1. Anticipatory Care Planning using the electronic Palliative Care Summary (ePCS) August 2010 Dr Peter Kiehlmann GP, Aberdeen & National Clinical Lead Palliative Care eHealth [email_address] http://www.scotland.gov.uk/LivingandDyingWell http://www.ecs.scot.nhs.uk/epcs.html
7. ePCS Overview GP /DN consultation OOH clinician ePCS display ePCS update 1. During consultation 2. Due to prescription 3. Team meeting or other contact Audit trail ECS Store NHS 24 A&E Ambulance TBD… Practice Admin. Staff
18. GP has 20 deaths per list of 2000 patients per year How to deliver End of Life care for all? Death High Low Many years Function Death High Low Months or years Function Organ failure 6 Acute 2 Dementia, frailty and decline 7 Death High Low Weeks, months, years Function 5 Cancer
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Editor's Notes
A journey… This is taken from a folding kayak, starting to paddle the length of Loch Ness Patients have journeys, and at times they feel unprepared, esp. at transitions eg OOH or between community &Hospital
The maze of trees -by Michel Petroni see MAP Foundation Artist who painted his journey with Hodgkin’s disease. I'm confused. I'm lost as to which way to turn - who to turn to. Before, everything seemed so clear. Now, which way to turn, which path to follow? Help me, please somebody show me the way. I had an exhibition on then, called Into the light. It was designed as a celebration of my restoration to health - but in fact it marked my relapse. Was the light, into which I might be going, the great celestial light?
Examples of screenshots This is std EMIS Summary page 84 yr man with extensive med Hx Lung cancer and widespread mets
This is GSFS Screen – no diagnosis chosen yet
The malignancy plus diabetes are added for sending OOH
This screen shows pts wishes
100 years ago people what do we die of It used to be. It used to be…now top 3 causes can be grouped as. These are the choices we have today: organ failure HF, lung failure, COPD, liver failure, kidney failure
These are how people die, nowadays Out of 20 death, 5, 6, or 7. Which group would you? You may wish to be in 2..not realistic option 3 trajectories Cancer has all the good stories But focus
summary
We started our journey on Loch Ness – a wonderful water feature in creation. This is the man-made Falkirk wheel – where in Scotland we have made water go uphill! Let’s continue to strive to offer our patients and their families the best possible care – even when it looks difficult – after all in caring for dying patients, we only get one chance!