SlideShare a Scribd company logo
1 of 17
•
•
•
•
•
•
•
•
•
•
•
participant
candidate making
voluntary decision
of acceptance
an informed
consent form that
is used for a
storage and future
use of unused
samples
explaining study
derived data
usage to
participant
candidate
explaining risks of
participation to
participant
candidate
a part of an
informed consent
form that specifies
a recontact
method (e.g.
email)
allowed research
scope in informed
consent form
informed parental
consent form for
qualitative
research involving
children
permission
informed consent
rule specification
explaining study
purpose to
participant
candidate
consenting to not
to be informed
about incidental
finding
consenting to not
to have financial
benefit
participant
candidate making
voluntary decision
of acceptance
100%
an informed
consent form that
is used for a
storage and future
use of unused
samples
89%
explaining study
derived data
usage to
participant
candidate
89%
explaining risks of
participation to
participant
candidate
78%
a part of an
informed consent
form that specifies
a recontact
method (e.g.
email)
61%
allowed research
scope in informed
consent form
0%
informed parental
consent form for
qualitative
research involving
children
72%
permission
informed consent
rule specification
39%
explaining study
purpose to
participant
candidate
67%
consenting to not
to be informed
about incidental
finding
56%
consenting to not
to have financial
benefit
33%
•
•
•
•
•
•
Drexel - Codata Fair - RRDM Workshop 2019

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Drexel - Codata Fair - RRDM Workshop 2019

  • 1.
  • 2.
  • 3.
  • 4.
  • 6.
  • 7.
  • 10.
  • 11.
  • 12. participant candidate making voluntary decision of acceptance an informed consent form that is used for a storage and future use of unused samples explaining study derived data usage to participant candidate explaining risks of participation to participant candidate a part of an informed consent form that specifies a recontact method (e.g. email) allowed research scope in informed consent form informed parental consent form for qualitative research involving children permission informed consent rule specification explaining study purpose to participant candidate consenting to not to be informed about incidental finding consenting to not to have financial benefit
  • 13.
  • 14. participant candidate making voluntary decision of acceptance 100% an informed consent form that is used for a storage and future use of unused samples 89% explaining study derived data usage to participant candidate 89% explaining risks of participation to participant candidate 78% a part of an informed consent form that specifies a recontact method (e.g. email) 61% allowed research scope in informed consent form 0% informed parental consent form for qualitative research involving children 72% permission informed consent rule specification 39% explaining study purpose to participant candidate 67% consenting to not to be informed about incidental finding 56% consenting to not to have financial benefit 33%