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Community at 
the Center of a 
Rights‐based 
Response to HIV
George Ayala, PsyD
Executive Director, MSMGF
Working world wide against HIV for the health & human rights of men who have sex with men
CLAC
Community Leadership and Action Collaborative (CLAC) is a unique 
partnership between AIDS and Rights Alliance for Southern Africa (ARASA), 
the Global Network of People Living with HIV (GNP+), Global Action for Trans* 
Equality (GATE), the Global Forum on MSM & HIV (MSMGF), the Global 
Network of Sex Work Projects (NSWP), and the International Treatment 
Preparedness Coalition (ITPC), which together with their respective regional 
and country‐level affiliates, have joined forces to facilitate greater 
participation by key population groups in national AIDS planning processes. 
CLAC also supports the development of high quality rights‐based and 
evidence informed programming focused on meeting the needs of key 
populations.
What CLAC Members Do
• Support front‐line organizations with deference to locally 
defined needs, priorities and strategies
– Convene , coordinate , resource, train, mobilize advocates 
and providers (creating safe spaces) 
• Watchdog/lobby/educate governments, donors and policy 
makers
• Conduct, commission and support research (document front‐
line experiences)
• Facilitate information exchange, coordinate strategies through 
coalitions
“I’m living on the streets and have to make ends 
meet. Sometimes taking my HIV medications 
isn’t even possible. Last week someone hit me 
on the head after I left the pharmacy. When I 
woke up, all my meds were gone. How can I get 
my viral load to undetectable?”
‐Anonymous transgender patient, community clinic
“Police came and asked for my bag. When I 
refused they beat me, took my condoms and 
burned them and said I’m a bitch.”
‐Zambian sex worker living in Namibia
“I went to the hospital and the nurse pulled out 
a bible to lecture me about being gay. She did 
not pay attention to my health concerns.”
‐Nigerian gay man
Human Rights Violations
• Criminalization through punitive law
• Homicide
• Police repressions, extortion, physical/sexual abuse
• Forced rehabilitation and detention
• Condom and syringe confiscation and used as evidence
• Impunity and discrimination in access to justice
• Violence from non‐state actors
• Unsafe working conditions and an absence of labor protection
• Discrimination in access to health and social services
• Mandatory and forced HIV testing and bodily examinations
• Lack of recognition of gender identity
• Unwanted or forced sterilization
Countries with Laws or Recorded Prosecutions 
for HIV Non‐disclosure, Exposure or Transmission
• 61 countries have 
adopted legislation 
that specifically 
allows for 
criminalization
• 49 countries have 
recorded 
prosecutions
Impact on HIV
• HIV prevalence among sex workers is 12 times greater than 
among the general population.
• Gay men and other men who have sex with men are 19 times 
more likely to be living with HIV than the general population.
• People who inject drugs bear 28 times higher HIV prevalence 
than the general populations.
• Transgender women are 49 times more likely to be living with 
HIV than other adults of reproductive age.
Impact on HIV
Human rights violations, discrimination, criminalization, 
violence compromise the HIV response worldwide 
resulting in disparities in funding, poor program 
coverage and diminished uptake of services.
“Without addressing human rights violations among 
key populations, the mere provision of HIV services will 
be an insufficient and misguided response.”
Poor Access to Basic HIV Services 
among MSM, (n=5779;165 Countries)
HIV Services Cascade, GMHR 2012
Consolidated Guidelines Chapter 5: 
Critical Enablers
Working world wide against HIV for the health & human rights of men who have sex with men
Access Depends on Barriers & Critical 
Enablers
• Access to HIV services is influences by: 
+ Engagement and connection with community
+ Comfort with Healthcare Provider
- Past experiences of discrimination
- Past experiences of violence
- Past experiences of provider stigma
Critical Enablers
Barriers
Homophobia and Violence in Wider 
Community Matters
• Lowest level of perceived homophobia vs. highest 
level
– 13  x access to lubricants
– 13 x access to HIV testing
• Lowest frequency of experiencing homophobic 
violence vs. highest level
– 5 x access to HIV testing
Stronger Communities Create Higher 
access
• Highest level of feeling connected to a gay 
community vs. lowest level
– 7 x access to condoms
– 9 x access to HIV testing
– 10 x access to MSM‐tailored HIV education materials
• Highest level of social engagement with other MSM 
vs. lowest level
– 7 x access to MSM‐tailored HIV education materials
Relationship with Provider Matters
• Highest level of Comfort with Provider vs. lowest 
level:
– 5   x higher access to condoms
– 3   x higher access to testing
– 15 x higher access to HIV education materials
• Lowest frequency of Past Experiences of Provider 
stigma vs. highest frequency
– 2  x higher access to testing
Why Communities Matter
CBOs use a combination of strategies to increase 
comfort with health providers and reduce stigma
• Community delivered services
• Peer‐led outreach & education
• Provider sensitization
• Client referrals
Why Communities Matter
CBOs have short‐term and long‐term strategies 
to address criminalization, discrimination and 
violence:
• Social change (laws, policy, attitudes, norms)
• Equipping  members to manage risk of and respond 
to violence
• Legal services; know your rights programs
• Advocacy training
Why Communities Matter
CBOs strengthen 
communities by 
creating: 
• Safe spaces
• Opportunities to 
strengthen capacities
• Virtual spaces
Cost of Inaction
Sources
UNAIDS. 2014. The Gap Report. Geneva, Switzerland.
MSMGF. 2014. MSM in Sub‐Saharan Africa: Health, Access and HIV. Oakland, California.
Decker MR, et al. 2014. Human rights violations against sex workers: burden and effect on HIV. Lancet; 
DOI 10.106/So1‐140‐6736(14)60800‐X.
MSMGF. 2012.  Access to HIV prevention and treatment for men who have sex with men: Findings from 
the 2012 Global Men’s Health and Rights Study (GMHR). Oakland, California. 
Ayala G, Makofane K, Santos GM, Arreola S, Hebert P, Thomann M, Wilson PA, Beck J, Do TD. HIV 
Treatment Cascades that Leak: Correlates of drop‐off from the HIV care continuum among men who 
have sex with men worldwide. Journal of AIDS & Clinical Research. 2014; 5: 331. DOI: 10.4172/2155‐
6113.1000331.
WHO. 2014. Consolidated guidelines on HIV prevention, diagnosis, treatment and care for key 
populations. Geneva, Switzerland.
AMSHeR. 2013. Violence based on perceived or real sexual orientation and gender identity in Africa. 
Johannesburg, South Africa.
Thank You!

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Community-led response key to HIV rights