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PersonalisationPersonalisation
The road we have takenThe road we have taken
andand
path we need to treadpath we need to tread
Why meWhy me
► Work in CoventryWork in Coventry
► For Life Path TrustFor Life Path Trust
► That supports peopleThat supports people
with a learningwith a learning
disability.disability.
► I knew Alan and hisI knew Alan and his
storystory
Personalisation is:Personalisation is:
►ChoiceChoice
►ControlControl
ChoiceChoice
►Do you have choice?Do you have choice?
►What factors influence choice?What factors influence choice?
No ChoiceNo Choice
►When?When?
►Who?Who?
►Why?Why?
The road to exclusionThe road to exclusion
►Vagabonds and Beggars Act 1495 Vagabonds and Beggars Act 1495 
►Act for the Relief of the Poor 1597Act for the Relief of the Poor 1597
►Poor Law 1601Poor Law 1601  WorkhouseWorkhouse
Social ExclusionSocial Exclusion
►LocationLocation
 Outskirts of townOutskirts of town
 High walls or railingsHigh walls or railings
►LanguageLanguage
 RetardRetard
 MentalMental
New wayNew way
►Parent powerParent power
 1955 Mencap founded1955 Mencap founded
►1959 Mental Health Act1959 Mental Health Act
 Acknowledged some people did not needAcknowledged some people did not need
hospitalshospitals
►New types of serviceNew types of service
 HostelsHostels
Institutional failureInstitutional failure
►1967 – Allegations about lack of care at Ely1967 – Allegations about lack of care at Ely
HospitalHospital
►1969 – Howe report on Ely Hospital1969 – Howe report on Ely Hospital
►Other reports on institutionsOther reports on institutions
►1971 – Better Services for the Mentally1971 – Better Services for the Mentally
HandicappedHandicapped
New momentum - 1973New momentum - 1973
►Ely Hospital's first reaction to the idea that
Alan and the other people he lived with on
Pine and Rose Villas could leave the
hospital was disbelief and outrage. How
could people with disabilities this severe live
in a house with students?
►How dare people suggest that there was no
need for institutional care?
Jim Mansell
Policy keeps movingPolicy keeps moving
►1981 – All Wales Strategy for Mental1981 – All Wales Strategy for Mental
HandicapHandicap
►1983 – Mental Health Act1983 – Mental Health Act
►1984 – Residential Care Act1984 – Residential Care Act
►1988 – Griffiths report ‘Community Care;1988 – Griffiths report ‘Community Care;
agenda for action’agenda for action’
Thinking moves tooThinking moves too
►1972 – Wolfensburger1972 – Wolfensburger
 Principles of normalisationPrinciples of normalisation
►1983 – Wolfensburger1983 – Wolfensburger
 Social Role ValorisationSocial Role Valorisation
►1992 – O’Brien1992 – O’Brien
 5 accomplishments5 accomplishments
►Community presence, relationships, choice,Community presence, relationships, choice,
competence & respectcompetence & respect
2000 - today2000 - today
►Valuing PeopleValuing People
►Keys to Citizenship, Simon DuffyKeys to Citizenship, Simon Duffy
►inControlinControl
►Mental Capacity Act 2005Mental Capacity Act 2005
►Putting People First 2007Putting People First 2007
►Think Local, Act PersonalThink Local, Act Personal
Do we still fail?Do we still fail?
►Winterbourne View – CastlebeckWinterbourne View – Castlebeck
 Closed communityClosed community
 Management failureManagement failure
 Public reportingPublic reporting
►Southern CrossSouthern Cross
 Financial modelFinancial model
Valuing PeopleValuing People
Key to CitizenshipKey to Citizenship
Gift ModelGift Model
Community
Government
Professional
Contribution via Taxation
Funding for
services
Assessment
and support
GovernmentProfessional
Citizen ModelCitizen Model
Community
Contribution via Taxation
Entitlement
to funding
Negotiated
service
Changing valuesChanging values
Service first
People first
7 Steps to inControl7 Steps to inControl
Mental Capacity ActMental Capacity Act
►What is capacity?What is capacity?
 Ability to understand the nature, purpose andAbility to understand the nature, purpose and
likely effectslikely effects
►Assume CapacityAssume Capacity
 Need to show that person does not haveNeed to show that person does not have
capacity in each situationcapacity in each situation
►Allows everyone to make unwise decisionsAllows everyone to make unwise decisions
Putting People FirstPutting People First
Today - 2011Today - 2011
TommorowTommorow
SummarySummary
►What difference does personalisationWhat difference does personalisation
make?make?
►Does it matter?Does it matter?
ReferencesReferences
► Llais Winter 2009/10. Alan Duncan 1995-2009,Llais Winter 2009/10. Alan Duncan 1995-2009,
► Duffy, S., 2003, Keys to CitizenshipDuffy, S., 2003, Keys to Citizenship
► Department of Health, 2006. Our Health, Our Say, Our Care.Department of Health, 2006. Our Health, Our Say, Our Care.
► Department of Health, 1971. Better services for mentally handicapped.Department of Health, 1971. Better services for mentally handicapped.
► Report of the Committee of Inquiry into Allegations of Ill - Treatment of
Patients and other irregularities at the Ely Hospital, Cardiff. 1969
► Welsh Office, 1981. The All Wales Strategy for Mental Handicap
► Wolfensberger, W. (1972). The principle of Normalization in human
services. Toronto: National Institute on Mental Retardation
► Wolfensberger, W. (1983). Social role valorization: A proposed new
term for the principle of normalization. Mental Retardation, 21(6), 234-
239
► Department of Health, 2001. Valuing People.Department of Health, 2001. Valuing People.
► Mental Capacity Act, 2007Mental Capacity Act, 2007
► Department of Health, 2007. Putting People First.Department of Health, 2007. Putting People First.

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Personalisation

  • 1. PersonalisationPersonalisation The road we have takenThe road we have taken andand path we need to treadpath we need to tread
  • 2. Why meWhy me ► Work in CoventryWork in Coventry ► For Life Path TrustFor Life Path Trust ► That supports peopleThat supports people with a learningwith a learning disability.disability. ► I knew Alan and hisI knew Alan and his storystory
  • 4. ChoiceChoice ►Do you have choice?Do you have choice? ►What factors influence choice?What factors influence choice?
  • 6. The road to exclusionThe road to exclusion ►Vagabonds and Beggars Act 1495 Vagabonds and Beggars Act 1495  ►Act for the Relief of the Poor 1597Act for the Relief of the Poor 1597 ►Poor Law 1601Poor Law 1601  WorkhouseWorkhouse
  • 7. Social ExclusionSocial Exclusion ►LocationLocation  Outskirts of townOutskirts of town  High walls or railingsHigh walls or railings ►LanguageLanguage  RetardRetard  MentalMental
  • 8. New wayNew way ►Parent powerParent power  1955 Mencap founded1955 Mencap founded ►1959 Mental Health Act1959 Mental Health Act  Acknowledged some people did not needAcknowledged some people did not need hospitalshospitals ►New types of serviceNew types of service  HostelsHostels
  • 9. Institutional failureInstitutional failure ►1967 – Allegations about lack of care at Ely1967 – Allegations about lack of care at Ely HospitalHospital ►1969 – Howe report on Ely Hospital1969 – Howe report on Ely Hospital ►Other reports on institutionsOther reports on institutions ►1971 – Better Services for the Mentally1971 – Better Services for the Mentally HandicappedHandicapped
  • 10. New momentum - 1973New momentum - 1973 ►Ely Hospital's first reaction to the idea that Alan and the other people he lived with on Pine and Rose Villas could leave the hospital was disbelief and outrage. How could people with disabilities this severe live in a house with students? ►How dare people suggest that there was no need for institutional care? Jim Mansell
  • 11. Policy keeps movingPolicy keeps moving ►1981 – All Wales Strategy for Mental1981 – All Wales Strategy for Mental HandicapHandicap ►1983 – Mental Health Act1983 – Mental Health Act ►1984 – Residential Care Act1984 – Residential Care Act ►1988 – Griffiths report ‘Community Care;1988 – Griffiths report ‘Community Care; agenda for action’agenda for action’
  • 12. Thinking moves tooThinking moves too ►1972 – Wolfensburger1972 – Wolfensburger  Principles of normalisationPrinciples of normalisation ►1983 – Wolfensburger1983 – Wolfensburger  Social Role ValorisationSocial Role Valorisation ►1992 – O’Brien1992 – O’Brien  5 accomplishments5 accomplishments ►Community presence, relationships, choice,Community presence, relationships, choice, competence & respectcompetence & respect
  • 13. 2000 - today2000 - today ►Valuing PeopleValuing People ►Keys to Citizenship, Simon DuffyKeys to Citizenship, Simon Duffy ►inControlinControl ►Mental Capacity Act 2005Mental Capacity Act 2005 ►Putting People First 2007Putting People First 2007 ►Think Local, Act PersonalThink Local, Act Personal
  • 14. Do we still fail?Do we still fail? ►Winterbourne View – CastlebeckWinterbourne View – Castlebeck  Closed communityClosed community  Management failureManagement failure  Public reportingPublic reporting ►Southern CrossSouthern Cross  Financial modelFinancial model
  • 16. Key to CitizenshipKey to Citizenship
  • 17. Gift ModelGift Model Community Government Professional Contribution via Taxation Funding for services Assessment and support
  • 18. GovernmentProfessional Citizen ModelCitizen Model Community Contribution via Taxation Entitlement to funding Negotiated service
  • 20. 7 Steps to inControl7 Steps to inControl
  • 21. Mental Capacity ActMental Capacity Act ►What is capacity?What is capacity?  Ability to understand the nature, purpose andAbility to understand the nature, purpose and likely effectslikely effects ►Assume CapacityAssume Capacity  Need to show that person does not haveNeed to show that person does not have capacity in each situationcapacity in each situation ►Allows everyone to make unwise decisionsAllows everyone to make unwise decisions
  • 25. SummarySummary ►What difference does personalisationWhat difference does personalisation make?make? ►Does it matter?Does it matter?
  • 26. ReferencesReferences ► Llais Winter 2009/10. Alan Duncan 1995-2009,Llais Winter 2009/10. Alan Duncan 1995-2009, ► Duffy, S., 2003, Keys to CitizenshipDuffy, S., 2003, Keys to Citizenship ► Department of Health, 2006. Our Health, Our Say, Our Care.Department of Health, 2006. Our Health, Our Say, Our Care. ► Department of Health, 1971. Better services for mentally handicapped.Department of Health, 1971. Better services for mentally handicapped. ► Report of the Committee of Inquiry into Allegations of Ill - Treatment of Patients and other irregularities at the Ely Hospital, Cardiff. 1969 ► Welsh Office, 1981. The All Wales Strategy for Mental Handicap ► Wolfensberger, W. (1972). The principle of Normalization in human services. Toronto: National Institute on Mental Retardation ► Wolfensberger, W. (1983). Social role valorization: A proposed new term for the principle of normalization. Mental Retardation, 21(6), 234- 239 ► Department of Health, 2001. Valuing People.Department of Health, 2001. Valuing People. ► Mental Capacity Act, 2007Mental Capacity Act, 2007 ► Department of Health, 2007. Putting People First.Department of Health, 2007. Putting People First.