4. Medical Management Medications Copaxone -subcutaneous (SC) injection given once daily Avonex IM once per week Rebif is prescribed for RRMS and given SC three times per week Betaseron and Extavia- every other day SC Tysabri once per month IV Novantrone-by IV infusion every three months with limited doses . Gilenya (fingolimod) oral once per day
5. Medical Management Medication Regimes- adhering to difficult medications Using medical devices (walkers, canes braces, wheelchairs, Adhering to diets, exercise, PT, OT (Lorig & Holman, 2003).
9. Role Management Hobbies Jobs Home Life Changing and creating new meaningful behaviors or life roles (Lorig & Holman, 2003).
10. Next 5 Class Communication (Healthcare providers) Stress-management Exercise Diet/CAM Fatigue
11. How to get the most from the workshop Class participation Homework assignments Attend all classes. Arrive on time. Bring a support person to all classes.
12.
13. Reference Lorig, K. R. & Holman, H. R. (2003). Self- management education: History, definitions, outcomes and mechanisms. Annals Behavioral Medicine. 26(1), 1–7). National Multiple Sclerosis Society (n.d.). Retrieved from http://www.nationalmssociety.org/index.aspx
Editor's Notes
The MS Self-Management Workshop was designed for a traditional classroom setting. The targeted participants are people living with MS and their support person (spouse, partner, friend, or family member). This will be very useful to both newly diagnosed and the person living with MS longer. Their will be 6 classes one per week. Contributing to on line comments will benefit the group by providing feedback. The course comes with a very basic booklet that will be useful for taking notes and doing the homework assignments. The pages that correlate with each class will be posted weekly. The homework assignments are used to practice or evaluate your personal needs to promote a better sense of well-being . In the booklet provided write down (on page 2) a positive statement about yourself and what you would like to learn about managing your MS. Please share in the comment section for other participants.
Class 1 Objectives:1. The participants will relate the three categories of self-management to aspects of living with multiple sclerosis.2. The participants will recognize the significance of the assigned activities and contribute to the activities. 3. Understand self-management for people with MS, demonstrated through the creation of mind mapping, using the three following categories, a. medical managementb. role managementc. emotional management
Self-management addresses role management, such as jobs/roles in the home and out, and hobbies and activities.Emotional management- assesses stress-management (relaxation methods, ways to reduce stress, exercise, yoga, meditation, journaling, and time management)Medical management- addresses medication regimes such as subcutaneous, IV, and IM and oral meds. Utilizing medical devices such as assistive devices canes…Altering Diet and other related topics to medical management of MS. Can you think of any other ways you have altered your life due to medical management?
These are the present immune modifying medications. They are use to slow the progression of MS. These medications work for many people with MS. Some people may not tolerate certain medications due to side effect and they may have difficulty adhering the medication therapy. Some people may respond better to some of these medications than others. These decisions should be made with yourinput and your MS healthcare provider.
Medical management focuses on taking new medications. Learning about that medication such as, side effects, how to minimize side effects, how to properly administer the medication, how to and evaluate and report your response to the medication. Sometimes it may be necessary to learn how to use assistive devices, possibly a cane, walker, leg braces, or a wheelchair.Focusing on a healthy diet or adhering to dietary changes, implementing exercise programs, or participating in physical therapy and or occupational therapy. What have you needed to change in your life or what may you need to do in the future for medical management?
Emotional management is often needed with a chronic illness ( Lorig & Holman,2003). People with MS often go through periods of depression, anger, fear, frustration and mood swings (NMSS,n.d.). It is important for people with MS and their loved ones to recognize that these are common symptoms and learn how to effectively cope and manage them.
Role management is “…maintaining, changing and creating new meaningful behaviors or life roles” (Lorig &Holman, 2003,p.1).For a person living with MS this may include a career change due to increase fatigue or altered mobility. It may also require changing or finding new hobbies to replace ones that are too difficult to continue. Have you made any changes in your life or do you for see changes that may be required in the future? The ability to foresee changes and plan can reduce stress and improve quality of life.
The next five classes will cover communication, stress-management, exercise, diet/cam, fatigue. The next class Communication- Effective communication with healthcare providers can optimize and individualize you healthcare. Class 3 will address effective stress-management strategies.Class 4 will evaluate exercise to promote and maintain health.Class 5 will review diets and the benefits of a healthy diet. It will also evaluate Complimentary and Alternative MedicineClass 6 will summarize the workshop and concentrate on fatigue management for MS.
Sign the MS Self-Management Workshop Contract on page 5 in the booklet.
Design your own mind map to illustrate self-management and how it relates to your experiences with MS. Here is a generalized sample of one I developed. Share your mind map in the comment area.
