Pino Migliorino, Managing Director of Cultural Perspectives Group, was invited to present at the 30th International Conference of Alzheimer's Disease International in Perth on 16 April.

1. THE PAST, PRESENT AND
FUTURE OF DEMENTIA
FOR CALD COMMUNITIES

2. THE STARTING POINT

3. Cultural Perspectives | 3
THE STARTING POINT
THE AREA OF CALD DEMENTIA HAS
LONG BEEN ONE FRAUGHT WITH
DIFFICULTIES AND SENSITIVITIES…

4. RESEARCH:
THE KNOWN,
THE UNKNOWN,
& THE BASIS FOR
INACTION

5. RESEARCH
Cultural Perspectives | 5
 Medical and social research has
excluded people from CALD
backgrounds
 Types of barriers include:
 amount of language & ethnic groups
 ethics approval
 budget
 recruitment of CALD subjects
 ‘no difference’ justification
 recruitment of bilingual researchers

6. RESEARCH
Cultural Perspectives | 6
 Federation of Ethnic Communities
Councils of Australia
 Gaps include:
 how CALD community members
cope with and manage the
disease
 inclusion CALD participants in
dementia research programs
 factors influencing wellbeing
outcomes

7. EDUCATION:
COMMUNITY
ACCEPTANCE &
CONSUMER RIGHTS

8. Cultural Perspectives | 8
EDUCATION
…POOR UNDERSTANDING OF
DEMENTIA COMBINED WITH
CULTURAL STIGMA…LEADS TO
THE DENIAL OF THE CONDITION
AND/OR DELAYED DIAGNOSIS…

9. EDUCATION
Cultural Perspectives | 9
NO CENTRAL
REPOSITORY FOR
CALD RESOURCES
LACK OF CONTINUITY
IN CALD COMMUNITY
EDUCATION
LACK OF DEMENTIA SPECIFIC
MOMENTUM IN AUSTRALIA’S
ETHNIC COMMUNITIES

10. ASSESSMENT &
SUPPORT

11. ASSESSMENT &
SUPPORT
Cultural Perspectives | 11
 Delayed diagnosis
 Rowland Dementia Universal
Access Screening tool (RUDAS)
 Cultural competency- becoming
more relevant

12. THE 1 IN 5 AGENDA

13. THE 1 IN 5 AGENDA
13Cultural Perspectives |
RESEARCH
EDUCATION & CONSUMER
PARTICIPATION
SERVICE DELIVERY &
CARER SUPPORT

14. Cultural Perspectives | 14
THE 1 IN 5 AGENDA
 Establish the 1 in 5 imperative
 20% of all research dollars are
dedicated and quarantined for
research in CALD communities
 Promote research methods that
address the current orthodoxy and
narrowness in dementia research design
and execution
 Agree on a priority community list
 Increase grassroots community
participation in research
 Undertake relevant empirical research

15. THE 1 IN 5 AGENDA
15Cultural Perspectives |
RESEARCH
EDUCATION & CONSUMER
PARTICIPATION
SERVICE DELIVERY &
CARER SUPPORT

16. Cultural Perspectives | 16
THE 1 IN 5 AGENDA
 Fund CALD community
advocacy
 Establish and fund a
standalone dementia
awareness program for CALD
communities
 Establish a clearinghouse
for CALD research and
dementia specific resources
 Support CALD specific
education and capacity
building projects

17. THE 1 IN 5 AGENDA
17Cultural Perspectives |
RESEARCH
EDUCATION & CONSUMER
PARTICIPATION
SERVICE DELIVERY &
CARER SUPPORT

18. Cultural Perspectives | 18
THE 1 IN 5 AGENDA
 Promotion of the RUDAS tool as the standard
 Model cultural competence in dementia
assessment and care through tool development
across:
 Organisational audit and planning tools
 Workforce development tools
 Community engagement and partnership approaches
 Business investment and integration
 Foster culturally competent practice in high care
facilities
 Compel issue specific peaks to address services
access and competency issues

19. THE PAST, PRESENT AND
FUTURE OF DEMENTIA
FOR CALD COMMUNITIES