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August	
  2,	
  2011	
  
	
  
President	
  Barack	
  Obama	
  
The	
  White	
  House	
  
1600	
  Pennsylvania	
  Ave	
  NW	
  
Washington,	
  DC	
  20500	
  
	
  
Dear	
  Mr.	
  President:	
  
	
  
We,	
  the	
  undersigned	
  organizations	
  and	
  individuals,	
  request	
  that	
  you	
  attend	
  the	
  United	
  Nations	
  High-­‐Level	
  
Summit	
  on	
  Non-­‐Communicable	
  Diseases	
  (NCD)	
  in	
  September	
  to	
  push	
  for	
  better	
  health	
  for	
  all	
  of	
  those	
  living	
  
with	
  diabetes.	
  	
  

This	
  September,	
  you	
  and	
  your	
  fellow	
  political	
  leaders	
  will	
  have	
  a	
  once-­in-­a-­generation	
  opportunity	
  to	
  halt	
  a	
  
global	
   epidemic	
   that	
   is	
   killing	
   and	
   disabling	
   millions	
   of	
   people,	
   impoverishing	
   families,	
   and	
   undermining	
  
economic	
  progress.	
  The	
  UN	
  NCD	
  Summit	
  is	
  a	
  chance	
  for	
  the	
  Government	
  of	
  the	
  United	
  States	
  of	
  America	
  to	
  play	
  
a	
   leading	
   global	
   role	
   in	
   confronting	
   this	
   major	
   threat	
   to	
   the	
   health,	
   prosperity	
   and	
   security	
   of	
   all	
   of	
   us	
   and	
  
future	
  generations.	
  	
  

Together,	
   the	
   four	
   major	
   NCDs	
   –	
   diabetes,	
   cancer,	
   heart	
   disease	
   and	
   chronic	
   respiratory	
   disease	
   –	
   are	
   the	
  
world’s	
   number	
   one	
   killer.	
   It	
   is	
   estimated	
   that	
   some	
   35	
   million	
   people	
   die	
   from	
   NCDs	
   each	
   year,	
   and	
   14	
   million	
  
of	
   these	
   deaths	
   could	
   be	
   averted	
   or	
   delayed.	
   Diabetes	
   alone	
   creates	
   a	
   huge	
   burden	
  -­‐	
   over	
   300	
   million	
   people	
  
worldwide	
  have	
  diabetes	
  now,	
  and	
  that	
  figure	
  will	
  reach	
  half	
  a	
  billion	
  within	
  a	
  generation	
  if	
  we	
  do	
  not	
  act	
  now.	
  
One	
   dollar	
   in	
   every	
   eight	
   spent	
   across	
   the	
   world	
   on	
   healthcare	
   last	
   year	
   went	
   on	
   diabetes	
   –	
   a	
   staggering	
  
USD378	
   billion	
   in	
   total.	
   No	
   country	
   rich	
   or	
   poor	
   is	
   immune	
   from	
   the	
   impact.	
   In	
   the	
   US	
   alone,	
   there	
   are	
   25.8	
  
million	
   people	
   with	
   diabetes,	
   and	
   the	
   Centers	
   for	
   Disease	
   Control	
   and	
   Prevention	
   estimate	
   that	
   by	
   2050,	
   US	
  
prevalence	
   will	
   rise	
   to	
   as	
   many	
   as	
   one	
   in	
   three	
   Americans.	
   EVERY	
   one	
   of	
   us	
   knows	
   someone	
   touched	
   by	
  
diabetes.	
  	
  

As	
  a	
  group	
  of	
  committed	
  diabetes	
  advocates,	
  we	
  ask	
  you	
  to	
  attend	
  the	
  UN	
  Summit	
  and	
  work	
  with	
  other	
  political	
  
leaders	
   to	
   take	
   action.	
   We	
   have	
   attached	
   the	
   NCD	
   Alliance’s1	
   proposals	
   for	
   the	
   Summit	
   outcomes,	
   which	
   we	
  
believe	
   should	
   be	
   the	
   basis	
   of	
   the	
   political	
   response	
   to	
   NCDs.	
   The	
   global	
   failure	
   to	
   invest	
   in	
   NCDs	
   has	
   led	
   to	
   the	
  
current	
   crisis,	
   yet	
   we	
   have	
   cost-­‐effective	
  solutions	
   that	
   can	
   save	
   lives	
   and	
   make	
   economic	
   sense.	
   These	
   include	
  
action	
  on	
  prevention	
  and	
  diagnosis	
  as	
  well	
  as	
  universal	
  access	
  to	
  affordable,	
  high-­‐quality	
  essential	
  medicines	
  
and	
  medical	
  technologies.	
  We	
  are	
  also	
  calling	
  for	
  the	
  establishment	
  of	
  a	
  Stop	
  NCDs	
  partnership	
  to	
  lead	
  multi-­‐
sectoral	
   and	
   coordinated	
   action,	
   and	
   a	
   UN	
   Decade	
   of	
   Action	
   on	
   NCDs	
   to	
   implement	
   the	
   commitments	
  
governments	
  will	
  make	
  at	
  the	
  UN	
  Summit	
  in	
  New	
  York.	
  

We	
  would	
  be	
  pleased	
  to	
  provide	
  your	
  office	
  with	
  any	
  further	
  information	
  in	
  preparation	
  for	
  the	
  UN	
  Summit.	
  

NCDs	
  such	
  as	
  diabetes	
  affect	
  us	
  all.	
  Diabetes	
  increasingly	
  strikes	
  children,	
  threatening	
  international	
  economic	
  
progress.	
  But	
  we	
  are	
  not	
  powerless.	
  We	
  have	
  achievable	
  cost-­‐effective	
  solutions.	
  We	
  need	
  political	
  leadership	
  
now	
  to	
  make	
  them	
  a	
  reality.	
  Please	
  be	
  a	
  champion	
  for	
  Non-­Communicable	
  Diseases	
  by	
  attending	
  the	
  UN	
  
Summit	
  in	
  September	
  and	
  safeguard	
  the	
  health	
  and	
  prosperity	
  of	
  future	
  generations	
  in	
  the	
  US	
  and	
  around	
  the	
  
world.	
  	
  

Yours	
  sincerely,	
  
	
  


                                               	
  
                            	
  
                            Kelly	
  Close	
  (diaTribe)	
  
                            Research	
  &	
  product	
  news	
  for	
  15,000+	
  people	
  with	
  diabetes	
  



                                                                                                 	
  

                            Manny	
  Hernandez	
  (Diabetes	
  Hands	
  Foundation)	
  
                            Serving	
  200,000	
  people	
  with	
  diabetes	
  every	
  month	
  
                            	
  

	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  	
  
1	
  The	
  NCD	
  Alliance	
  comprises	
  the	
  International	
  Diabetes	
  Federation,	
  the	
  International	
  Union	
  Against	
  TB	
  and	
  Lung	
  Disease,	
  the	
  
Union	
  for	
  International	
  Cancer	
  Control,	
  and	
  the	
  World	
  Heart	
  Federation.	
  Together	
  the	
  NCD	
  Alliance	
  represents	
  900	
  member	
  
associations	
  in	
  170	
  countries:	
  www.ncdalliance.org	
  
	
                                                                                                                                                                                                                                                                                 1	
  
 

       Phil	
  Southerland	
  (Team	
  Type	
  1)	
  
       CEO/Founder	
  Team	
  Type	
  1,	
  author	
  of	
  Not	
  Dead	
  Yet,	
  and	
  complication	
  free	
  after	
  29	
  years	
  with	
  Type	
  1	
  
       Diabetes	
  due	
  to	
  always	
  having	
  had	
  access	
  to	
  insulin	
  and	
  testing	
  supplies.	
  	
  


                                                               	
  

       Bruce	
  Buckingham,	
  M.D.	
  (Stanford	
  Medical	
  Center)	
  
       Professor,	
  Pediatrics	
  -­	
  Division	
  of	
  Endocrinology	
  and	
  Diabetes	
  
	
  



                                                                                                             	
  

       Jessica	
  Apple,	
  Michael	
  Aviad,	
  Karmel	
  Allison	
  (ASweetLife.org)	
  
       Reaching	
  30,000	
  People	
  Affected	
  by	
  Diabetes	
  Each	
  Month	
  
       	
  


                                                                                          	
  

       David	
  Edelman,	
  Elizabeth	
  Edelman	
  (DiabetesDaily.com)	
  
       A	
  diabetes	
  community	
  reaching	
  300,000	
  each	
  month.	
  
       	
  
       	
  
       	
  
       	
  
       	
  
       Francine	
  R.	
  Kaufman,	
  M.D.	
  (Childrens	
  Hospital	
  Los	
  Angeles)	
  
       Emeritus	
  Professor	
  of	
  Pediatrics	
  and	
  Communications	
  at	
  USC	
  -­	
  The	
  Center	
  for	
  Diabetes,	
  Endocrinology	
  
       &	
  Metabolism	
  
       	
  
       	
  



                                                 	
  

       Amy	
  Tenderich	
  (DiabetesMine)	
  
       A	
  leading	
  diabetes	
  blog	
  serving	
  50,000	
  readers	
  a	
  month	
  




                                                        	
  

       Riva	
  Greenberg	
  (the	
  Huffington	
  Post	
  and	
  DiabetesStories.com)	
  
       Reaching	
  more	
  than	
  150,000	
  diabetes	
  patients,	
  professionals	
  and	
  readers	
  each	
  month	
  



                                                                      	
  

       Paula	
  Ford-­Martin	
  (dLife)	
  
       Editor-­in-­Chief,	
  Patient	
  Advocate,	
  Author	
  

       	
  
       	
  
	
                                                                                                                                                                2	
  
 

       Zachary	
  T.	
  Bloomgarden,	
  MD	
  (www.jdiabetes.com)	
  
       Editor,	
  the	
  Journal	
  of	
  Diabetes	
  




                                                              	
  

       Sheri	
  Colberg,	
  PhD	
  (www.shericolberg.com)	
  
       Expert	
  on	
  diabetes	
  and	
  exercise,	
  author	
  of	
  8	
  books	
  on	
  lifestyle	
  and	
  diabetes	
  management	
  
       	
  


                                                                                   	
  

       Sarah	
  Knotts	
  –	
  Insulin,	
  Glucose,	
  Test	
  Strip	
  Stories	
  
       Sharing	
  real	
  stories	
  of	
  living	
  with	
  Type	
  1	
  Diabetes	
  since	
  1988.	
  

       	
  


                            	
  
       William	
  “Lee”	
  Dubois,	
  Diabetes	
  Author,	
  Educator,	
  &	
  Advocate	
  
       Reaching	
  more	
  than	
  3	
  million	
  people	
  a	
  month	
  via	
  columns	
  and	
  articles	
  
       	
  




                                                                     	
  




                                                                                          	
  

       Sandra	
  Bourdette	
  (Taking	
  Control	
  Of	
  Your	
  Diabetes)	
  
       Co-­Founder	
  and	
  Executive	
  Director,	
  Educating	
  and	
  empowering	
  the	
  diabetes	
  community	
  since	
  1995	
  




                                                                            	
  

       Irl	
  B.	
  Hirsch,	
  M.D.	
  (University	
  of	
  Washington	
  Med	
  Ctr-­Roosevelt)	
  
       Professor	
  of	
  Medicine	
  




                                                       	
  

       Neal	
  Kaufman,	
  M.D.,	
  M.P.H.	
  (UCLA	
  Schools	
  of	
  Medicine	
  and	
  Public	
  Health)	
  
       Professor	
  of	
  Pediatrics	
  and	
  Public	
  Health	
  


	
                                                                                                                                           3	
  
 

       Tom	
  Karlya	
  (Diabetesdad)	
  
       Columnist	
  at	
  dLife,	
  1	
  million+	
  people	
  with	
  diabetes	
  

       	
  



       	
                                                       	
  

       Lois	
  Jovanovič,	
  MD	
  (Sansum	
  Diabetes	
  Research	
  Institute)	
  
       CEO	
  &	
  Chief	
  Scientific	
  Officer	
  

       	
  



                                                         	
  

       James	
  S.	
  Hirsch	
  
       Author	
  of	
  "Cheating	
  Destiny:	
  Living	
  with	
  Diabetes"	
  

       	
  




                                                                          	
  

       Bernard	
  Farrell	
  (Diaboogle.com	
  and	
  Diabetes	
  Technology	
  Blog)	
  
       Diabetes	
  answers	
  for	
  1,000	
  people	
  per	
  month	
  and	
  reviewing	
  technology	
  for	
  3,000	
  readers/month.	
  
       	
  
	
  




                                                                                  	
  

       Scott	
  K.	
  Johnson	
  (scottsdiabetes.com)	
  
       Diabetes	
  blog	
  reaching	
  thousands	
  per	
  month	
  




                                                  	
  

       George	
  Simmons	
  (Ninjabetic)	
  
       Sharing	
  my	
  story	
  so	
  others	
  feel	
  less	
  alone.	
  	
  
       	
  
       	
  



                                           	
  
       Randolph	
  B.	
  Linde,	
  	
  M.D.	
  (Endocrinologist)	
  
       Palo	
  Alto	
  Medical	
  Foundation	
  
       	
  
	
                                                                                                                                             4	
  
 
       Brandy	
  Barnes	
  (www.DiabetesSisters.org)	
  
       a	
  national	
  nonprofit	
  organization	
  devoted	
  to	
  the	
  issues	
  faced	
  by	
  women	
  with	
  diabetes)	
  and	
  a	
  woman	
  
       who	
  has	
  lived	
  with	
  diabetes	
  for	
  more	
  than	
  21	
  years.	
  	
  	
  
       	
  




                                        	
  
       Kelly	
  Booth	
  (kellywpa.wordpress.com)	
  
       Helping	
  people	
  with	
  diabetes	
  complications	
  
       	
  




                                           	
  

       Kerri	
  Sparling	
  (SixUntilMe.com)	
  
       Patient	
  Blogger,	
  Diabetes	
  Advocate,	
  and	
  Living	
  with	
  Type	
  1	
  Diabetes	
  
       	
  




                           	
  

       Howard	
  Zisser,	
  MD	
  (Sansum	
  Diabetes	
  Research	
  Institute)	
  
       Director	
  of	
  Clinical	
  Research	
  and	
  Diabetes	
  Technology	
  
       	
  


                                                      	
  

       Bruce	
  W.	
  Bode	
  MD	
  FACE	
  
       Atlanta	
  Diabetes	
  Associate	
  
       	
  
       	
  




                                                             	
  
       Michael	
  W.	
  Hoskins	
  (The	
  Diabetic's	
  Corner	
  Booth)	
  
       Personal	
  blog	
  reaching	
  5,500	
  globally	
  each	
  month.	
  
	
  


                                           	
  
       Karen	
  Graffeo	
  (BitterSweetDiabetes.com)	
  
       Patient	
  blog	
  reaching	
  several	
  hundred	
  subscribers	
  
	
  




                                           	
  

       Gina	
  Capone	
  (DiabetesTalkfest.com,	
  Juvenation.org)	
  
       Patient	
  blogger	
  and	
  community	
  manager	
  reaching	
  over	
  19,000+	
  affected	
  by	
  diabetes.	
  
	
  
       	
  



	
                                                                                                                                                          5	
  
 
       Crystal	
  Lane	
  (Randomly	
  capitalizeD)	
  
       Diabetes	
  Advocate	
  letting	
  hundreds	
  know	
  they	
  are	
  not	
  alone	
  
       	
  




                                                                   	
  
       Scott	
  Strange	
  (StrangelyDiabetic.com)	
  
       Sharing	
  decades	
  of	
  diabetes	
  trials	
  and	
  tribulations	
  
       	
  




                                                          	
  
       Lorraine	
  Sisto	
  (This	
  is	
  Caleb...)	
  
       Daily	
  readers	
  in	
  excess	
  of	
  500.	
  
       	
  


                                              	
  
       Wendy	
  K.	
  Rose,	
  RN	
  (www.CandyHeartsBlog.com)	
  
       Diabetes	
  Advocate	
  
       	
  
       	
  


                                                	
  
       Aliza	
  Chana	
  Zaleon	
  (Aliza	
  With	
  Diabetes)	
  
       1,000+	
  readers	
  and	
  counting	
  
       	
  




                                                             	
  

       Michael	
  W.	
  Durbin	
  (www.mydiabeticheart.com)	
  
       Diabetes	
  Advocate,	
  living	
  with	
  Type	
  2	
  Diabetes	
  and	
  Congestive	
  Heart	
  Failure	
  
	
  




                                                      	
  

       Kim	
  Vlasnik	
  (Texting	
  My	
  Pancreas;	
  You	
  Can	
  Do	
  This	
  Project)	
  	
  
       Reaching	
  12,000+	
  people	
  with	
  diabetes	
  every	
  month	
  

       	
  



                                               	
  

       Mari	
  Ruddy	
  (Team	
  WILD	
  and	
  Red	
  Rider	
  Recognition	
  Program	
  Founder)	
  
       Representing	
  over	
  5,000	
  cyclists	
  and	
  athletes	
  with	
  diabetes	
  




                                                                    	
  
	
                                                                                                                     6	
  
Scott	
  Strumello	
  (Scott's	
  Web	
  Log)	
  
       A	
  Patient-­Written	
  Blog	
  Reaching	
  An	
  Average	
  of	
  2,500	
  Visitors	
  Per	
  Month	
  




                                                           	
  

       Lahle	
  Wolfe	
  (Isletsofhope.com,	
  Pre-­Diabetes.com)	
  
       7.9	
  million	
  visitors	
  since	
  2005,	
  10,000+	
  subscribers	
  



                                                    	
  

       Bill	
  Woods	
  (1HappyDiabetic.com)	
  
       “It’s	
  All	
  About	
  Your	
  Attitude!”	
  
       	
  




                                      	
  

       Martin	
  Wood	
  (DiabeticallySpeaking.com)	
  
       Type	
  1	
  diabetes	
  blogger	
  and	
  advocate.	
  Sharing	
  my	
  life	
  with	
  diabetes	
  so	
  that	
  others	
  may	
  have	
  a	
  voice.	
  
       	
  



                                                                  	
  

       Chris	
  Stocker	
  (The	
  Life	
  of	
  a	
  Diabetic)	
  
       Reaching	
  1,000's	
  of	
  people	
  with	
  diabetes	
  every	
  day!	
  
       	
  
       	
  



                                                                         	
  

       Naomi	
  Kingery,	
  The	
  Diabetic	
  Diva	
  (www.livetolovediabetes.com)	
  
       Author	
  and	
  blogger	
  who	
  has	
  reached	
  over	
  10,000	
  people	
  with	
  diabetes.	
  




                                             	
  

       Victoria	
  Cumbow	
  (www.victoriacumbow.com)	
  
       Type	
  1	
  diabetic	
  for	
  18	
  years,	
  advocate,	
  patient	
  and	
  health	
  blogger	
  at	
  Dia-­Beat-­This	
  and	
  
       @victoriacumbow	
  



                                                                                	
  

       Hallie	
  K.	
  Addington	
  (The	
  Princess	
  and	
  The	
  Pump)	
  
       I	
  am	
  a	
  wife,	
  mother,	
  teacher…	
  and	
  a	
  pancreas!	
  
	
  



	
                                                                                                                                                                   7	
  
 

       Kelly	
  Kunik	
  (diabetesaliciousness.blogspot.com)	
  
       Spreading	
  Diabetes	
  Validation	
  through	
  Humor,Ownership	
  &	
  Advocacy	
  



                                                       	
  

       Elissa	
  R.	
  Weitzman,	
  ScD,	
  MSc	
  
       Assistant	
  Professor	
  	
  
       Harvard	
  Medical	
  School	
  |	
  Children’s	
  Hospital	
  Boston	
  
	
  




                                                	
  

       Cherise	
  Shockley	
  (Diabetes	
  Social	
  Media	
  Advocacy)	
  
       Diagnosed	
  with	
  Latent	
  Autoimmune	
  Diabetes	
  in	
  Adults	
  in	
  June	
  2004.	
  Creator	
  of	
  	
  Diabetes	
  Social	
  Media	
  
       Advocacy	
  (DSMA)	
  weekly	
  twitter	
  chat	
  and	
  blog	
  talk	
  radio.	
  



                                         	
  

       Merle	
  Gleeson	
  (Type	
  1	
  Diabetes	
  Lounge)	
  




                                         	
  

       Meri	
  Schuhmacher	
  (Our	
  Diabetic	
  Life)	
  
       Blogger,	
  advocate,	
  friend	
  to	
  1000+	
  mothers	
  and	
  fathers	
  of	
  children	
  with	
  diabetes.	
  
       	
  
       	
  

       	
  
       	
  
       	
  
       	
  
       Satish	
  K.	
  Garg,	
  MD	
  (Barbara	
  Davis	
  Center	
  for	
  Childhood	
  Diabetes,	
  University	
  of	
  
       Colorado	
  Denver)	
  
       Professor	
  of	
  Medicine	
  and	
  Pediatrics;	
  Director,	
  Adult	
  Program;	
  Clinical	
  and	
  Research	
  Endowed	
  Chairs	
  
       Editor-­in-­Chief,	
  Diabetes	
  Technology	
  and	
  Theraputics	
  
       	
  




                                                                            	
  

       Beatriz	
  Dominguez	
  (Sweet	
  Bea)	
  
       Diabetes	
  Patient	
  and	
  Advocate	
  




                                                                     	
  

       Jessica	
  Collins	
  (jess-­meandd.blogspot.com)	
  
       Diabetes	
  blogger	
  and	
  advocate	
  


	
                                                                                                                                                       8	
  
 

           Allison	
  Blass	
  (Lemonade	
  Life)	
  
           A	
  personal	
  blog	
  about	
  living	
  with	
  diabetes	
  serving	
  5,000	
  readers	
  a	
  month	
  




                                                              	
  

           Leighann	
  Calentine	
  (D-­Mom	
  Blog)	
  
           Mom	
  of	
  a	
  child	
  with	
  type	
  1	
  diabetes,	
  author	
  of	
  D-­Mom	
  Blog	
  reaching	
  8,000+	
  families	
  per	
  month,	
  
           diabetes	
  advocate.	
  	
  




                                                       	
  

           Hope	
  Warshaw,	
  RD,	
  CDE	
  (www.hopewarshaw.com)	
  
           Diabetes	
  educator,	
  author	
  with	
  nearly	
  1	
  million	
  books	
  in	
  print	
  



                                                       	
  

           Nicolas	
  Cuttriss,	
  MD,	
  MPH	
  (www.ayudainc.net)	
  
           Empowering	
  youth	
  to	
  serve	
  as	
  agents	
  of	
  change	
  in	
  diabetes	
  communities	
  abroad	
  
           	
  
           	
  



                                               	
  

           Jane	
  Jeffrie	
  Seley,	
  DNP	
  MPH	
  MSN	
  BC-­ADM	
  CDE	
  (New	
  York	
  Presbyterian/Weill	
  Cornell)	
  
           Diabetes	
  Nurse	
  Practitioner	
  
           	
  	
  
           	
  




                                                              	
  

           Barry	
  H	
  Ginsberg,	
  MD,	
  PhD	
  
           Diabetes	
  Consultants	
  
	
  	
  


                                                       	
  

           Prof.	
  Dr.	
  Lutz	
  Heinemann,	
  PhD	
  (Profil	
  Institut	
  für	
  Stoffwechselforschung	
  GmbH)	
  
           Partner	
  and	
  Scientific	
  Consultant	
  

           	
  
           [Signature	
  On	
  File]	
  
           Jay	
  Skyler,	
  MD	
  (University	
  of	
  Miami	
  Miller	
  School	
  of	
  Medicine,	
  Diabetes	
  Research	
  Institute)	
  
           Professor	
  of	
  Medicine,	
  Pediatrics	
  and	
  Psychology	
  at	
  Associate	
  Director	
  for	
  Academic	
  Programs	
  at	
  DRI	
  	
  
           	
  	
  
           [Signature	
  On	
  File]	
  
           Darrell	
  M	
  Wilson,	
  MD	
  (Stanford	
  University	
  and	
  the	
  Lucile	
  Packard	
  Children's	
  Hospital)	
  
           Professor	
  and	
  Chief,	
  Pediatric	
  Endocrinology	
  and	
  Diabetes	
  
           	
  
           [Signature	
  On	
  File]	
  
           Ginger	
  Vieira	
  (www.Living-­in-­Progress.com)	
  
	
                                                                                                                                                              9	
  
Type	
  1	
  diabetes	
  advocate,	
  vlogger,	
  author	
  and	
  health	
  coach.	
  	
  
       	
  
       [Signature	
  On	
  File]	
  
       Lee	
  Ann	
  Thill,	
  MA,	
  ATR-­BC,	
  LPC	
  (www.thebuttercompartment.com)	
  
       Type1	
  diabetic	
  for	
  32	
  yrs,	
  blogger,	
  art	
  therapist,	
  diabetes/mental	
  health	
  advocate,	
  artist.	
  
       	
  
       [Signature	
  On	
  File]	
  
       Mariela	
  Glandt,	
  MD	
  
       Endocrinology	
  Department,	
  Bronx-­Lebanon	
  Hospital	
  
       	
  
       [Signature	
  On	
  File]	
  
       Gonzalo	
  Bacigalupe,	
  EdD,	
  MPH	
  
       International	
  Health	
  Council	
  Representative	
  at	
  ,	
  Ikerbasque	
  Research	
  Professor,	
  Associate	
  
       Editor	
  at	
  Family,	
  Systems,	
  &	
  Health	
  
       	
  
       [Signature	
  On	
  File]	
  
       Sysy	
  Morales	
  (TheGirlsGuidetoDiabetes.com)	
  
       Encouraging	
  10,000	
  women	
  with	
  diabetes	
  to	
  live	
  their	
  best	
  life	
  every	
  month	
  
	
  
       [Signature	
  On	
  File]	
  
       Kitty	
  Castellini,	
  Founder,	
  President	
  &	
  CEO	
  (Diabetes	
  Living	
  Today®)	
  
       National	
  Broadcast	
  News	
  on	
  Diabetes	
  for	
  120,000	
  with	
  diabetes	
  
	
  
	
  
       [Signature	
  On	
  File]	
  
       Kathy	
  White	
  (kathy-­mynewislets.blogspot.com)	
  
       Islet	
  cell	
  transplant	
  recipient	
  
	
  
       [Signature	
  On	
  File]	
  
       Anne	
  Findlay	
  (annetics,	
  Team	
  Type	
  1	
  cyclist)	
  
       Advocating	
  for	
  healthier	
  living	
  through	
  exercise	
  for	
  people	
  with	
  diabetes	
  
       	
  
       [Signature	
  On	
  File]	
  
       Gretchen	
  Becker	
  (www.gretchenbecker.com)	
  	
  
       Author	
  of	
  "The	
  First	
  Year:	
  Type	
  2	
  Diabetes"	
  	
  
	
  
       [Signature	
  On	
  File]	
  
       Cheryl	
  Alkon	
  
       Author	
  of	
  Balancing	
  Pregnancy	
  With	
  Pre-­Existing	
  Diabetes:	
  Healthy	
  Mom,	
  Healthy	
  Baby	
  
       	
  
       [Signature	
  On	
  File]	
  
       Ronnie	
  Gregory	
  (www.thepoordiabetic.com)	
  
       	
  
       [Signature	
  On	
  File]	
  
       Erin	
  D.	
  O'Neill	
  Argueta	
  (www.edonadesigns.blogspot.com)	
  
       Living	
  creatively	
  for	
  over	
  39	
  years	
  with	
  Type	
  I	
  Diabetes	
  
       	
  
       [Signature	
  On	
  File]	
  
       Cara	
  Richardson	
  (countrygirldiabetic.blogspot.com)	
  
       Every	
  Day,	
  Every	
  Hour,	
  Every	
  Minute	
  
       	
  
       [Signature	
  On	
  File]	
  
       Cheri	
  Pate	
  (princessladybug.blogspot.com)	
  

       [Signature	
  On	
  File]	
  
       Michael	
  Robinton	
  (Insulin	
  Pumpers)	
  
       Executive	
  Director	
  




	
                                                                                                                                        10	
  

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Letter to Barack Obama

  • 1. August  2,  2011     President  Barack  Obama   The  White  House   1600  Pennsylvania  Ave  NW   Washington,  DC  20500     Dear  Mr.  President:     We,  the  undersigned  organizations  and  individuals,  request  that  you  attend  the  United  Nations  High-­‐Level   Summit  on  Non-­‐Communicable  Diseases  (NCD)  in  September  to  push  for  better  health  for  all  of  those  living   with  diabetes.     This  September,  you  and  your  fellow  political  leaders  will  have  a  once-­in-­a-­generation  opportunity  to  halt  a   global   epidemic   that   is   killing   and   disabling   millions   of   people,   impoverishing   families,   and   undermining   economic  progress.  The  UN  NCD  Summit  is  a  chance  for  the  Government  of  the  United  States  of  America  to  play   a   leading   global   role   in   confronting   this   major   threat   to   the   health,   prosperity   and   security   of   all   of   us   and   future  generations.     Together,   the   four   major   NCDs   –   diabetes,   cancer,   heart   disease   and   chronic   respiratory   disease   –   are   the   world’s   number   one   killer.   It   is   estimated   that   some   35   million   people   die   from   NCDs   each   year,   and   14   million   of   these   deaths   could   be   averted   or   delayed.   Diabetes   alone   creates   a   huge   burden  -­‐   over   300   million   people   worldwide  have  diabetes  now,  and  that  figure  will  reach  half  a  billion  within  a  generation  if  we  do  not  act  now.   One   dollar   in   every   eight   spent   across   the   world   on   healthcare   last   year   went   on   diabetes   –   a   staggering   USD378   billion   in   total.   No   country   rich   or   poor   is   immune   from   the   impact.   In   the   US   alone,   there   are   25.8   million   people   with   diabetes,   and   the   Centers   for   Disease   Control   and   Prevention   estimate   that   by   2050,   US   prevalence   will   rise   to   as   many   as   one   in   three   Americans.   EVERY   one   of   us   knows   someone   touched   by   diabetes.     As  a  group  of  committed  diabetes  advocates,  we  ask  you  to  attend  the  UN  Summit  and  work  with  other  political   leaders   to   take   action.   We   have   attached   the   NCD   Alliance’s1   proposals   for   the   Summit   outcomes,   which   we   believe   should   be   the   basis   of   the   political   response   to   NCDs.   The   global   failure   to   invest   in   NCDs   has   led   to   the   current   crisis,   yet   we   have   cost-­‐effective  solutions   that   can   save   lives   and   make   economic   sense.   These   include   action  on  prevention  and  diagnosis  as  well  as  universal  access  to  affordable,  high-­‐quality  essential  medicines   and  medical  technologies.  We  are  also  calling  for  the  establishment  of  a  Stop  NCDs  partnership  to  lead  multi-­‐ sectoral   and   coordinated   action,   and   a   UN   Decade   of   Action   on   NCDs   to   implement   the   commitments   governments  will  make  at  the  UN  Summit  in  New  York.   We  would  be  pleased  to  provide  your  office  with  any  further  information  in  preparation  for  the  UN  Summit.   NCDs  such  as  diabetes  affect  us  all.  Diabetes  increasingly  strikes  children,  threatening  international  economic   progress.  But  we  are  not  powerless.  We  have  achievable  cost-­‐effective  solutions.  We  need  political  leadership   now  to  make  them  a  reality.  Please  be  a  champion  for  Non-­Communicable  Diseases  by  attending  the  UN   Summit  in  September  and  safeguard  the  health  and  prosperity  of  future  generations  in  the  US  and  around  the   world.     Yours  sincerely,         Kelly  Close  (diaTribe)   Research  &  product  news  for  15,000+  people  with  diabetes     Manny  Hernandez  (Diabetes  Hands  Foundation)   Serving  200,000  people  with  diabetes  every  month                                                                                                                                             1  The  NCD  Alliance  comprises  the  International  Diabetes  Federation,  the  International  Union  Against  TB  and  Lung  Disease,  the   Union  for  International  Cancer  Control,  and  the  World  Heart  Federation.  Together  the  NCD  Alliance  represents  900  member   associations  in  170  countries:  www.ncdalliance.org     1  
  • 2.   Phil  Southerland  (Team  Type  1)   CEO/Founder  Team  Type  1,  author  of  Not  Dead  Yet,  and  complication  free  after  29  years  with  Type  1   Diabetes  due  to  always  having  had  access  to  insulin  and  testing  supplies.       Bruce  Buckingham,  M.D.  (Stanford  Medical  Center)   Professor,  Pediatrics  -­  Division  of  Endocrinology  and  Diabetes       Jessica  Apple,  Michael  Aviad,  Karmel  Allison  (ASweetLife.org)   Reaching  30,000  People  Affected  by  Diabetes  Each  Month       David  Edelman,  Elizabeth  Edelman  (DiabetesDaily.com)   A  diabetes  community  reaching  300,000  each  month.             Francine  R.  Kaufman,  M.D.  (Childrens  Hospital  Los  Angeles)   Emeritus  Professor  of  Pediatrics  and  Communications  at  USC  -­  The  Center  for  Diabetes,  Endocrinology   &  Metabolism         Amy  Tenderich  (DiabetesMine)   A  leading  diabetes  blog  serving  50,000  readers  a  month     Riva  Greenberg  (the  Huffington  Post  and  DiabetesStories.com)   Reaching  more  than  150,000  diabetes  patients,  professionals  and  readers  each  month     Paula  Ford-­Martin  (dLife)   Editor-­in-­Chief,  Patient  Advocate,  Author         2  
  • 3.   Zachary  T.  Bloomgarden,  MD  (www.jdiabetes.com)   Editor,  the  Journal  of  Diabetes     Sheri  Colberg,  PhD  (www.shericolberg.com)   Expert  on  diabetes  and  exercise,  author  of  8  books  on  lifestyle  and  diabetes  management       Sarah  Knotts  –  Insulin,  Glucose,  Test  Strip  Stories   Sharing  real  stories  of  living  with  Type  1  Diabetes  since  1988.       William  “Lee”  Dubois,  Diabetes  Author,  Educator,  &  Advocate   Reaching  more  than  3  million  people  a  month  via  columns  and  articles         Sandra  Bourdette  (Taking  Control  Of  Your  Diabetes)   Co-­Founder  and  Executive  Director,  Educating  and  empowering  the  diabetes  community  since  1995     Irl  B.  Hirsch,  M.D.  (University  of  Washington  Med  Ctr-­Roosevelt)   Professor  of  Medicine     Neal  Kaufman,  M.D.,  M.P.H.  (UCLA  Schools  of  Medicine  and  Public  Health)   Professor  of  Pediatrics  and  Public  Health     3  
  • 4.   Tom  Karlya  (Diabetesdad)   Columnist  at  dLife,  1  million+  people  with  diabetes         Lois  Jovanovič,  MD  (Sansum  Diabetes  Research  Institute)   CEO  &  Chief  Scientific  Officer       James  S.  Hirsch   Author  of  "Cheating  Destiny:  Living  with  Diabetes"       Bernard  Farrell  (Diaboogle.com  and  Diabetes  Technology  Blog)   Diabetes  answers  for  1,000  people  per  month  and  reviewing  technology  for  3,000  readers/month.         Scott  K.  Johnson  (scottsdiabetes.com)   Diabetes  blog  reaching  thousands  per  month     George  Simmons  (Ninjabetic)   Sharing  my  story  so  others  feel  less  alone.           Randolph  B.  Linde,    M.D.  (Endocrinologist)   Palo  Alto  Medical  Foundation       4  
  • 5.   Brandy  Barnes  (www.DiabetesSisters.org)   a  national  nonprofit  organization  devoted  to  the  issues  faced  by  women  with  diabetes)  and  a  woman   who  has  lived  with  diabetes  for  more  than  21  years.           Kelly  Booth  (kellywpa.wordpress.com)   Helping  people  with  diabetes  complications       Kerri  Sparling  (SixUntilMe.com)   Patient  Blogger,  Diabetes  Advocate,  and  Living  with  Type  1  Diabetes       Howard  Zisser,  MD  (Sansum  Diabetes  Research  Institute)   Director  of  Clinical  Research  and  Diabetes  Technology       Bruce  W.  Bode  MD  FACE   Atlanta  Diabetes  Associate         Michael  W.  Hoskins  (The  Diabetic's  Corner  Booth)   Personal  blog  reaching  5,500  globally  each  month.       Karen  Graffeo  (BitterSweetDiabetes.com)   Patient  blog  reaching  several  hundred  subscribers       Gina  Capone  (DiabetesTalkfest.com,  Juvenation.org)   Patient  blogger  and  community  manager  reaching  over  19,000+  affected  by  diabetes.         5  
  • 6.   Crystal  Lane  (Randomly  capitalizeD)   Diabetes  Advocate  letting  hundreds  know  they  are  not  alone       Scott  Strange  (StrangelyDiabetic.com)   Sharing  decades  of  diabetes  trials  and  tribulations       Lorraine  Sisto  (This  is  Caleb...)   Daily  readers  in  excess  of  500.       Wendy  K.  Rose,  RN  (www.CandyHeartsBlog.com)   Diabetes  Advocate         Aliza  Chana  Zaleon  (Aliza  With  Diabetes)   1,000+  readers  and  counting       Michael  W.  Durbin  (www.mydiabeticheart.com)   Diabetes  Advocate,  living  with  Type  2  Diabetes  and  Congestive  Heart  Failure       Kim  Vlasnik  (Texting  My  Pancreas;  You  Can  Do  This  Project)     Reaching  12,000+  people  with  diabetes  every  month       Mari  Ruddy  (Team  WILD  and  Red  Rider  Recognition  Program  Founder)   Representing  over  5,000  cyclists  and  athletes  with  diabetes       6  
  • 7. Scott  Strumello  (Scott's  Web  Log)   A  Patient-­Written  Blog  Reaching  An  Average  of  2,500  Visitors  Per  Month     Lahle  Wolfe  (Isletsofhope.com,  Pre-­Diabetes.com)   7.9  million  visitors  since  2005,  10,000+  subscribers     Bill  Woods  (1HappyDiabetic.com)   “It’s  All  About  Your  Attitude!”       Martin  Wood  (DiabeticallySpeaking.com)   Type  1  diabetes  blogger  and  advocate.  Sharing  my  life  with  diabetes  so  that  others  may  have  a  voice.       Chris  Stocker  (The  Life  of  a  Diabetic)   Reaching  1,000's  of  people  with  diabetes  every  day!         Naomi  Kingery,  The  Diabetic  Diva  (www.livetolovediabetes.com)   Author  and  blogger  who  has  reached  over  10,000  people  with  diabetes.     Victoria  Cumbow  (www.victoriacumbow.com)   Type  1  diabetic  for  18  years,  advocate,  patient  and  health  blogger  at  Dia-­Beat-­This  and   @victoriacumbow     Hallie  K.  Addington  (The  Princess  and  The  Pump)   I  am  a  wife,  mother,  teacher…  and  a  pancreas!       7  
  • 8.   Kelly  Kunik  (diabetesaliciousness.blogspot.com)   Spreading  Diabetes  Validation  through  Humor,Ownership  &  Advocacy     Elissa  R.  Weitzman,  ScD,  MSc   Assistant  Professor     Harvard  Medical  School  |  Children’s  Hospital  Boston       Cherise  Shockley  (Diabetes  Social  Media  Advocacy)   Diagnosed  with  Latent  Autoimmune  Diabetes  in  Adults  in  June  2004.  Creator  of    Diabetes  Social  Media   Advocacy  (DSMA)  weekly  twitter  chat  and  blog  talk  radio.     Merle  Gleeson  (Type  1  Diabetes  Lounge)     Meri  Schuhmacher  (Our  Diabetic  Life)   Blogger,  advocate,  friend  to  1000+  mothers  and  fathers  of  children  with  diabetes.               Satish  K.  Garg,  MD  (Barbara  Davis  Center  for  Childhood  Diabetes,  University  of   Colorado  Denver)   Professor  of  Medicine  and  Pediatrics;  Director,  Adult  Program;  Clinical  and  Research  Endowed  Chairs   Editor-­in-­Chief,  Diabetes  Technology  and  Theraputics       Beatriz  Dominguez  (Sweet  Bea)   Diabetes  Patient  and  Advocate     Jessica  Collins  (jess-­meandd.blogspot.com)   Diabetes  blogger  and  advocate     8  
  • 9.   Allison  Blass  (Lemonade  Life)   A  personal  blog  about  living  with  diabetes  serving  5,000  readers  a  month     Leighann  Calentine  (D-­Mom  Blog)   Mom  of  a  child  with  type  1  diabetes,  author  of  D-­Mom  Blog  reaching  8,000+  families  per  month,   diabetes  advocate.       Hope  Warshaw,  RD,  CDE  (www.hopewarshaw.com)   Diabetes  educator,  author  with  nearly  1  million  books  in  print     Nicolas  Cuttriss,  MD,  MPH  (www.ayudainc.net)   Empowering  youth  to  serve  as  agents  of  change  in  diabetes  communities  abroad         Jane  Jeffrie  Seley,  DNP  MPH  MSN  BC-­ADM  CDE  (New  York  Presbyterian/Weill  Cornell)   Diabetes  Nurse  Practitioner           Barry  H  Ginsberg,  MD,  PhD   Diabetes  Consultants         Prof.  Dr.  Lutz  Heinemann,  PhD  (Profil  Institut  für  Stoffwechselforschung  GmbH)   Partner  and  Scientific  Consultant     [Signature  On  File]   Jay  Skyler,  MD  (University  of  Miami  Miller  School  of  Medicine,  Diabetes  Research  Institute)   Professor  of  Medicine,  Pediatrics  and  Psychology  at  Associate  Director  for  Academic  Programs  at  DRI         [Signature  On  File]   Darrell  M  Wilson,  MD  (Stanford  University  and  the  Lucile  Packard  Children's  Hospital)   Professor  and  Chief,  Pediatric  Endocrinology  and  Diabetes     [Signature  On  File]   Ginger  Vieira  (www.Living-­in-­Progress.com)     9  
  • 10. Type  1  diabetes  advocate,  vlogger,  author  and  health  coach.       [Signature  On  File]   Lee  Ann  Thill,  MA,  ATR-­BC,  LPC  (www.thebuttercompartment.com)   Type1  diabetic  for  32  yrs,  blogger,  art  therapist,  diabetes/mental  health  advocate,  artist.     [Signature  On  File]   Mariela  Glandt,  MD   Endocrinology  Department,  Bronx-­Lebanon  Hospital     [Signature  On  File]   Gonzalo  Bacigalupe,  EdD,  MPH   International  Health  Council  Representative  at  ,  Ikerbasque  Research  Professor,  Associate   Editor  at  Family,  Systems,  &  Health     [Signature  On  File]   Sysy  Morales  (TheGirlsGuidetoDiabetes.com)   Encouraging  10,000  women  with  diabetes  to  live  their  best  life  every  month     [Signature  On  File]   Kitty  Castellini,  Founder,  President  &  CEO  (Diabetes  Living  Today®)   National  Broadcast  News  on  Diabetes  for  120,000  with  diabetes       [Signature  On  File]   Kathy  White  (kathy-­mynewislets.blogspot.com)   Islet  cell  transplant  recipient     [Signature  On  File]   Anne  Findlay  (annetics,  Team  Type  1  cyclist)   Advocating  for  healthier  living  through  exercise  for  people  with  diabetes     [Signature  On  File]   Gretchen  Becker  (www.gretchenbecker.com)     Author  of  "The  First  Year:  Type  2  Diabetes"       [Signature  On  File]   Cheryl  Alkon   Author  of  Balancing  Pregnancy  With  Pre-­Existing  Diabetes:  Healthy  Mom,  Healthy  Baby     [Signature  On  File]   Ronnie  Gregory  (www.thepoordiabetic.com)     [Signature  On  File]   Erin  D.  O'Neill  Argueta  (www.edonadesigns.blogspot.com)   Living  creatively  for  over  39  years  with  Type  I  Diabetes     [Signature  On  File]   Cara  Richardson  (countrygirldiabetic.blogspot.com)   Every  Day,  Every  Hour,  Every  Minute     [Signature  On  File]   Cheri  Pate  (princessladybug.blogspot.com)   [Signature  On  File]   Michael  Robinton  (Insulin  Pumpers)   Executive  Director     10