Family-Building Options for Women: After Cancer Treatment

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Health & Medicine

Family-Building Options for Women: After Cancer Treatment

Patients with cancer face both psychosocial and practical concerns during treatment and recovery. They may experience distress from the cancer diagnosis itself as well as side effects from treatment like surgery, chemotherapy, or radiation. In addition to emotional challenges, cancer also brings financial issues, problems with daily activities, questions about relationships and sexuality, and uncertainty about the future.

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Financial handout-2The LIVESTRONG Foundation

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The Patient Empowerment Project (PEP) aims to empower cancer patients to advocate for improvements in cancer control through focused training and hosting of Cancer Patient Forums. The goals are to prepare organizations to plan forums, support a national call to action on cancer, and contribute to national cancer burden efforts. Forums bring visibility to cancer issues and have led to policy changes in countries like France, Italy, Turkey, and South Africa. Patient voices are a powerful tool for advocating improvements through sharing stories and affecting long-term systemic change.

ASCO Survey Poster 2011

The LIVESTRONG Foundation

This survey of over 3,000 post-treatment cancer survivors found that the majority still experience physical, emotional, and practical concerns. However, many survivors did not receive care or support for these issues, often because they felt they had to learn to live with the problems on their own. Key concerns included fatigue, fear of recurrence, emotional distress, sexual dysfunction, and concerns about family members' cancer risk. The survey highlights the ongoing needs of cancer survivors after treatment and opportunities to better address and support survivors throughout their cancer experience.

ASCO Electronic Health Information Records

The LIVESTRONG Foundation

This document summarizes results from two surveys regarding perspectives on electronic health information exchange (EHIE) among people affected by cancer and the general public. Key findings include: - About half of respondents viewed EHIE as important for improving care coordination and health outcomes. Support was higher among cancer patients and survivors, ranging from 68-82%. - Respondents expressed willingness to share anonymous health information for research purposes, with nearly a third strongly agreeing and over half of cancer patients/survivors agreeing. - Cancer patients and survivors had strong preferences for electronic access to their own health information and EHIE between providers to improve care quality.

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LIVESTRONG Global Policy 2011

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This document outlines a 2011 agenda to get global leaders to take action against cancer through a UN summit and influencing US policy. It discusses getting the UN to recognize cancer as a major global problem, the need for a unified global commitment to save lives, and targeting decision-makers, media, and grassroots supporters to shift US global health policy and the upcoming UN summit to focus on strengthening health systems and treating cancer as a model.

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