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Web 2.0 for QUEST group, June 2009
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Web 2.0 for QUEST group, June 2009



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  • What is Web 2.0? Web as platform Rich user experience (AJAX) Easy, low (mental) cost Data portability Enables participation, harnesses collective intelligence
  • Blogs Wikis Social networks Microblogs Rss and podcasting Media sharing
  • Most obvious example how much participation can impact the world Wikipedia more heavily used for health information than MedlinePlus, 50% of docs use it Only 10% or fewer docs add/edit/create
  • Major participatory effect for physicians is communication with other physicians – consultations, communication, learning from each other
  • Advertising and brand management Recent exposure for Gonda piano video Also enables communication/feedback with/from patients
  • Education – one-way conversation
  • Customer service
  • Dozens of ways that social media can be used to help manage disease Basic – prompts sent from a twitter account Prompts shown to help manage disease, increase fitness/healthy eating
  • Track: diet Mood Blood sugar Weight Anything else With Twitter, send updates from phone or web, have a record to share with physician
  • Then an entry of 108 goes directly into your SugarStats account at the date and time of the message
  • Share with physician, share with others w/the disease
  • Personal health record system another way to communicate w/doc and manage own care; less dictation, fewer phone calls
  • Diabetes, cancer patients, losing weight, etc Get encouragement from others in network If doctors join, can monitor and encourage, send reminders
  • More traditional social networks Profiles PLUS disease management Drug tracking, symptom tracking Communicating with others, sharing experiences --research shows connect based on each others’ health data, location, more
  • Also clinical trial recruitment
  • Primary way it adds value to communication between patients and providers! Whether instant messaging, contacting physician via Twitter, etc
  • Happy patients lead to better clinical outcomes?
  • Guidelines for Facebook w/patients Guidelines for reimbursement Privacy/HIPAA Security -much will come from personal health records/patient portals -establish guidelines as with email


  • 1. Web 2.0: Principles and Best Practices Melissa Rethlefsen, MLS
  • 2. Web 2.0 means what, exactly?
  • 3. The Tools of 2.0
  • 4. Productivity
  • 5. Participation
  • 6.  
  • 7. An online group practice
  • 8. Between providers & patients
  • 9.  
  • 10.  
  • 11.  
  • 12. Disease Management
  • 13. Diaries
  • 14. +
  • 15.  
  • 16.  
  • 17. Support
  • 18.  
  • 19.  
  • 20.  
  • 21.  
  • 22. Using social media in health care “is about changing the locus of control to the patient” and altering the relationships between care givers and care receivers. In this view, patient portals, EHR platforms, blogs, video chat, and “tweets” won’t merely substitute for many one-on-one encounters with providers, but will also allow for richer engagement and deeper doctor-patient relationships. -Carleen Hawn, Take Two Aspirin And Tweet Me In The Morning: How Twitter, Facebook, And Other Social Media Are Reshaping Health Care. Health Affairs; Mar/Apr2009, Vol. 28 Issue 2, p361-368
  • 23. Creating it Using it Advocating for it
  • 24. Patients want it.
  • 25.  
  • 26. What’s next?
  • 27.  
  • 28. Provider-patient direct contact?
  • 29. Start your research!