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Accessibility and Affordability
of medicines in Greece
Κathi Apostolidis
Breast Cancer & Patient
Rights Advocate
Advisor DE.DI.DI.KA.
TACD-IP Meeting on Access to
Affordable Medicines in Greece
Who is The Victim of the Game
Why expensive medicines
became a rare commodity?
Is the medicines price to
blame?
Are prescribing doctors the
culprits?
Why the state does not pay
suppliers?
Do pharmacists profit too
much?
Greek Constitution
Art. 5 para. 5
..All have RIGHT to protection of
their health...
Art. 21 para. 3
..The state takes care of the
health of the citizens and
takes special measures for
the protection of youth, old
age, disability and health care of
the poor...
Accessibility & Affordability to
Medicines threatened
Unemployment
Low Income
Price of Medicines
Low financing/high
debts of EOPYY
PATIENTS REQUEST An Efficient &
Sustainable Public Health Care System
Health of people is wealth of the state
6
• Zero copayment for serious chronic & rare disease
• Availability of specialty/expensive medicines through
all hospitals
• Low copayment for complementary indispensable
preparations for serious chronic & rare disease
• Transparency of medicines supply and pricing
• Patient participation in EOF medicines regulator as in
EMA
• Delink employment to social insurance coverage
Thank you for your attention
Kathi Apostolidis
Breast Cancer & Patient Rights Advocate
PAIR-Patient Advocates in Research-Society for Participatory Medicine
@kgapo, #opnhealth
thwww.facebook.com/kathiapostolidis
www.facebook.com/#opnhealth
http://www.linkedin.com/in/kathiapostolidis
CREDITS: Art Work from Regina Holliday's Medical Advocacy Blog
A place where art, medicine, social media and pop-culture collide and create a
patient voice in health information technology.

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Accessibility and affordability of medicines in Greece

  • 1. Accessibility and Affordability of medicines in Greece Κathi Apostolidis Breast Cancer & Patient Rights Advocate Advisor DE.DI.DI.KA. TACD-IP Meeting on Access to Affordable Medicines in Greece
  • 2. Who is The Victim of the Game Why expensive medicines became a rare commodity? Is the medicines price to blame? Are prescribing doctors the culprits? Why the state does not pay suppliers? Do pharmacists profit too much?
  • 3. Greek Constitution Art. 5 para. 5 ..All have RIGHT to protection of their health... Art. 21 para. 3 ..The state takes care of the health of the citizens and takes special measures for the protection of youth, old age, disability and health care of the poor...
  • 4. Accessibility & Affordability to Medicines threatened Unemployment Low Income Price of Medicines Low financing/high debts of EOPYY
  • 5. PATIENTS REQUEST An Efficient & Sustainable Public Health Care System
  • 6. Health of people is wealth of the state 6 • Zero copayment for serious chronic & rare disease • Availability of specialty/expensive medicines through all hospitals • Low copayment for complementary indispensable preparations for serious chronic & rare disease • Transparency of medicines supply and pricing • Patient participation in EOF medicines regulator as in EMA • Delink employment to social insurance coverage
  • 7. Thank you for your attention Kathi Apostolidis Breast Cancer & Patient Rights Advocate PAIR-Patient Advocates in Research-Society for Participatory Medicine @kgapo, #opnhealth thwww.facebook.com/kathiapostolidis www.facebook.com/#opnhealth http://www.linkedin.com/in/kathiapostolidis CREDITS: Art Work from Regina Holliday's Medical Advocacy Blog A place where art, medicine, social media and pop-culture collide and create a patient voice in health information technology.

Editor's Notes

  1. Αξιότιμοι κυρίες και κύριοι, Ευχαριστώ το ΚΕΕΛΠΝΟ που σήμερα μας έδωσε την ευκαιρία να ακουσθεί η άποψη των ασθενών και των νικητών του καρκίνου, μια και σε λίγες γιορτάζουμε την Παγκόσμια Ημέρα Νικητών του Καρκίνου, για το εξαιρετικής σημασίας για μας Εθνικό Αρχείο Νεοπλασιών.
  2. Οταν στις αρχές του 90 συνάντησα στο διαδίκτυο για πρώτη φορά τον όρο cancer registry δυσκολεύθηκα να καταλάβω τι ακριβώς σήμαινε, ποιά ήταν η δραστηριότητα του. Μου είχε φανεί τότε μια απλή διοικητική λειτουργία. Μου πήρε αρκετό χρόνο και διάβασμα για να κατανοήσω τη σημασία των αρχείων νεοπλασιών για την έρευνα, την ανάλυση των αποτελεσμάτων της θεραπείας και κυρίως για το σχεδιασμό προγραμμάτων προσυμπτωματικού ελέγχου. Οι ασθενείς όταν γνωρίσουν ότι ο σχεδιασμός πολιτικών για τον καρκίνο εξαρτάται σε μεγάλο βαθμό από τα δεδομένα που παρέχει το Εθνικό Αρχείο Νεοπλασιών θα επιζητούν την καταγραφή των περιστατικών. Το Εθνικό Αρχείο Νεοπλασιών είναι το μόνο διαθέσιμο μέσο για την παρακολούθηση βασικών στόχων του Εθνικού Σχεδίου Δράσης για τον καρκίνο.
  3. Η παρακολούθηση του κινδύνου εμφάνισης του καρκίνου, της θνησιμότητας και των ποσοστών επιβίωσης απαιτούν πληροφορίες από τον πληθυσμό των ασθενών. Οι πληροφορίες αυτές είναι δημογραφικές που αφορούν τον ασθενή και ιατρικές που αφορούν το νεόπλασμα Για την παρακολούθηση των κινδύνων του καρκίνου, της θνησιμότητας και των ποσοστών επιβίωσης, το Εθνικό Αρχείο Νεοπλασιών πρέπει να συνδέσει μεγάλου όγκου (big data) αξιόπιστα δεδομένα από πολλές πηγές και για μεγάλες χρονικές περιόδους, γεγονός που απαιτεί αναγνωρίσιμα στοιχεία. Τα Αρχεία Καρκίνου διέπονται από αυστηρές διαδικασίες εμπιστευτικότητας.
  4. Στη διεθνή επιστημονική κοινότητα η συζήτηση σχετικά με την απαίτηση ή όχι για ενήμερη συναίνεση του ασθενούς για τη συλλογή δεδομένων για το αρχείο νεοπλασιών είναι συνεχής, καθώς και για την έκταση, την ποιότητα, την πληρότητα και την επικαιρότητα των συλλεγόμενων δεδομένων. Οι επιστήμονες πιστεύουν ότι η απαίτηση για ενήμερη συναίνεση θα οδηγήσει σε μια μη ακριβώς προσδιοριζόμενη απώλεια πληροφοριών και θα στρεβλώσει τη σύγκριση της συχνότητας εμφάνισης και των ποσοστών επιβίωσης. Η ταχύτητα και η αξιοπιστία συλλογής δεδομένων περιφερειακών μητρώων θεωρούνται βασικοί παράγοντες επιτυχίας για πλήρη εθνικά στατιστικά στοιχεία.
  5. Μπορεί μόνο του το Εθνικό Αρχείο Νεοπλασιών να είναι αποτελεσματικό στη μάχη κατά του καρκίνου; Ο Καθ. Sir Mike Richards, σε παρουσίαση του στο πλαίσιο του ΕPAAC Forum στη Ρώμη μας τόνισε ότι η μάχη κατά του καρκίνου απαιτεί ανάπτυξη συστημάτων όπως το ΝCIN-Νational Cancer Intelligence Network και καθοδήγηση από ένα κέντρο. Ο Καθ. Richards αναφέρθηκε στη ανάγκη δημιουργίας της θέσης του Τσάρου του Καρκίνου στο Αγγλικό NHS και στους πυλώνες στους οποίους στηρίζεται το NCIN