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JUNE 2017
Meet the team!
Left to right: Joanna Bazalgette, Sarita
Chavda, Sue Sparkes, Jane Ward,
Katherine Barbour, Melissa Richards
The iSPACE dementia friendly project team
has worked very hard to support the spread
of this work across Wessex.
Joanna Bazalgette and Sue Sparkes have
worked with over 65% of the surgeries in
Dorset and at the end of April 34 surgeries
have been accredited. Jane Ward has worked
in NE Hants and supported training in other
areas. Sarita Chavda is leading on work in
iSPACE
News
Summer 2017
1 | iSPACE Summer Newsletter 2017 FOLLOW US ON @WessexAHSN
Portsmouth. Melissa joined the team from
Eli Lilly and has focussed on N Hants CCG.
Not included in the picture but needing a
special mention is Claire Fleming who has
joined the team recently and has worked
with a number of surgeries in Portsmouth
and SE Hants. She has streamlined
processes and supported a surgery to
complete all the steps in 6 weeks.
A big thank you to the team.
JUNE 2017
The Benefits of Training
Letter from Reception Team Manager at a Dorset GP practice
I just wanted to thank you for yesterday.
The feedback from all staff has been so
positive. They found your presentation
very entertaining. As a follow on from
your presentation I wanted to inform you
of a situation two of my team encountered
last night.
Catherine locked up the surgery at 7pm
and walked to her car which was parked
on the main road. She saw an elderly man
half running / shuffling along the pavement
wearing a tee shirt, jogging bottoms and
slippers. He went into the car park but did
not come back out. Catherine recognised the
patient as recently having been diagnosed
with dementia (who also has diabetes) so
drove around the mini roundabout and came
back to work to check on him.
He was ringing the doorbell as he thought the
surgery was open (even though all the lights
were off). Catherine sat down on the bench
outside with him and asked as to why he
needed to speak to someone. He had been
discharged from the hospital early yesterday
morning (following a fall) and was having
trouble with his insulin pen. He said he had
not taken any medication at all that day.
Catherine calmly said that she wanted to
get some guidance for him so tried to
call me (but my phone went to voicemail)
so contacted Jane (another receptionist)
who lives around the corner. Jane advised
Catherine to call 111 and then came to join
Catherine at the surgery.
They unlocked the surgery and made the
gentleman comfortable. They contacted 111,
who said they would be sending a blue light
ambulance. In the interim the girls found out
that the patient had driven to the surgery, so
this information was also passed on to 111.
The ambulance took almost 3 hours to arrive
(Jane had phoned on a couple of occasions to
check on its ETA and to keep the 111 team up
to date with the patient’s health). They were
not allowed to give him any food or anything
to drink but kept him occupied by asking
about his family, what he did before he retired
and sharing stories of their own families.
When the paramedics arrived he gave both
of them a hug and said thank you. The next
morning, one of his daughters also phoned to
pass on her thanks.
Catherine is the most anxious and least
confident member of my team. She said that
the training she had yesterday meant that she
felt totally calm when dealing with the patient
and completely understood what to do to
make sure the patient remained calm (he is
known for demonstrating very challenging
behaviour at times).
I am so proud of Catherine and Jane but also
to send a huge thanks to you for giving my
team the skills they needed to handle this sort
of situation.
Catherine has expressed an interest in
becoming a Dementia Friend and has asked
if she can take responsibility for the Dementia
board.
2 | iSPACE Summer Newsletter
Cornerways training session
JUNE 2017
Regional Round Up
Keeley Bruce & Sally Clarke,
Dementia Champions, plus cakes
and certificate!
Wellbridge Surgery, at Wool in
Dorset, held a coffee morning
on 7th March for their dementia
patients and carers to raise money
for Dementia UK, and to celebrate
the recent award of their iSPACE
Dementia Friendly Surgery certificate.
Keeley Bruce, the surgery's lead
dementia champion said:
"It was a huge success - staff and
patients made some amazing cakes to
help us raise £366. Bang goes the diet!"
Regional Round Up
The Apples Medical Centre
recently held a cake stall
in aid of Dementia UK,
the same day the staff
members wore their
Christmas jumpers! The
total raised was £202.50.
They would like to extend
huge thanks to all their
patients who contributed
to the stall and those who
brought a cake.
The Practice has recently
been accredited with iSPACE,
giving them status as a
Dementia Friendly Surgery
and the staff have become
‘Dementia Friends’.
3 | iSPACE Summer Newsletter
JUNE 2017
Dementia Friendly Surgeries Completed May 2017
Bournemouth
Littledown
Talbot Medical Practice
Village (Bournemouth)
Kinson Road
Marine & Oakridge
Banks & Bearwood
St Albans
Woodlea House
Poole – North, Central and
Bay
Adam Practice
Canford Heath
Heatherview, Fernside and
Herbert Ave
Westbourne
Birchwood & Oakdale
Dr Newman
Poole Town
Wessex Road
Rosemary
Christchurch
Stour
Burton & Bransgore (2 sites)
East Dorset
Pennys Hill Ferndown
Quarterjack Wimborne
West Moors
Old Dispensary, Wimborne
Cranborne
Barcellos – (Tricketts Cross
and Corbin Ave), Ferndown
Walford Mill, Wimborne
Verwood
North Dorset
Gillingham and Peacemarsh
MC (2 sites)
Whitecliffe Group Blandford
(2 sites)
Newland Medical Practice,
Sherborne
Bute House Sherborne
Apples Sherborne
Purbeck
Swanage MC
Wareham
Wellbridge,Wool
Bere Regis
Corfe Castle
Eagle House, Blandford
Sandford
Mid Dorset
Poundbury Doctors Surgery
Milton and Cerne Abbas
Queens Avenue Surgery
Prince of Wales Surgery
Atrium
West Dorset
Charmouth
Tollerford, Maiden Newton
Weymouth and Portland
Preston Road
Wyke Regis &
Lanehouse Surgery (2 sites)
Royal Crescent
Royal Manor
N Hants
Kingsclere HC
Hackwood, Basingstoke
Chawton Park
Oakley & Overton Ptnship
Wilson Practice Alton
Camrose Basingstoke
NE Hants
Downing St Farnham
Alexander House,
Farnborough
North Camp Surgery
River Wey Practice
Farnham Dene
Ferns
Giffard Drive, Farnborough
Princes Garden
Southlea Medical Centre
Richmond Surgery
Oakley Health Group
Southwood
Monteagle Yateley
Fleet Medical Centre
Southwood Surgery
South East Hants
Denmead HC
The Emsworth Surgery
Homewell Curlew, Havant
Queenswood, W’looville
Cowplain Family Practice
Bosmere Medical Practice
Rowlands Castle
Vine Medical Group,
Waterlooville (4 sites)
Grange Petersfield
Horndean Surgery
Badgerswood Surgery
4 | iSPACE Summer Newsletter
JUNE 20175 | iSPACE Summer Newsletter
Dementia Friendly Surgeries Completed May 2017
West Hants
Fryern Chandlers Ford
Arnewood Practice,
New Milton
Blackthorn Surgery, Hamble
New Milton HC
Ringwood MC (SP Thompson
and partners)
Barton Webb Peploe
Hedge End MC
Waterfront / Solent, Hythe
Lyndhurst
Watercress Medical Group
The Friarsgate Practice,
Winchester
Fordingbridge
Wistaria and Milford
Abbeywell, Romsey
Wickham
Forest Gate
Red and Green
Totton Health Centre
St Clements Partnership
Twin Oaks
Southampton
Old Fire Station, Woolston
Atherley House
Brook House
Hill Lane
Portswood Solent
Stoneham Lane
Townhill
Chessell
Highfield Health
Portsmouth
Lake Road
John Pounds
Craneswater and Salisbury
Road, Southsea (2 sites)
Portsdown Group practice
(6 sites)
Fareham and Gosport
Gosport MC
Westlands MC, Portchester
Fareham HC
Highlands Road
Lockswood Surgery,
Locks Heath
Stubbington
Bridgemary
Portchester
Rowner
Lee on the Solent
Manor Way
IOW
Tower House Ryde
Medina Newport
Grove House Ventnor
Sandown
South Wilts
Salisbury Medical Centre
(incorporating Wilton,
Bemerton Heath and
Bishopdown)
Millstream
Harcourt
Tisbury
Orchard Partnership
Hindon
Portsmouth and SE
Hampshire have made
great progress with their
drive to become dementia
friendly.
As this goes to print we are
expecting almost 50% of SE
Hampshire practices to be
accredited and Portsmouth
numbers are steadily
increasing.
Well done to Lake Road
Practice for being the first
accredited practice in
Portsmouth, closely followed
by John Pounds and then
the Craneswater Group.
Portsdown Group Practice
are expected to complete
shortly which will significantly
boost the numbers of
practices in the city.
Over 100 surgeries have now
completed and more than
60 are currently working to
become Dementia Friendly.
JUNE 2017
Dementia Friendly
Sherborne
All three GP surgeries in
Sherborne have recently been
successful in gaining Dementia
Friendly status.
This means that Sherborne has
become the first town in Dorset to
not only have a Dementia Action
Alliance, but also have all their medical
practices accredited with iSPACE. This is
a fantastic achievement and a reflection
of the attitudes of the community in the
district towards giving support to people
living with dementia and their carers.
6 | iSPACE Summer Newsletter
Working alongside the Wessex AHSN,
practice managers from Apples Medical
Practice, Newland Medical Centre
and Bute House Surgery have all
been accredited with iSPACE
since Christmas. The first Mid
and North Dorset Dementia
Champions Network meeting
was held at the beginning of
March.
The Sherborne and District
Dementia Action Alliance
was founded over a year
ago and is also looking at
ways in which it can support
people in the district to live
the best possible quality of life
after a diagnosis of dementia,
including the possibility of
raising the funds to support an
Admiral Nurse in the district. Along
with the accreditation of the three
surgeries, Sherborne is proving itself
to be a welcoming and compassionate
community in which to live.
JUNE 2017
A Carer’s Perspective: Alison in West Dorset
Q. How long have you been registered
with your GP?
A. We've been with the Surgery for over
17yrs.
Q. How long is it since diagnosis?
A. Andrew was diagnosed with FTD, Fronto
Temperal Dementia, in July 2012.
Q. Can you tell us about your
experience of Andrew’s diagnosis?
A. Our GP at first took the route of Andrew
suffering from depression, despite my
disagreement to this suggestion. Andrew
however was clearly desperate to find
a quick solution to his symptoms and
agreed to start taking anti-depressant.
This, in itself, was completely out of
character for Andrew who would never
take tablets of any kind as he has always
been health and fitness conscious!
The antidepressants had a detrimental
effect on Andrew and worsened the
symptoms we'd first gone to discuss!
Within a few weeks, we returned to the
doctor to say he'd stopped taking the
tablets and we now needed to undergo
tests and scans to find out what the
problem was. Within 6 months we found
ourselves sat in front of a consultant at
the hospital to be told Andrew has FTD,
that has no cure, no medication and
no way of knowing how it will manifest
itself. Devastating! Andrew meanwhile
was finding the scan of his brain on the
screen very interesting. Ironic! Whilst
with the consultant, he mentioned that Dr
Schott at UCL Hospital was researching
into early onset dementia and Andrew
eagerly agreed to take part. We are still
visiting UCL Hospital twice a year so that
they can monitor the decline in Andrew’s
condition.
 The week that followed the diagnosis
was horrendous. Andrew was working
part time selling general insurance for
Age UK at the time, he'd successfully
built the business up for the charity and
was very proud of this. Unfortunately,
the legislation for selling insurance is
strict and it was decided that Andrew
was no longer able to continue working
there. Andrew was devastated! Next his
driving licence was revoked, it took us
6 months to get this back with our GP's
help. (It was only for 1 year before we all
decided he should no longer drive, but
I'm pleased we gave him the chance to
drive for as long as it was safe).
Q. Do you feel you were dealt with
sympathetically?
A. We have a very good relationship with
our GP and although it's clearly not
an area of his expertise, he has been
instrumental in helping me keep Andrew
as healthy as possible and has always
been sympathetic and forthcoming with
good advice. Our surgery now has an
allocated receptionist who has collected
lots of helpful information and services
to signpost people. I'm not sure this was
available in 2012 so I found Age UK a
helpful resource.
Q. What would have improved the way
you were given your diagnosis?
A. The only thing I recall feeling is how
abruptly the consultation came to an
end and you walk away feeling numb
and emotional. If a specialist nurse could
have been available to continue talking
with us and giving us useful information
this may have helped! There is no good
way to hear this news.
7 | iSPACE Summer Newsletter
JUNE 2017
A Carer’s Perspective: Alison in West Dorset
Q. Were you given any information
about local services?
A. Yes, I recall being handed a few leaflets
but without much explanation. It could
have been too soon to register any
information at that moment though, as
it's felt like the family was going through
an earthquake.
Q. How easy is it to see the same GP/
nurse for each appointment?
A. We always see the same doctor, unless
he's on holiday. This is imperative as
there's nothing worse than explaining
your predicament over and over and
our doctor knows us really well by now.
Q. Do you feel that there is adequate
communication between health care
providers?
A. I'm quite sure they do all communicate
once you're in the loop, it's just that the
system seems so fragmented and bits
being under different umbrellas, hence
you have to go through assessment after
assessment telling the same story over
again! This in itself is time consuming for
a carer who then has to find someone
to look after their dependent whilst they
navigate the system!
Q. Has there ever been a specific
situation which you feel could
have been handled better?
A. Not that I can think of.
Q. Do you feel that the community
you live in could be considered
Dementia Friendly?
A. I have mainly had great support from
the local community on the whole,
but this has only come from us being
forthright with the situation. Once most
people understand your predicament
they are sympathetic  willing to help.
For instance, Andrew will wander
away from my side whilst out at any
given opportunity! Now ironically his
geography is still good and he will not
get lost, but finding him can take ages
and is stressful.
So, I went to all our usual shopping venues,
hair dresser, cafe's etc and explained that
Andrew needs support and why and if
they were to see him unaccompanied
would they ring me. Giving our full home
and some mobile numbers!
This has worked out brilliantly and has
brought Andrew and I back together
quickly on many an occasion. Andrew
can no longer speak which escalates
his vulnerability so being open about
this ugly disease has help us and I hope
educated the lucky people unaffected
by Dementia.
Q. Has your own GP practice been
accredited by iSPACE as a Dementia
Friendly Surgery?
A. The surgery was accredited with iSPACE
in March 2017.
8 | iSPACE Summer Newsletter
JUNE 2017
Before and After
Some impressive changes are being made to the physical environment. Improving
signage and using enhanced colours are 'quick wins' in terms of becoming more
dementia friendly. It doesn’t only help people living with dementia…. others can
benefit from these changes.
Information is key!
One of the most important things a GP practice can do is keep up to date with
information about dementia and about local services. We have been encouraging
practices to create Dementia Noticeboards, with some excellent results!
9 | iSPACE Summer Newsletter
These lovely, bright loo seats at Talbot Medical Practice stand out clearly in the room.
Bridgemary Surgery Cowplain Surgery Preston Road Surgery
Signage at Preston Road Surgery has been improved and seating has been upgraded
JUNE 2017
Frequently Asked Questions
Q. Why do we need iSPACE?
A. It helps the GP surgery bring together
their learning and practice, not only
to do with dementia, but for all frail or
vulnerable people. Some of it you may be
doing, other actions will be new - overall
it raises patients' and carers' awareness
that your surgery is ready and willing to
help with dementia issues. The more we
can assess and diagnose, the more we
can support and encourage planning for
the future, through trained staff and in a
dementia-friendly environment, the more
we will help spread the word that it's OK
to talk about dementia.
Q. How long does the process take?
A. Actual staff hours needn’t be very
much – many surgeries are doing some
of it already, consciously or not. The
process falls into three main areas: the
environmental walk-round, using the
recommended Kings Fund check list,
and follow-up ordering of any signs etc
needed, often using your web browser
(2 hours); staff commitment to training
using the presentation and training
link (1.5 hours) and checking recording
processes to help identify those with,
or at risk of, dementia, plus associated
issues, using the audit check list tool
direct. This will depend on how much the
surgery already does, but in all the actual
commitment to the entire process could
be completed, using the audit check
list tool as a guide, within 8-10 hours,
allocated over a period of, say, a month.
Q. Should everyone at the practice
experience the training, including
GPs, PPG members and carers?
A. As many as possible – everyone, ideally,
including any absent, new or part-time
staff, as well as PPG members and carers.
Some may know more than others
about dementia, either professionally or
personally, but if everyone experiences
it, then everyone knows what everyone
else does! Many GPs have found it useful,
less perhaps from the clinical side, but
certainly in their approach to patients
and carers, and, along with nearly all
members of staff, have said how useful
they have found it.
Q. Who should the dementia
champions be?
A. It can be anyone – many surgeries
take the ‘team’ approach and have a
representative from each discipline within
the surgery on the ‘Dementia Friendly
Team’: nurse, receptionist, pharmacist,
etc. In smaller surgeries it may only be
possible to have a team of two (the ideal
minimum, so there’s always someone
there who has an understanding of the
overall process) and it’s often useful to
include a carers’ lead, over 75s or tracker
nurse, as many (but not all) patients
with dementia are elderly. Receptionists
and other admin staff have a good
understanding of how the records and
appointment processes work, and that
can be very valuable.
Q. How do we find out about local
resources?
A. There are many resources on the
AHSN website, including a draft
surgery leaflet to which can be added
local details of dementia support
groups and activities, available through
your web browser, and local dementia
organisations such as the Alzheimer’s
Society and Dementia UK websites,
plus many other examples of the kinds of
information around. Dementia Connect
lists many local resources.
10 | iSPACE Summer Newsletter
JUNE 2017
Frequently Asked Questions
Q. Is it enough if staff are already
‘Dementia Friends’?
A. The Dementia Friends short session (run
by the Alzheimer’s Society) is a very
good introduction for the general public
into the main messages about dementia,
but the training provided through iSPACE
is recognised as Tier 1 training, earning
a CPD certificate, and gives the more
detailed background that surgery staff
need as they go about their work.
Q. How can we help make sure carers
get copies of hospital letters – surely
that’s up to the hospital?
A. The hospitals aren’t aware that there is
a carer who needs to know unless the
surgery tells them – one of the best
ways is to make sure there’s a standard
paragraph in the GP’s referral letter,
prompting them to give this information
where needed.
Q. You suggest changing things in the
physical environment of the surgery
that can't always be of help to
everyone. Why do it at all - or how
about just some of it?
A. Everyone's dementia is different because
we're all different. We can't help
everyone, but we can make it easier
for a lot of people, and not just the
ones with dementia – for people who
are older, may see or move less well,
either temporarily or permanently, or
may be confused for some other reason.
If one thing helps one person once, it's
worth it - and most changes will be far
more useful than that.
Not everything on the Kings Fund
environmental check list needs to
be done immediately, if at all.
Some of the larger items (such as
contrasting chairs and carpet, staff
uniforms) can wait until the surgery
needs a refurbishment – many of the
items are suggestions to bear in mind
when a refurbishment is being done.
Q. Where can we get dementia friendly
signage and coloured loo seats?
A. There are some specific sites and
companies, or surgeries can construct
their own signage, using the guide lines
illustrated by these companies. Signs are
not usually very expensive, nor are loo
seats: don’t forget to look at mainstream
companies such as Argos (currently
doing a rather nice teal one).
Q. Are we a ‘safe haven’ or not?
A. Different area will have their own
approaches, but whatever those
arrangements, many surgeries,
particularly in more rural areas, are
often informally places where anybody
who is found to be confused outside
of their home is first taken by those
who help them. Surgeries are used
to dealing with this, and usually know
where their nearest care home is
for a longer-term solution, avoiding
police involvement unless absolutely
necessary, as this can be worrying for
the person concerned.
All resources (italicised) are on the
Wessex AHSN website:
www.wessexahsn.org.uk/ispace
11 | iSPACE Summer Newsletter
JUNE 2017JUNE 201712 | iSPACE Summer Newsletter
More Information
If you would like to become a dementia friendly practice please contact your CCG primary care
lead. All resources can be found on Wessex AHSN webpage www.wessexahsn.org.uk/ispace
Final Word
Wessex AHSN has worked on this project
for 2 years and over this time has worked
with over 50% of surgeries in the region.
100 surgeries have now completed the
process to become dementia friendly
and a further 67 surgeries are in the
process of completing the steps.
This project is being mainstreamed
to Clinical Commissioning Groups
to continue the spread of this work
and to reaccredit surgeries. Health
Education England will also be
supporting this project through its
primary care training focus.
What have been the outcomes
from this work?
• Implementing iSPACE led to a 16%
increase in dementia diagnosis rates
• 1000 staff were trained in 2016
• 6% reduction in clinical consultations
• 70% increase in memory screening
• 26% increase in carer identification
• Focus groups reporting positive
experiences in primary care.
Wessex AHSN plans to furnish each CCG
lead for dementia with the following:
• List of the surgeries that have completed
or are underway and dementia champion
leads in each surgery
• Link to the website resources that guide a
surgery through the steps to undertake this
project www.wessexahsn.org/ispace
• Links to training resources that can be
used for the surgery team including
two films of the training undertaken by
Wessex AHSN
• Frequently asked questions and answers
• How to maintain accreditation - checklist

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Wessex AHSN iSPACE Newsletter Spring 2017

  • 1. JUNE 2017 Meet the team! Left to right: Joanna Bazalgette, Sarita Chavda, Sue Sparkes, Jane Ward, Katherine Barbour, Melissa Richards The iSPACE dementia friendly project team has worked very hard to support the spread of this work across Wessex. Joanna Bazalgette and Sue Sparkes have worked with over 65% of the surgeries in Dorset and at the end of April 34 surgeries have been accredited. Jane Ward has worked in NE Hants and supported training in other areas. Sarita Chavda is leading on work in iSPACE News Summer 2017 1 | iSPACE Summer Newsletter 2017 FOLLOW US ON @WessexAHSN Portsmouth. Melissa joined the team from Eli Lilly and has focussed on N Hants CCG. Not included in the picture but needing a special mention is Claire Fleming who has joined the team recently and has worked with a number of surgeries in Portsmouth and SE Hants. She has streamlined processes and supported a surgery to complete all the steps in 6 weeks. A big thank you to the team.
  • 2. JUNE 2017 The Benefits of Training Letter from Reception Team Manager at a Dorset GP practice I just wanted to thank you for yesterday. The feedback from all staff has been so positive. They found your presentation very entertaining. As a follow on from your presentation I wanted to inform you of a situation two of my team encountered last night. Catherine locked up the surgery at 7pm and walked to her car which was parked on the main road. She saw an elderly man half running / shuffling along the pavement wearing a tee shirt, jogging bottoms and slippers. He went into the car park but did not come back out. Catherine recognised the patient as recently having been diagnosed with dementia (who also has diabetes) so drove around the mini roundabout and came back to work to check on him. He was ringing the doorbell as he thought the surgery was open (even though all the lights were off). Catherine sat down on the bench outside with him and asked as to why he needed to speak to someone. He had been discharged from the hospital early yesterday morning (following a fall) and was having trouble with his insulin pen. He said he had not taken any medication at all that day. Catherine calmly said that she wanted to get some guidance for him so tried to call me (but my phone went to voicemail) so contacted Jane (another receptionist) who lives around the corner. Jane advised Catherine to call 111 and then came to join Catherine at the surgery. They unlocked the surgery and made the gentleman comfortable. They contacted 111, who said they would be sending a blue light ambulance. In the interim the girls found out that the patient had driven to the surgery, so this information was also passed on to 111. The ambulance took almost 3 hours to arrive (Jane had phoned on a couple of occasions to check on its ETA and to keep the 111 team up to date with the patient’s health). They were not allowed to give him any food or anything to drink but kept him occupied by asking about his family, what he did before he retired and sharing stories of their own families. When the paramedics arrived he gave both of them a hug and said thank you. The next morning, one of his daughters also phoned to pass on her thanks. Catherine is the most anxious and least confident member of my team. She said that the training she had yesterday meant that she felt totally calm when dealing with the patient and completely understood what to do to make sure the patient remained calm (he is known for demonstrating very challenging behaviour at times). I am so proud of Catherine and Jane but also to send a huge thanks to you for giving my team the skills they needed to handle this sort of situation. Catherine has expressed an interest in becoming a Dementia Friend and has asked if she can take responsibility for the Dementia board. 2 | iSPACE Summer Newsletter Cornerways training session
  • 3. JUNE 2017 Regional Round Up Keeley Bruce & Sally Clarke, Dementia Champions, plus cakes and certificate! Wellbridge Surgery, at Wool in Dorset, held a coffee morning on 7th March for their dementia patients and carers to raise money for Dementia UK, and to celebrate the recent award of their iSPACE Dementia Friendly Surgery certificate. Keeley Bruce, the surgery's lead dementia champion said: "It was a huge success - staff and patients made some amazing cakes to help us raise £366. Bang goes the diet!" Regional Round Up The Apples Medical Centre recently held a cake stall in aid of Dementia UK, the same day the staff members wore their Christmas jumpers! The total raised was £202.50. They would like to extend huge thanks to all their patients who contributed to the stall and those who brought a cake. The Practice has recently been accredited with iSPACE, giving them status as a Dementia Friendly Surgery and the staff have become ‘Dementia Friends’. 3 | iSPACE Summer Newsletter
  • 4. JUNE 2017 Dementia Friendly Surgeries Completed May 2017 Bournemouth Littledown Talbot Medical Practice Village (Bournemouth) Kinson Road Marine & Oakridge Banks & Bearwood St Albans Woodlea House Poole – North, Central and Bay Adam Practice Canford Heath Heatherview, Fernside and Herbert Ave Westbourne Birchwood & Oakdale Dr Newman Poole Town Wessex Road Rosemary Christchurch Stour Burton & Bransgore (2 sites) East Dorset Pennys Hill Ferndown Quarterjack Wimborne West Moors Old Dispensary, Wimborne Cranborne Barcellos – (Tricketts Cross and Corbin Ave), Ferndown Walford Mill, Wimborne Verwood North Dorset Gillingham and Peacemarsh MC (2 sites) Whitecliffe Group Blandford (2 sites) Newland Medical Practice, Sherborne Bute House Sherborne Apples Sherborne Purbeck Swanage MC Wareham Wellbridge,Wool Bere Regis Corfe Castle Eagle House, Blandford Sandford Mid Dorset Poundbury Doctors Surgery Milton and Cerne Abbas Queens Avenue Surgery Prince of Wales Surgery Atrium West Dorset Charmouth Tollerford, Maiden Newton Weymouth and Portland Preston Road Wyke Regis & Lanehouse Surgery (2 sites) Royal Crescent Royal Manor N Hants Kingsclere HC Hackwood, Basingstoke Chawton Park Oakley & Overton Ptnship Wilson Practice Alton Camrose Basingstoke NE Hants Downing St Farnham Alexander House, Farnborough North Camp Surgery River Wey Practice Farnham Dene Ferns Giffard Drive, Farnborough Princes Garden Southlea Medical Centre Richmond Surgery Oakley Health Group Southwood Monteagle Yateley Fleet Medical Centre Southwood Surgery South East Hants Denmead HC The Emsworth Surgery Homewell Curlew, Havant Queenswood, W’looville Cowplain Family Practice Bosmere Medical Practice Rowlands Castle Vine Medical Group, Waterlooville (4 sites) Grange Petersfield Horndean Surgery Badgerswood Surgery 4 | iSPACE Summer Newsletter
  • 5. JUNE 20175 | iSPACE Summer Newsletter Dementia Friendly Surgeries Completed May 2017 West Hants Fryern Chandlers Ford Arnewood Practice, New Milton Blackthorn Surgery, Hamble New Milton HC Ringwood MC (SP Thompson and partners) Barton Webb Peploe Hedge End MC Waterfront / Solent, Hythe Lyndhurst Watercress Medical Group The Friarsgate Practice, Winchester Fordingbridge Wistaria and Milford Abbeywell, Romsey Wickham Forest Gate Red and Green Totton Health Centre St Clements Partnership Twin Oaks Southampton Old Fire Station, Woolston Atherley House Brook House Hill Lane Portswood Solent Stoneham Lane Townhill Chessell Highfield Health Portsmouth Lake Road John Pounds Craneswater and Salisbury Road, Southsea (2 sites) Portsdown Group practice (6 sites) Fareham and Gosport Gosport MC Westlands MC, Portchester Fareham HC Highlands Road Lockswood Surgery, Locks Heath Stubbington Bridgemary Portchester Rowner Lee on the Solent Manor Way IOW Tower House Ryde Medina Newport Grove House Ventnor Sandown South Wilts Salisbury Medical Centre (incorporating Wilton, Bemerton Heath and Bishopdown) Millstream Harcourt Tisbury Orchard Partnership Hindon Portsmouth and SE Hampshire have made great progress with their drive to become dementia friendly. As this goes to print we are expecting almost 50% of SE Hampshire practices to be accredited and Portsmouth numbers are steadily increasing. Well done to Lake Road Practice for being the first accredited practice in Portsmouth, closely followed by John Pounds and then the Craneswater Group. Portsdown Group Practice are expected to complete shortly which will significantly boost the numbers of practices in the city. Over 100 surgeries have now completed and more than 60 are currently working to become Dementia Friendly.
  • 6. JUNE 2017 Dementia Friendly Sherborne All three GP surgeries in Sherborne have recently been successful in gaining Dementia Friendly status. This means that Sherborne has become the first town in Dorset to not only have a Dementia Action Alliance, but also have all their medical practices accredited with iSPACE. This is a fantastic achievement and a reflection of the attitudes of the community in the district towards giving support to people living with dementia and their carers. 6 | iSPACE Summer Newsletter Working alongside the Wessex AHSN, practice managers from Apples Medical Practice, Newland Medical Centre and Bute House Surgery have all been accredited with iSPACE since Christmas. The first Mid and North Dorset Dementia Champions Network meeting was held at the beginning of March. The Sherborne and District Dementia Action Alliance was founded over a year ago and is also looking at ways in which it can support people in the district to live the best possible quality of life after a diagnosis of dementia, including the possibility of raising the funds to support an Admiral Nurse in the district. Along with the accreditation of the three surgeries, Sherborne is proving itself to be a welcoming and compassionate community in which to live.
  • 7. JUNE 2017 A Carer’s Perspective: Alison in West Dorset Q. How long have you been registered with your GP? A. We've been with the Surgery for over 17yrs. Q. How long is it since diagnosis? A. Andrew was diagnosed with FTD, Fronto Temperal Dementia, in July 2012. Q. Can you tell us about your experience of Andrew’s diagnosis? A. Our GP at first took the route of Andrew suffering from depression, despite my disagreement to this suggestion. Andrew however was clearly desperate to find a quick solution to his symptoms and agreed to start taking anti-depressant. This, in itself, was completely out of character for Andrew who would never take tablets of any kind as he has always been health and fitness conscious! The antidepressants had a detrimental effect on Andrew and worsened the symptoms we'd first gone to discuss! Within a few weeks, we returned to the doctor to say he'd stopped taking the tablets and we now needed to undergo tests and scans to find out what the problem was. Within 6 months we found ourselves sat in front of a consultant at the hospital to be told Andrew has FTD, that has no cure, no medication and no way of knowing how it will manifest itself. Devastating! Andrew meanwhile was finding the scan of his brain on the screen very interesting. Ironic! Whilst with the consultant, he mentioned that Dr Schott at UCL Hospital was researching into early onset dementia and Andrew eagerly agreed to take part. We are still visiting UCL Hospital twice a year so that they can monitor the decline in Andrew’s condition. The week that followed the diagnosis was horrendous. Andrew was working part time selling general insurance for Age UK at the time, he'd successfully built the business up for the charity and was very proud of this. Unfortunately, the legislation for selling insurance is strict and it was decided that Andrew was no longer able to continue working there. Andrew was devastated! Next his driving licence was revoked, it took us 6 months to get this back with our GP's help. (It was only for 1 year before we all decided he should no longer drive, but I'm pleased we gave him the chance to drive for as long as it was safe). Q. Do you feel you were dealt with sympathetically? A. We have a very good relationship with our GP and although it's clearly not an area of his expertise, he has been instrumental in helping me keep Andrew as healthy as possible and has always been sympathetic and forthcoming with good advice. Our surgery now has an allocated receptionist who has collected lots of helpful information and services to signpost people. I'm not sure this was available in 2012 so I found Age UK a helpful resource. Q. What would have improved the way you were given your diagnosis? A. The only thing I recall feeling is how abruptly the consultation came to an end and you walk away feeling numb and emotional. If a specialist nurse could have been available to continue talking with us and giving us useful information this may have helped! There is no good way to hear this news. 7 | iSPACE Summer Newsletter
  • 8. JUNE 2017 A Carer’s Perspective: Alison in West Dorset Q. Were you given any information about local services? A. Yes, I recall being handed a few leaflets but without much explanation. It could have been too soon to register any information at that moment though, as it's felt like the family was going through an earthquake. Q. How easy is it to see the same GP/ nurse for each appointment? A. We always see the same doctor, unless he's on holiday. This is imperative as there's nothing worse than explaining your predicament over and over and our doctor knows us really well by now. Q. Do you feel that there is adequate communication between health care providers? A. I'm quite sure they do all communicate once you're in the loop, it's just that the system seems so fragmented and bits being under different umbrellas, hence you have to go through assessment after assessment telling the same story over again! This in itself is time consuming for a carer who then has to find someone to look after their dependent whilst they navigate the system! Q. Has there ever been a specific situation which you feel could have been handled better? A. Not that I can think of. Q. Do you feel that the community you live in could be considered Dementia Friendly? A. I have mainly had great support from the local community on the whole, but this has only come from us being forthright with the situation. Once most people understand your predicament they are sympathetic willing to help. For instance, Andrew will wander away from my side whilst out at any given opportunity! Now ironically his geography is still good and he will not get lost, but finding him can take ages and is stressful. So, I went to all our usual shopping venues, hair dresser, cafe's etc and explained that Andrew needs support and why and if they were to see him unaccompanied would they ring me. Giving our full home and some mobile numbers! This has worked out brilliantly and has brought Andrew and I back together quickly on many an occasion. Andrew can no longer speak which escalates his vulnerability so being open about this ugly disease has help us and I hope educated the lucky people unaffected by Dementia. Q. Has your own GP practice been accredited by iSPACE as a Dementia Friendly Surgery? A. The surgery was accredited with iSPACE in March 2017. 8 | iSPACE Summer Newsletter
  • 9. JUNE 2017 Before and After Some impressive changes are being made to the physical environment. Improving signage and using enhanced colours are 'quick wins' in terms of becoming more dementia friendly. It doesn’t only help people living with dementia…. others can benefit from these changes. Information is key! One of the most important things a GP practice can do is keep up to date with information about dementia and about local services. We have been encouraging practices to create Dementia Noticeboards, with some excellent results! 9 | iSPACE Summer Newsletter These lovely, bright loo seats at Talbot Medical Practice stand out clearly in the room. Bridgemary Surgery Cowplain Surgery Preston Road Surgery Signage at Preston Road Surgery has been improved and seating has been upgraded
  • 10. JUNE 2017 Frequently Asked Questions Q. Why do we need iSPACE? A. It helps the GP surgery bring together their learning and practice, not only to do with dementia, but for all frail or vulnerable people. Some of it you may be doing, other actions will be new - overall it raises patients' and carers' awareness that your surgery is ready and willing to help with dementia issues. The more we can assess and diagnose, the more we can support and encourage planning for the future, through trained staff and in a dementia-friendly environment, the more we will help spread the word that it's OK to talk about dementia. Q. How long does the process take? A. Actual staff hours needn’t be very much – many surgeries are doing some of it already, consciously or not. The process falls into three main areas: the environmental walk-round, using the recommended Kings Fund check list, and follow-up ordering of any signs etc needed, often using your web browser (2 hours); staff commitment to training using the presentation and training link (1.5 hours) and checking recording processes to help identify those with, or at risk of, dementia, plus associated issues, using the audit check list tool direct. This will depend on how much the surgery already does, but in all the actual commitment to the entire process could be completed, using the audit check list tool as a guide, within 8-10 hours, allocated over a period of, say, a month. Q. Should everyone at the practice experience the training, including GPs, PPG members and carers? A. As many as possible – everyone, ideally, including any absent, new or part-time staff, as well as PPG members and carers. Some may know more than others about dementia, either professionally or personally, but if everyone experiences it, then everyone knows what everyone else does! Many GPs have found it useful, less perhaps from the clinical side, but certainly in their approach to patients and carers, and, along with nearly all members of staff, have said how useful they have found it. Q. Who should the dementia champions be? A. It can be anyone – many surgeries take the ‘team’ approach and have a representative from each discipline within the surgery on the ‘Dementia Friendly Team’: nurse, receptionist, pharmacist, etc. In smaller surgeries it may only be possible to have a team of two (the ideal minimum, so there’s always someone there who has an understanding of the overall process) and it’s often useful to include a carers’ lead, over 75s or tracker nurse, as many (but not all) patients with dementia are elderly. Receptionists and other admin staff have a good understanding of how the records and appointment processes work, and that can be very valuable. Q. How do we find out about local resources? A. There are many resources on the AHSN website, including a draft surgery leaflet to which can be added local details of dementia support groups and activities, available through your web browser, and local dementia organisations such as the Alzheimer’s Society and Dementia UK websites, plus many other examples of the kinds of information around. Dementia Connect lists many local resources. 10 | iSPACE Summer Newsletter
  • 11. JUNE 2017 Frequently Asked Questions Q. Is it enough if staff are already ‘Dementia Friends’? A. The Dementia Friends short session (run by the Alzheimer’s Society) is a very good introduction for the general public into the main messages about dementia, but the training provided through iSPACE is recognised as Tier 1 training, earning a CPD certificate, and gives the more detailed background that surgery staff need as they go about their work. Q. How can we help make sure carers get copies of hospital letters – surely that’s up to the hospital? A. The hospitals aren’t aware that there is a carer who needs to know unless the surgery tells them – one of the best ways is to make sure there’s a standard paragraph in the GP’s referral letter, prompting them to give this information where needed. Q. You suggest changing things in the physical environment of the surgery that can't always be of help to everyone. Why do it at all - or how about just some of it? A. Everyone's dementia is different because we're all different. We can't help everyone, but we can make it easier for a lot of people, and not just the ones with dementia – for people who are older, may see or move less well, either temporarily or permanently, or may be confused for some other reason. If one thing helps one person once, it's worth it - and most changes will be far more useful than that. Not everything on the Kings Fund environmental check list needs to be done immediately, if at all. Some of the larger items (such as contrasting chairs and carpet, staff uniforms) can wait until the surgery needs a refurbishment – many of the items are suggestions to bear in mind when a refurbishment is being done. Q. Where can we get dementia friendly signage and coloured loo seats? A. There are some specific sites and companies, or surgeries can construct their own signage, using the guide lines illustrated by these companies. Signs are not usually very expensive, nor are loo seats: don’t forget to look at mainstream companies such as Argos (currently doing a rather nice teal one). Q. Are we a ‘safe haven’ or not? A. Different area will have their own approaches, but whatever those arrangements, many surgeries, particularly in more rural areas, are often informally places where anybody who is found to be confused outside of their home is first taken by those who help them. Surgeries are used to dealing with this, and usually know where their nearest care home is for a longer-term solution, avoiding police involvement unless absolutely necessary, as this can be worrying for the person concerned. All resources (italicised) are on the Wessex AHSN website: www.wessexahsn.org.uk/ispace 11 | iSPACE Summer Newsletter
  • 12. JUNE 2017JUNE 201712 | iSPACE Summer Newsletter More Information If you would like to become a dementia friendly practice please contact your CCG primary care lead. All resources can be found on Wessex AHSN webpage www.wessexahsn.org.uk/ispace Final Word Wessex AHSN has worked on this project for 2 years and over this time has worked with over 50% of surgeries in the region. 100 surgeries have now completed the process to become dementia friendly and a further 67 surgeries are in the process of completing the steps. This project is being mainstreamed to Clinical Commissioning Groups to continue the spread of this work and to reaccredit surgeries. Health Education England will also be supporting this project through its primary care training focus. What have been the outcomes from this work? • Implementing iSPACE led to a 16% increase in dementia diagnosis rates • 1000 staff were trained in 2016 • 6% reduction in clinical consultations • 70% increase in memory screening • 26% increase in carer identification • Focus groups reporting positive experiences in primary care. Wessex AHSN plans to furnish each CCG lead for dementia with the following: • List of the surgeries that have completed or are underway and dementia champion leads in each surgery • Link to the website resources that guide a surgery through the steps to undertake this project www.wessexahsn.org/ispace • Links to training resources that can be used for the surgery team including two films of the training undertaken by Wessex AHSN • Frequently asked questions and answers • How to maintain accreditation - checklist