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UKOLN is supported  by: Mind the Gap: Reflections on Data Policies and Practice Dr Liz Lyon,  Director, UKOLN, University of Bath, UK Associate Director, UK Digital Curation Centre JISC/CNI Conference, Edinburgh, July 2010 . This work is licensed under a Creative Commons Licence Attribution-ShareAlike 2.0
Overview ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
1. Current Practice ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],http://www.ukoln.ac.uk/ukoln/staff/e.j.lyon/publications.html#november-2009 ,[object Object]
INCREMENTAL Project ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
“ Departments don’t have  guidelines or norms for personal back-up and researcher procedure, knowledge and diligence varies tremendously. Many have experienced moderate to catastrophic data loss” Incremental Project Report, June 2010 http://www.flickr.com/photos/mattimattila/3003324844/
“ While many researchers are positive about sharing data in principle, they are almost universally reluctant in practice. ..... using these data to publish results before anyone else is the primary way of gaining prestige in nearly all disciplines.” INCREMENTAL Project “ Data sharing was more readily discussed by early career researchers.”
Heather Piwowar … but many researchers don’t share… … and are reluctant to re-use data…
“ They found the documents ....to be dense, wordy, theoretical, ambiguous and un-engaging.” “ Interviewees were often unaware of existing guidance, resources.... and policy documents.” Incremental Project Report, June 2010
“ Many people are suspicious of ‘policies’ which sound like hollow mandates, but are receptive to ‘procedures’ or ‘advice’  which may be essentially the same thing, but convey a sense of purpose and assistance rather than requirement.” Incremental Project Report, June 2010 The majority of people felt that some form of policy or guidance was needed....
2. Future Data Landscape ? Genomics exemplar
...Next next generation technology race to market $1000 genome in <15 minutes ....by 2013?
Researchers need.... ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
The “new” genome informatics ecosystem  The case for cloud computing in genome informatics.  Lincoln D Stein, May 2010 Data storage policy?
Post-genome decade Human genomes: >24  published & almost 200 unpublished
They have shared their data….
Share  my  data Data sharing policy?
“ P4 medicine : Predictive, Personalised, Preventive, Participatory.” Leroy Hood –  Institute for Systems Biology ,[object Object],Image from Scientific American
P4 medicine ,[object Object],[object Object],[object Object],[object Object],[object Object],Genome scale network biology Genomic data as a commodity
[object Object],[object Object],[object Object],[object Object],[object Object],Stephen Friend
Participatory medicine : share data & empower the patient... Sage Congress  San Francisco April 2010
“ You have zero privacy anyway. Get over it” Scott McNealy, CEO Sun Microsystems, 1999 Data Ethics & Privacy Policy?  ,[object Object],[object Object],[object Object]
Results data : validate in professional press Public participation, citizen science
Data policy for public engagement? ,[object Object],[object Object]
Calls for action, new metrics Incentives?
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Macro Attribution granularity Complexity : what are we citing? Micro / Nano
Large-scale predictive network models of disease ,[object Object],[object Object],[object Object],Data citation policy?
3. Policy guidance, planning tools, Code of Conduct
State-of-the-Art Report :  Models & Tools  (Alex Ball, June 2010) ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
http://www.dcc.ac.uk/dmponline   DMP Online Currently updating Version 2.0 Version 3.0 summer 2010
Making DMPs work : the start of a long process… ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Take homes... ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],www.dcc.ac.uk
Chicago Mart Plaza, 6-8 December 2010 Thank you…

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Mind the Gap: Reflections on Data Policies and Practice

  • 1. UKOLN is supported by: Mind the Gap: Reflections on Data Policies and Practice Dr Liz Lyon, Director, UKOLN, University of Bath, UK Associate Director, UK Digital Curation Centre JISC/CNI Conference, Edinburgh, July 2010 . This work is licensed under a Creative Commons Licence Attribution-ShareAlike 2.0
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  • 5. “ Departments don’t have guidelines or norms for personal back-up and researcher procedure, knowledge and diligence varies tremendously. Many have experienced moderate to catastrophic data loss” Incremental Project Report, June 2010 http://www.flickr.com/photos/mattimattila/3003324844/
  • 6. “ While many researchers are positive about sharing data in principle, they are almost universally reluctant in practice. ..... using these data to publish results before anyone else is the primary way of gaining prestige in nearly all disciplines.” INCREMENTAL Project “ Data sharing was more readily discussed by early career researchers.”
  • 7. Heather Piwowar … but many researchers don’t share… … and are reluctant to re-use data…
  • 8. “ They found the documents ....to be dense, wordy, theoretical, ambiguous and un-engaging.” “ Interviewees were often unaware of existing guidance, resources.... and policy documents.” Incremental Project Report, June 2010
  • 9. “ Many people are suspicious of ‘policies’ which sound like hollow mandates, but are receptive to ‘procedures’ or ‘advice’ which may be essentially the same thing, but convey a sense of purpose and assistance rather than requirement.” Incremental Project Report, June 2010 The majority of people felt that some form of policy or guidance was needed....
  • 10. 2. Future Data Landscape ? Genomics exemplar
  • 11. ...Next next generation technology race to market $1000 genome in <15 minutes ....by 2013?
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  • 13. The “new” genome informatics ecosystem The case for cloud computing in genome informatics. Lincoln D Stein, May 2010 Data storage policy?
  • 14. Post-genome decade Human genomes: >24 published & almost 200 unpublished
  • 15. They have shared their data….
  • 16. Share my data Data sharing policy?
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  • 20. Participatory medicine : share data & empower the patient... Sage Congress San Francisco April 2010
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  • 22. Results data : validate in professional press Public participation, citizen science
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  • 24. Calls for action, new metrics Incentives?
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  • 27. 3. Policy guidance, planning tools, Code of Conduct
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  • 30. http://www.dcc.ac.uk/dmponline DMP Online Currently updating Version 2.0 Version 3.0 summer 2010
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  • 33. Chicago Mart Plaza, 6-8 December 2010 Thank you…