this lecture was given in the early days of the COVID-19 PANDEMIC. There were many issues with disclosure and confidentiality.
This lecture handles the issues on issues of Medical ethics as it concerns disclosure.
2. Disclosure
Dr Bertha Chioma Ekeh; B, Med Pharmacology, MBBS, FMCP (Neuro)
Lecturer/Consultant Neurologist
University of Uyo/University of Uyo Teaching Hospital
Adjunct Consultant Neurologist Ibom Specialist Hospital Uyo
webpage https://www.amazon.com/Dr-Bertha-Chioma-Ekeh/e/B07D442KRX
Blog https://medicalinfoblog.net
I HAVE NO CONFLICTS OF INTEREST
3. Content
Introduction
Definition of Medical Ethics
Principles of Medical Ethics
Confidentiality
Disclosure
Issues in COVID-19
Summary /Conclusion
5. Medical Ethics
A system of moral principles that apply values
to the practice of clinical medicine and in
scientific research.
Medical ethics is based on a set of values that
professionals can refer to in the case of any
confusion or conflict.
The core values include the respect
for autonomy, non-maleficence, beneficence,
and justice
6. Contd
The essence of Medical Ethics is to allow
Doctors, care providers, and families to create
a treatment plan and work towards the same
common goal.
The values are not ranked in order of
importance or relevance
However in some cases, some moral elements
overrule others in a difficult medical situation.
9. Autonomy
Respect patients as individuals (e.g., respecting their
privacy by maintaining confidentiality and being
truthful about their medical care).
Provide the information and opportunity for patients to
make their own decisions regarding their
care (e.g., informed consent).
Honour and respect patients' decisions regarding their
choice to accept or decline care.
In addition to having the right to refuse a diagnostic or
therapeutic intervention, patients also have the right to
refuse to receive information
10. Beneficence
Act in the best interest of the patient and
advocate for the patient.
May conflict with autonomy
11. Obligation to treat
A physician is obligated to treat patients in a
medical emergency in which failing to provide
treatment would immediately endanger the
patient's life.
Physicians are not obliged to treat a patient
longitudinally and may end a doctor-
patient relationship if they wish, as long as the
patient or their surrogate decision maker is
notified and has the ability (e.g., time, money) to
establish care with another physician. The
physician is also obligated to facilitate the transfer
of care.
12. Confidentiality
Confidentiality is commonly applied to
conversations between doctors and patients
This concept is commonly known as patient-
physician privilege
Legal protections prevent physicians from
revealing their discussions with patients, even
under oath in court
13. Contd
Traditionally, medical ethics has viewed the duty
of confidentiality as a relatively non-negotiable
tenet of medical practice.
Few exceptions to the rules have been carved out
over the years.
--Gunshot wounds
--Sexually transmitted disease in a patient who
refuses to reveal the diagnosis to a spouse
--Termination of a pregnancy in an underage
patient, without the knowledge of the patient's
parents
14. Full Disclosure
Patients have the right to full medical disclosure
A family does not have the right to ask a physician
to withhold information from a patient
with decision-making capacity
and competence without good reason
Exceptions:
If the patient requests that the physician withholds
information
Therapeutic privilege: a physician determines that full
disclosure would cause severe harm to the patient's
severe psychological harm (e.g., following an
unfavourable prognosis
15. Non Maleficence
Avoid causing injury or suffering to patients:
FIRST, Do no Harm
May conflict with beneficence
17. COVID-19 Pandemic
Also known as the Corona virus pandemic
An ongoing pandemic of Corona virus disease
2019 (COVID-19)
Caused by severe acute respiratory syndrome
corona virus 2 (SARS-CoV-2
The outbreak was first identified in Wuhan,
China, in December 2019
18. Contd
WHO declared the outbreak
Public Health Emergency of International
Concern on 30 January
Pandemic on 11 March 2020
As at May 15th there are 4,525,420 cases
globally
303,371 deaths globally
In Nigeria there are 5,162cases; 167 deaths
19. Ethical Dilemmas in COVID 19
Pandemic
OVERLOADED HEALTHCARE SYSTEMS ( few
health workers, ventilators, or hospital beds, few
testing kits) leading to
Unequal Access to care
Test or not to test: Choosing who should be tested
Treat or not treat; Choosing who should be placed
on ventilators
Freeing beds to accommodate COVID patients:
British cancer pts, Hungary ordered freeing of
60% of beds, other patients
20. Ethical dilemmas Contd
Allocation of Scarce resources( PPEs, face
masks ETC)
Public Health measures that cause coercion
and intrusion into peoples lives
Issues of Vaccines and testing: Response of
Africans
Maintaining confidentiality
21. Notable Personal Disclosures
British Prime Minister
Queen Elizabeth
Prince Charles
Wife of Canadian Prime Minister
Sportsmen/actors and Actresses
Nigeria
Gov of Kaduna State
UCH CMD
22. Importance of Disclosure
Contact tracing
Isolation and Focused care
Protection of others/Public Safetys
Public Health Activities
Reduction of spread of the virus
23. Negative Consequences of
disclosure
Panic/ Fear( increase in the prescription of
Anxiety medications)
Stigmatisation
Perceived poor care by Health care workers
Economic losses( Loss of jobs, investors, etc)
Wrong perception in Nigeria (disease of the
Rich and travellers)
24. Response to Disclosures
Better responses in the developed world
Worse in countries with challenged Health
care system
Multinational companies are wary
25. Company’s Responses
U.S. companies aren’t required to tell investors
of potential infection of the executives
But BT Group PLC, one of Europe’s largest
telecommunications companies, disclosed that
its chief executive, Philip Jansen, tested
positive for the corona virus
This prompted a wave of self-disclosures from
executives at other telecom companies who
recently had come in contact with Mr. Jansen
26. India
The central government in an advisory on
Wednesday said that those affected by corona
virus or under quarantine, should not be
identified.
“Never spread names or identity of those
affected or under quarantine or their locality on
the social media. Avoid spreading fear and
panic. ...
“Do not label any community or area for
spread of COVID-19. Avoid addressing those
under treatment as COVID victims. Address
them as ‘people recovering from COVID’,” the
27. Philippines
MANILA
The government assured on Monday there will be no public
disclosure of corona virus disease 2019 (COVID-19) patients’
personal information even as it enforces a mandatory
declaration of personal data to augment its contact tracing
efforts.
The Inter-Agency Task Force (IATF) on Emerging and
Infectious Disease earlier announced the mandatory
disclosure of personal information relating to COVID-19
patients in a bid to ramp up contact tracing efforts.
29. COVID 19 Patient Disclosures
form
This patient disclosure form seeks information from you that we
must consider before making treatment decisions in the
circumstance of the COVID‐19 virus.
A weak or compromised immune system (including, but not limited
to, conditions like diabetes, asthma, COPD, cancer treatment,
radiation, chemotherapy, and any prior or current disease or
medical condition), can put you at greater risk for contracting
COVID‐19.
Please disclose to us any condition that compromises your immune
system and understand that we may ask you to consider
rescheduling treatment after discussing any such conditions with us.
It is also important that you disclose to this office any indication of
having been exposed to COVID‐19, or whether you, have
experienced any signs or symptoms associated with the COVID‐19
virus.
30. Disclosure form Contd
Yes No
Do you have a fever or above normal temperature? ☐ ☐
Have you experienced shortness of breath or had trouble breathing? ☐ ☐
Do you have a dry cough? ☐ ☐
Do you have a runny nose? ☐ ☐
Have you recently lost or had a reduction in your sense of smell? ☐ ☐
Do you have a sore throat? ☐ ☐
Have you been in contact with someone who has tested positive for COVID‐19? ☐ ☐
Have you tested positive for COVID‐19? ☐ ☐
Have you been tested for COVID‐19 and are awaiting results? ☐ ☐
Have you travelled outside the United States by air or cruise ship in the past 14 days?
☐ ☐
Have you travelled within the United States by air, bus or train within the past 14 days?
☐ ☐
I fully understand and acknowledge the above information, risks and cautions regarding a compromised
immune system and have disclosed to my provider any conditions in my health history which may result in
a compromised immune
system.
By signing this document, I acknowledge that the answers I have provided above are true and accurate.
____________________________________
____________________________________
Signature Date
____________________________________
Witness
31. Nigerian Patients
Not totally honest ‘ Regrettably’: Most are
afraid of poor care by Health workers
Do not volunteer ‘Travel history’
Silent on some of the symptoms like fever and
cough
This exposes many Health workers to the
possibility of being infected
32. Guidelines for Disclosure
There are many guidelines
All countries need to have guidelines tailored
to their needs.
Below is the British Medical Council Guideline:
it is practical
33. COVID-19 pandemic and
Disclosure
How do federal and state laws about patient
confidentiality apply during infectious disease
outbreaks or other emergencies?
34. 1. ALLOWABLE
Public Health Authorities
Federal and state laws allow disclosure of health
information without the patient’s authorization to
public health authorities
Others responsible for ensuring public health and
safety (e.g., CDC, NCDC, State Epidemiologist,
Hospital CMAC ETC).
To Persons at Risk: Federal and state laws permit
disclosure of a patient’s health information to a
person at risk of contracting or spreading a
disease as necessary to prevent or control the
spread of the disease
35. 2. ALLOWABLE WITH
CAUTION
• Family and Friends
To Family, Friends and Others involved in
Patient’s Care:
Additionally, BMC may share information about
a patient as necessary to identify, locate, and
notify ...anyone else responsible for the
patient’s care, of the patient’s location, general
condition, or death.
May include ...the police, the press, or the
public at large.
36. Contd
When the Patient is Awake, Unconscious or
Incapacitated:
When possible, obtain verbal permission from
the patient to disclose his or her health
information
Prevent a Serious and Imminent Threat
Law Enforcement, Family, Friends and
Caregivers: BMC may disclose a pt’s health
information to anyone who is in a position to
prevent or lessen the serious and imminent
threat
37. 3. Stop and contact legal and
compliance
Media and Others Not Involved in Patient Care
No hospital staff person is authorized to speak
to the media without appropriate authorization
REMEMBER
Safeguarding Information
Limit the disclosure to the minimum necessary
38. The Way Forward
Disclosure should be regulated
More Public Enlightenment
Effective Contact Tracing
Quarantine and Self Isolation
Aggressive Testing of Contacts
Standard Safety procedures for Health
Workers Provide Protective materials needed
Incentives for Healthworkers
39. Revised Hippocratic Oath
A newly revised version of the Declaration of Geneva was adopted
by the World Medical Association (WMA) General Assembly on
October 14, 2017, in Chicago
The important addition was:
I will attend to my own health, well-being,
and abilities in order to provide care of the
highest standard.
Hence, we owe ourselves a duty to take care
of our health.
COVID-19 Novel Corona Virus and Disclosure of Patient Information Resource “BULLETIN: HIPAA Privacy and Novel Coronavirus” (February 3, 2020). https://www.hhs.gov/sites/default/files/february-2020-hipaa-and-novel-coronavirus.pdf
COVID-19 Novel Corona Virus and Disclosure of Patient Information Resource: “BULLETIN: HIPAA Privacy and Novel Coronavirus” (February 3, 2020). https://www.hhs.gov/sites/default/files/february-2020-hipaa-and-novel-coronavirus.pdf