Doctors 2014 Connected Health - User Feedback Beate Bartès
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The document describes Beate Bartès' personal experience in Paris from June 5th to 6th, 2014. Beate is a 58-year-old German woman living in France who had thyroid cancer in 2000 and another cancer in 2003 and is now in remission. She created the non-profit organization "Vivre sans Thyroïde" in 2007 to support thyroid patients through an online forum, social media, conferences, and other activities. The document discusses her family, job, advocacy work, health tracking, weight loss, and enjoyment of increasing her sports challenges over time.
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Doctors 2014 Connected Health - User Feedback Beate Bartès
- 1. Paris, June 5th – 6th 2014 June 5th - 6th 2014 Paris, France
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- 4. Paris, June 5th – 6th 2014 Beate Bartès Nearly 58 German, living in France since 1978 Married, 3 daughters Technical translator at Airbus Thyroid cancer in 2000 Another cancer in 2003 In complete remission, doing fine!
- 5. Paris, June 5th – 6th 2014 « Vivre sans Thyroïde » Created in 2000 as a web forum for thyroid patients => non-profit association in 2007 13.600 registered users 5000 to 6000 visitors & approx. 120 messages per day Emails, phone calls … Facebook page, Facebook group, Twitter, Youtube Patient meetings, conferences, medical congresses International cooperation Work groups for patient literature Lectures Interviews Patient advocacy …
- 6. Paris, June 5th – 6th 2014 Family Job House Patient advocacy Travel Hobbies Friends Health Cancer Follow-Up Garden
- 7. Paris, June 5th – 6th 2014
- 8. Paris, June 5th – 6th 2014
- 9. Paris, June 5th – 6th 2014 Tracking: Calories, activities, sleep, weight, measurements, arterial tension, glucosis … March 2013
- 10. Paris, June 5th – 6th 2014 Weight: - 8 kg Tension: back to normal HbA1c: from 7,4 to 6,1 And : Starting to enjoy sports, and to look for new challenges! 2012 : 5km 2013 : 10 km 2014 : 21 km … … to be continued !
- 11. Paris, June 5th – 6th 2014 THANK YOU ! Beate Bartès www.forum-thyroide.net beate@forum-thyroide.net LinkedIn: Beate Bartès @BBartes @ForumThyroide