This document discusses privacy and control in the context of social media and medicine. It notes that while people want privacy in public spaces, social media often makes information more public by default. This can threaten patients' informational privacy if identifiable details are shared without consent. The document argues that control over personal information and context are important for privacy, but determining rules and maintaining privacy online is challenging given how permanent digital footprints can be. It raises questions around how medical professionals can help patients control their privacy in this new environment.

1. Privacy and Control:
Social Media and Medicine
Dr. Anne Marie Cunningham
@amcunningham

2. Some things are definitely
private
http://www.flickr.com/photos/kaptainkobold/4180172507/

3. A different degree
http://www.flickr.com/photos/48089670@N00/188815585/sizes/z/in/photostream/

4. We want privacy in public too
http://www.flickr.com/photos/ol1/4789711784/ http://www.flickr.com/photos/bernardomayer/5046335091/

5. http://www.flickr.com/photos/bepster/120018144/

6. Not unreasonable social expectation of privacy- civil
inattention
http://www.flickr.com/photos/loungerie/3023085176/

7. Seeking publicity
http://www.flickr.com/photos/libaer2002/4529678428/

8. Sometimes we are more than
happy to be public
http://www.flickr.com/photos/publiccitizen/5161858599/

9. http://www.flickr.com/photos/fallsroad/13240207/

10. http://www.flickr.com/photos/buriednexttoyou/5095255302/

11. “you are
your
information”
http://www.flickr.com/photos/verbeeldingskr
8/4324902924/

12. Digital identity
http://en.wikipedia.org/wiki/File:Inter
net_dog.jpg

13. Is privacy dying?
http://www.flickr.com/photos/alancleaver/4
105726930/

14. “ Default set to increase social
awareness..” Shirky

15. http://www.flickr.com/photos/mushon/2152
70738/

16. Surveillance
http://www.flickr.com/photos/pickard/31220953/

17. Threats to informational privacy
Gathering
Mining
Exchanging
Matching
Merging

18. http://www.flickr.com/photos/21782644@N04/3191535692/

19. Digital footprints
http://www.flickr.com/photos/vinothchandar/4282241642/

20. Something much more permanent
http://www.flickr.com/photos/oberazzi/974939987/

21. Control + Context= PRIVACY danah boyd
http://www.flickr.com/photos/joi/1394510691/

22. Harvard health expert
calls Facebook 'Wild
West‘
http://news.cnet.com/8301-27083_3-20021519-247.html

23. New Frontier

24. What are the rules?
http://www.flickr.com/photos/litherland/2614531003/

25. Confidentiality
“You should not share
identifiable information about
patients where you can be
overheard, for example in a
public place or in an internet chat
forum.”
http://www.gmc-uk.org/guidance/ethical_guidance/confidentiality_12_16_protecting_information.asp

26. Offline
http://www.flickr.com/photos/naiadsspring/143114085/

27. Not so easy online.
http://www.flickr.com/photos/sidelong/305305214/

28. Social media?
“You must not make recordings for
use in publicly accessible media
without written permission,
whether or not you consider the
patient to be identifiable”

29. Privacy is dead. Long live privacy!
How can we help patients control privacy?
http://www.flickr.com/photos/horizon/176177318/