KPSI is a mental health association in Indonesia established in 2009 to address challenges of schizophrenia. It has grown from a small Yahoo group to over 71,000 members on Facebook and 285,000 followers on its Facebook page. KPSI offers programs like art therapy, peer support groups, and training to help those with mental illness and their families. It has received several awards for its work reducing stigma and has advocated for policies like the 2018 Mental Health Act. However, challenges remain like limited resources, funding, and government support. During COVID-19, KPSI provided online support, information, and financial assistance to help people access services and vaccines.

1. East Asia Summit (EAS) Workshop on
Mental Health Cooperation in the COVID-19
Recovery on 22-23 November
KPSI: Establishing and growing a civil society mental health
association
Bagus Utomo
utomo.bagus@gmail.com

2. SCHIZOPHRENIA IN INDONESIA
1,7 per 1000 people
or 400.000 people
1000 psychiatrist in
Indonesia
Thousands are homeless
or in shackled (pasung)
Lack of mental health
services
Huge stigma in mental health are worsening the condition

3. KPSI JOURNEY
2009
Founded:
Bagus Utomo
Personal experience.
Create Yahoo group
600 members
2001
Moved to
FB Group
Community
2012 2014 2015 2021
4.600
Members
15.100
Members
17.211
Members
Facebook
Group
71.000
Members
Facebook
Page
285,290
Followers
Members are People with Schizophrenia and families/caregivers

4. FROM SMALL TO ALL OVER INDONESIA
From Small Group of
passionate people
KPSI Malang KPSI Yogyakarta
KPSI Surabaya KPSI Bandung
KPSI Medan
KPSI Surakarta
KPSI Jember
KPSI Jakarta

5. KPSI PROGRAMS
Art and creativity workshop
Psychoeducation Peer Support Groups
Psychological First Aid
Training
Stress Management
Training
Yoga
Entrepreneurship Training
Cafetaria
Public Campaign: Lighting
the Hope for Schizophrenia

6. KPSI AWARDS
★ 2011 Awards from Minister of Health Mrs Endang Rahayu Sedyaningsih for leading public education
on mental health.
★ 10 October 2012 Dr Guislain Award (Belgia) for breaking the chains of stigma on mental illness in
Indonesia received 50,000 USD.
★ 2013 Klik Hati Award from Merck as Social Innovation initiative.
★ 2014 awards from Ministry of Health Republic of Indonesia for building mental health community
network.
★ 2021 Facebook Community Accelerator received approximately 50,000 USD

7. KPSI ADVOCACY
MoU with
Ministry of Health
★ Involve in passing Mental Health Act 2018
★ Local mental health regulations in several regions
★ Inspiring other mental health support groups to grow in Indonesia
★ MoU with many mental hospitals to empower MH Consumers
★ Actively involved in Free Pasung Program (free from shackles)
★ Increasing research on mental health

8. Challenges
★ Human Resources
★ Funding
★ Limited network in local, national, regional and global level
★ Lack of support from government, mental health professionals
★ Lack of Social workers
★ We need support from academic society
★ And we need National Institute for Mental Health
★ Decentralization political system in Indonesia

9. Covid-19 Respond
★ Working closely with government in promoting health protocol
★ Providing information patients and families how to access mental health services during pandemi
★ Providing online mental health support
★ Webinars on how to maintain mental health during pandemi
★ Provide financial support for people with mental illness and their families
★ Provide financial assistant to pay for Insurance and Social Security (BPJS) for the poor
★ Helping people with mental illness and their carers to access covid-19 vaccination

10. Conclussion
★ Social media is useful tool for building self help groups for mental health. Mental health consumer
network ia a bridge for people with mental illness integration to community.
★ Consumer group is an important advocate for improving mental health system.
★ Regional network of consumer group is needed to strengthen stigma eradication.
★ Government support is needed for nurturing consumer group.

11. TERIMA KASIH
THANK YOU
Email:
info.kpsi@gmail.com
Facebook Group:
https://web.facebook.com/groups/skizofrenia
Facebook Page:
https://web.facebook.com/kpsi.pusat
Instagram: https://www.instagram.com/peduliskizofrenia/