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Lobular Breast Cancer Webinar: LBCA & SHARE
1. Patients, clinicians and researchers …
Increasing our knowledge of lobular breast disease.
Advancing diagnosis, treatment and
follow-up care for patients
Elizabeth Viggiano
Lori Petitti
2. Volunteer/Patient Driven
Scientific Advisory and Editorial Board
Website / subscriber list / Facebook/Twitter/Survey
Partnerships, webinars, filling the gaps of ILC information
MBC Project, MBC Alliance, MBC Connect
Building relationships with the scientific community
Advance Research: Clinical Trials, understanding ILC unique
biology and behavior, target therapies
ABOUT LBCA AND OUR GOALS
3. 2nd International ILC Symposium, Pittsburgh May 14-16, 2020
• Researchers, health care professionals and advocates from around the world will
come together to share research on lobular breast cancer, collaborate and discuss
ways to better understand ILC and refine and advance therapies for patients.
• The Symposium will lead off with a day focused on advocate education organized
by the LBCA.
• This will be a day of learning tailored to patients, caregivers and others interested
in learning about lobular breast cancer and how they can help advance lobular
research and educate others about this disease.
• Advocates will learn about lobular breast cancer, lobular research and different
ways they can get involved in effective advocacy to advance research and educate
about lobular breast disease.
Upcoming Educational Opportunity
4. SHARE Cancer Support
Rachel Jankowitz, MD and Gary Ulaner, MD
LBCA Scientific Advisory Board
Leigh Pate
LBCA Steering Committee
www.LobularBreastCancer.org
Thank you!
Editor's Notes
SAB includes Dr’s J and U
Lobularbreastcancer.org; Searchable database of scientific articles on the website, vetted and continually updated, newsletter, social media
SABCS poster
MBC project is breaking out lobular patients for study purposes, LBCA was invited to join MBC Alliance and Elizabeth, and working with MBC connect to impact their patient registry which collects data about MBC patients and makes that information free to researchers.
Both RJ and GU will be present and participate in Lob boot camp
Low cost of $25 for the day, $50 for the whole symposium