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Voices from the field maeyc (2 hour)
1. VOICES FROM THE FIELD
USING DAP TO FIND NEW
INTERVENTIONS FOR ASD
Amber Fante
Baker College of ClintonTownship
2. Amber Fante
ECE Department Chair at Baker College of
ClintonTownship
Contact me
Facebook me (put Autism recovery in message
line)
Links to video presentation
Presentation Copies
E-mail me at amber.fante@baker.edu (Subject
Line:Autism Recovery)
4. Emotional Journey of Finding
Zeke
1)Gain insights into the emotional journey of
being an autistic recovery family.
2)Share resources from established
organizations.
3)Share my unique approaches for recovery.
5. TACA Video – Hope After
Diagnosis
http://www.tacanow.org/family-resources/autism-hope-after-
diagnosis/
9. Friday, March 21st, 2008
Spring Break
“What did we do today?”
Mike’s Ultimatum
10. Saturday, March 22th My Son’s
Reflection
Stimming
Obsessive Play
No Eye Contact
A Runner
Massive Sensory Issues
Demanded Routine
Echolalia – 95% of his speech
Little Social Referencing
Soulless existence
11. Sunday, March 23th Grief Cycle
Sadness and Sorrow Arrive at 22119 Shady
Lane
"Would you tell me, please, which way I ought to
go from here?“
"That depends a good deal on where you want
to get to."
-Lewis Carrol
12. Defining Autism
Autism definition : A lifelong developmental
disability that affects the way a person
communicates and relates to other people. It's
also known as autistic spectrum disorder, or ASD.
People with autism have difficulties with
everyday social interactions. Autism is often
described as a 'spectrum disorder' because the
condition affects people in many different ways
and to varying degrees.
13. Autism Recovery
Jenny McCarthy on autism recovery:
“There's like two controversies with autism. It's
how they got there and the possibility of
recovery. Recovery, the real thing, it's not a
cure, a really great analogy I give is autism is
like getting hit by a bus.You can't be cured but
you can recover all those lost things that you
once had.”
Interview: Jenny McCarthy 'On the Record' on Her Autism Crusade
Retrieved from: http://www.foxnews.com/story/0,2933,364496,00.html
October 18, 2010
15. Advise for Professionals
Respect the right to grieve
If parents aren’t ready to “deal with it” KEEP
TRYING!
Offer support by helping them connect to
other families: Speech and language delay
groups,Autism Groups, Judson Center,
Parent Mentor Groups, local groups
Offer support options (Recovery and NON-
Recovery)
16. Monday, March 30th “Recovery”?
Attempting “recovery”
is an emotional
journey.
Are their recovery
“failures”?
17. Advise for Professionals
Helping Parents who are considering a Recovery
Remember the outcome is always HOPEFUL!
Recovery requires a STRONGTEAM
COMMITMENT!
Read MotherWarriors
Look at the Reviews on Amazon for Autism
Recovery Books
Check out Generation RescueWebsite
WatchTACA video; Autism Hope After Diagnosis
18. Tuesday, April 1st Dr. Susan
Syed and I Go Back to 1800’s
Bio-Medical Begins
Nothing to Lose
Food heals the body
45% of kids eat no fruit
20% eat one serving of veggies or less
Of this only 8% eat green veggies
Fitness: 90% Rule
Top 5 sources of calories are; whole and chocolate milk,
pizza, soft drinks, low-fat milk and cold cereal.
The analysis of NHANES III data was conducted by Block Dietary Data Systems of Berkeley, Calif., and was
sponsored by Dole Food Company, Inc. NHANES III was a study conducted by the National Center for Health
Statistics (NCHS) at the U.S. Centers for Disease Control and Prevention (CDC) from 1988-1994.The study
included 2400 5 to 10 year-olds. Facts cited above also come from previously published data from the USDA’s
ContinuingSurvey of Food Intake by Individuals (CSFII), 1989-1991 and 1994-1996.
20. Bio-Medical Interventions
Why does this work?
Try The Specific Carbohydrate Diet
Theory: EnvironmentalToxins and Canaries in
the Coal Mine
Non-expert status
Natural homeopathic approach vs. intensive
approaches
21. Advise for Professionals
Finding a Doctor: Keep this in mind
Expense
Open minded humility
Willingness to try new things
Remember when nicotine didn’t cause
cancer?
Longitutidal data doesn’t exsist for most
environmental pollutins.
22. Supplements and Sneaky Chef
Fruit andVeggie Supplement (Veggie Brownies)
Acidophilus (Soy IceTreat)
Fish Oil (Fishy Pancakes)
B-12 Shot
23. Advise for Professionals
It’s mostly FOOD andVITAMINS!
Be Sensitive
Parents feel – sad, angry, guilty, and
protective
Buy a snack (Trader Joe Snicker Doodle's)
Share a recipe
Provide connections to Celiac groups or GFCF
groups
24. Your Turn
What impact do you think diet has on
learning and behavior?
What modern challenges do we face in
preparing healthy meals for our families?
26. Bio-Medical:
Part 2: Homeopathic Detox Process
Process to remove the toxins from the body
Similar to a colon cleanse
Digestion Problems
Regression and Healing
27. Summer-Time Blues
Detox begins in June
4th of July Agony
August Blue BirdWishes
24 hours one word, “Pancakes”
An evening to remember, “Stay with Me.”
Managing my depression
“He’s been stung by bees”
28. Bio-Medical Detox Timeline
April 1st 2008 – Gluten Free
June 1st 2008 –Yeast, Dairy Free,
Supplements
June 15th, 2008 – Detox Begins
2 weeks on 1 week off
1 year of Detox
Summer 2009 – 1 maintenance round detox
Now – Entire family gluten free
29. Behavioral Interventions
meets DAP
Amber’s Do-itYourself Interventions
Based on my knowledge as a professional
Commitment to healing my child
Uniquely designed for Zeke
Screen time Detox
Isolation Detox
Facing Fear (Vygotsky – Scaffolding)
Willing to AcceptChange(Piaget – Stages of
Development)
30. Play, The “endangered” species of
early childhood
“We don't quit playing because we grow old, we
grow old because we quit playing.”
George Bernard Shaw
31. The Predators of Play
“Play now appears to be a minor activity in
most kindergarten classrooms.”
Edward Miller, Director of Alliance for
Childhood
32. Unique Approach #2: Screen time
Detox
Echolalia: Good vs. Bad
Mike’s approach vs. Amber’s approach
Relationship Development Intervention: RDI
Program and Education pg. 17-21
Temple Grandin on stimming
Echolalia provides an auditory map of the
brain.
41. Your Turn:
Does the science make sense?
How will caregivers, teachers, parents
respond?
Does it have the same impact on all kids?
42. Advise for Professionals
Limit use of “static” inputs and rewards in
therapy
Replace repetive routines with dynamic
interaction
Educate parents about the dangers of screen
time
43. Unique Approach #3: Isolation
Detox
Facing Fear
Social responses are
inappropriate.
May 2008 -The Jungle
Playscape: Zeke and
Amber’s Greatest Fear.
44. Advise for Professionals
A will of steel and the velvet touch
Be sure you are “reading” the right emotion in the
child.
Research HALO and Rapid Prompting Method
Soma Mukhopadhyay andTito
Tito has written 2 books about autism
New book: Understanding Autism through Rapid
Prompting Method
45. Halo and Non-Verbal Children
and Self Regulations
http://www.amotherscourage.org/
http://www.youtube.com/watch?v=m1OAqtA
R_-E
http://video.google.com/videoplay?docid=732
2238338056531303#
What self-regulation strategies do you notice
this mom use with her non-verbal son as he
learns his science lesson?
46. Templeton Grandin
Note all of the pieces of adviceTemple makes
to parents:
http://www.youtube.com/watch?v=Ok6jkDiJF
AQ&feature=related
48. Become a Dragonfly
Master of Change & Piaget
The more the schemata are differentiated, the
smaller the gap between the new and the
familiar becomes, so that novelty, instead of
constituting an annoyance avoided by the
subject, becomes a problem and invites
searching.
Jean Piaget
49. Still More to Learn
Providing Social Practice
Friendship at least once a week
Increased Modeling
The Next Level- Hitting theWall
Got rid of soy
Summer time detox
Body’s response to gluten
50. Meet Zeke
Fully recovered
Loves sports, cub scouts, learning Chinese, his
siblings, plays baseball, basket ball, play dates w/
friends.
Hates bullies.
Extremely social
Talks about his emotions freely
Very loving
Wants to be a bus driver, doctor, and a priest
when he grows up.
A FULL CHRISTMAS LIST!
51. Amber’s Journey
Our work as God’s servant’s gets validated -or not – in the
details. People are watching us we stay in our post, alertly
unswervingly, in hard times, tough times, bad times; when
we are beaten up, jailed mobbed; working hard; working late;
working without eating; with pure heart, clear head, steady
hand; in gentleness, holiness, and honest love; when we’re
telling the truth, and when God is showing his power; when
we’re doing our best setting things right; when we’re praised
and when we’re blamed; slandered and honored; true to our
word though distrusted; ignored by the world though
recognized by God; terrifically alive though rumored to be
dead; beaten within an inch of our loves, but refusing to die;
immersed in tears, yet always filled with deep joy; living on
handouts, yet enriching many; having nothing, having it all.
2 Corinthian 6 –The Message
52. Meet Amber
Natural healing for our
whole family
Decreased the static
Faced my fears
I am the Dragonfly
I cook
I run
I write
to help build understanding and compassion for my sisterhood.
A will of steel and the velvet touch
Dragonflies shed their old selves over and over again, from the wingless swimmers their hatched in the water to air breather, crawlers up blades of grass or cattails. There they finally unfurl the wings they have been growing in secret preparation for this day ~ and they take to the air.