Supporting people to die at home
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Dee Sissons, Director of Nursing at Marie Curie, speaks at Healthcare Conference's Delivering Individual Care Plans for Care of the Dying Person on 21 January, 2015. Marie Curie cares for people with a terminal illness in their homes and in nine hospices across the UK. Our new strategy will enable us to care for more people and provide them more support.
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Supporting people to die at home
- 1. MARIE CURIE ‘SUPPORTING PEOPLE TO DIE AT HOME’ Dee Sissons. Director of Nursing
- 2. FACT - THE NUMBER OF DEATHS ARE RISING 2 • Deaths rose by 3.1% in England and Wales in 2012 • Deaths are expected to be 16.5 % higher by 2030 • By 2030 those aged 65 and over will account for 86.7% of all deaths
- 3. FACT - IN 2012 PEOPLE WERE DYING FROM 3 • Cancer accounted for 29% of all deaths • Circulatory disease accounted for 28% of deaths • Respiratory disease accounted for 14% of all deaths
- 4. FACT - PLACE OF DEATH IS AFFECTED BY 4 • Age • Diagnosis • Marital status • Carer • Deprivation • Gender • Geography • Ethnicity
- 5. FACT - PEOPLE ARE TELLING US THAT :- 5 • Overall quality of care has not changed significantly from 2011 to 2013. • Quality of care was rated significantly lower for people who died in a hospital, compared to those dying at home, in a hospice or care home. • For those dying at home, the quality of coordination of care was rated significantly lower in 2013 compared to 2012. • The dignity and respect for patients shown by hospital nurses and hospice nurses has increased between 2011 and 2013. • Pain is relieved most effectively in the hospice setting (62%) and least effectively at home (18%). • Only one third of people (35%) who express a preference to die at home, actually die at home. National Survey of Bereaved People (VOICES) 2013
- 6. MARIE CURIE - THE FACTS 6 • We cared for nearly 40,000 people across the UK in 2012 • Of those 29,010 people were cared for at home • Of those 18,239 died • Median time from 1st visit to death is 8 days.
- 7. MCCC NEW STRATEGY 7 • We will reach more people and their families living with a terminal illness • We will improve the way terminally ill people are cared for across the UK • We will manage our charity as effectively and efficiently as possible
- 8. OBJECTIVES
- 9. WE WILL REACH MORE PEOPLE AND THEIR FAMILIES LIVING WITH A TERMINAL ILLNESS 9
- 10. WE WILL IMPROVE THE WAY TERMINALLY ILL PEOPLE ARE CARED FOR ACROSS THE UK 10
- 11. WE WILL MANAGE OUR CHARITY AS EFFECTIVELY AND EFFICIENTLY AS POSSIBLE 11
- 12. JOAN’ S STORY
- 13. IAN’S STORY
- 14. CHALLENGES AND OPPORTUNITIES 14 • Increase in the number of deaths • Multiple needs and care is likely to be much more complex • Ensuring everyone with a terminal illness gets the personalised help they want and need • Responding to diverse challenges and healthcare environments
- 15. THANK YOU FOR YOUR TIME For more information phone 0800 716 146 (free) or email info@mariecurie.org.uk “We passionately believe that everyone who is terminally ill and their families should be able to access high quality personalised care”
Editor's Notes
- The 2012 National
- [Presenter to read out words below] To arrive at this ambitious plan we listened to many voices. We heard from people affected with a terminal illness and their families about their experiences. We asked them what life is like for them and what care and support they want to help them through difficult times. Our staff and volunteers shared their experiences. We met with many others from outside the organisation to discuss how, together, we can improve care and support for people with a terminal illness and their families. We also commissioned research to ensure that our plans for the future are underpinned with robust evidence.
- [Presenter to read out words below] We will reach more people and their families living with a terminal illness. This will mean we help people regardless of their diagnosis, and sooner. We will work with other providers and key decision-makers to improve care and support, wherever it is delivered. We will continue to have nursing at the heart of what we do.
- [Presenter to read out words below] We will improve the way terminally ill people are cared for across the UK. As the experts in care for people with terminal illnesses, we will work with other providers and key decision-makers to improve care and support, wherever it is delivered.
- [Presenter to read out words below] We will manage our charity as effectively and efficiently as possible. To deliver our strategic plan, we will invest in four key areas of the charity – our people, our fundraising, our brand and our communications.
- [Presenter to read out words below] There will be an increase in the number of deaths. This means more people will be living with a terminal illness in the future. Many of these people will have multiple needs and their care is likely to be much more complex. And that’s a concern, because many people today are already not able to live the way they want towards the end of their life. There is much to do to guarantee that everyone with a terminal illness gets the personalised help they want and need. It is essential we respond to the diverse challenges and healthcare environments across the four nations that make up the UK. We believe passionately that everyone who is terminally ill and their families should be able to access high quality personalised care. They should be treated with kindness and dignity, with services that respond to their individual needs. We believe this should be the case regardless of where people spend their last days, whether that is in a hospital, a hospice, a care home or their own home.