Lilly's Patient Centric Engagement Overview

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Tom Krohn, Business Lead for the Lilly Clinical Open Innovation Team, gave this presentation at the Patients at the Center of Clinical Research Workshop on Nov. 14, 2013.

In it, he discusses ways in which patients can become collaborators in drug development

Published in: Health & Medicine, Business
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Lilly's Patient Centric Engagement Overview

  1. 1. Patient-at-the-Center of Clinical Trials Workshop Lilly’s Patient Centric Engagement Overview 14 November 2013 Tom Krohn Company Confidential Copyright © 2013 Eli Lilly and Company
  2. 2. What if patients… • were viewed as collaborators in drug development, not sources of data? • considered of clinical studies as part of their healthcare treatment options? • could bring their own data and in real-time determine if they were a match for study eligibility? • could explore what it was like to be in a study, BEFORE they visited the site? • received study information in a form that was easy to understand – in THEIR context? • were viewed as the real heroes of clinical research?
  3. 3. Today’s environment Patients • Have choice • Are becoming empowered • Are knowledgeable about their disease • Have unmet needs • Often view clinical trials as last resort • Are willing to engage in research, but often do know how Sponsors (Lilly) • Is committed to innovation • Is targeting unmet needs and therapeutic areas with innovation • Thinks, processes and communicates through a scientific perspective • Primarily reaches patients through investigator sites
  4. 4. Lilly’s Patient-Centric Engagement Strategy • • • • • • Voice of patient in development Patient-centric communication Enabling marketplace for trial matching Targeted/Tailored Therapeutics Patient simulation of study for deep understanding Patient Experience – before, during and after study
  5. 5. Patient-Centric Communication & Design Input 1 Study Representation PatientCentric Design Ct.Gov Informed Consent Document Open Study Design 2 Patients Patient Voice Platform
  6. 6. Finding a trial for me OPEN API
  7. 7. Enabling marketplace for trial matching Study Sponsors Patient & Communities Patient Study “Target Profiles” Open Open Web REST API Daily Updates Patients Platform Match Process Consent to Match Personal Electronic Medical Records api.lillycoi.com April 2014 POC
  8. 8. Targeted/Tailored Therapeutics phenotype biomarkers Personalized genome Medicine quantified self
  9. 9. Lilly’s Patient-Centric Engagement Strategy • • • • • • Voice of patient in development Patient-centric communication Enabling marketplace for trial matching Targeted/Tailored Therapeutics Patient simulation of study for deep understanding Patient Experience – before, during and after study
  10. 10. Patient Experience Informed Consent Streamlined visits Study mobile app Continuity of care
  11. 11. Lilly’s Patient-Centric Engagement Strategy • • • • • • Voice of patient in development Patient-centric communication Enabling marketplace for trial matching Targeted/Tailored Therapeutics Patient simulation of study for deep understanding Patient Experience – before, during and after study
  12. 12. Breakout Group Themes • • • • Understanding clinical trials (pre-trial) Joining a clinical trial (consent) Support while in a CT CT Integration into patient lifestyle • Other?

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