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                                                                                      Autumn 2012
                                                                                      www.alzheimers-brace.org




Increasing                                           Silver                                       Light in the
understanding                                        fundraisers                                  darkness
Andrea Tales on research made                        Rising to our 25th anniversary               A personal insight from a
possible by your funding, page 8                     fundraising challenge, page 4                dementia campaigner, page 12




 Jo Earlham, top, with her father,
 bottom, with her local MP, Hugo Swire.      Running For Brace
        Jo Earlam, a keen                 As a child I wasn’t good
                                                                            “I’ve set
                                                                                               advice was always
                                          at competitive sport but                             the same: “It’s only pain, it
         marathon runner,                 we were an active family,       myself a target      won’t kill you!”
      talks about why she                 always walking together,            to run
                                          cycling, swimming and           50 marathons         It’s a mantra I’ve repeated
        is running to raise                                                                    to myself many times
                                          occasionally running.            by the time
        money for BRACE.                                                     I’m 50”
                                                                                               on long distance walks,
                                          My Dad always took                                   cycles and other physical
                                          part and was a prime                                 challenge events.
                                          motivator. However hard I
                                          pushed myself, Dad would                             Running was always the
                                          always push me harder. When                          thing I least enjoyed,
                                          I complained – as I often did – his                  continued on page 2

1 | BRACE 	                                                                                     www.alzheimers-brace.org
continued from page 1

but I had a long held fascination with the London
Marathon, and thought it a good way to celebrate
                                                          I built my marathon tally up slowly – 18 months later
                                                          doing my second, then gradually more including
                                                                                                                          Jack’s Lads Triumph on Golf Day
being 40.                                                 Edinburgh, Belfast, Paris and last November, my 10th,          Yet another superb Golf Day – lovely weather, the Henbury
                                                          New York.
That was back in 2005, the plan being to do it as a                                                                      course immaculate and over £3,700 raised for BRACE.
one-off – tick that ambition as achieved.                 Around the same time I learnt that Dad, who’s 70, has
                                                          vascular dementia. I lost my two grandmothers, my
It was the hardest thing I’d ever done, but somehow       mother-in-law, and a dear friend to Alzheimer’s, and
the long hours of training turned into a liking for       two years ago another friend in his 50s was diagnosed
running, that has since developed into a deep passion.    with PCA, the same type of dementia as the author
                                                          Terry Pratchett.

                                                          I think it was fate to secure a charity place for BRACE
                                                          in the 2012 London Marathon, where I was delighted to
                                                          get a PB of 04:05:07, and know that Dad was proudly
                                                          watching on the television.

                                                          As a long time charity fundraiser, it seems totally
                                                          relevant now to focus on trying to help overcome
                                                          dementia. I especially want to support BRACE because
                                                          it is funding vital work to find a cure for this terrible
                                                          brain crippling disease.

                                                          When I see my Dad suffering – and my mum as his carer
                                                          too – I feel sorrow for them both.                             One of the things that made this Golf Day extra         topped off by my lads wining the trophy – Jack would
                                                                                                                         special was that the winners were “Jack’s Lads”, the    be very proud of them. We’ve had such a fantastic
                                                          When I run, yes I do feel pain, but it’s a different kind      sons and grandsons of BRACE Trustee and volunteer       day, the weather was perfect and the atmosphere
                                                          of pain, a kind that won’t kill you, a kind you can run        Susan Marshfield. Tim and Jon Marshfield and their      was so supportive.”
                                                          through and overcome.                                          sons Tom (aged 20) and Billy (aged 16), beat 22 other
                                                                                                                         teams to lift the trophy.                               Many thanks to everyone who took part or helped
                                                          That’s why I’ve set myself a target to run 50 marathons                                                                in any way and to Henbury Golf Club for hosting
                                                          by the time I’m 50 in 2015 – currently 37 to go!               Susan’s husband Jack died from dementia in 1993         the tournament. Special thanks, as always, go to
                                                                                                                         and she has given BRACE great service ever since,       Roger and Pat Higgins and their team, committed
                                                          And that’s why I’m choosing to raise money for BRACE.
                                                                                                                         including many years as a Trustee. She said, “It’s      volunteers who make this event happen year on year.
                                                          www.justgiving.com/Jo-EarlamBRACE                              wonderful that my time working with BRACE could be


                                                                                   January 2013
    Programme of Events 2012/2013                                                  Wed 9	
                                                                                         Story of Weston
                                                                                                                         The BRACE Trustees said thank you but
                                                                                                                         not farewell to Susan Marshfield in July.
    Please check the events page on our website for updates                              (BRACE is supported charity,
                                                                                         details t.b.a.)	                Susan has been a Trustee for ten years
SEPTEMBER                                 November                                                                       and a volunteer for even longer, and has
Sun 23	 A Night to Remember’ 25th
        ‘                                 Sat 10	
                                                 Linda Alvis’s Christmas
                                                                                   February                              decided to step down from the Board of
        Anniversary evening. The                 Bazaar, Special guest Don                                               Trustees later this year.
        Tobacco Factory Theatre,                 Cameron, 94 Worrall Road,         Thu 28	 Capsule in a case” at
                                                                                          “
        Bristol, 6.30pm                          Clifton 11am to 4pm                      Elizabeth Hall, Hambrook       After thanking her for all her hard work, the
                                                                                          – 10.30am – watch out for      Trustees invited Susan to accept the new position of
Sat 29 	 ollection at Co-op,
        C                                 Sat 10	
                                                 Christmas Card Charity Sale,
                                                                                          further details                President of the charity. We are delighted to report
        Portishead                               Somerset Hall, High Street,
Sun 30 	Bristol Half Marathon                    Portishead 10am to 12 noon                                              that Susan has accepted!




                                                                                                                        President Susan!
                                                                                   April 2013
OCTOBER                                   DECEMBER                                Sat 28 	
                                                                                          Spring Concert at St
                                                                                          George’s, Bristol
Sat 6	 Autumn Fair, Newman Hall,        Sun 9	 BRACE Carol Service, St Mary
                                                                                          Julia Hwang and The Bristol
        Westbury-on-Trym,                        Redcliffe Church, 3pm
                                                                                          Male Voice Choir 3pm
        10am – 12.30pm                   Tue 11	Collection at Tesco,                                                    Susan said, “I was taken completely by surprise
Fri 19 and Sat 20                                Kenn Road, Clevedon                                                     when I was asked to take on this role, and it’s a
	      Collection at Morrisons,         Wed 12 and Thurs 13	                      MAY 2013                              great honour. I shall still be helping BRACE as a
        Fishponds                        	      Collection at Tesco Golden       mon 13 	 RACE Annual Meeting at
                                                                                          B                              volunteer and speaker, of course, and I hope to
Sat 20	Card Sale – Backwell Parish              Hill, Horfield, Bristol                  Mercure Bristol North (The     encourage more people to join the fight against          BRACE Chairman Alan Parsons presents Susan Marshfield
        Hall 10am-12 noon                                                                 Grange) from 7pm               Alzheimer’s.”                                            with a bouquet after the Trustees’ meeting in July




2 | BRACE 	                                                                             www.alzheimers-brace.org        call the BRACE appeal office on 0117 340 4831 	                                                       Autumn 2012 | 3
Students in UWE’s Medical Science Society
                                                     organised a sponsored “bounce” on a bouncy castle.
                                                     They kept this going in relays over 24 hours, a
                                                     dizzying experience. Further activity is planned for
                                                     the autumn with the new intake of students.                                                                 Matt Harris, a young photographer
                                                                                                                                                                 with his own business in Yate,
                                                                                                                                                                 dedicated a weekend to taking
                                                                                                                                                                 portraits with all proceeds to
                                                                                                                                                                 BRACE. He raised £500. Matt did         Staff at Western Power
                                                                                                                                                                 this in memory of his grandfather,      Distribution found out
                                                                                                                                                                 a former professional footballer        about Silver Service
                                                                                                                                                                 who died last year after a long         after holding a cake




                           Silver
                                                                                                                                                                 battle with Alzheimer’s. Matt was       sale for BRACE. The sale
                                                                                                                                                                 supported by local MP and Pensions      raised £125 and, having
                                                                                                                                                                 Minister, Steve Webb.                   joined the fundraising
                                                                                                                                                                                                         campaign, they quickly
                                                                                                                                                                 Matt said “My grandad was such an       took their contribution
                                                                                                                                                                 inspiration to me. After he became      to £750.




                           fundraisers!
                                                                                                                                                                 ill I realised how important it is to
                                                                                                                                                                 work hard and achieve something
                                                                                                                                                                 with my life. My business is going      Some supporters have
As the year has gone                                                                                                                                             from strength to strength and I         raised funds in the
                                                                                                                                                                 wanted to give something back to        course of their work.
on, we have steadily                                                                                                                                                                                     Doveton Press, who
                                                                                                                                                                 support the great work that BRACE
built up the list                                                                                                                                                does for Alzheimer’s research.”         print this Newsletter,
of businesses and                                                                                                                                                                                        are collecting donations
community groups                                                                                                                                                                                         from customers by
committed to               Toni and Ashley from                                                                                                                                                          inviting them to add
                           TS Staff Training                                                                     Nine members of staff at Fishponds       with Alzheimer’s patients every day,           a voluntary £1 top
raising at least                                                                                                 Family Medical Practice entered the      so it’s a cause that is really close to        up when they pay
                           completed a skydive
£500 for BRACE by          for BRACE in July. Two                                                                Bristol 10k race. They also produced     our hearts.”                                   their invoices. Avanti
31st December.             of their colleagues                                                                   one of the most striking photos we                                                      Hygiene are making
                                                                                                                 have been sent. Rachel Wring, a          At time of writing, we do not yet have         a regular monthly
                           were prevented by bad
                                                                                                                 phlebotomist, says, “Everyone at the     the final total from their fundraising,        donation to BRACE.
Those taking part          weather from joining
                                                                                                                 practice knows someone who has been      but it runs to many hundreds of
                           them but are planning a
have shown flair and                                                                                             affected by Alzheimer’s, and we work     pounds and is still rising.
                           jump later in the year.                                                                                                                                                       We can’t do justice to
imagination in their       This is actually the                                                                                                                                                          all our Silver Service
fundraising, and we        second successive year                                                                                                                                                        fundraisers here, but we
hope they are also         that this company has                                                                                                                                                         hope that these selected
having fun doing it!       chosen BRACE as its                                                                                                                                                           highlights give an idea
                           supported charity.                                                                                                                                                            of what is happening. In
                                                                                                                                                                                                         our next Newsletter, we
                                                     On joining the campaign IOP Publishing immediately
  Among the first to                                                                                                                                                                                     expect to report on some
                                                     increased their target to £5,000 and planned a series
  pass their £500 target                                                                                                                                                                                 exciting fundraising by
                                                     of fundraising events. These started with a “pub quiz”
  were the residents                                                                                                                                                                                     schools and churches as
                                                     held in their office, which raised over £500. IOP’s
  of Plowright House,                                                                                                                                                                                    well as businesses.
                                                     next event was a staff social based around watching
  a sheltered housing                                European Championship football on television.                                                                                                       We welcome newcomers
  complex in Hanham,
                                                                                                                                                                                                         to the Silver Service
  South Gloucestershire.                             Further events were organised in July and one of
                                                                                                                                                                                                         campaign right up to
                                                     their staff, Phil Semple, took part in a 24 hour off
                                                                                                                                                                                                         the end of the year,
                                                     road relay race. He covered an astonishing 120 km
                                                                                                                                                                                                         please contact the BRACE
                                                     (75 miles). He finished with blisters and aching limbs,
                                                                                                                                                                                                         appeal office if you are
                                                     and hobbled over the finishing line with the aid of a
                                                                                                                                                                                                         interested.
                                                     borrowed walking stick. We applaud his commitment
                                                     and endurance.

                                                     As we complete this Newsletter, IOP’s fundraising has
                                                     already reached £4,000 for the year.

4 | BRACE 	                                                                      www.alzheimers-brace.org      call the BRACE appeal office on 0117 340 4831 	                                                    Autumn 2012 | 5
Sponsored events round up
                                             Jamie Tippett with
                                             young supporters
Gillian Tayler
prepares to run the
London Marathon




                                                                                                                                                                                           Nina Barrett and Darin Melville were
                                                                                                                           Clair Morris looking amazingly                                  dubbed “Supergran and Superman”
                                                                                                                           energetic after 18 miles!                                       by their local newspaper)



                              The most high profile of all           Neil Drew was due to run in the 2011    Supporters around the country            The BUPA 10k in May followed
                              sponsored events in the UK is the      marathon but was injured shortly        found events where they could            part of the route of the Olympic
                              London Marathon. We have five          beforehand in a tragic road accident    raise funds for BRACE. Jon Hartnoll      Marathon and we were represented
                              Gold Bond places but, with a place     which cost a friend his life. Neil      ran the Forest of Dean Half              by Vicky Ledbury and Stella Kench.
                              carried forward and five runners       was determined to complete the          Marathon, while Daniel Buttress
This year, more people are    securing their own places, no fewer    challenge he had set himself, feeling   ran in both Brighton and Reading.        Many of our participants in
coming forward to raise       than eleven wore the BRACE logo        that he owed it all those who had                                                sponsored events are caring for
money for us by taking        this year. Nina Barrett, Nicola        sponsored him. His achievement is       Chris Rudall, from Worcestershire,       someone with dementia or are
                              Greenwood, Ann Gill, John Cowham,      all the more remarkable considering     ran the Blakedown Bolt (a 10,000         raising funds in memory of a loved
part in sponsored events.     Jamie Tippett, Gillian Tayler, Jo      that he ran a marathon in Bristol       metre run) in June and, as we go         one. We haven’t told their stories
We can’t thank all of them    Earlam, Clair Morris, Lysander         three days earlier and then cycled to   to print, is preparing for a 95 mile     here, but we admire the courage
properly in the limited       Bryant, Tricia Blackborow and Neil     London for his second marathon!         slog from Blakedown to Cardiff.          and determination they showed
                              Drew – we are extremely grateful to                                            Chris, who is in the RAF, showed         in trying to make sure that future
space available here,                                                The outstanding fundraiser this year    his versatility by running a cake        generations do not need to suffer
                              all of you.
though we have done our                                              was Nina Barrett. With her friends      stall with his mother-in-law to          in the same way.
best to keep pace with        Between them, they raised over         Darin Melville, Nicola Greenwood        supplement the funds raised in the
                              £15,000.                               and Ann Gill (the last two wearing      race itself.                             More sponsored fundraising is
them online! We hope that                                                                                                                             featured in our Silver Service
                                                                     BRACE vests in the marathon) she
this selective roundup will   Jo Earlam’s fundraising efforts        raised an astonishing £6,414. As well   Heidi Simms and Esther McPhee,           report on pages 4 and 5.
serve as a thank you to all   outside the marathon deserve as        as sponsorship, they gathered money     colleagues in an Exeter salon, took
                              much of a mention as the run itself.   through various fundraising events,     part in the Great West Run and
of them, who never cease
                              She has contributed greatly to         including a Christmas present           exceeded their fundraising target
to amaze and inspire us.      promoting the cause through media      wrapping session in which people        by a good distance.
                              coverage in Devon, and you can read    donated a minimum of £1 to have a
                              something of her story elsewhere in    present wrapped by an expert!
                              this issue.


6 | BRACE 	                                                                  www.alzheimers-brace.org        call the BRACE appeal office on 0117 340 4831 	                                               Autumn 2012 | 7
Many people who attend memory clinics are given a
                                      diagnosis of mild cognitive impairment. This disorder
                                      is most associated with an increased risk of developing
                                      dementia, especially Alzheimer’s disease and
                                      vascular dementia.

                                      As yet there is no definitive way to distinguish between
                                      those individuals with mild cognitive impairment who
                                      will and will not develop dementia. Consequently,
                                      research priority tends to be focused upon improving
                                      the early diagnosis of dementia in individuals with mild
                                      cognitive impairment as drug and other interventions
                                      are likely to be of most benefit at the earliest stages of
                                      the disease process.



Increasing our understanding of mild cognitive impairment
                                            by Andrea Tales
                                      In this context, our BRACE-            (sometimes irrespective of whether     of the brain and provides a simple test      colleagues) are close to completing
                                      funded multi-disciplinary research     they develop dementia or not)          of such integrity. We have also used         our study examining the physiological        “These
                                      approach (see below) has revealed      and such findings indicate that for    such techniques to investigate the           and structural basis of vision and
                                      that the memory and cognitive          some people with mild cognitive        brain’s ability to process moving stimuli,   attention-related processing and how         research
                                      dysfunction used to define mild        impairment may impact upon             objects and shadows.                         their integrity are affected by healthy      findings have
                                      cognitive impairment can be            behaviours such as driving and                                                      ageing, Alzheimer’s disease and vascular
                                      accompanied by breakdown in            even walking about (both of which      Electroencephalography (EEG): We have        cognitive impairment.                        been made
                                                                                                                    used this technique to show that very
                                      the integrity of many additional       are highly dependent upon vision
                                                                                                                    early or low level visual and attention-     Our aim now is to continue to apply
                                                                                                                                                                                                              possible by
                                      elements of brain activity not         and attention).
                                      typically examined during diagnosis.                                          related processing previously thought        our research findings to real-life issues    a long-term
                                      These include various aspects of       These research findings have been      to be preserved in mild cognitive            such as improving the early diagnosis of     BRACE-funded
                                      vision and attention-related brain     made possible by a long-term           impairment and dementia can in fact be       dementia, differentiating between the
                                      function. Our longitudinal research    BRACE-funded research programme        significantly abnormal. In conjunction       various forms of dementia at an earlier      research
                                      has shown that some of these           involving the collaboration of many    with funding from the BBSRC we are           stage of the disease and understanding       programme”
                                      visual and attention problems are      scientists, clinicians, patients and   now using this technique to examine the      how abnormalities in visual and
                                      worse in people with mild cognitive    control participants and helpers,      integrity of visual and auditory function    attention-related processing can cause
                                      impairment who develop dementia;       and employing a multidisciplinary      in Lewy body dementia, vascular              real-life problems in behaviours such as
                                      the use of such tests may therefore    research methodology approach          dementia, Alzheimer’s disease, mild          driving and walking.
                                      improve its early diagnosis.           using techniques such as:              cognitive impairment and cognitively
                                                                                                                    healthy ageing.                              Indeed, how vision and attention affect
                                      However, as visual and visual          Eye tracking: which involves the                                                    the ability of older adults to walk safely
                                      attention-related function forms       measurement of how our eyes move       Methodology: It is really important to       through their surroundings is being
                                      the basis for environmental            and how our pupils work; both of       ensure that our research is valid and        investigated in our new study led by
                                      awareness, interpretation,             which are important indicators         we have investigated many factors that       Ute Leonards and Judy Haworth; using
                                      perception, cognition, memory and      of attention and information           can detrimentally affect the outcome         state-of–the-art technology and real-
                                      behaviour, when these processes        processing.                            research and its clinical applicability.     life walking situations. The outcome of
                                      go wrong the consequences can                                                                                              this study will help us to determine why
          Andrea Tales is a Senior    be serious. Our research has           Computer-based reaction time tests     Magnetoencephalography (MEG)                some older adults and patients with mild
           Research Fellow at the     indicated that people with mild        (psychophysics): Variability in a      structural magnetic resonance imaging        cognitive impairment and dementia are
         University of Bristol and    cognitive impairment may also          person’s reaction time in response     (MRI): In Cardiff, we (Aline Bompas,         at an increased risk of falls.
           moves to a new role as     experience significant problems in     to a given task is related to the      Tony Bayer, Krish Singh, myself and
       Senior Lecturer at Swansea     some of aspects of brain function      integrity of the white matter tracts
        University later this year.



8 | BRACE 	                                                                           www.alzheimers-brace.org      call the BRACE appeal office on 0117 340 4831 	                                               Autumn 2012 | 9
A year of celebration                                                                                                    Competitions
                                                                                                                         update
                                                                                                                                                                 A “golden age” for
                                         BRACE has celebrated its                If you read this article before 23rd
                                                                                 September, there might still be
                                                                                                                         In our 25th anniversary year
                                                                                                                         we had an extra prize for the
                                                                                                                                                                 dementia research
                                                                                                                                                                 in Bristol
                                         silver anniversary with                 time to book a place at “A Night        Silver Service competition so
                                         three special events.                   to Remember” at the Tobacco             we had two winners, Mrs Julie
                                                                                 Factory, Southville, Bristol. This      McLaren from Yate, South
                                         Two have already
                                                                                 starts with a sparkling reception       Gloucestershire and Mrs Hilda
                                         taken place and the                     at 6.30pm, followed by a show by        Long from Cowbridge. Both
                                         third is due to happen                  The Opera Dudes and The Jimmy           winners received a £25 gift             Dementia research
                                                                                 the Lip Allstar Band. Tickets at £25    voucher together with a BRACE
                                         very shortly after this                 are available from the Tobacco          Silver Service pen.
                                                                                                                                                                 in and around Bristol
                                         Newsletter is published.                Factory on 0117 902 0344 or www.                                                could be entering
                                                                                                                         The winner of the July
                                                                                 tobaccofactory.com.
                                                                                                                         competition, Actors, will be
                                                                                                                                                                 a “golden age”,
                                         The “Noel with Cole” concert in
                                         March and the Anniversary Coffee        We are very grateful to the             announced in our next issue.            according to Seth
                                                                                 members of the Support Committee        The prize, two tickets to
                                         Morning in May were both a great
                                                                                 and the other volunteers who            see Aladdin at the Bristol
                                                                                                                                                                 Love, Professor of
                                         success, raising over £3,000
                                         between them. The concert               have worked so hard over several        Hippodrome was generously               Neuropathology at the
                                                                                 months to make these                    donated by the Bristol
                                         was performed by Three Men’s
                                                                                 events happen.                          Hippodrome.
                                                                                                                                                                 University of Bristol
                                         Company, with a selection of pieces
                                         by Noel Coward and Cole Porter. It
                                                                                                                                                                 and scientific adviser
                                                                                                                         Our latest competition is
                                         raised £2,288.
                                                                                                                         enclosed and the lucky winner
                                                                                                                                                                 to BRACE.                                               “Without
                                                                                                                         will receive two tickets to Snow
                                         The coffee morning took place at
                                                                                                                         White and the Seven Dwarfs at           In an interview in May with Vicki                       BRACE we
                                         the St Monica Trust’s magnificent
                                         premises in Cote Lane, Bristol.                                                 the Theatre Royal, Bath together        Mathias, health reporter for The                        would not
                                                                                                                         with a copy of the 2013 BRACE           Post, Seth talked of the research
                                         With a variety of stalls and a talk
                                                                                                                         calendar. Thank you to the              being carried out by the Bristol                        exist.”
                                         about the history of St Monica’s, it
                                                                                                                         theatre for donating the tickets.       Dementia Research Group,
                                         raised £1,050.
                                                                                                                                                                 including at the SW Dementia Brain
                                                                                                                         Good luck!                              Bank at Frenchay Hospital. This
                                                                                                                                                                 includes work on the removal of        We are now in a position to
                                                                                                                                                                 amyloid from the brain, improving      take some of the research
www.alzheimers-brace.org                                                                                                                                         blood flow to the brain and the
                                                                                                                                                                 possibility of a major drug trial.
                                                                                                                                                                                                        advances that we have made
                                                                                                                                                                                                        here with them, and translate
                                                                                                                                                                                                        it into treatments for patients
The web address might not have                                                                                                                                   Looking back at what has been          with dementia.”
changed, but the BRACE website                                                                                                                                   achieved over the past quarter of
                                                                                                                                                                                                        BRACE currently supports
                                                                                                                                                                 a century, Seth said, “For quite a
has had a makeover and now                                                                                                                                       while now we have been one of          research at the Universities
looks very different!                                                                                                                                            the leading pre-clinical dementia      of Bristol, Bath, Cardiff and
                                                                                                                                                                 research groups in the UK with a       the West of England (UWE).
                                                                                                                                                                 strong international reputation,       By focusing its resources on this
The Internet has changed a lot in the last few years,                                                                                                                                                   limited geographical area, the
                                                                                                                                                                 and to a large extent that is down
particularly in the rise of social media, and people’s                                                                                                                                                  charity has been able to help
                                                                                                                                                                 to BRACE who have been funding
expectations of a website are very different as a                                                                                                                                                       develop a network of world class
                                                                                                                                                                 and providing core support for
result. We have tried to make our site welcoming,                                                                                                                                                       research teams.
                                                            Social media – follow the links from the foot of our                                                 many years.
attractive, informative and interactive.
                                                            home page and follow us on Facebook or Twitter.
                                                                                                                                                                 “Without BRACE we would not            Whatever the geography
A great way to help BRACE online is to make use of          If you have a Facebook or Twitter account, you can
                                                                                                                                                                 exist. As a result of the work which   of the research, of course,
the opportunities for interaction that we provide.          also use the buttons on any page, including news and
                                                                                                                                                                 has been done with the support         the beneficiaries are people
These include:                                              events reports, to let your friends and contacts know
                                                                                                                                                                 of the South West Dementia Brain       anywhere in the world who might
                                                            about the charity and its work.
The memories page – follow the link from the home                                                                                                                Bank and BRACE funding, I think we     one day develop dementia.
page to record a treasured memory and help show             Our blog – again, there is a link at the foot of our                                                 are really entering a golden age in    Charity begins at home, but it
what we are fighting to save.                               home page for you to follow our blog.                                                                dementia research here in Bristol.     knows no boundaries!


10 | BRACE 	                                                                             www.alzheimers-brace.org       call the BRACE appeal office on 0117 340 4831 	                                                   Autumn 2012 | 11
News in brief...
                                                                                                                Community group
                                                                                                                the Nailsea Lions
                                                                                                                Club raised £700 for
                                                                                                                BRACE in the spring.
                                                                                                                Karen Zold and
                                                                                                                Club President Chris
                                                                                                                Cadwgan are seen
                                                                                                                here presenting the
                                                                                                                cheque to BRACE
                                                                                                                Chief Executive
                                                                                                                Mark Poarch.


                                                                                                                                                                                          Three members of Chipping
                                                                                                                                                                                          Sodbury Rotary Club cycled
                                                                                                                                                                                          from John O’Groats to Lands
                                                                                                                                                                                          End and raised £3,650. BRACE

Finding light in the darkness                                                                                                                                                             was very grateful to be chosen
                                                                                                                                                                                          to receive a third of this
                                                                                                                                                                                          money. Richard Kingscott
     Beth Britton,    My father often said when I was a child     In my father’s case, his lengthy battle                                                                                 (left) presented cheques to
                      that if he was ever ill he would much       with dementia ended in April 2012, less                                                                                 Mark Poarch (second left) and
       a freelance    rather be treated by a vet than a doctor.   than two weeks after his 85th birthday.                                                                                 representatives of BrAMS and
   feature writer     Back then it was an amusing one liner       That he suffered with this disease for so                                                                               local scouts and guides.
                      from a farmer and man of the country,       long is largely down to the fact that his
    and dementia      but it turned out to be a poignantly        body, in the most part, was extremely
      campaigner,     insightful look into his future, because    strong. He could have had a long and
                      to try and work out what he wanted,         very happy retirement if he hadn’t
 gives a personal     needed and felt during much of the          been let down by his brain, slowly and
       insight into   19 years he suffered from vascular          very cruelly.
                      dementia required the skills of a vet;
      her father’s    someone who tries to understand and         Although dad’s battle is over, sadly
   lengthy battle     treat their patients without any help       for so many others, their struggle is
                      whatsoever from the patient.                just beginning. The work of BRACE is          BRACE was honoured to be            lovely way to thank some of the
    with vascular                                                 vital in helping to find out what causes      invited to the Bristol premiere     people who do so much for the
         dementia     Year by year dementia locked away parts     dementia, how it can be diagnosed             of the new Aardman animation,       charity. A big surprise was the
                      of dad’s brain that no one had the key      quicker and treated more effectively,         The Pirates, by director Peter      attendance of Hugh Grant,
                      to. He was no longer in our world in        and ultimately how it can be prevented.       Lord. We were given 50 tickets      who voiced the pirate captain
                      the same way that we were never truly                                                     for supporters. It was not a        in the film.                           The BRACE stall at the annual
                      in his, and in attempting to bridge this    I effectively began to lose my father         fundraiser, but an unusual and      Photo © Evening Post
                                                                                                                                                                                           Frenchay Flower Show in July
                      divide we, as a family, had to become       when I was just 12 years old; we silently
                      expert interpreters. All the love, care     mourned his loss while he was with us,
                      and dedication in the world, however,       and now we mourn all over again. BRACE                                                           The BRACE stall
                      still leaves you feeling you could always   can play a massive part in ensuring that                                                                                  As we go to print,
                                                                                                                                                                   at the Portishead
                      have done more.                             other families do not go through what                                                                                     Corina Hawkins,
                                                                                                                                                                   Flower Show. A big
                                                                  we have been through. Dementia will                                                                                       originally from North
                                                                                                                                                                   ‘thank you’ to our
                      I have heard it said that with dementia     one day be beaten if everyone recognises                                                                                  Somerset, is about to
                                                                                                                                                                   hardworking team
                      the mind passes away long before the        the insidiousness of this disease, and                                                                                    run a 12k race in Perth,
                                                                                                                                                                   of volunteers in
                      body ever does, and that is the painful     backs the work that can end the hold it                                                                                   Western Australia.
                                                                                                                                                                   Portishead, who
                      reality both for the person battling the    is taking on so many lives.                                                                      raise funds and
                      disease and, more acutely, their loved                                                                                                                                How far can you take
                                                                                                                                                                   promote the charity
                      ones watching their decline, powerless      You can follow me on Twitter:                                                                                             fundraising for BRACE?
                                                                                                                                                                   throughout the year.
                      to prevent it.                              @bethyb1886



12 | BRACE 	                                                                     www.alzheimers-brace.org     call the BRACE appeal office on 0117 340 4831 	                                              Autumn 2012 | 13
In memoriam
 It seems fitting that                Relatives of people who have           2010 and 2011, BRACE received
                                      died with dementia often want          donations of this sort totalling
 one of the ways                      to remember the passing of their       over £16,000. A similar level of
 people support a

                                                                                                                                           Counting our Chicks
                                      loved ones by supporting research      income seems likely this year.
 dementia research                    that may one day save others from
                                                                             Others remember a loved one,
                                      suffering in the same way.
 charity is by giving                                                        often months or even years
                                      Increasingly, we receive donations     after their passing, by raising
 money “in memory”.                   collected at funerals or organised     money through participation in a      It was last century when                    Mary Sansbury started the Chick             Isn’t it amazing what you can do
                                      among friends and relatives            sponsored event.                                                                  Campaign off in 1999 and handed             with a ball of wool and a pair of
                                      after someone has died. In both                                              the BRACE Easter chick                      over the project in 2004 to Carol           knitting needles? If you are a keen
                                                                                                                   first flew into our lives.                  Seel and Gill Bonham who still run          knitter and would like to help out,
                                                                                                                                                               the Chick Packing Station today.            there is an easy pattern which the
                                                                                                                                                                                                           BRACE Appeal Office can send to
                                                                                                                   The first mention of Chicks in our
                                                                                                                                                               In this the 25th Anniversary year of        you by post or email and we would
                                                                                                                   records is in 1999 and they have
                                                                                                                                                               BRACE, we are delighted to have             be very grateful for some early
                                                                                                                   been flying the nest for BRACE ever
                                                                                                                                                               raised the highest sum ever – over          contributions of Chicks in January
                                                                                                                   since. We know they have gone to
                                                                                                                                                               £2,000! Literally thousands of              or earlier, ready for Easter 2013.
                                                                                                                   Aberystwyth and Southampton, to
                                                                                                                                                               Chicks have been sold since 1999
                                                                                                                   France and California, as well as
                                                                                                                                                               and we think you will be as amazed
                                                                                                                   taking up residence in Winterbourne
                                                                                                                                                               as we were to discover that the             Cheep cheep!
                                                                                                                   and Westbury-on-Trym!

Report on legacies
                                                                                                                                                               total amount raised is £19,252!             by Bee Lang, BRACE volunteer
                                                             Don’t miss the
The biggest single source of income                          BRACE Autumn Fair                                     BRACE donation and contact form
for BRACE is legacies. Every year,                                                                                 Return to BRACE Appeal Office, Frenchay Hospital, Bristol BS16 1LE
we receive money that people have                            Saturday 6th October 2012                             You can donate by credit or debit card online – www.alzheimers-brace.org
                                                                           from 10am to 12.30pm.
left in their will to continue their                                                                                   	 lease find enclosed a donation of £____ to BRACE.
                                                                                                                       P
support of dementia research after                               Newman Hall, Grange Court Road,                   	Thank you for your donation. If you are a UK taxpayer             Gift Aid declaration – for past, present and
they have died.                                                  Westbury-on-Trym, Bristol BS9 4DR.                  please complete the Gift Aid Declaration and BRACE                future donations to BRACE
                                                                                                                     can recover the tax at no extra cost to you.                      Please treat as Gift Aid donations all qualifying gifts
                                                                                                                       	Please contact me: I’d like to know more about:                of money made        today         in the past 4 years
In 2010, we received £275,000, but even this figure was                Many stalls including:
                                                                                                                                                                                        in the future. Please tick all boxes you wish to apply.
dwarfed by the £523,000 we received in 2011.                                Beauty  Bath,                         	         “Adopting” BRACE at work/school/other
                                                                                                                       	                                                               I confirm I have paid or will pay an amount of Income Tax and/or
                                                                          Second-hand Books,                       	         Volunteering to help with collections or events           Capital Gains Tax for each tax year (6 April to 5 April) that is at least
Sometimes BRACE receives a sum specified by the                                                                        	
                                                                      Bric-a-brac, Cakes  Jams,                   	         Taking part in a sponsored event                          equal to the amount of tax that charities will reclaim on my gifts
person who made the will. This could be a small                                                                                                                                        for that tax year. I understand the charity will reclaim 25p of tax on
donation but can also run into thousands or even tens                  Collectables, Jewellery,                        	Please add me to your newsletter mailing list                  every £1 that I give.

of thousands of pounds. The biggest legacies we receive             Plants  Shrubs, Toys  Games                                                                                      SIGNATURE	Date
                                                                                                                   Full name
are generally where we have been left the residue (or a                                                                                                                                Please notify BRACE if you: • Want to cancel this declaration
share of the residue) of someone’s estate.                 The new range of BRACE Christmas cards and                                                                                  • Change your name or home address • No longer pay sufficient tax on
                                                                                                                   Address                                                             your income and/or capital gains.
                                                               2013 BRACE calendar will be on sale
Even people who would not be considered well off                                                                                                                                       If you pay Income Tax at the higher or additional rate and want to
                                                                                                                   	                                                                   receive the additional tax relief due to you, you must include all
can make a big difference to dementia research by                          Refreshments available                                                                                      your Gift Aid donations on your Self Assessment tax return or ask HM
remembering BRACE in their will. If you would like to                                                              	                               Post Code                           Revenue and Customs to adjust your tax code.
help BRACE in this way, you can obtain a copy of our        We look forward to seeing you!                         If you would like us to contact you, please supply:                 We will keep a record of your donation/enquiry but will not contact
“Guide to Making or Changing a Will” by contacting the           With thanks to CJ Hole Henleaze for their                                                                             you unless you have agreed that we can.
office or downloading from this page on our website                   sponsorship of the Autumn Fair               daytime tel no                                                      Please tick this box if you would like to receive a
www.alzheimers-brace.org/legacies.
                                                                                                                                                                                       written acknowledgement:
                                                                                                                   and/or email
                                                                                                                                                                                       Registered Charity 297965


14 | BRACE 	                                                                            www.alzheimers-brace.org   call the BRACE appeal office on 0117 340 4831 	                                                                    Autumn 2012 | 15
It’s that time of year again!
Our Christmas cards are piled high on the shelves ready
for the first orders which come flooding in after the
newsletter is sent out. You can see this year’s selection
on the enclosed Christmas leaflet.


Calendar
and Cards
As always, Brian Sanders has come up
trumps with a wonderful picture of Royal
York Crescent. This is the 18th year
Brian has supported BRACE in this way.
However, this year, Brian has also very
generously donated the original pastel
drawing for sale.

The pastel measures approx.
430mm x 310mm, unframed.
We are inviting sealed bids by post,
marked “picture auction”.                    Below, Brian Sanders’ latest Christmas card. Above, images from our 2013 calendar.

If you are interested in purchasing the      “If you have personal memories
drawing or would like to view the original   of any of the photos in the                    A list of events at which
please contact the BRACE Appeal Office.      calendar, please contact us.                   cards and calendars will
As a guide we are putting a reserve of       It brings the photos to life.”                 be available is shown on
£300 on the picture. Bids close on 31st                                                     page 2.
October. Brian has also donated four of      Please support BRACE by buying
his earlier pastels and we shall shortly     our cards and calendar and take                Cards and Calendar will also
be giving details about their sale on our    advantage of this opportunity                  be available from:
website.                                     to own one of Brian Sanders’
                                             original pastels.                              Haigh  Son, Estate Agents,
We are also very pleased that the                                                           North View, Westbury Park
Packer family have once again allowed                                                       (from 29th October) Open
us to use some of Geoff Packer’s colour                                                     Monday to Friday 9am to 6pm
photographs for our 2013 calendar.                                                          and Saturday 9am to 5pm
Jan Packer said: “When Brace first
approached me to use my dad’s photos                                                        The BRACE Appeal Office,
of Bristol for their 2011 calendar I was                                                    Frenchay Hospital
thrilled. I was honoured to be asked                                                        (next to the restaurant)
again in this 25th anniversary year to                                                      Monday to Friday 9am to 5pm
help create the 2013 calendar.                                                              (please ring and check that
                                                                                            the office is manned if you
“Our last calendar received great                                                           are making a special journey)
feedback. One lady recognised herself in
one picture. She said she remembered a                                                      Melanie’s Kitchen,
man taking the photograph! Well, that                                                       2 Downend Road, Downend
was my dad: he was probably getting in                                                      (calendar only)
the way again! Little did he know how                                                       Monday to Saturday
much we’d all appreciate his hobby so                                                       9am to 5.30pm
many years later.


16 | BRACE Registered Charity 297965	                                                           www.alzheimers-brace.org

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Newsletter Autumn2012 Lo Res

  • 1. newsletter Autumn 2012 www.alzheimers-brace.org Increasing Silver Light in the understanding fundraisers darkness Andrea Tales on research made Rising to our 25th anniversary A personal insight from a possible by your funding, page 8 fundraising challenge, page 4 dementia campaigner, page 12 Jo Earlham, top, with her father, bottom, with her local MP, Hugo Swire. Running For Brace Jo Earlam, a keen As a child I wasn’t good “I’ve set advice was always at competitive sport but the same: “It’s only pain, it marathon runner, we were an active family, myself a target won’t kill you!” talks about why she always walking together, to run cycling, swimming and 50 marathons It’s a mantra I’ve repeated is running to raise to myself many times occasionally running. by the time money for BRACE. I’m 50” on long distance walks, My Dad always took cycles and other physical part and was a prime challenge events. motivator. However hard I pushed myself, Dad would Running was always the always push me harder. When thing I least enjoyed, I complained – as I often did – his continued on page 2 1 | BRACE www.alzheimers-brace.org
  • 2. continued from page 1 but I had a long held fascination with the London Marathon, and thought it a good way to celebrate I built my marathon tally up slowly – 18 months later doing my second, then gradually more including Jack’s Lads Triumph on Golf Day being 40. Edinburgh, Belfast, Paris and last November, my 10th, Yet another superb Golf Day – lovely weather, the Henbury New York. That was back in 2005, the plan being to do it as a course immaculate and over £3,700 raised for BRACE. one-off – tick that ambition as achieved. Around the same time I learnt that Dad, who’s 70, has vascular dementia. I lost my two grandmothers, my It was the hardest thing I’d ever done, but somehow mother-in-law, and a dear friend to Alzheimer’s, and the long hours of training turned into a liking for two years ago another friend in his 50s was diagnosed running, that has since developed into a deep passion. with PCA, the same type of dementia as the author Terry Pratchett. I think it was fate to secure a charity place for BRACE in the 2012 London Marathon, where I was delighted to get a PB of 04:05:07, and know that Dad was proudly watching on the television. As a long time charity fundraiser, it seems totally relevant now to focus on trying to help overcome dementia. I especially want to support BRACE because it is funding vital work to find a cure for this terrible brain crippling disease. When I see my Dad suffering – and my mum as his carer too – I feel sorrow for them both. One of the things that made this Golf Day extra topped off by my lads wining the trophy – Jack would special was that the winners were “Jack’s Lads”, the be very proud of them. We’ve had such a fantastic When I run, yes I do feel pain, but it’s a different kind sons and grandsons of BRACE Trustee and volunteer day, the weather was perfect and the atmosphere of pain, a kind that won’t kill you, a kind you can run Susan Marshfield. Tim and Jon Marshfield and their was so supportive.” through and overcome. sons Tom (aged 20) and Billy (aged 16), beat 22 other teams to lift the trophy. Many thanks to everyone who took part or helped That’s why I’ve set myself a target to run 50 marathons in any way and to Henbury Golf Club for hosting by the time I’m 50 in 2015 – currently 37 to go! Susan’s husband Jack died from dementia in 1993 the tournament. Special thanks, as always, go to and she has given BRACE great service ever since, Roger and Pat Higgins and their team, committed And that’s why I’m choosing to raise money for BRACE. including many years as a Trustee. She said, “It’s volunteers who make this event happen year on year. www.justgiving.com/Jo-EarlamBRACE wonderful that my time working with BRACE could be January 2013 Programme of Events 2012/2013 Wed 9 Story of Weston The BRACE Trustees said thank you but not farewell to Susan Marshfield in July. Please check the events page on our website for updates (BRACE is supported charity, details t.b.a.) Susan has been a Trustee for ten years SEPTEMBER November and a volunteer for even longer, and has Sun 23 A Night to Remember’ 25th ‘ Sat 10 Linda Alvis’s Christmas February decided to step down from the Board of Anniversary evening. The Bazaar, Special guest Don Trustees later this year. Tobacco Factory Theatre, Cameron, 94 Worrall Road, Thu 28 Capsule in a case” at “ Bristol, 6.30pm Clifton 11am to 4pm Elizabeth Hall, Hambrook After thanking her for all her hard work, the – 10.30am – watch out for Trustees invited Susan to accept the new position of Sat 29 ollection at Co-op, C Sat 10 Christmas Card Charity Sale, further details President of the charity. We are delighted to report Portishead Somerset Hall, High Street, Sun 30 Bristol Half Marathon Portishead 10am to 12 noon that Susan has accepted! President Susan! April 2013 OCTOBER DECEMBER Sat 28 Spring Concert at St George’s, Bristol Sat 6 Autumn Fair, Newman Hall, Sun 9 BRACE Carol Service, St Mary Julia Hwang and The Bristol Westbury-on-Trym, Redcliffe Church, 3pm Male Voice Choir 3pm 10am – 12.30pm Tue 11 Collection at Tesco, Susan said, “I was taken completely by surprise Fri 19 and Sat 20 Kenn Road, Clevedon when I was asked to take on this role, and it’s a Collection at Morrisons, Wed 12 and Thurs 13 MAY 2013 great honour. I shall still be helping BRACE as a Fishponds Collection at Tesco Golden mon 13 RACE Annual Meeting at B volunteer and speaker, of course, and I hope to Sat 20 Card Sale – Backwell Parish Hill, Horfield, Bristol Mercure Bristol North (The encourage more people to join the fight against BRACE Chairman Alan Parsons presents Susan Marshfield Hall 10am-12 noon Grange) from 7pm Alzheimer’s.” with a bouquet after the Trustees’ meeting in July 2 | BRACE www.alzheimers-brace.org call the BRACE appeal office on 0117 340 4831 Autumn 2012 | 3
  • 3. Students in UWE’s Medical Science Society organised a sponsored “bounce” on a bouncy castle. They kept this going in relays over 24 hours, a dizzying experience. Further activity is planned for the autumn with the new intake of students. Matt Harris, a young photographer with his own business in Yate, dedicated a weekend to taking portraits with all proceeds to BRACE. He raised £500. Matt did Staff at Western Power this in memory of his grandfather, Distribution found out a former professional footballer about Silver Service who died last year after a long after holding a cake Silver battle with Alzheimer’s. Matt was sale for BRACE. The sale supported by local MP and Pensions raised £125 and, having Minister, Steve Webb. joined the fundraising campaign, they quickly Matt said “My grandad was such an took their contribution inspiration to me. After he became to £750. fundraisers! ill I realised how important it is to work hard and achieve something with my life. My business is going Some supporters have As the year has gone from strength to strength and I raised funds in the wanted to give something back to course of their work. on, we have steadily Doveton Press, who support the great work that BRACE built up the list does for Alzheimer’s research.” print this Newsletter, of businesses and are collecting donations community groups from customers by committed to Toni and Ashley from inviting them to add TS Staff Training Nine members of staff at Fishponds with Alzheimer’s patients every day, a voluntary £1 top raising at least Family Medical Practice entered the so it’s a cause that is really close to up when they pay completed a skydive £500 for BRACE by for BRACE in July. Two Bristol 10k race. They also produced our hearts.” their invoices. Avanti 31st December. of their colleagues one of the most striking photos we Hygiene are making have been sent. Rachel Wring, a At time of writing, we do not yet have a regular monthly were prevented by bad phlebotomist, says, “Everyone at the the final total from their fundraising, donation to BRACE. Those taking part weather from joining practice knows someone who has been but it runs to many hundreds of them but are planning a have shown flair and affected by Alzheimer’s, and we work pounds and is still rising. jump later in the year. We can’t do justice to imagination in their This is actually the all our Silver Service fundraising, and we second successive year fundraisers here, but we hope they are also that this company has hope that these selected having fun doing it! chosen BRACE as its highlights give an idea supported charity. of what is happening. In our next Newsletter, we On joining the campaign IOP Publishing immediately Among the first to expect to report on some increased their target to £5,000 and planned a series pass their £500 target exciting fundraising by of fundraising events. These started with a “pub quiz” were the residents schools and churches as held in their office, which raised over £500. IOP’s of Plowright House, well as businesses. next event was a staff social based around watching a sheltered housing European Championship football on television. We welcome newcomers complex in Hanham, to the Silver Service South Gloucestershire. Further events were organised in July and one of campaign right up to their staff, Phil Semple, took part in a 24 hour off the end of the year, road relay race. He covered an astonishing 120 km please contact the BRACE (75 miles). He finished with blisters and aching limbs, appeal office if you are and hobbled over the finishing line with the aid of a interested. borrowed walking stick. We applaud his commitment and endurance. As we complete this Newsletter, IOP’s fundraising has already reached £4,000 for the year. 4 | BRACE www.alzheimers-brace.org call the BRACE appeal office on 0117 340 4831 Autumn 2012 | 5
  • 4. Sponsored events round up Jamie Tippett with young supporters Gillian Tayler prepares to run the London Marathon Nina Barrett and Darin Melville were Clair Morris looking amazingly dubbed “Supergran and Superman” energetic after 18 miles! by their local newspaper) The most high profile of all Neil Drew was due to run in the 2011 Supporters around the country The BUPA 10k in May followed sponsored events in the UK is the marathon but was injured shortly found events where they could part of the route of the Olympic London Marathon. We have five beforehand in a tragic road accident raise funds for BRACE. Jon Hartnoll Marathon and we were represented Gold Bond places but, with a place which cost a friend his life. Neil ran the Forest of Dean Half by Vicky Ledbury and Stella Kench. carried forward and five runners was determined to complete the Marathon, while Daniel Buttress This year, more people are securing their own places, no fewer challenge he had set himself, feeling ran in both Brighton and Reading. Many of our participants in coming forward to raise than eleven wore the BRACE logo that he owed it all those who had sponsored events are caring for money for us by taking this year. Nina Barrett, Nicola sponsored him. His achievement is Chris Rudall, from Worcestershire, someone with dementia or are Greenwood, Ann Gill, John Cowham, all the more remarkable considering ran the Blakedown Bolt (a 10,000 raising funds in memory of a loved part in sponsored events. Jamie Tippett, Gillian Tayler, Jo that he ran a marathon in Bristol metre run) in June and, as we go one. We haven’t told their stories We can’t thank all of them Earlam, Clair Morris, Lysander three days earlier and then cycled to to print, is preparing for a 95 mile here, but we admire the courage properly in the limited Bryant, Tricia Blackborow and Neil London for his second marathon! slog from Blakedown to Cardiff. and determination they showed Drew – we are extremely grateful to Chris, who is in the RAF, showed in trying to make sure that future space available here, The outstanding fundraiser this year his versatility by running a cake generations do not need to suffer all of you. though we have done our was Nina Barrett. With her friends stall with his mother-in-law to in the same way. best to keep pace with Between them, they raised over Darin Melville, Nicola Greenwood supplement the funds raised in the £15,000. and Ann Gill (the last two wearing race itself. More sponsored fundraising is them online! We hope that featured in our Silver Service BRACE vests in the marathon) she this selective roundup will Jo Earlam’s fundraising efforts raised an astonishing £6,414. As well Heidi Simms and Esther McPhee, report on pages 4 and 5. serve as a thank you to all outside the marathon deserve as as sponsorship, they gathered money colleagues in an Exeter salon, took much of a mention as the run itself. through various fundraising events, part in the Great West Run and of them, who never cease She has contributed greatly to including a Christmas present exceeded their fundraising target to amaze and inspire us. promoting the cause through media wrapping session in which people by a good distance. coverage in Devon, and you can read donated a minimum of £1 to have a something of her story elsewhere in present wrapped by an expert! this issue. 6 | BRACE www.alzheimers-brace.org call the BRACE appeal office on 0117 340 4831 Autumn 2012 | 7
  • 5. Many people who attend memory clinics are given a diagnosis of mild cognitive impairment. This disorder is most associated with an increased risk of developing dementia, especially Alzheimer’s disease and vascular dementia. As yet there is no definitive way to distinguish between those individuals with mild cognitive impairment who will and will not develop dementia. Consequently, research priority tends to be focused upon improving the early diagnosis of dementia in individuals with mild cognitive impairment as drug and other interventions are likely to be of most benefit at the earliest stages of the disease process. Increasing our understanding of mild cognitive impairment by Andrea Tales In this context, our BRACE- (sometimes irrespective of whether of the brain and provides a simple test colleagues) are close to completing funded multi-disciplinary research they develop dementia or not) of such integrity. We have also used our study examining the physiological “These approach (see below) has revealed and such findings indicate that for such techniques to investigate the and structural basis of vision and that the memory and cognitive some people with mild cognitive brain’s ability to process moving stimuli, attention-related processing and how research dysfunction used to define mild impairment may impact upon objects and shadows. their integrity are affected by healthy findings have cognitive impairment can be behaviours such as driving and ageing, Alzheimer’s disease and vascular accompanied by breakdown in even walking about (both of which Electroencephalography (EEG): We have cognitive impairment. been made used this technique to show that very the integrity of many additional are highly dependent upon vision early or low level visual and attention- Our aim now is to continue to apply possible by elements of brain activity not and attention). typically examined during diagnosis. related processing previously thought our research findings to real-life issues a long-term These include various aspects of These research findings have been to be preserved in mild cognitive such as improving the early diagnosis of BRACE-funded vision and attention-related brain made possible by a long-term impairment and dementia can in fact be dementia, differentiating between the function. Our longitudinal research BRACE-funded research programme significantly abnormal. In conjunction various forms of dementia at an earlier research has shown that some of these involving the collaboration of many with funding from the BBSRC we are stage of the disease and understanding programme” visual and attention problems are scientists, clinicians, patients and now using this technique to examine the how abnormalities in visual and worse in people with mild cognitive control participants and helpers, integrity of visual and auditory function attention-related processing can cause impairment who develop dementia; and employing a multidisciplinary in Lewy body dementia, vascular real-life problems in behaviours such as the use of such tests may therefore research methodology approach dementia, Alzheimer’s disease, mild driving and walking. improve its early diagnosis. using techniques such as: cognitive impairment and cognitively healthy ageing. Indeed, how vision and attention affect However, as visual and visual Eye tracking: which involves the the ability of older adults to walk safely attention-related function forms measurement of how our eyes move Methodology: It is really important to through their surroundings is being the basis for environmental and how our pupils work; both of ensure that our research is valid and investigated in our new study led by awareness, interpretation, which are important indicators we have investigated many factors that Ute Leonards and Judy Haworth; using perception, cognition, memory and of attention and information can detrimentally affect the outcome state-of–the-art technology and real- behaviour, when these processes processing. research and its clinical applicability. life walking situations. The outcome of go wrong the consequences can this study will help us to determine why Andrea Tales is a Senior be serious. Our research has Computer-based reaction time tests Magnetoencephalography (MEG) some older adults and patients with mild Research Fellow at the indicated that people with mild (psychophysics): Variability in a structural magnetic resonance imaging cognitive impairment and dementia are University of Bristol and cognitive impairment may also person’s reaction time in response (MRI): In Cardiff, we (Aline Bompas, at an increased risk of falls. moves to a new role as experience significant problems in to a given task is related to the Tony Bayer, Krish Singh, myself and Senior Lecturer at Swansea some of aspects of brain function integrity of the white matter tracts University later this year. 8 | BRACE www.alzheimers-brace.org call the BRACE appeal office on 0117 340 4831 Autumn 2012 | 9
  • 6. A year of celebration Competitions update A “golden age” for BRACE has celebrated its If you read this article before 23rd September, there might still be In our 25th anniversary year we had an extra prize for the dementia research in Bristol silver anniversary with time to book a place at “A Night Silver Service competition so three special events. to Remember” at the Tobacco we had two winners, Mrs Julie Factory, Southville, Bristol. This McLaren from Yate, South Two have already starts with a sparkling reception Gloucestershire and Mrs Hilda taken place and the at 6.30pm, followed by a show by Long from Cowbridge. Both third is due to happen The Opera Dudes and The Jimmy winners received a £25 gift Dementia research the Lip Allstar Band. Tickets at £25 voucher together with a BRACE very shortly after this are available from the Tobacco Silver Service pen. in and around Bristol Newsletter is published. Factory on 0117 902 0344 or www. could be entering The winner of the July tobaccofactory.com. competition, Actors, will be a “golden age”, The “Noel with Cole” concert in March and the Anniversary Coffee We are very grateful to the announced in our next issue. according to Seth members of the Support Committee The prize, two tickets to Morning in May were both a great and the other volunteers who see Aladdin at the Bristol Love, Professor of success, raising over £3,000 between them. The concert have worked so hard over several Hippodrome was generously Neuropathology at the months to make these donated by the Bristol was performed by Three Men’s events happen. Hippodrome. University of Bristol Company, with a selection of pieces by Noel Coward and Cole Porter. It and scientific adviser Our latest competition is raised £2,288. enclosed and the lucky winner to BRACE. “Without will receive two tickets to Snow The coffee morning took place at White and the Seven Dwarfs at In an interview in May with Vicki BRACE we the St Monica Trust’s magnificent premises in Cote Lane, Bristol. the Theatre Royal, Bath together Mathias, health reporter for The would not with a copy of the 2013 BRACE Post, Seth talked of the research With a variety of stalls and a talk calendar. Thank you to the being carried out by the Bristol exist.” about the history of St Monica’s, it theatre for donating the tickets. Dementia Research Group, raised £1,050. including at the SW Dementia Brain Good luck! Bank at Frenchay Hospital. This includes work on the removal of We are now in a position to amyloid from the brain, improving take some of the research www.alzheimers-brace.org blood flow to the brain and the possibility of a major drug trial. advances that we have made here with them, and translate it into treatments for patients The web address might not have Looking back at what has been with dementia.” changed, but the BRACE website achieved over the past quarter of BRACE currently supports a century, Seth said, “For quite a has had a makeover and now while now we have been one of research at the Universities looks very different! the leading pre-clinical dementia of Bristol, Bath, Cardiff and research groups in the UK with a the West of England (UWE). strong international reputation, By focusing its resources on this The Internet has changed a lot in the last few years, limited geographical area, the and to a large extent that is down particularly in the rise of social media, and people’s charity has been able to help to BRACE who have been funding expectations of a website are very different as a develop a network of world class and providing core support for result. We have tried to make our site welcoming, research teams. Social media – follow the links from the foot of our many years. attractive, informative and interactive. home page and follow us on Facebook or Twitter. “Without BRACE we would not Whatever the geography A great way to help BRACE online is to make use of If you have a Facebook or Twitter account, you can exist. As a result of the work which of the research, of course, the opportunities for interaction that we provide. also use the buttons on any page, including news and has been done with the support the beneficiaries are people These include: events reports, to let your friends and contacts know of the South West Dementia Brain anywhere in the world who might about the charity and its work. The memories page – follow the link from the home Bank and BRACE funding, I think we one day develop dementia. page to record a treasured memory and help show Our blog – again, there is a link at the foot of our are really entering a golden age in Charity begins at home, but it what we are fighting to save. home page for you to follow our blog. dementia research here in Bristol. knows no boundaries! 10 | BRACE www.alzheimers-brace.org call the BRACE appeal office on 0117 340 4831 Autumn 2012 | 11
  • 7. News in brief... Community group the Nailsea Lions Club raised £700 for BRACE in the spring. Karen Zold and Club President Chris Cadwgan are seen here presenting the cheque to BRACE Chief Executive Mark Poarch. Three members of Chipping Sodbury Rotary Club cycled from John O’Groats to Lands End and raised £3,650. BRACE Finding light in the darkness was very grateful to be chosen to receive a third of this money. Richard Kingscott Beth Britton, My father often said when I was a child In my father’s case, his lengthy battle (left) presented cheques to that if he was ever ill he would much with dementia ended in April 2012, less Mark Poarch (second left) and a freelance rather be treated by a vet than a doctor. than two weeks after his 85th birthday. representatives of BrAMS and feature writer Back then it was an amusing one liner That he suffered with this disease for so local scouts and guides. from a farmer and man of the country, long is largely down to the fact that his and dementia but it turned out to be a poignantly body, in the most part, was extremely campaigner, insightful look into his future, because strong. He could have had a long and to try and work out what he wanted, very happy retirement if he hadn’t gives a personal needed and felt during much of the been let down by his brain, slowly and insight into 19 years he suffered from vascular very cruelly. dementia required the skills of a vet; her father’s someone who tries to understand and Although dad’s battle is over, sadly lengthy battle treat their patients without any help for so many others, their struggle is whatsoever from the patient. just beginning. The work of BRACE is BRACE was honoured to be lovely way to thank some of the with vascular vital in helping to find out what causes invited to the Bristol premiere people who do so much for the dementia Year by year dementia locked away parts dementia, how it can be diagnosed of the new Aardman animation, charity. A big surprise was the of dad’s brain that no one had the key quicker and treated more effectively, The Pirates, by director Peter attendance of Hugh Grant, to. He was no longer in our world in and ultimately how it can be prevented. Lord. We were given 50 tickets who voiced the pirate captain the same way that we were never truly for supporters. It was not a in the film. The BRACE stall at the annual in his, and in attempting to bridge this I effectively began to lose my father fundraiser, but an unusual and Photo © Evening Post Frenchay Flower Show in July divide we, as a family, had to become when I was just 12 years old; we silently expert interpreters. All the love, care mourned his loss while he was with us, and dedication in the world, however, and now we mourn all over again. BRACE The BRACE stall still leaves you feeling you could always can play a massive part in ensuring that As we go to print, at the Portishead have done more. other families do not go through what Corina Hawkins, Flower Show. A big we have been through. Dementia will originally from North ‘thank you’ to our I have heard it said that with dementia one day be beaten if everyone recognises Somerset, is about to hardworking team the mind passes away long before the the insidiousness of this disease, and run a 12k race in Perth, of volunteers in body ever does, and that is the painful backs the work that can end the hold it Western Australia. Portishead, who reality both for the person battling the is taking on so many lives. raise funds and disease and, more acutely, their loved How far can you take promote the charity ones watching their decline, powerless You can follow me on Twitter: fundraising for BRACE? throughout the year. to prevent it. @bethyb1886 12 | BRACE www.alzheimers-brace.org call the BRACE appeal office on 0117 340 4831 Autumn 2012 | 13
  • 8. In memoriam It seems fitting that Relatives of people who have 2010 and 2011, BRACE received died with dementia often want donations of this sort totalling one of the ways to remember the passing of their over £16,000. A similar level of people support a Counting our Chicks loved ones by supporting research income seems likely this year. dementia research that may one day save others from Others remember a loved one, suffering in the same way. charity is by giving often months or even years Increasingly, we receive donations after their passing, by raising money “in memory”. collected at funerals or organised money through participation in a It was last century when Mary Sansbury started the Chick Isn’t it amazing what you can do among friends and relatives sponsored event. Campaign off in 1999 and handed with a ball of wool and a pair of after someone has died. In both the BRACE Easter chick over the project in 2004 to Carol knitting needles? If you are a keen first flew into our lives. Seel and Gill Bonham who still run knitter and would like to help out, the Chick Packing Station today. there is an easy pattern which the BRACE Appeal Office can send to The first mention of Chicks in our In this the 25th Anniversary year of you by post or email and we would records is in 1999 and they have BRACE, we are delighted to have be very grateful for some early been flying the nest for BRACE ever raised the highest sum ever – over contributions of Chicks in January since. We know they have gone to £2,000! Literally thousands of or earlier, ready for Easter 2013. Aberystwyth and Southampton, to Chicks have been sold since 1999 France and California, as well as and we think you will be as amazed taking up residence in Winterbourne as we were to discover that the Cheep cheep! and Westbury-on-Trym! Report on legacies total amount raised is £19,252! by Bee Lang, BRACE volunteer Don’t miss the The biggest single source of income BRACE Autumn Fair BRACE donation and contact form for BRACE is legacies. Every year, Return to BRACE Appeal Office, Frenchay Hospital, Bristol BS16 1LE we receive money that people have Saturday 6th October 2012 You can donate by credit or debit card online – www.alzheimers-brace.org from 10am to 12.30pm. left in their will to continue their lease find enclosed a donation of £____ to BRACE. P support of dementia research after Newman Hall, Grange Court Road, Thank you for your donation. If you are a UK taxpayer Gift Aid declaration – for past, present and they have died. Westbury-on-Trym, Bristol BS9 4DR. please complete the Gift Aid Declaration and BRACE future donations to BRACE can recover the tax at no extra cost to you. Please treat as Gift Aid donations all qualifying gifts Please contact me: I’d like to know more about: of money made today in the past 4 years In 2010, we received £275,000, but even this figure was Many stalls including: in the future. Please tick all boxes you wish to apply. dwarfed by the £523,000 we received in 2011. Beauty Bath, “Adopting” BRACE at work/school/other I confirm I have paid or will pay an amount of Income Tax and/or Second-hand Books, Volunteering to help with collections or events Capital Gains Tax for each tax year (6 April to 5 April) that is at least Sometimes BRACE receives a sum specified by the Bric-a-brac, Cakes Jams, Taking part in a sponsored event equal to the amount of tax that charities will reclaim on my gifts person who made the will. This could be a small for that tax year. I understand the charity will reclaim 25p of tax on donation but can also run into thousands or even tens Collectables, Jewellery, Please add me to your newsletter mailing list every £1 that I give. of thousands of pounds. The biggest legacies we receive Plants Shrubs, Toys Games SIGNATURE Date Full name are generally where we have been left the residue (or a Please notify BRACE if you: • Want to cancel this declaration share of the residue) of someone’s estate. The new range of BRACE Christmas cards and • Change your name or home address • No longer pay sufficient tax on Address your income and/or capital gains. 2013 BRACE calendar will be on sale Even people who would not be considered well off If you pay Income Tax at the higher or additional rate and want to receive the additional tax relief due to you, you must include all can make a big difference to dementia research by Refreshments available your Gift Aid donations on your Self Assessment tax return or ask HM remembering BRACE in their will. If you would like to Post Code Revenue and Customs to adjust your tax code. help BRACE in this way, you can obtain a copy of our We look forward to seeing you! If you would like us to contact you, please supply: We will keep a record of your donation/enquiry but will not contact “Guide to Making or Changing a Will” by contacting the With thanks to CJ Hole Henleaze for their you unless you have agreed that we can. office or downloading from this page on our website sponsorship of the Autumn Fair daytime tel no Please tick this box if you would like to receive a www.alzheimers-brace.org/legacies. written acknowledgement: and/or email Registered Charity 297965 14 | BRACE www.alzheimers-brace.org call the BRACE appeal office on 0117 340 4831 Autumn 2012 | 15
  • 9. It’s that time of year again! Our Christmas cards are piled high on the shelves ready for the first orders which come flooding in after the newsletter is sent out. You can see this year’s selection on the enclosed Christmas leaflet. Calendar and Cards As always, Brian Sanders has come up trumps with a wonderful picture of Royal York Crescent. This is the 18th year Brian has supported BRACE in this way. However, this year, Brian has also very generously donated the original pastel drawing for sale. The pastel measures approx. 430mm x 310mm, unframed. We are inviting sealed bids by post, marked “picture auction”. Below, Brian Sanders’ latest Christmas card. Above, images from our 2013 calendar. If you are interested in purchasing the “If you have personal memories drawing or would like to view the original of any of the photos in the A list of events at which please contact the BRACE Appeal Office. calendar, please contact us. cards and calendars will As a guide we are putting a reserve of It brings the photos to life.” be available is shown on £300 on the picture. Bids close on 31st page 2. October. Brian has also donated four of Please support BRACE by buying his earlier pastels and we shall shortly our cards and calendar and take Cards and Calendar will also be giving details about their sale on our advantage of this opportunity be available from: website. to own one of Brian Sanders’ original pastels. Haigh Son, Estate Agents, We are also very pleased that the North View, Westbury Park Packer family have once again allowed (from 29th October) Open us to use some of Geoff Packer’s colour Monday to Friday 9am to 6pm photographs for our 2013 calendar. and Saturday 9am to 5pm Jan Packer said: “When Brace first approached me to use my dad’s photos The BRACE Appeal Office, of Bristol for their 2011 calendar I was Frenchay Hospital thrilled. I was honoured to be asked (next to the restaurant) again in this 25th anniversary year to Monday to Friday 9am to 5pm help create the 2013 calendar. (please ring and check that the office is manned if you “Our last calendar received great are making a special journey) feedback. One lady recognised herself in one picture. She said she remembered a Melanie’s Kitchen, man taking the photograph! Well, that 2 Downend Road, Downend was my dad: he was probably getting in (calendar only) the way again! Little did he know how Monday to Saturday much we’d all appreciate his hobby so 9am to 5.30pm many years later. 16 | BRACE Registered Charity 297965 www.alzheimers-brace.org