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In the eye of the storm

                       Debra Moore
Director of Nursing & Patient Safety
                        Castlebeck
Aim of the session


 Transforming The Workplace Culture – including
 findings from the external review of the culture

 Learning And Implications For Other Learning
 Disability Providers
Do we use this a chance to do something
different? Can we take stock and rebuild?
“Her death has become one of those major modern occasions where
there seems to have been a collective sense of empathy for a
stranger’s fate. She has become an embodiment of the betrayal,
vulnerability and public abandonment of children.
The inquiry must mark the end of child protection policy built on a
hopeless process of child care tragedy, scandal, inquiry, findings, brief
media interest and ad hoc political response. There is now a rare
chance to take stock and rebuild”
Peter Beresford
Professor of Social Policy, Brunel University
Personal and professional
What do I know?
How did I become involved? –
my response to Winterbourne View


“You have many choices. You can choose forgiveness over
revenge, joy over despair. You can choose action over
apathy.”

Stephanie Marston
Abuse - is anyone, anywhere safe?
For 10 years, Gordon Rowe raped, kicked, punched, drugged, starved and
neglected the adults with learning difficulties who lived in his residential homes in
South Buckinghamshire. (Longcare Inquiry)

One on occasion she attended the hospital at around 6 am to find her mother in a
side room calling ‘please help me, please help me’. The patient was covered in
dried faeces and was completely naked. She ran down the ward to find the staff
‘chatting and laughing’. She assisted in washing her mother and it was ‘awful’.
Her ‘hands were absolutely caked’ and it ‘was dried and it was up her arms and it
was round her neck’. The patient died later that night. (Mid Staffordshire)


One person interviewed was raped, age 7, by a family friend; then abused, aged
10, by her foster brother who had Downs Syndrome; and then, at age 14,
sexually abused by her cousin. (Lemos & Crane)


In October 2007, Pilkington, then 38, drove herself and her 18-year-old daughter,
Francesca Hardwick, to a layby …the then set the Austin Maestro on fire, killing
them both…an inquest heard how the family had been kept virtual prisoners in
their own homes by youths who threw stones, flour and other objects and kept up
a relentless stream of abuse
Abuse - is anyone, anywhere safe?
“appalling examples of discrimination, abuse and neglect across the range
of health services” Death by Indifference

“People with dementia are the most vulnerable in society and it is shocking
that this study has found that they are being subjected to abuse in their own
home” Alzheimers Society



Inspectors for the Care Quality Commission - which regulates home care in
England - found that 217 companies were employing workers who were not
properly qualified. One company in Birmingham employed 23 carers with
criminal convictions for offences including theft and assault. One carer in
Coventry locked a vulnerable person out in the garden while another put a
carrier bag over a care user's head.

Scotland Yard, which is co-ordinating the investigation into Savile's alleged
offences, says it is following up 340 lines of inquiry, following complaints of
abuse and sexual assault by him. It is also in contact with 14 other police
forces. In total, officers are in contact with 40 potential victims.
In Winterbourne View
 What do all these scandals tell us about the setting conditions for
                              abuse?
                  What is the recipe for disaster?

Lack of voice in terms of service users/families/advocacy
Lack of respect for the individuals and their families
Unclear purpose and values
Mix of service users with widely differing needs
Boredom – lack of activities
Institutional and impoverished environments
Geographically isolated services
Low staffing levels and high use of bank/agency staff
Poor training and staff development
Lack of management supervision and appraisal
Closed inward looking culture
Poor incident reporting systems and low level governance
Weak management and low visibility
Lack of clinical/nursing leadership
Poor whistleblowing procedures
Failure to act on complaints/concerns
Poor intra-agency reporting and liaison
                 Where could we see all this happening?
Methodology of the review
   Site visits to 12 hospitals between June and August 2011
   Winterbourne View not included as subject to on-going police investigation
   Assessment of services against Confirm & Challenge Outcomes Framework
   Review of literature and government policy
   Interviews and observations with people who use services and their families
   Observation of key meetings – service user forum and staff meeting
   Confidential Interviews with staff across all departments including
    housekeeping, administration, nursing, clinical and training
   Confidential Interviews with Executive Team
   Analysis of documentary evidence – rota’s, MDT and CPA minutes and
    notes, nursing and clinical notes
   Summit with key stakeholders to inform recommendations (Sept 2011)
Findings and recommendations
9 key areas

1. Assessment, care planning and therapeutic
   interventions
2. Multi-disciplinary team working
3. Planning and delivering person centred care
4. A meaningful day
5. Environment and facilities
6. Workforce and staff training
7. Organisational structure and culture
8. Commissioning
9. Clinical governance and patient safety
Assessment, care planning and
  therapeutic interventions
  – key lessons
 Ensure a clear purpose and focus for in-patient provision
  – ‘short term psychiatric assessment & treatment’ with the
  aim of returning people to the community
 Agree admission criteria and a proper care pathways with
  individual outcome measures and discharge planning
  from the start
 Ensure there are the resources and expertise to deliver
  specialist interventions – therapies and programmes
 Create a meaningful day – combat boredom!
 Promote healthy lifestyles
 Invest in person centred care planning – INVOLVING
  PEOPLE & FAMILIES!
Multi-disciplinary team working
   – key lessons

 Be clear about the role of each person and
  support activities that bring them different
  professional groups together such as training
 Ensure that the MDT is visible within services
  and spend time with direct care staff –
  accountability
 The role of named nurse & key worker need to
  be defined and accountable
 Listen and respond to the views of people and
  families – don’t confuse!
Planning & delivering person
    centred care – key lessons
Really connect with PEOPLE AND FAMILIES

 Increase opportunities to hear the voice of people
  who use services and their families
 Support people and families with knowledge and
  information - expert patient/expert carer skills
 Ensure materials are accessible and enable people
  and families to engage fully in assessment and care
  planning processes
 Ensure people know their rights!
A meaningful day – key lessons

Building skills

Person centred active support
Positive Behavioural Support
Intensive interaction
Communication


Meaningful occupation and
employment opportunities
Environment and facilities
   - key lessons


 Smaller environments – better
  compatibility
 Involve service users and families in
  setting and monitoring environmental
  standards
 Remember the ‘healing’ aspect of the
  environment
 Space for therapeutic activity
Workforce and staff training
   - key lessons
 Induction – first point of contact – emphasis on
  values, rights and safeguarding
 Robust preceptorship, induction and clinical
  supervision
 Rolling programme of training prioritising
  person centred thinking and approaches, care
  planning and HAP as well as clinical skills
 Training needs analysis and effective staff
  matching vital – KSF linked to appraisal
 Involve people and families at every stage
 Look outwards – network, network, network
Organisational structure and culture
   - key lessons

 Patient care and outcomes must be focus of
  Board level discussion and communication
 Robust management supervision and clear
  accountability
 Staff who are related should not work in the
  same team
 Managers need development and training
 All meetings need to be purposeful,
  strengths based and appreciative
 High visibility - Management by
  wandering about!
Commissioning - Key lessons

 Focus on patient experience and quality
  of care
 Use of multi-media to see what the life
  of the person is like e.g. video diaries
 Undertaking regular population needs
  analysis aggregated information from
  care plans, HAPs, patient exit
  interviews, family carer surveys etc.
 Ensuring manager understand
  commissioning landscape and
  expectations and work in partnership
Clinical governance and patient safety
- Key lessons

 Be clear about expectations – agree
  the Quality Strategy – clear outcomes
  and accountability
 Weave achievement of quality targets
  into appraisals of all staff
 Ensure people and families are
  involved in all aspects of setting and
  monitoring standards
 Robust governance systems and data
 Board reporting
 ZERO TOLERANCE
In summary
 My report contains nothing new – it is,
  sadly, an echo of other reports
  detailing failings across the NHS,
  Social Care, Independent Sector and
  in people’s own homes
 How many times do we have to say
  it?
 We need to stop blaming each other
  and get on with changing things…!
 We need to create the conditions for
  person centred care to flourish
A personal ‘call to action’

“It is all built on trust, so I
trust you to look after my
son”

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National managers meetings

  • 1. In the eye of the storm Debra Moore Director of Nursing & Patient Safety Castlebeck
  • 2. Aim of the session Transforming The Workplace Culture – including findings from the external review of the culture Learning And Implications For Other Learning Disability Providers
  • 3. Do we use this a chance to do something different? Can we take stock and rebuild? “Her death has become one of those major modern occasions where there seems to have been a collective sense of empathy for a stranger’s fate. She has become an embodiment of the betrayal, vulnerability and public abandonment of children. The inquiry must mark the end of child protection policy built on a hopeless process of child care tragedy, scandal, inquiry, findings, brief media interest and ad hoc political response. There is now a rare chance to take stock and rebuild” Peter Beresford Professor of Social Policy, Brunel University
  • 5. What do I know?
  • 6. How did I become involved? – my response to Winterbourne View “You have many choices. You can choose forgiveness over revenge, joy over despair. You can choose action over apathy.” Stephanie Marston
  • 7. Abuse - is anyone, anywhere safe? For 10 years, Gordon Rowe raped, kicked, punched, drugged, starved and neglected the adults with learning difficulties who lived in his residential homes in South Buckinghamshire. (Longcare Inquiry) One on occasion she attended the hospital at around 6 am to find her mother in a side room calling ‘please help me, please help me’. The patient was covered in dried faeces and was completely naked. She ran down the ward to find the staff ‘chatting and laughing’. She assisted in washing her mother and it was ‘awful’. Her ‘hands were absolutely caked’ and it ‘was dried and it was up her arms and it was round her neck’. The patient died later that night. (Mid Staffordshire) One person interviewed was raped, age 7, by a family friend; then abused, aged 10, by her foster brother who had Downs Syndrome; and then, at age 14, sexually abused by her cousin. (Lemos & Crane) In October 2007, Pilkington, then 38, drove herself and her 18-year-old daughter, Francesca Hardwick, to a layby …the then set the Austin Maestro on fire, killing them both…an inquest heard how the family had been kept virtual prisoners in their own homes by youths who threw stones, flour and other objects and kept up a relentless stream of abuse
  • 8. Abuse - is anyone, anywhere safe? “appalling examples of discrimination, abuse and neglect across the range of health services” Death by Indifference “People with dementia are the most vulnerable in society and it is shocking that this study has found that they are being subjected to abuse in their own home” Alzheimers Society Inspectors for the Care Quality Commission - which regulates home care in England - found that 217 companies were employing workers who were not properly qualified. One company in Birmingham employed 23 carers with criminal convictions for offences including theft and assault. One carer in Coventry locked a vulnerable person out in the garden while another put a carrier bag over a care user's head. Scotland Yard, which is co-ordinating the investigation into Savile's alleged offences, says it is following up 340 lines of inquiry, following complaints of abuse and sexual assault by him. It is also in contact with 14 other police forces. In total, officers are in contact with 40 potential victims.
  • 9. In Winterbourne View What do all these scandals tell us about the setting conditions for abuse? What is the recipe for disaster? Lack of voice in terms of service users/families/advocacy Lack of respect for the individuals and their families Unclear purpose and values Mix of service users with widely differing needs Boredom – lack of activities Institutional and impoverished environments Geographically isolated services Low staffing levels and high use of bank/agency staff Poor training and staff development Lack of management supervision and appraisal Closed inward looking culture Poor incident reporting systems and low level governance Weak management and low visibility Lack of clinical/nursing leadership Poor whistleblowing procedures Failure to act on complaints/concerns Poor intra-agency reporting and liaison Where could we see all this happening?
  • 10. Methodology of the review  Site visits to 12 hospitals between June and August 2011  Winterbourne View not included as subject to on-going police investigation  Assessment of services against Confirm & Challenge Outcomes Framework  Review of literature and government policy  Interviews and observations with people who use services and their families  Observation of key meetings – service user forum and staff meeting  Confidential Interviews with staff across all departments including housekeeping, administration, nursing, clinical and training  Confidential Interviews with Executive Team  Analysis of documentary evidence – rota’s, MDT and CPA minutes and notes, nursing and clinical notes  Summit with key stakeholders to inform recommendations (Sept 2011)
  • 11. Findings and recommendations 9 key areas 1. Assessment, care planning and therapeutic interventions 2. Multi-disciplinary team working 3. Planning and delivering person centred care 4. A meaningful day 5. Environment and facilities 6. Workforce and staff training 7. Organisational structure and culture 8. Commissioning 9. Clinical governance and patient safety
  • 12. Assessment, care planning and therapeutic interventions – key lessons  Ensure a clear purpose and focus for in-patient provision – ‘short term psychiatric assessment & treatment’ with the aim of returning people to the community  Agree admission criteria and a proper care pathways with individual outcome measures and discharge planning from the start  Ensure there are the resources and expertise to deliver specialist interventions – therapies and programmes  Create a meaningful day – combat boredom!  Promote healthy lifestyles  Invest in person centred care planning – INVOLVING PEOPLE & FAMILIES!
  • 13. Multi-disciplinary team working – key lessons  Be clear about the role of each person and support activities that bring them different professional groups together such as training  Ensure that the MDT is visible within services and spend time with direct care staff – accountability  The role of named nurse & key worker need to be defined and accountable  Listen and respond to the views of people and families – don’t confuse!
  • 14. Planning & delivering person centred care – key lessons Really connect with PEOPLE AND FAMILIES  Increase opportunities to hear the voice of people who use services and their families  Support people and families with knowledge and information - expert patient/expert carer skills  Ensure materials are accessible and enable people and families to engage fully in assessment and care planning processes  Ensure people know their rights!
  • 15. A meaningful day – key lessons Building skills Person centred active support Positive Behavioural Support Intensive interaction Communication Meaningful occupation and employment opportunities
  • 16. Environment and facilities - key lessons  Smaller environments – better compatibility  Involve service users and families in setting and monitoring environmental standards  Remember the ‘healing’ aspect of the environment  Space for therapeutic activity
  • 17. Workforce and staff training - key lessons  Induction – first point of contact – emphasis on values, rights and safeguarding  Robust preceptorship, induction and clinical supervision  Rolling programme of training prioritising person centred thinking and approaches, care planning and HAP as well as clinical skills  Training needs analysis and effective staff matching vital – KSF linked to appraisal  Involve people and families at every stage  Look outwards – network, network, network
  • 18. Organisational structure and culture - key lessons  Patient care and outcomes must be focus of Board level discussion and communication  Robust management supervision and clear accountability  Staff who are related should not work in the same team  Managers need development and training  All meetings need to be purposeful, strengths based and appreciative  High visibility - Management by wandering about!
  • 19. Commissioning - Key lessons  Focus on patient experience and quality of care  Use of multi-media to see what the life of the person is like e.g. video diaries  Undertaking regular population needs analysis aggregated information from care plans, HAPs, patient exit interviews, family carer surveys etc.  Ensuring manager understand commissioning landscape and expectations and work in partnership
  • 20. Clinical governance and patient safety - Key lessons  Be clear about expectations – agree the Quality Strategy – clear outcomes and accountability  Weave achievement of quality targets into appraisals of all staff  Ensure people and families are involved in all aspects of setting and monitoring standards  Robust governance systems and data  Board reporting  ZERO TOLERANCE
  • 21. In summary  My report contains nothing new – it is, sadly, an echo of other reports detailing failings across the NHS, Social Care, Independent Sector and in people’s own homes  How many times do we have to say it?  We need to stop blaming each other and get on with changing things…!  We need to create the conditions for person centred care to flourish
  • 22. A personal ‘call to action’ “It is all built on trust, so I trust you to look after my son”