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Paris, June 5th – 6th 2014
June 5th - 6th 2014
Paris, France
Paris, June 5th – 6th 2014
A personal experience
Beate Bartès
Association « Vivre sans Thyroïde »
Paris, June 5th – 6th 2014
Doctors 2.0 & You
May 2012
Half-Marathon, Paris
March 2014
Paris, June 5th – 6th 2014
Beate Bartès
Nearly 58
German, living in France since 1978
Married, 3 daughters
Technical translator at Airbus
Thyroid cancer in 2000
Another cancer in 2003
In complete remission, doing fine!
Paris, June 5th – 6th 2014
« Vivre sans Thyroïde »
Created in 2000 as a web forum for thyroid patients
=> non-profit association in 2007
13.600 registered users
5000 to 6000 visitors & approx. 120 messages per day
Emails, phone calls …
Facebook page, Facebook group, Twitter, Youtube
Patient meetings, conferences, medical congresses
International cooperation
Work groups for patient literature
Lectures
Interviews
Patient advocacy
…
Paris, June 5th – 6th 2014
Family
Job
House
Patient
advocacy
Travel
Hobbies
Friends
Health
Cancer
Follow-Up
Garden
Paris, June 5th – 6th 2014
Paris, June 5th – 6th 2014
Paris, June 5th – 6th 2014
Tracking: Calories, activities, sleep, weight, measurements, arterial
tension, glucosis …
March 2013
Paris, June 5th – 6th 2014
Weight: - 8 kg
Tension: back to normal
HbA1c: from 7,4 to 6,1
And : Starting to enjoy
sports, and to look for
new challenges!
2012 : 5km
2013 : 10 km
2014 : 21 km …
… to be continued !
Paris, June 5th – 6th 2014
THANK YOU !
Beate Bartès
www.forum-thyroide.net
beate@forum-thyroide.net
LinkedIn: Beate Bartès
@BBartes
@ForumThyroide

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Doctors 2014 Connected Health - User Feedback Beate Bartès

  • 1. Paris, June 5th – 6th 2014 June 5th - 6th 2014 Paris, France
  • 2. Paris, June 5th – 6th 2014 A personal experience Beate Bartès Association « Vivre sans Thyroïde »
  • 3. Paris, June 5th – 6th 2014 Doctors 2.0 & You May 2012 Half-Marathon, Paris March 2014
  • 4. Paris, June 5th – 6th 2014 Beate Bartès Nearly 58 German, living in France since 1978 Married, 3 daughters Technical translator at Airbus Thyroid cancer in 2000 Another cancer in 2003 In complete remission, doing fine!
  • 5. Paris, June 5th – 6th 2014 « Vivre sans Thyroïde » Created in 2000 as a web forum for thyroid patients => non-profit association in 2007 13.600 registered users 5000 to 6000 visitors & approx. 120 messages per day Emails, phone calls … Facebook page, Facebook group, Twitter, Youtube Patient meetings, conferences, medical congresses International cooperation Work groups for patient literature Lectures Interviews Patient advocacy …
  • 6. Paris, June 5th – 6th 2014 Family Job House Patient advocacy Travel Hobbies Friends Health Cancer Follow-Up Garden
  • 7. Paris, June 5th – 6th 2014
  • 8. Paris, June 5th – 6th 2014
  • 9. Paris, June 5th – 6th 2014 Tracking: Calories, activities, sleep, weight, measurements, arterial tension, glucosis … March 2013
  • 10. Paris, June 5th – 6th 2014 Weight: - 8 kg Tension: back to normal HbA1c: from 7,4 to 6,1 And : Starting to enjoy sports, and to look for new challenges! 2012 : 5km 2013 : 10 km 2014 : 21 km … … to be continued !
  • 11. Paris, June 5th – 6th 2014 THANK YOU ! Beate Bartès www.forum-thyroide.net beate@forum-thyroide.net LinkedIn: Beate Bartès @BBartes @ForumThyroide