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Department of Veterans Affairs
Medical Center
3001 Green Bay Road, North Chicago, IL 60031
“Analyzing Factors Affecting Functional Literacy in the
Context of Primary Care Patient/Provider Communication”
Dr. Tariq Hassan, M.D., Veterans Affairs Medical Center, North Chicago, IL
Dr. George Lutz, Ph.D, Veterans Affairs Medical Center, North Chicago, IL
Dr. Tom Muscarello, Ph.D, DePaul University, Chicago, IL
David R. Donohue. M.A., Qualitative Technologies Inc., Northwestern University
PURPOSE: Focusing On VA Patient and Provider Communication:
Dr. Tariq Hassan, M.D. ChiefofStaff, North Chicago Veterans Affairs Medical Center said,
“Good communications builds and maintains quality health care exchange and delivery. It can also,
facilitate and encourage patient participation in their care, reduces anxiety and help patient’s to become
active participants in their treatment/care plans.
As discussed in this article, several factors play a key role in the communication process; however, literacy
and ability to utilize the tools of communication are the basic currency of communication, and unless
literacy issues are identified and properly addressed, it is unlikely that other interventions can be successful
utilized to improve provider–patient communication. (1) (2)
From the administration/organization standpoint, effective communication with the patient can further the
global drivers of health care, namely, access and timeliness of care, quality, patient satisfaction and cost
effectiveness. A wellinformed and participatory patient will probably keep appointments, thereby reducing
costly noshows and unnecessary ER visits. Patients can realize a greater overall satisfaction and level of
care with improved patient/physician interaction. (3)
Increasing patient participation in their care plan and their compliance level will likely increase the
effectiveness of the care itself, improve quality and reduce unnecessary utilization of resources. This can
translate into improving overall cost effectiveness and utilization of human resources within the health care
organization.”
ABSTRACT
PURPOSE: North Chicago VA medical staff instituted a onepage primary care medical appointment
information sheet to help patients navigate through their primary care appointment environment, but
discovered 65% of patients discarded the information sheet. Healthcare providers wanted to know why
the information sheet was not effective.
METHOD: Data gathered in this study used 3 patient and 2 VA doctor/clinician focus groups. Each
group contained 1015 participants. Focus groups were 6075 minutes in length. Participants were
asked five to six questions focusing on health care communications.
RESULT: Group discussion is particularly appropriate when the interview(s) have a series of open
ended questions and wish to encourage research participants to explore the issues of importance to
them, in their own vocabulary, generating their own questions and pursuing their own priorities. This
helped our researchers to identify common ground, reveal health communication challenges and areas
of convergence and divergence.
CONCLUSION: Healthcare providers and patients acknowledge significant healthcare literacy
problems exist. We recommend additional research on the impact of low literacy on elderly VA patients
and their medication regimens, a growing VA population mostatrisk. In addition, each primary care
VA patient should be given a health literacy screening test to establish a basic literacy baseline where
new communication interventions can be made available to match that patient’s literacy level.
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healthcare experience. However, North Chicago V.A. staff discovered in 2004, 65% of the primary care
patient population did not use the information handout. Clearly, answers were needed to why this patient
information sheet was discarded.
Using Focus Groups
Data from this VA study used 3 patient focus groups and 2 VA medical provider staff focus groups, of
between 10 to 15 participants, lasting between 60 to 75 minutes. Gaining access to such a variety of
communication is useful because knowledge and attitudes are not entirely encapsulated in reasoned
responses to direct questions. Everyday forms of communication may tell us as much, if not more, about
what people know or experience, as to gather a wide concourse including developing an array of opinions
and attitudes on issues impacting healthcare literacy, while helping to identify common ground.
Doctor/Clinician Focus Group Discussion Questions
1. Do your patients have problems comprehending and using healthcare information?
2. How do you communicate medical information to patients?
3. How do you know if patients understand information you give them?
4. How confident are you that your patient’s understand the steps they need to take in maintaining
and improving their health?
5. How can you improve communications with your patient’s?
6. Where are the strengths and weaknesses in healthcare communication at the VA?
Patient Focus Group Discussion Questions
1. Do you have problems comprehending and using healthcare information?
2. How does your doctor communicate medical information to you?
3. How do you tell your doctor about medical issues that you need to know more about?
4. How confident are you that you understand the steps you need to take in maintaining and
improving your health?
5. How can communications with your clinician be improved?
6. Where are strengths and weaknesses in healthcare communications at the VA?
Discussion Group Results
Doctor/Clinicians and PatientsArray of Opinions and Attitudes
KEY COMMUNICATION RESEARCH FINDINGS DOCTORS/CLINICIANS SIDE
♦Patient’s hide their literacy level
♦Need to ask patients about their literacy ability
♦Need easy wording in layman terms of diagnostics and medicines
♦Patients have challenges with understanding their multiple medications and treatment routines
♦Write things down, letters, explain things in greater detail
♦Patient’s wants oral communications and simple instructions
KEY COMMUNICATION RESEARCH FINDINGS PATIENT SIDE
♦Patients prefer verbal explanations and simple written instructions
♦Patients need to ask more questions.
♦Patients want additional treatment and medication information
♦Talk in layman terms that I can understand
♦Keep instructions and medical explanations simple
♦Can I bring a friend along to help my healthcare outcome—having support is good.
♦Have additional medical information sources or health library available
♦Asking questions keeps communications open, making it a two way street.
♦They need to tell us in simple language what to do, but it must be useful and condensed.
♦Medical providers should listen more.
PATIENT ISSUES – PERSONAL ISSUESDOCTOR/CLINICIAN SIDE RESPONSES
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Patients can’t read
Patients hide their literacy level
VA patients getting older, sight, hearing, mental issues
Loss of memory, trouble with memory
Patient worry, patients are nervous during appointments
PATIENT ISSUES PERSONAL ISSUES PATIENT SIDE RESPONSES
1. Many VA patients have poor memory, can’t remember things
Patients rely on their doctor for the right information, as if it were the Gospel
Patients worry over test results and are stressed.
Patients don’t understand medical terms and meds
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Oral communications, followed by written communications
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Exam and test results need to be explained.
Have a patient appointment exit interview.
Keep information simple. Patients want directions; need test results and what they mean.
HEALTH INFORMATION MATERIAL ISSUES DOCTOR/CLINICIAN SIDE
RESPONSES
1. Patient’s need medicine lists and what meds do
Use different forms of health education media.
3. Information is missing
We don’t know if patients understand information given them
5. Font size on medical documents too small
Directions need to be simple
Develop a patient notebook, a profile to carry around
Print patient charts (information) with pictures and symbols
HEALTH INFORMATION MATERIAL ISSUES PATIIENT SIDE
RESPONSES
1. Talk in lay terms and tell me what’s going on
Don’t understand the meaning of what doctor is saying.
Keep the information simple. Patients want directions, need information on test results, meanings
Patient wants to know the sideeffects of their medications.
2. Preprinted information
Personal medical information written out by doctor
Doctor calls me on phone
3. 5. Patients need to ask more questions in Primary Care appointment time.
Doctors spend too much time on their computer going over patient file information.
Usually I think before I go and make my own little notes on what to ask when I go in.
I use printed pamphlets, brochures, and internet
I use medical books and encyclopedia, journals
Doctors and Nurses tell me information, get opinions.
Main medical information is my doctor.
Patients prefer oral communications and written information.
6. It is probably more so that patients don’t start asking questions that they don’t have the time to answer.
I would be worried that if we could see the screen all the time, we’d try to ask about everything on the
screen. This would take up even more time.
PATIENT/CLINICIAN INTERACTION ISSUESCLINICIAN SIDE
1. Type patient notes to give to them
Appointment time is limited; spend more time going over things
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We need to use new healthcare educational tools and see what works with particular patients
2. Patients are afraid to ask questions
Have a family member or friend present, an advocate in the appointment
Have MD’s/clinicians read instructions to patient
3. Patients are afraid to ask questions
We don’t have a benchmark to measure patient understanding
5. Ask patient for a small list of problems to discuss
Expand onetoone contact time with patients
Spend more face time with each patient
Show more compassion, explain things, information
6. Doctor’s don’t explain enough
Show more compassion, explain things, information
Patients are afraid to ask questions
PATIENT/CLINICIAN INTERACTION ISSUESPATIENT SIDE
1. I need answers to my medications and what they do
Doctors need to explain things more
Healthcare provider needs to ask patient if they understand the instruction they have given, and go over
things. Doctor needs to ask nurse to go over things and explain to patient.
2. Doctor needs to review patient file the day before their appointment.
Need faster medical consultation and my healthcare status.
Give follow up written report after medical appointment, what’s happening to me?
3. Patient’s need to be honest, talk about their conditions openly.
Improvements, as far as patient honesty goes I need to bring things up. You need to be able to get questions
answered.
4. I need answers to my medications and what they do.
The pharmacist needs to explain my meds to me and what they do.
I don’t remember everything about my condition.
5. Where can I go for the right information on my prescriptions?
Try a BEEPER to alert patient on test results
Healthcare provider needs to ask patient if they understand their instructions.
6. Medical test followup, results need to be explained. This makes patients more responsible
Patients not informed, they need more information Doctors need to explain things more
Do more health screening, preventative medicine
Doctor’s should not scare patients
TREATMENT/ADMINISTRATIVE ISSUESPROCEDURECLINICIAN SIDE
Document healthcare notes
Make phone procedures simpler (inbound/outbound)
Expand health clerk’s education
Nurses take the lead in patient informationcheck information for patients
Pharmacy denies medications
Set up exit interviews for each patient
Get patient coming out of the clinics for education, information
TREATMENT/ADMINISTRATIVE ISSUESPATIENT SIDE
1. We need to update patient information (results) because people are waiting.
I can’t understand him (The Doctor). At Hines and West Side VA you go see 1 doctor for an hour. A
month later you have an appointment at the same clinic and see a different doctor.
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A lot of them are students. You can’t understand them and they don’t understand you.
2. Doctors and Nurses tell me information, get opinions
Main source of information is my doctor.
5. Medical specialist—followup—what’s going on and have primary care doctor explain things.
we now get an appointment letter and phone call.
The medical tests don’t tell you a reading on your test and don’t explain things.
Doctors and Nurse seem to spend more time with patient explaining things, and see the patient understands.
Changes patient want to see on clinic procedures
1. Provider interaction
2. New procedures overall to help patients
3. More patient education, to explain things
PATIENT PSYCHOSOCIAL ISSUESCLINICIAN SIDE
Motivational issues
Control issues
Patients don’t want their medications
Passive VA patient’s (not actively involved)
PSYCHOSOCIAL ISSUESPATIENT SIDE
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N. Chicago VA Healthcare staff, friendly, professional and concerned about patients.
Don’t talk over my head
I’m confused by the high level medical talk
LITERACY ISSUESPATIENT SIDE
Prefer verbal explanations and simple written instructions
Where can I go to get answers to my treatment or medications?
Talk in layman terms that I can understand
Keep things simple, instructions and medical explanations
Literacy levels change in patients due to diet, fatigue, lack of sleep and other factors
Use a 3” X 5” card to write questions down to ask doctors in appointments
Patient’s want to become more active in their treatment
CONCLUSION:
KEY RECOMMENDATIONS
1. Healthcare providers and patients acknowledged a healthcare literacy problem exists. Our
recommendation is to institute a patient healthcare literacy screening test at the Primary Care
Medical Appointment, as a benchmark to evaluating individual literacy level.
2. Additional research is needed to discover what healthcare educational media would be the most
effective and useful to a particular patient’s literacy level.
3. We recommend research focusing on older VA patient population, a group mostatrisk. The VA
needs to design new communication interventions helping patients with low literacy to manage
their medication regimens to reduce errors, and noncompliance level, resulting in increased
patient safety and quality of care of all stakeholders.
Establishing good communication practices between patient/clinicians help also to build strategies for
improving patient compliance including giving clear, concise, and logical instructions in familiar language,
adapting drug regimens to daily routines, eliciting patient participation through selfmonitoring, and
providing useful and understandable educational materials that promote overall good health in connection
with medical treatment. (7) (8) (9)
Historically in medicine, there was a paternalistic approach to deciding what should be done for a patient:
the physician knew best and the patient accepted the recommendation without question. This era is
ending, being replaced with involving the patient directly in health care outcomes and the movement