Successfully reported this slideshow.
We use your LinkedIn profile and activity data to personalize ads and to show you more relevant ads. You can change your ad preferences anytime.
Patientslikeme:<br />An Analysis of Medicine 2.0<br />TashiaSutantio and Jessica Wallner<br />
PLM Transparency<br />“No surprises. Our members shouldn't be surprised by anything we do. Our goal is to disclose what we...
No Ads
Where does info go?</li></li></ul><li>User Openness<br />“We believe privacy has hindered the effective development of new...
Privacy - Anonymity/Pseudonymity
User Control</li></li></ul><li>Knowledge Sharing<br />“We believe that sharing health information is good. Why?  Because s...
What do patients get in return?
Sharing information
Where is the medical professional knowledge?</li></li></ul><li>Medicine 2.0 in context<br />Professional Medical Informati...
WebMD
ShareCare
Mayoclinic</li></li></ul><li>Medicine 2.0 in context<br />Medical Research Sites<br /><ul><li>Organized Wisdom
Patientslikeme</li></ul>Health Management Sites<br /><ul><li>Google Health
Microsoft Health Vault
SugarStats</li></li></ul><li>Medicine 2.0 in context<br />Virtual Social Networks/Support Groups<br /><ul><li>HealthChapter
MDJunction
Upcoming SlideShare
Loading in …5
×

Patientslikeme Presentation

2,979 views

Published on

  • Login to see the comments

Patientslikeme Presentation

  1. 1. Patientslikeme:<br />An Analysis of Medicine 2.0<br />TashiaSutantio and Jessica Wallner<br />
  2. 2. PLM Transparency<br />“No surprises. Our members shouldn't be surprised by anything we do. Our goal is to disclose what we do with members' information, how we make money, as well as all of our partnerships on the site.”<br />Structure of the Company<br /><ul><li>Finding Company info
  3. 3. No Ads
  4. 4. Where does info go?</li></li></ul><li>User Openness<br />“We believe privacy has hindered the effective development of new treatments and shared understanding of how to manage disease.”<br />Philosophy of Openness<br /><ul><li>Sharing Information
  5. 5. Privacy - Anonymity/Pseudonymity
  6. 6. User Control</li></li></ul><li>Knowledge Sharing<br />“We believe that sharing health information is good. Why?  Because sharing and openness will drive massive improvement in healthcare.”<br />Data to Information to Knowledge<br /><ul><li>Patients provide data to research companies
  7. 7. What do patients get in return?
  8. 8. Sharing information
  9. 9. Where is the medical professional knowledge?</li></li></ul><li>Medicine 2.0 in context<br />Professional Medical Information Sites<br /><ul><li>Medicinenet
  10. 10. WebMD
  11. 11. ShareCare
  12. 12. Mayoclinic</li></li></ul><li>Medicine 2.0 in context<br />Medical Research Sites<br /><ul><li>Organized Wisdom
  13. 13. Patientslikeme</li></ul>Health Management Sites<br /><ul><li>Google Health
  14. 14. Microsoft Health Vault
  15. 15. SugarStats</li></li></ul><li>Medicine 2.0 in context<br />Virtual Social Networks/Support Groups<br /><ul><li>HealthChapter
  16. 16. MDJunction
  17. 17. Daily Strength</li></li></ul><li>Feature Modifications<br />PatientsLikeMe<br />PROBLEMS:<br /><ul><li>Conflicts of interest
  18. 18. Profit vs. Openness, Transparency, and Knowledge Sharing</li></ul>PROPOSAL:<br /><ul><li>Propose split between PatientsLikeMe as a non-profit organization focused on knowledge sharing and for-profit data sharing company
  19. 19. Close PatientsLikeMe to members only</li></li></ul><li>Business Model<br />
  20. 20. Improved Transparency<br /><ul><li>OPTION to give data to for-profit company– when creating a profile, you are presented with an open disclosure and asked if you want to share your data
  21. 21. Add prominent tab for About Us - includes affiliations and interests of the PLM Organization and For-profit Company</li></li></ul><li>Example of Transparency<br />
  22. 22. ImprovedOpenness<br /><ul><li>Protect Information - PLM is closed to all non-members
  23. 23. User Autonomy - can add treatments, symptoms, forums, etc.
  24. 24. Condition Resource Pages – All users can add condition pages and paid members can add links to resources about the condition, including Forum page and free members can benefit from collective knowledge.</li></li></ul><li>Example of Openness<br />
  25. 25. ImprovedKnowledge Sharing<br /><ul><li>Share Data – patient to Patient sharing of data as well as the opportunity to share data for medical research
  26. 26. More Communication Tools - Patient to Patient personal information and knowledge shared via personal messaging, chat, forums, etc.
  27. 27. Q&A Page – A few chosen medical professionals, with available credentials, each have a blog where users ask questions</li></li></ul><li>Example of Knowledge Sharing<br />
  28. 28. To Conclude…<br />Our own transparency:<br /><ul><li>Preliminary proposal
  29. 29. Our aim is to focus on values in modification, but without detailed business information we cannot say if it would be profitable
  30. 30. Lack of statistical, empirical data</li>

×