Some of these products are ones that I use, or have used in the past Others are interesting ones that I’ve found online And a good chunk are crowdsourced recommendations from other PWN

1. Technology for PWN
Narcolepsy Network Conference — Oct 2016

3. Advances in research

4. Wide range of symptoms

5. PWN need help

6. Embrace technology!

7. Areas of Technology
Apps to Get Organized
Voice Assistants
Physical Products
Social Media
Autonomous Vehicles
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8. Apps to Get Organized

9. Outlook
Shared by Chris (Ossining, NY)
Calendar apps are great for lots of
people. As a PWN, I am often cloudy
and forgetful and prone to missing
deadlines.
www.microsoftstore.com/Outlook-2016

12. I schedule time for what matters most:
• Meetings with key employees & partners
• Reminders to do basic tasks
• Out-of-office time
• “Do not disturb” blocks of time

13. What feature(s) do you find most helpful?
• Multiple events at same time (juggling work)
• Reminders (important to hit deadlines)
• Color Coding – Presenting, Prep Required

14. Is there any aspect of this product that
could use improvement?
I wish there was an emoji icon you could tap
at different times in the day to note alertness,
that is NOT easily visible if someone else
sees your screen.

15. Apple iCal
Shared by Tracy
I can add any important event to the
calendar and set it to pop a reminder to
my phone twice. I also have it linked to
my outlook calendar at work, so I never
miss an important deadline or meeting.
http://www.apple.com/iphone/

18. What feature(s) do you find most helpful?
The reminders. It makes it possible to keep
up with the small details even when I'm
having a rough day.

19. Livescribe
Works on virtually any device with Bluetooth
A smart pen that records your written
words and sketches into digital form.
https://www.livescribe.com

22. Evernote
One of the best apps for keeping track of your ideas and work.
Write down your thoughts, ideas, notes,
etc on virtually any device and sync
them to the big cloud in the sky.
https://evernote.com/

29. Trello
My go-to app for organizing my life.
A great tool for keeping track of all the
things you need to do.
https://evernote.com/

34. Relax Melodies
Shared by Chris (Ossining, NY)
It is a noise app for both relaxation and
for concentration. I mostly use the
“concentration” isochronic tone, to help
stay alert and focused.
http://www.ipnossoft.com/app/relax-
melodies/

36. What feature(s) do you find most helpful?
The isochronic tones, and the fact that it is
free. It's amazing - I am easily 20 % more
likely to get things done when using this app.

37. Anything else?
I am writing this while my daughter is
napping. I put on the “concentrate” isochronic
tone while I was looking up the details, and
now she is awake. It has the same effect on
me—I use it when I am on the verge of
passing out, and it usually makes me more
conscious.

38. Wearables

39. FitBit
Shared by Tim (Greenfield, MA)
Measures sleep, heart rate, and has a
silent vibrating alarm.
http://www.fitbit.com

42. What feature(s) do you find most helpful?
The alarm.
Is there any aspect of this product that
could use improvement?
Stronger alarm and better integration with
other apps.

43. Anything else?
It's a shame there's not an app for narcolepsy
symptom tracking.

44. Misfit Ray
Automatically tracks steps, distance,
calories, and light and restful sleep.
https://misfit.com/products/misfit-ray/

47. Withings Aura
Collects data about the environment
you sleep in, has alarms and music
playback built in.
https://www.withings.com/us/en/
products/aura

51. Hello Sense
Sense's Smart Alarm analyzes your
sleep cycle to know when you're
sleeping lightly, & wakes you up at the
optimal time to start your day off right.
https://hello.is

56. S+ by ResMed
The world’s first non-contact sleep
tracking system that helps you analyze
and improve your sleep from the very
first night.
http://splus.resmed.com/see-splus-in-
action/

59. Delivery Apps

60. Amazon Fresh
Shared by Katie (Upstate NY)
Home delivery for groceries.
https://www.amazon.com/b?
node=10329849011

62. Peapod
Shared by Katie (Upstate NY)
Different home delivery for groceries.
https://www.peapod.com/index.jhtml

64. FreshDirect
Shared by Katie (Upstate NY)
Moar home delivery for groceries.
http://www.freshdirect.com

66. Voice Assistants

67. Google Now + Reminders
Shared by Amanda Goldman (Deer Park, NY)
Easily set reminders, timers, or search
the web using your voice or shortcuts
on Android, iOS, or the web browser.
http://www.google.com/landing/now/

70. What feature(s) do you find most helpful?
Quick reminders
Is there any aspect of this product that
could use improvement?
Probably voice recognition

71. Anything else?
I use this as my to do list and for reminders.
Links to Google Calendar, Gmail (Inbox
which now is Reminder driven) and Keep.
Decreases the amount you need to keep in
your head.

72. Siri
Available on Apple iOS + macOS
Easily set reminders, timers, or search
the web using your voice or shortcuts
on Android, iOS, or the web browser.
www.apple.com/ios/siri/

75. Siri

78. Alexa
Available on Amazon Echo devices + FireTV
Easily set reminders, timers, or search
the web using your voice or shortcuts
on Android, iOS, or the web browser.
https://www.amazon.com/dp/
B00X4WHP5E/

82. Physical Products

89. Alarms

90. Sonic Bomb Alarm Clock
Shared by Sarah Frisch and Jenn (Tukwila WA)
Vibrating alarm for middle of the night
medication.
https://www.amazon.com/Sonic-Alert-
SBB500SS-Alarm-Shaker/dp/
B000OOWZUK?th=1

93. What feature(s) do you find most helpful?
Separate vibrating alarm for middle of the
night plus super loud regular alarms.
Is there any aspect of this product that
could use improvement?
Nope. It's perfect.

94. Anything else?
This product literally gave me the ability to
continue to be able to go back to work. Can't
imagine not having this alarm. Also another
thing – it shows an area for batteries,
however it didn't work when I tried to put
batteries in to take with us when we went
camping. So the ability for it to function with
batteries would be great!

95. GPS Alarm Clock
Shared by James McBennett (Nashville, TN)
When I used time-based alarms on
buses, I would wake too early before
my stop and then fall back asleep or
the alarm would be too late as there
wasn't enough traffic.
Download on Google Play

97. What feature(s) do you find most helpful?
GPS alarms are fantastic, as you can set
alarm for 100m-500m from bus stop on
Google maps. I never stay away on public
transit, so being woken up at exactly the right
time is important.

98. Anything else?
I always thought about wearing a sign saying
wake me up at my stop, but never wanted to
do that as I don't like drawing even more
attention to my sleep.

99. Clocky
Started as a Kickstarter project.
A mobile alarm clock that you literally
have to hunt down to turn off.
http://www.nandahome.com

102. Social Media

103. Facebook Groups
Public, Closed, and Secret groups
Connect with other PWN at various
levels of privacy… dozens of groups,
with thousands of members.
https://www.facebook.com/groups/
narcolepsynetwork

109. Twitter #Nchat
Run by Cat Thoma, Heather Bertics, and Mike Hunt
A monthly discussion on Twitter about
all things narcolepsy (public).
https://twitter.com/hashtag/Nchat

110. @catthoma
Cat Thoma
@therealmikehunt
Mike Hell
@stridesagainstN
Heather Bertics
Twitter #Nchat

115. Meetup
Find your local support group
Connect with other PWN at various
levels of privacy… dozens of groups
with thousands of members.
http://www.meetup.com/pro/
NarcolepsyNtwrk/

124. More Support Groups
Find additional groups that are not running on Meetup here:
http://narcolepsynetwork.org/resources/
support-groups/

125. Autonomous Vehicles

138. Thank you!
Keith Harper
@keith_harper