The Roar Behind the Silence May 2015
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This document summarizes research on women's experiences with maternity care and proposes solutions to promote more compassionate care. It notes that only half of women surveyed had the birth they wanted and many felt their experiences negatively affected their self-image. International research also found instances of disrespect and abuse in institutional maternity care. The document advocates for both macro-level solutions like adopting human rights frameworks and micro-level solutions like role modeling compassionate care. It emphasizes that small acts of kindness can transform traumatic experiences and promoting virtuous cycles of love over manufactured fear can improve care.
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The Roar Behind the Silence May 2015
- 1. THE ROAR BEHIND THE SILENCE: why kindness, compassion and respect matter in maternity care Sheena Byrom and Soo Downe
- 2. An idea…..
- 3. A story
- 4. What’s happening in maternity care?
- 5. National
- 6. Only half of the women we surveyed had the birt h they wanted. The majority felt that their childbirth experie nces affected their self-image and relationships with their baby and their partner. A significant proportion of these women believed that the effect was negative. September 2013 1,100 women Photo: Birthrights birthrights.co.uk
- 7. 5,500 women
- 10. Disrespect and abuse in institutional maternity care (Bowserand Hill 2010)
- 13. Macro
- 14. Dignity in maternity: the power of human rights to improve care for childbearing women Elizabeth Prochaska
- 15. Human Rights ‘The principle of human dignity demands that every person is treated as an end in herself, and not as a means to an end. It provides a basis for respectful maternity care and treats women as capable of making their own autonomous decisions about birth’ ‘A human rights approach to healthcare promotes positive and respectful relationships between women and their caregivers, and can guard against harm in childbirth’ Elizabeth Prochaska 2014
- 16. White Ribbon Alliance Respectful Care Charter
- 18. Routine unnecessary intervention in birth -an ethical issue
- 19. Openness
- 20. #MatExp
- 22. Micro • Courage • Role Modeling • Language • Openness • Guidelines are GUIDElines • Partnerships and collaboration
- 23. Courage for Compassion Dr Tracey Cooper
- 24. Photo: Claire Riding & Lynda Drummond Role Modeling
- 26. Delivery Big baby Only 3cms.... Labour wardPain relief Birth SuiteWorking with pain Patient Birth Fantastic! You are 3 cms! Refused Woman Healthy baby Declined
- 27. Partnerships
- 28. Guidelines What do NICE say?
- 29. Olivia Armshaw Mel Scott Action points
- 30. Milli Hill Anna Ternovsky Robin Youngson
- 31. I came across a spectacularly compassionate midwife once (actually she was a student) whose actions transformed a very traumatic experience and for that I have always been immensely grateful so if this in some tiny way pays back Sharon’s kindness then that would be wonderful. My first baby was born by c-section under a general anaesthetic after a cascade of fear-based interventions culminating in an incompetent registrar panicking. Afterwards I had a whole host of hospital staff visiting, because a GA section was a rare event, and most of them strutted in with an ‘isn’t modern medicine marvellous, all-that-matters-is- a-healthy-baby’ spiel that really p***d me off. Sharon was the ONLY one who came in, said ‘well, that didn’t go so well did it’, held my hand and told me about those precious first few minutes of my daughter’s life that we’d missed. Even my husband wasn’t in the room when she was born and hearing about how she looked and sounded and what happened to her made an incalculable difference. Helen Bilton The small things
- 33. There are only two feelings: Love and fear. There are only two languages: Love and fear. There are only two activities: Love and fear. There are only two motives, two procedures, two frameworks, two results. Love and fear. Building virtuous cycles Prof Soo Downe Michael Leunig's prayers from A Common Prayer
- 34. We can differentiate between the fear that is real and protects us, and the fear that is manufactured and strangles us. Manufactured fear reflects how we see women and birth. (Dahlen 2010)
- 35. #Roar
- 36. A story
- 37. Thank you
Editor's Notes
- A little about our conversations…my sessions, Gill’s research v Positive stories of courage and compassion….
- Tell the story of doctor in ED, then ask delegates to pause…
- Increasing intervention rates Dissatisfaction Disrespect and abuse Kirkup
- Fear endemic both women and families and maternity care workers Increased buraucracy and risk management leads to more fear, potential for more mistakes. What is safety?
- Social Movement
- Activist
- Respectful relationships
- Fear endemic both women and families and maternity care workers Increased buraucracy and risk management leads to more fear, potential for more mistakes. What is safety?
- Arguably, it is fear that drives current pathological ways of doing birth. Fear of things going wrong, fear of being sued, fear of not being competent in the new technologies. Could it be that a turn towards love as the basis of maternity care may change the high rates of intervention for women and children, while still keeping them clinically safe?
- Capacity not catastrophe
- Tell the story of doctor in ED, then ask delegates to pause…