Improving Public Health. Available at: http://www.amfar.org/uploadedFiles/_amfarorg/Articles/On_The_Hill/2013/IB%20SSPs%20031413.pdf.