Social Media, Medicine and Health Literacy: Chronic Disease Prevention


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A presentation made to the International Roundtable on Health Literacy and Chronic Disease Management held in Vancouver, BC from May 1-4th and sponsored by the Peter Wall Centre for Advanced Studies.

Social Media, Medicine and Health Literacy: Chronic Disease Prevention

  1. 1. Social Media for Social Learning onHealth and Medicine:eHealth Literacy and Navigatingthe Web for WellbeingCameron D. Norman PhDPrincipal, CENSE Research + DesignAdjunct Professor, Dalla Lana School of Public Health, University of Toronto@cdnorman  PWIAS International Roundtable on Health Literacy: Vancouver, BC May 2013
  2. 2. Any electronic, networked information resource thatderives its principal value from user contributions &engagement
  3. 3. See: Logan, R.K. (2000). The sixth language: learninga living in the Internet age. Toronto, ON: Stoddart.
  4. 4. eHealth literacy is defined as:“the ability to seek, find, understand, andAppraise health information fromelectronic sources and apply theknowledge gained to addressingor solving a health problem.”-- Norman, CD & Skinner, HA (2006). Journal of Medical InternetResearch 8 (2)
  5. 5. HealthLiteracyInformationLiteracyTraditionalLiteracyScienceLiteracyComputerLiteracyMediaLiteracyeHealthLiteracyNorman & Skinner (2006a). JMIR, 8 (2) e9
  6. 6. HealthLiteracyComputerLiteracyTraditionalLiteracyScienceLiteracyInformationLiteracyMediaLiteracyeHealthLiteracy  Traditional (Basic) Literacy& Numeracy  Media Literacy  Information Literacy
  7. 7. HealthLiteracyComputerLiteracyTraditionalLiteracyScienceLiteracyInformationLiteracyMediaLiteracyeHealthLiteracy  Computer Literacy  Science Literacy  Health Literacy
  9. 9. CreatingConversations•  Give and take•  Engagement vs.Broadcast•  Sharing (but notalways equal)•  Different cadence andpace of informationflow•  Process and outcomesare developmental,evolving, complex
  10. 10. How do we create the literacyconversation?
  11. 11. MOBILITY
  12. 12. Taking  informa,on  with  you  
  13. 13. Mental Models•  Systems thinking– Looking at wholes rather than parts•  Network effects– Connection numbers, types, and clusters– Cliques, contagions, and resistance•  Design thinking– Intentionally shaping interventions– Formulating strategy
  14. 14. The whole is greater than the sum of its parts– Systems Thinking maxim
  15. 15. ….Understanding these connections canhelp us better leverage the power ofnetworks for health literacy promotion
  16. 16. Design Thinking
  17. 17. Design: Planning and making things with intention;>>> it is about making intent realWe need to be clear about our intentions and goals
  18. 18. Learning  to  Learn  •  Many  systema,c  barriers  – Most  are  social  /  organiza,onal    – Few  are  technological  •  The  myths  /  reali,es  of  the  digital  divide  •  Framing  new  ways  to  think  and  spaces  to  think  in  may  be  the  key  •  Training  in  technical  issues,  not  systemic  ones  
  19. 19. Mindfulness in practice
  20. 20. Events  PaBerns  Systemic  Structures  
  21. 21. Who Lives, Who Dies? Will Social Media Decide?2012 Hart House Hancock Lecture (March 1st, 2013)Science-ish Blog: Belluz (@juliaoftoronto)
  22. 22. Cameron D. Norman PhDPrincipal, CENSE Research + Design@cdnormanhttp://censemaking.com