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U.S. BUDGET &
APPROPRIATIONS 101
February 29, 2024
NON-COMMUNICABLE DISEASES 101
March 27, 2024
Welcome & Introductions
About GHC and the NCD Working Group
NCD Global Landscape
Questions
Fireside Chat with Patient Advocates
Closing
Agenda
Housekeeping
Eliana Monteforte
Director for Special Projects,
Global Health Council
Introductions
Katy Winckworth-Prejsnar
Co-Chair, NCD Working Group/
National Comprehensive Cancer Network
Kate Doherty
Co-Chair NCD Working Group/
Global ARCH
About Global Health Council (GHC)
$11.3 $12.9
$0.9
$1.2
$9.4
GHC is the leading member organization devoted to advancing global health
priorities by uniting advocates, implementers, policy makers and other
stakeholders.
Non-Communicable Disease (NCD) Working Group
MCH
($1235)
Malaria ($1005)
Health
Security
($670)
FP/RH
($608)
The Working Group serves as a platform where GHC members can share
knowledge, information about NCDs and coordinate advocacy efforts across
organizations. The working group’s current goals include:
● Educate and build awareness around NCDs among USG and other
governments
● Build awareness around the investment case for NCDs among multilateral
agencies
● Align the larger NCD community around engagement with the 2025 HLM on
NCDs
*The GHC NCD Working Group is only open to GHC members in good standing
What are NCDs?
● Noncommunicable diseases (NCDs), also known as chronic diseases, have
common features that relate to health status and health-related treatment:
○ Not transmitted person to person
○ Shared risk factors
○ Co-exist
○ Long latency
○ Long lasting
○ Mortality and Morbidity
○ Non-health consequences
● Some types of NCDs include cardiovascular diseases (such as heart attacks and
stroke), cancers, chronic respiratory diseases (such as chronic obstructive
pulmonary disease and asthma) and diabetes.
What are NCDs? More than just the “Big 4”
● Alzheimer’s disease
● amyotrophic lateral sclerosis (ALS)
● arthritis
● attention deficit hyperactivity disorder (ADHD)
● autism spectrum disorder (ASD)
● Bell’s palsy
● bipolar disorder
● birth defects
● cerebral palsy
● chronic kidney disease
● chronic pain
● chronic pancreatitis
● chronic traumatic encephalopathy (CTE)
● clotting/bleeding disorders
● congenital hearing loss
● Cooley’s anemia (also called beta thalassemia)
● Crohn’s disease
● dental caries
● depression
● Down syndrome
● eczema
● epilepsy
● fetal alcohol syndrome
● fibromyalgia
● fragile X syndrome (FXS)
● hemochromatosis
● hemophilia
● inflammatory bowel disease (IBD)
● insomnia
● jaundice in newborns
● kidney disease
● lead poisoning
● liver disease
● muscular dystrophy (MD)
● myalgic encephalomyelitis/chronic fatigue syndrome
(ME/CFS)
● myelomeningocele (a type of spina bifida)
● obesity
● periodontitis
● primary thrombocythemia
● psoriasis
● seizure disorder
● sickle cell anemia
● sleep disorders
● stress
● systematic lupus erythematosus (also called lupus)
● Sjögren disease
● temporomandibular joint (TMJ) disorder
● Tourette syndrome (TS)
● traumatic brain injury (TBI)
● ulcerative colitis
● vision impairment
● von Willebrand disease (VWD)
Why Focus on NCDs: The Global Burden
Why Focus on NCDs: The Global Burden Cont’
● Each year NCDs take 41 million lives
● 86% of those deaths occur in low and
middle-income countries
● Dual burden of infectious diseases and
NCDs
● 40% of those deaths could have be
prevented
● Poor, vulnerable, and marginalized
populations are most affected by these
conditions
Investments in NCDs
Source: NCD Alliance policy brief https://ncdalliance.org/sites/default/files/resource_files/NCD%20Financing%20Brief_Invest%20to%20Protect_final_web_01.pdf
NCDs on the Global Health and Developmental Agenda
Fireside Chat with Patient
Advocates
Kathy Hammitt
Sjögren's Disease Advocate
USA
Patient Advocates
Hekla Björg
Congenital Heart Disease (CHD) Advocate
Iceland
Moses Echodu
Childhood Cancer Advocate
Uganda
Fireside Chat
What are the biggest challenges you face living with an NCD?
Fireside Chat Con’t
What are the most important issues advocates/other stakeholders should address
in their work?
Questions?
Thank you!
advocacy@globalhealth.org
www.GlobalHealth.Org

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Non-Communicable Diseases (NCD) and Global Health 2024

  • 1. U.S. BUDGET & APPROPRIATIONS 101 February 29, 2024 NON-COMMUNICABLE DISEASES 101 March 27, 2024
  • 2. Welcome & Introductions About GHC and the NCD Working Group NCD Global Landscape Questions Fireside Chat with Patient Advocates Closing Agenda
  • 4. Eliana Monteforte Director for Special Projects, Global Health Council Introductions Katy Winckworth-Prejsnar Co-Chair, NCD Working Group/ National Comprehensive Cancer Network Kate Doherty Co-Chair NCD Working Group/ Global ARCH
  • 5. About Global Health Council (GHC) $11.3 $12.9 $0.9 $1.2 $9.4 GHC is the leading member organization devoted to advancing global health priorities by uniting advocates, implementers, policy makers and other stakeholders.
  • 6. Non-Communicable Disease (NCD) Working Group MCH ($1235) Malaria ($1005) Health Security ($670) FP/RH ($608) The Working Group serves as a platform where GHC members can share knowledge, information about NCDs and coordinate advocacy efforts across organizations. The working group’s current goals include: ● Educate and build awareness around NCDs among USG and other governments ● Build awareness around the investment case for NCDs among multilateral agencies ● Align the larger NCD community around engagement with the 2025 HLM on NCDs *The GHC NCD Working Group is only open to GHC members in good standing
  • 7. What are NCDs? ● Noncommunicable diseases (NCDs), also known as chronic diseases, have common features that relate to health status and health-related treatment: ○ Not transmitted person to person ○ Shared risk factors ○ Co-exist ○ Long latency ○ Long lasting ○ Mortality and Morbidity ○ Non-health consequences ● Some types of NCDs include cardiovascular diseases (such as heart attacks and stroke), cancers, chronic respiratory diseases (such as chronic obstructive pulmonary disease and asthma) and diabetes.
  • 8. What are NCDs? More than just the “Big 4” ● Alzheimer’s disease ● amyotrophic lateral sclerosis (ALS) ● arthritis ● attention deficit hyperactivity disorder (ADHD) ● autism spectrum disorder (ASD) ● Bell’s palsy ● bipolar disorder ● birth defects ● cerebral palsy ● chronic kidney disease ● chronic pain ● chronic pancreatitis ● chronic traumatic encephalopathy (CTE) ● clotting/bleeding disorders ● congenital hearing loss ● Cooley’s anemia (also called beta thalassemia) ● Crohn’s disease ● dental caries ● depression ● Down syndrome ● eczema ● epilepsy ● fetal alcohol syndrome ● fibromyalgia ● fragile X syndrome (FXS) ● hemochromatosis ● hemophilia ● inflammatory bowel disease (IBD) ● insomnia ● jaundice in newborns ● kidney disease ● lead poisoning ● liver disease ● muscular dystrophy (MD) ● myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) ● myelomeningocele (a type of spina bifida) ● obesity ● periodontitis ● primary thrombocythemia ● psoriasis ● seizure disorder ● sickle cell anemia ● sleep disorders ● stress ● systematic lupus erythematosus (also called lupus) ● Sjögren disease ● temporomandibular joint (TMJ) disorder ● Tourette syndrome (TS) ● traumatic brain injury (TBI) ● ulcerative colitis ● vision impairment ● von Willebrand disease (VWD)
  • 9. Why Focus on NCDs: The Global Burden
  • 10. Why Focus on NCDs: The Global Burden Cont’ ● Each year NCDs take 41 million lives ● 86% of those deaths occur in low and middle-income countries ● Dual burden of infectious diseases and NCDs ● 40% of those deaths could have be prevented ● Poor, vulnerable, and marginalized populations are most affected by these conditions
  • 11. Investments in NCDs Source: NCD Alliance policy brief https://ncdalliance.org/sites/default/files/resource_files/NCD%20Financing%20Brief_Invest%20to%20Protect_final_web_01.pdf
  • 12. NCDs on the Global Health and Developmental Agenda
  • 13. Fireside Chat with Patient Advocates
  • 14. Kathy Hammitt Sjögren's Disease Advocate USA Patient Advocates Hekla Björg Congenital Heart Disease (CHD) Advocate Iceland Moses Echodu Childhood Cancer Advocate Uganda
  • 15. Fireside Chat What are the biggest challenges you face living with an NCD?
  • 16. Fireside Chat Con’t What are the most important issues advocates/other stakeholders should address in their work?