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‘POSITIVE PREVENTION’
by and for
people living with HIV
Philippa Lawson, Futures Group International
plawson@futuresgroup.com
Positive Prevention
PLHIV ask –
What does that mean?
Develop PLHIV Own Definition
• Why should you/I care about positive
prevention?
• What is positive prevention to you?
• What is the difference btw prevention and
positive prevention?
• How does it work in your life?
488+ in-person consultations,
+ 390 e-consultations,
+ 13 working group,
estimated 300 Living Summit
Define & Own by PLHIV:
Deliverables for Living Summit
• Draft PLHIV and Positive Prevention
– Background, policy & advocacy document
• Draft Call to Action
– 2 pager advocacy brief on practical steps for
global, regional, national and local level
• Draft Positive Prevention in Action
– Case Studies of PLHIV practicing PP
What we know:
Prevention for PLHIV To Date
• Most effective is comprehensive approach:
prevention, treatment, care and support
• PLHIV always been at forefront of
prevention programs, both + and - people
• Prevention for PLHIV practiced in
countries since the 1980s
• “Positive prevention” name began in late
1990s, early 2000s
What PLHIV know
People who know their + status
were not involved with
decisions to define positive prevention
and related to policy and
programmatic design,
implementation, M & E, funding and
research
What we know:
PLHIV Not Involved
• An overemphasis on HIV testing rather
than on the needs of people who already
know their status, and
• A focus on preventing HIV transmission
rather than on preventive health services
for people living with HIV.
What we know:
Prevention Works
• PPTCT (PMTCT)
• Male and female condoms
• Harm reduction
– medication assisted therapy
• ARV treatment prevents 2 million orphans
• Must link to treatment, care & support
• Preventing tuberculosis is key
• Washing Hands!
What we know:
“Prevention for PLHIV”
• Majority who have HIV do not know their status
• Majority of transmission is by those do not know
• Emphasis on HIV testing
• Emphasis on PPTCT & sexual transmission; not
on preventive health services for PLHIV
• Criminalization of HIV exposure & transmission
• Little attention to alcohol and drug use
• Food security, education, income impact power
and behavior of PLHIV
• Empowered PLHIV provided with support,
information & tools do protect themselves & others
What we do not know
• To what extent does being on antiretroviral therapy
protect against HIV transmission?
– What about non-progressors, no viral load & no ARVs?
• What are the real risks to an HIV-positive person of
being infected with another strain of the virus?
• What role will new prevention technologies play in
promoting the health of people living with HIV?
We agree:
Mexico PLHIV Definition
• Shared responsibility
• #1 priority - maintain & improve our own
health
– Preventing new infections or illnesses in our self
– Taking care of self, eating well, exercise, dental…
• PLHIV are best providers for PP
• Others can provide services, support, info
PRIORITY FOR PLHIV
SHARED RESPONSIBILITY!!
Positive Prevention
Key Messages
1. A human rights approach combating stigma and
discrimination is essential to the success
2. Requires addressing social vulnerabilities
– poverty, food security, gender-based violence,
xenophobia & homophobia
3. Centered on promoting health “atencion integral”
4. Will also reduce HIV transmission, yet is not
exclusively about preventing HIV
5. Linked with access to treatment, care & support
6. Everyone has a role to play
What we don’t agree
• The name – “Positive Prevention” (PP) – is it
offensive?
• Is Positive Prevention is only by and for PLHIV?
• Positive prevention is different than prevention
so is our definition only for people who know
their HIV positive status?
• How can people who know their positive status
get more involved and define the political
agenda for positive prevention?
• HIV transmission: Should it be included? If so
how much to focus?
SHUKRAN MERCI СПАСИБО
ASANTI GRACIAS THANK YOU!!
• Robert
• Tita
• Evan
• Yolanda
• Beverly
• Kate
• Rodrigo
• Anandi
• Claudio
• Jennifer
• Rita
• Beri
• Dorothy
• Elizabeth
• Terry
• Olive
• Ugo, Billy, Karen…USAID
• USAID| Health Policy Initiative
• Ken, Cynthia… Futures Group
• GNP+
• ICW
• And many others

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‘Positive prevention’ by and for people living with hiv

  • 1. ‘POSITIVE PREVENTION’ by and for people living with HIV Philippa Lawson, Futures Group International plawson@futuresgroup.com
  • 2. Positive Prevention PLHIV ask – What does that mean?
  • 3. Develop PLHIV Own Definition • Why should you/I care about positive prevention? • What is positive prevention to you? • What is the difference btw prevention and positive prevention? • How does it work in your life? 488+ in-person consultations, + 390 e-consultations, + 13 working group, estimated 300 Living Summit
  • 4. Define & Own by PLHIV: Deliverables for Living Summit • Draft PLHIV and Positive Prevention – Background, policy & advocacy document • Draft Call to Action – 2 pager advocacy brief on practical steps for global, regional, national and local level • Draft Positive Prevention in Action – Case Studies of PLHIV practicing PP
  • 5. What we know: Prevention for PLHIV To Date • Most effective is comprehensive approach: prevention, treatment, care and support • PLHIV always been at forefront of prevention programs, both + and - people • Prevention for PLHIV practiced in countries since the 1980s • “Positive prevention” name began in late 1990s, early 2000s
  • 6. What PLHIV know People who know their + status were not involved with decisions to define positive prevention and related to policy and programmatic design, implementation, M & E, funding and research
  • 7. What we know: PLHIV Not Involved • An overemphasis on HIV testing rather than on the needs of people who already know their status, and • A focus on preventing HIV transmission rather than on preventive health services for people living with HIV.
  • 8. What we know: Prevention Works • PPTCT (PMTCT) • Male and female condoms • Harm reduction – medication assisted therapy • ARV treatment prevents 2 million orphans • Must link to treatment, care & support • Preventing tuberculosis is key • Washing Hands!
  • 9. What we know: “Prevention for PLHIV” • Majority who have HIV do not know their status • Majority of transmission is by those do not know • Emphasis on HIV testing • Emphasis on PPTCT & sexual transmission; not on preventive health services for PLHIV • Criminalization of HIV exposure & transmission • Little attention to alcohol and drug use • Food security, education, income impact power and behavior of PLHIV • Empowered PLHIV provided with support, information & tools do protect themselves & others
  • 10. What we do not know • To what extent does being on antiretroviral therapy protect against HIV transmission? – What about non-progressors, no viral load & no ARVs? • What are the real risks to an HIV-positive person of being infected with another strain of the virus? • What role will new prevention technologies play in promoting the health of people living with HIV?
  • 11. We agree: Mexico PLHIV Definition • Shared responsibility • #1 priority - maintain & improve our own health – Preventing new infections or illnesses in our self – Taking care of self, eating well, exercise, dental… • PLHIV are best providers for PP • Others can provide services, support, info
  • 12. PRIORITY FOR PLHIV SHARED RESPONSIBILITY!!
  • 13. Positive Prevention Key Messages 1. A human rights approach combating stigma and discrimination is essential to the success 2. Requires addressing social vulnerabilities – poverty, food security, gender-based violence, xenophobia & homophobia 3. Centered on promoting health “atencion integral” 4. Will also reduce HIV transmission, yet is not exclusively about preventing HIV 5. Linked with access to treatment, care & support 6. Everyone has a role to play
  • 14. What we don’t agree • The name – “Positive Prevention” (PP) – is it offensive? • Is Positive Prevention is only by and for PLHIV? • Positive prevention is different than prevention so is our definition only for people who know their HIV positive status? • How can people who know their positive status get more involved and define the political agenda for positive prevention? • HIV transmission: Should it be included? If so how much to focus?
  • 15. SHUKRAN MERCI СПАСИБО ASANTI GRACIAS THANK YOU!! • Robert • Tita • Evan • Yolanda • Beverly • Kate • Rodrigo • Anandi • Claudio • Jennifer • Rita • Beri • Dorothy • Elizabeth • Terry • Olive • Ugo, Billy, Karen…USAID • USAID| Health Policy Initiative • Ken, Cynthia… Futures Group • GNP+ • ICW • And many others