So, what is social media? First, social media is a dialogue not a lecture. It allows multiple parties to engage one another in conversation. This extends beyond day to day personal and professional engagement to another level of interaction that may include your personal life as well as your professional life. Because of this, it is often less organized that face to face discussions and guards are often let down. Social media is a tool. It compliments much of what we already do in our relationships. Swapping stories – sharing experiences – all common – used to be only happening in our families or our small communities. We were protected from shame, and no one knew our ailment. Now, we have an electronic community out there which has patients from every walk of life. Some look like you, others don ’t. The point is here you have options to connect to others. We are still protected, but it is as if we don’t need protection as much. Disease are normalized, destigmatized, and openly discussed in safe environments – your own home – or wherever your technology allows you to roam. Take Patients Like Me, a website that connects patients. PatientsLikeMe allows patients who suffer from these life-changing diseases to converse with one another, sharing data on improving their outcomes, empathize and to learn specific techniques or medication other have found helpful. The site was launched in 2005 when two brothers watched their brother diagnosed with ALS need more information and community based services. Healthcare professionals and researchers can access the site, enabling them to find out what treatments its patients have tried and how successful and the outcome of specific treatments. The site has also introduced a number of projects that analyze clinical information given by the patients. Users of the site access the site for free. However the site is a commercial site as it aims to sell its users' data to drug and medical companies. The number of users is increasing. At October 2009, there were 45,000 registered patients on the site.
An e-patient is a patient who has used the internet to be more informed, involved, and engaged with their healthcare. There is an entire movement around e-patients, and much can be found on the e-patient website. A couple of brief points: 1) The Society for Participatory Medicine is a public charity devoted to promoting the concept of participatory medicine by and among patients, caregivers and their medical teams and to promote transparency among patients and their physicians through the exchange of information; As one of the societies first initiatives, they started the e-patients blog, which has stories upon stories of patients and their active involvement within their own healthcare. The underlying theme for much of the epatient effort is the movement of patients from passive recipients to “responsible drivers of their health”. An example of what you might find on the e-patient website can be heard in this brief testimonial :When I arrived at the Mayo Clinic in Rochester, Minnesota a few weeks ago, I was asked: &quot;Who referred you to us?&quot; My answer was not traditional: &quot;Twitter.&quot;
Described as a marathon because it requires time and preparation to accomplish. What about blogs? Who here keeps an online diary or blog? Reads? Many folks keep an online blog and then tweet about what they are writing. A one two combo punch. Blogging can brief or comprehensive. It all depends on your mood, and what you want to tell the world today. Blogs can be academic or not. They can be anything. Take for example Dr. Paul Levy, the president and CEO of Beth Israel Deaconess in Boston. His blog titled, Running a Hospital, gives a day to day blow of whatever is he wants. One of his last post addressed rate setting in Massachusetts. He justifies his decisions, and explains the history that lead to those decisions. There is a level of transparency here that some, namely the Hospital Board , is uncomfortable with.
I will argue today that part of being patient-centered has to do with how well we as providers and practices are up on our patient-centeredness. How willing are we to listen to info a patient read about online? How willing are we to accept conclusions the patient may have drawn from his or her facebook page? How do we even define patient-centered? A survey by the national research corporation indicated 1 in 5 use social media as a source of healthcare info – 94% have used facebook for info. Only 1/3 say they consider a high or very high level of trust in social media. So, let ’s do Social Media 101 and talk about each technologies application to the patient-centered medical home. First up, Facebook. From the Mayo Clinic to McDonalds, everybody has got one. How many of you have a Facebook page? Facebook is a social media outlet whereby individuals can connect freely to others. It is really quite simple to get started. Facebook will prompt you for certain events in your life – when you graduated high school, from where, college, etc. Businesses, universities, cartoon characters all have Facebook pages. Yes, you too can be their friend. You can learn more about people from their Facebook page often more than just talking to someone one on one. This has raised many a question especially when it comes to the relationship between a healthcare provider and his/her patients. There is a wonderful commentary in NEJM on “practicing medicine in the age of Facebook” I would highly encourage each of you to read this brief article on the pros and cons of “friending “ your patients. We have all heard the stories of the resident who was seen on his/her Facebook things engaging in questionable behavior and this page is viewed by a patient who complains to the practice manager who tells the preceptor who addresses this with the resident. It should be noted that Facebook is a reality we must face. Consider that 44.5% of medical students have a facebook page, and this is as of 2008 so the number is likely significantly higher today. And yes, unprofessional info does appear on the web, but very few policies are in place in medical schools when this happens. Most just caution students of their use of such technology. Does AF Williams, Rose or Swedish have a Facebook page? Many clinics do to keep their patients informed when weather turns sour or clinic hours change. What happens when you want to let everyone know that the latest special vaccination has arrived? You see where I am going with this. Just as there are reasons not to facebook, there are reasons to facebook.
Moving on to Twitter. Twitter is 140 characters. 140 characters. Think what you can say in 140 characters. You either say not much or you learn how to say it really, really efficiently. You follow people and they follow you. You build a network. You get connected to complete strangers who get whatever you get. Being the healthcare policy guy, I have found a tremendous group interested in talking about healthcare policy. To follow everyone who is on twitter talking about health care reform, I would put in a hashtag (really just a pound sign in front of my keyword) and hcr for health care reform. I can follow anyone and everyone who talks about healthcare, share resources, articles, and links. Twitter is a way for anyone and everyone to say whatever is on their mind, whenever it is on their mind. Literally anything and everything, whenever. 50 million tweets are sent a day. Impressive, huh? Tweets in 2009 grew some 1,400%. Traffic to Twitter.com grew around 1,100%, and total sent Tweets went up 1,400%. You can get info out fast, share your latest article, connect to others who have similar interests, and follow trends on specific topics. As a matter of fact, when I was preparing for this talk, I “tweeted” to find resources, articles. When I tweeted the title of my talk, what it was for, and when it was, I was asked if it would be streaming live, if the slides would be available, and how they could learn more about our Department. There are excellent tools out there to manage your twitter account. These applications can go on your iphone, computer, basically anything that does not have a heart beat. Tweetdeck, as you can see, allows you to keep a running stream of who you are following, you mentions you in a “retweet” who sends you a direct message, a personal message to only you that no one else can see, and any specific trends you are following. Now, talk about PCMH. Practice communication could be huge on Twitter! Similar to Facebook, Twitter could report upcoming events, highlight new providers, openings, or discuss general healthy tips or articles on health. Individual providers could build a following on an area of health they are interested. Take Dr. Kevin Po for example. With 21k individuals following him and his blog, Dr. Po gets a ton of medical information out there to the healthcare community. Any provider could do this on their specific medical interests. Patients have tracked down providers based on their twitter feed. This is twitter. This is social medical and networking. If twitter is a sprint, blogging is a marathon.
Virginia Telehealth Network Summit
<ul><li>Why add *another* task to a busy day? </li></ul>Social Media and Health Care
<ul><li>E-patient: not an abbreviation for “electronic patient”. </li></ul><ul><li>Equipped, enabled, empowered, engaged, equals, emancipated and experts. </li></ul><ul><li>E-patients use internet resources and social media to educate themselves and others and to enhance health care for patients (and for providers). </li></ul>Why this matters
<ul><li>The goals of empowering patients, developing collaborative relationships between pts and HCPs align with the concept of the patient-centered medical home (PCMH): </li></ul><ul><li>“ Enhanced access to care is available through systems such as open scheduling, expanded hours and new options for communication between patients, their personal physician, and practice staff . ” </li></ul>Why this matters
<ul><li>Increasingly, patients and the public will look for physicians who are willing and able to interact with them via social media. </li></ul><ul><li>Even the Healthy People 2020 goals reflect this shift, and recognize the value of social media. </li></ul><ul><li>Pew Internet project shows some vulnerable communities with higher-than-average use of Twitter. </li></ul>Why this matters
<ul><li>According to National Research Corp’s Ticker survey reported in Feb 2011: </li></ul><ul><ul><li>1/5 Americans use social network sites to find health information—94% Facebook, 32% YouTube, 18% Twitter. </li></ul></ul><ul><ul><li>1/4 reported this info was “likely” or “very likely” to impact health care decisions. </li></ul></ul><ul><ul><li>1/3 reported “high” or “very high” level of trust; only 7.5% reported “very low” level of trust. </li></ul></ul>Why this matters
<ul><li>Health 1.0: Health care providers (HCPs) control medical information, provide information to pts, and direct treatment. </li></ul><ul><li>Health 2.0: Pts become increasingly involved in care, asking questions of HCPs, collaborating in treatment. </li></ul>Why this matters
<ul><li>“ A concise definition of Health 2.0 is the use of a specific set of Web tools (blogs, Podcasts, tagging, search, wikis, etc) by actors in health care including doctors, patients, and scientists, using principles of open source and generation of content by users, and the power of networks in order to personalize health care, collaborate, and promote health education. ” </li></ul>Why this matters
<ul><li>In other words, in health 2.0 communication crosses in all directions between patients, patient advocates, HCPs, etc. </li></ul><ul><li>This communication includes user generated content in which individuals produce the material being distributed. </li></ul><ul><li>The goal is to enhance individuals’ health and health care. </li></ul><ul><li>Participatory health care. </li></ul>Why this matters
<ul><li>Blogs </li></ul><ul><li>The most traditional of social media tools. </li></ul><ul><li>Online publications/diaries. </li></ul><ul><li>Content varies on the author ’ s interests. </li></ul><ul><li>Can include embedded pictures, videos, etc. </li></ul><ul><li>Dialogue/discussion via comments. </li></ul>Social Media Tools
<ul><li>Kevin MD </li></ul><ul><li>33 Charts </li></ul><ul><li>Seattle Mama Doc </li></ul><ul><li>Social Medial Healthcare: Community of Practice </li></ul>Social Media Tools
<ul><li>Facebook </li></ul><ul><li>Allows for private messages, public comments and discussion, and information sharing among a network of interested people. </li></ul><ul><li>For patient interaction, it is likely safest to have a professional Facebook page separate from your private Facebook page. </li></ul><ul><li>For professional pages, determine how much interaction you will allow. </li></ul>Social Media Tools
<ul><li>Facebook </li></ul><ul><li>I recommend using tight privacy settings on private Facebook pages. </li></ul><ul><li>There is debate about whether to “ friend ” patients on Facebook. I choose not to. </li></ul>Social Media Tools
<ul><li>Dominican Aid Society of Virginia group page </li></ul><ul><li>Una Vida Sana group page </li></ul>Social Media Tools
<ul><li>Twitter </li></ul><ul><li>Characterized by very short messages (140 characters). </li></ul><ul><li>Posts (tweets) are distributed among your “followers”. </li></ul><ul><li>Tweets are public unless you choose to protect them, in which case you must accept followers requests. </li></ul>Social Media Tools
<ul><li>Some jargon: </li></ul><ul><ul><li>All Twitter usernames (handles) start with the “ @ ” </li></ul></ul><ul><ul><li>Retweet (RT): one user re-posts another’s post. This allows sharing of information and can help start conversations. </li></ul></ul><ul><ul><li>Replies start with another’s user name (@); this notifies the other user you are speaking to them. </li></ul></ul><ul><ul><li>Direct message (DM): only viewed by recipient, not the public. </li></ul></ul>Social Media Tools
<ul><li>Jargon (cont) </li></ul><ul><ul><li>Hashtag (#): topics of interest can be tagged with a #. For example, any post focused on health care reform can be tagged “#HCR”. This allows you to search for any recent posts that incorporate that tag. </li></ul></ul><ul><ul><li>“ What the Hashtag” is a website that defines as many #s as possible. </li></ul></ul><ul><ul><li>#s allow for Twitter-based conversations (#hcsm, #MDChat). </li></ul></ul>Social Media Tools
<ul><li>My Twitter feed </li></ul><ul><li>My Twitter profile </li></ul>Social Media Tools
<ul><li>Best practices for Twitter: </li></ul><ul><ul><li>Find resources worth following. </li></ul></ul><ul><ul><li>Interact with people. </li></ul></ul><ul><ul><li>Be a resource to the community. </li></ul></ul><ul><ul><li>Develop lists to filter out the stream. </li></ul></ul><ul><ul><li>Use tools (TweetDeck) to simplify use. </li></ul></ul>Social Media tools
<ul><li>Privacy (yours and the patient’s). Remember what is visible by the public. </li></ul><ul><li>Cannot practice medicine in this setting. </li></ul><ul><li>Not reimbursed. </li></ul><ul><li>No standards of use or official “ best practices ” . The AMA guidelines are not much help, and do not encourage use. </li></ul><ul><li>Role is still developing: wider use within patient communities, variable interest for provider/patient communication. </li></ul>Cautions
<ul><li>Envision how social media could change health care delivery: </li></ul><ul><ul><li>Broadcast important public health information. </li></ul></ul><ul><ul><li>Answer general medical questions and be a resource to the community for general topics. </li></ul></ul><ul><ul><li>Advocacy. </li></ul></ul>Potential
<ul><li>Envision how social media could change health care delivery: </li></ul><ul><ul><li>Send disease-specific reminders (Have you checked your blood sugar? Have you taken your medicine?); patients can choose to receive Tweets or Facebook updates as text messages. </li></ul></ul><ul><ul><li>Some evidence that text message reminders can improve adherence and patient satisfaction. </li></ul></ul>Potential
<ul><li>Envision how social media could change health care delivery: </li></ul><ul><ul><li>Use Facebook or Twitter DMs to ask patients to contact the office. </li></ul></ul><ul><ul><li>If/when secure portals enter wider use, can refer patients directly into care via E-visits or other portal-based services. </li></ul></ul><ul><ul><li>Connecting social media into personal communication (SMS/text messages and portals) will maximize potential. </li></ul></ul>Potential
<ul><li>Help patients find necessary resources, including free clinic services, health fairs, and dental screenings. </li></ul><ul><li>Can have a personal Twitter account and a professional/practice Twitter account, and use them for different purposes. </li></ul>Potential
<ul><li>Personal and professional benefits: I submitted two abstracts for talks (one PCMH, one STFM) with someone from Colorado I have had not actually met at that time; both were accepted. </li></ul><ul><li>I collaborate on a blog with 2 people I have not met in person; the blog has 6,507 page views since we started last August. </li></ul><ul><li>I have made connections across the US and met Twitter acquaintances in real life. </li></ul><ul><li>I learn something new and interesting most every day. </li></ul>Potential
<ul><li>Practice income: One orthopedist noted 14 patients in one month who found him via his web presence. This could easily represent $2,100 in charges. </li></ul><ul><li>This could help convince health systems of the value of social media engagement. </li></ul>Potential
<ul><li>I think that social media communication tools will continue to impact how doctors and patients communicate with each other. We are early in the process of determining the best use, but I think health care providers need to be engaged in the process because social media will become increasingly important. </li></ul>Conclusion
<ul><li>Thank you for your attention. </li></ul><ul><li>[email_address] </li></ul><ul><li>http://socialmedia.mayoclinic.org/ </li></ul>