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Legal Update 2020
Top 10 Bioethics
Legal Developments
Thaddeus Mason Pope, JD, PhD, HEC-C
ASBH 2020 (October 15, 2020)
updates
Medical Futility
Brain Death
Advance Directives
CBO
Medical
Futility
Trend limiting
clinician authority
(1999)
1. Clinicians may withdraw
LST without consent
2. For any reason
3. If hospital committee
agrees
2 new cases
Did not use TADA
No review committee
No 10-day transfer
Tinslee Lewis
“treatment keeping her
alive causes her pain …
simply cruel … serves no
medical purpose”
Plan to withdraw
over mom’s
objections
October
2019
unconstitutional
Procedural
due process
narrowing
clinician
authority
Simon’s
Laws
Inform parents of plan to
write DNR order
or
Prohibit write DNR order
over parental objection
June 2020
"A court … shall not have
the authority to require …
withdrawal of life-sustaining
procedures from a minor …
over … objection … parent."
Charlie Gard
Alfie Evans
in Iowa
One last
example legal
limits on futility
Extremely premature
infants
Infants born with
disabilities
Directs DHHS to enforce
EMTALA
Disability laws
Baby K
still good law
Brain
Death
48
All 56 US
jurisdictions
individual … dead ... either
(1) irreversible cessation of
circulatory and respiratory
functions, or
(2) irreversible cessation of all
functions of the entire brain
No change
in the law
questions
Do clinicians need
consent to do
brain death tests?
What are “accepted
medical standards”
for determining BD?
What duties when
religious objections?
Do prevailing
guidelines measure
what UDDA requires
Add ULC
Step 1
Study
committee
July 2021
Step 2
Drafting
committee
July 2022
Step 3
State
legislatures
That’s issue 2
brain death
Advance
directives
• VA flex
Persist
Good to add this here because gets some work don for QUT
Permit clinicians to
refuse what they
otherwise must do
What about
individual
physicians?
Barbara
Morris
Neil
Mahoney
“We don’t
care about
Colorado law”
paraphrased
First Amendment
Religious autonomy
Free exercise
Expressive association
First Amendment cannot
be used as a basis for an
exception to a general
law, no matter how great
the burden on religion
Nov. 4, 2020
Medical Futility
Brain Death
Advance Directives
CBO
109
Thaddeus Mason Pope, JD, PhD
Director, Health Law Institute
Mitchell Hamline School of Law
875 Summit Avenue
Saint Paul, Minnesota 55105
T 651-695-7661
C 310-270-3618
E Thaddeus.Pope@mitchellhamline.edu
W www.thaddeuspope.com
B medicalfutility.blogspot.com

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Legal Update 2020: Top 10 Bioethics Legal Developments