Jorrit Ebben himsseu Dementia 20180529
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In the session I presented an overview of innovations in health technology used in the Netherlands and by Siza and Academy het Dorp for people with brain injury and/or learning disabilities to show the cross-overs with dementia.
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Jorrit Ebben himsseu Dementia 20180529
- 1. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben Cross-overs in healthcare What can dementia care and disability care learn from each other
- 2. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben Het Dorp, over 50 years of development
- 3. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben #PATIENTINCLUDED BY DEFAULT
- 4. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben #PATIENTINCLUDED BY DEFAULT
- 5. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben ‘Dit vind ik ervan!’ (This is my experience!) This is my added value DIALOGUE, WISHES & NEEDS
- 6. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben Today Healthcare Yesterday Tomorrow … A DIFFERENT APPROACH… Healthcare Technology Technology Technology @ the heart of Healthcare Embassy of Sweden, The Hague, Netherlands, May 16th 2018
- 7. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben Yesterday …CREATES A WORLD OF DIFFERENCE Care professional Care professional Care professional Care professional Patient Tomorrow Colleagues Care professional Friends Family Someone organizing his/her own life Embassy of Sweden, The Hague, Netherlands, May 16th 2018
- 8. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben
- 9. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben ACADEMY HET DORP PARTNERS Care users Authorities Companies and start-ups Caregivers Payers of care Research and educational institutes Investors and financers
- 10. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben PARTNERS AND THEIR INTERESTS COMPANY GOVERNMENT PAYER KNOWLEDGE CARE PATIENT HEALTHY SALES PUBLICATIONS HIGH QUALITY CARE A GOOD LIFE HAPPY CITIZENS AFFORDABLE COST EXCELLENT HEALTHY CARE +
- 11. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben More than one billion people in the world live with some form of disability; this is the largest minority in the world. This number is rising due to population growth, medical progress and aging of the population Worldwide, approximately 200 million people with a disability experience difficulties in their daily functioning This requires an increase of effort, attention and international collaboration to realize impact with innovation in long-term care. According the World Report on Disability (WHO) Embassy of Sweden, The Hague, Netherlands, May 16th 2018
- 12. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben SMART HEALTH ASSOCIATE DEGREE Embassy of Sweden, The Hague, Netherlands, May 16th 2018
- 13. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben SENSORS
- 14. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben SMART DIAPER Our support: • Business case • Technology • Process re-engineering • Patient & healthcare professional testing
- 15. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben POP-UP UNIT “It’s a nice private house where Ellen can recover in her own pace at her own comfort”
- 16. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben CLIENT BASED CAPACITY PLANNING Embassy of Sweden, The Hague, Netherlands, May 16th 2018
- 17. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben ROBOTS
- 18. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben TINYBOTS IN THE FIELDLAB FOR ROBOTICS DEVELOPMENT IN LONG TERM CARE
- 19. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben REISZ: ROBOTICS EXPERIENCE AND INFORMATION SUPPORT Embassy of Sweden, The Hague, Netherlands, May 16th 2018
- 20. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben CREATIVE TECHNOLOGY
- 21. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben CRADL – STAY IN TOUCH
- 22. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben MY LIFE MY RYTHM
- 23. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben THE NEW EXPERIENCE
- 24. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben Learn to focus after traumatic brain injury GAME CENTER Music therapy for aphasia patients
- 25. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben HOME SUPPORT
- 26. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben De Paswoning set up in 2011 as fieldlab Innovation in co-creation with patients & care professionals
- 27. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben Healing | Healthy | Predictive | Eco-system Ambition InnovationCo-created & tested with users Technology in place and in use
- 28. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben ASSISTING HOMES – SUPPORTED BY RESEARCH
- 29. Jorrit Ebben 19 IV 2018 @jorritebben #HIMSSEurope18 29 V 2018 @jorritebben
Editor's Notes
- My name is Brigitte Boon, Chief Research Officer at Siza and AHD. I will present to you on behalf of Rob Hoogma, who unfortunately couldn’t be here today. Rob is CEO of Siza and Academy Het Dorp. Please allow me to also introduce you to my colleague Jorrit Ebben, one of the founders of Academy Het Dorp. He will help me to answer any questions you may have that I may not know the answer to, since I only work at Siza and AHD since four months. He will rescue me when get lost in the story I intend to tell you ;-) Thank you for inviting us to present our work here, it is our pleasure to do so.
- Het Dorp (The Village) is one of our main locations. Back in de 60s people with a disability lived in dormitories, with no privacy or own living space at all. Due to the world’s first telethon / crowdfunding on TV these people had their own home. Het Dorp was built from the money that was collected that day.. Due to the fact that people with disabilities were now living here in a community, innovation could grow in different directions, including technology. In the 60s already we used the first automatic dooropeners, something IOT is still jealous of… And in the 80s we started using the first robotic arms, but there’s still al lot more to do…. In the pictures on the left is Mies Bouwman, fairy godmother of Het Dorp, in the middle the former supermarket here in the village and to the right the opening of our “fieldlab for wheelchairs” in 1979, where people could do wheelchair fittings.
- Het is dat ik maar tien minuten heb, want ik kan hier uren over vertellen. Onze innovaties, of de innovaties van anderen waar wij aan bijdragen zodat ze beter worden, zijn legio. Sommige komen wel in het nieuws, sommige niet, maar altijd en immer samen met degenen waar het om gaat. De zorgprofessional en de cliënt, patiënt. Siza.nl/innovaties zie je 15 filmpjes van voorbeelden die in gebruik zijn. We krijgen wel eens commentaar dat alleen de rolstoelers in beeld zijn bij ons, maar het zijn bij ons toevallig de mensen die goed een verhaal kunnen vertellen en voor de groep kunnen staan. Dat is voor mensen met een ernstige VG, NAH of autisme wel eens heel ingewikkeld.
- Most important in everything we do at the academy is that it is patient included by default. Patients are involved in the complete process, from early ideas, to development as well as implementation. At this picture you see two of our patients, Anne en Gijs, in a conversation with Secretary General Erik Gerritsen. At the basis of all developments is a 24 hour patient journey, describing all daily activities in which people with various disabilities need assistence. It describes all scenario’s in which technology may help increase their independence.
- We started out creating a dialogue with patients and looking at the values our employees bring to their care. Patients told (or showed) us what aspects in their lives need improvement to become less independent or improve quality of life. Employees investigated how they could help with those wishes, what they bring to the table. This constant dialogue and consciousness of wishes and needs became our new quality system. This system now is a corner stone for the quality of care in a growing number of organizations for long term care of people with disabilities in The Netherlands. It took the place of a guideline system that was more directed at rules and processes, than at the patient-caregiver dialogue.
- Second, we started to bring technology to the heart of every day healthcare. As one of our patients puts it: I’d rather be helped by technology to use the bathroom, if that leaves extra time for a good talk with my caregiver. Technology is not cold, as some would say, it gives me my life back by increasing my independence.
- As we can see here, technology can bring patients a new way of life, normal life, with some help of others they choose.
- Acquired or traumatic brain injury. At Siza we support about 3500 people, at 150 locations. We do so with about 2500 colleagues; caregivers, therapists, doctors, et cetera. But also people with Huntington’s disease, and end-stage MS/Parkinsons and early onset dementia
- These are all the partners that signed up for cooperating in the Academy. Included are payers of care, investors.. Etc (zie bollen) Apple (staat er niet op, wel noemen), idem Toyota. Payers of care: health insurance companies and municipalities Research partners specifiek noemen.
- Our initiative leads invest in understanding and combining all specific interests of the partners, making sure that everyone gets what they aim for out of the cooperation.
- Involuntary dependency is a global burden. We realised that if we want to engage companies to create sustainable and affordable solutions, we need to look at the bigger picture and show them how this can be their market. We need to help them create business cases, to interest them in investing and producing the solutions that can help our patients become less dependent of care.
- The Smart Health associate degree programme is a 2-year practical school in ehealth use with a NL accredited degree. It is aimed at preparing our caregivers for all the innovations that will be embedded into their daily practice. To make them tech savvy and understand why and how technology can help them and their patients. Started as incompany training, and is now becoming an official part/offer of the HAN. Cooperation with HAN (University of Applied Sciences). Smart Health is een opleiding die aansluit op de vernieuwing van Het Dorp van Siza én die opleidt tot de zorgmedewerker van de toekomst. Een bijzonder traject, waarin wordt samengewerkt met docenten van verschillende HAN-opleidingen in co-creatie met Siza. De professionals (van de toekomst) hebben ondersteuning nodig om het gebruik van technologie in het dagelijks werk mogelijk te maken. Daarnaast neemt het inzicht toe dat inzet van technologie patiënten / cliënten in staat stelt minder in zorgorganisaties en meer thuis te zijn. Dat vergt een andere samenwerking tussen professionals onderling én professional en patiënt/cliënt. De opleiding Smart Health is een 2jarig traject dat tot een Associate Degree leidt.
- “Just in time diaper changes” is helpfull for patient as well as care givers
- This house we develop for people with a mild or more severe learning disability with also some “anger management issues”, people that can be a danger to themselves or their surroundings. People that need 24/7 governance to ensure their safety. Usually we have to go in for every thing they ask for, as they aren’t able themselves at that point. And we have to go in and check up on them every 15-30 minutes. But imagine someone would check up on you every 15-30 minutes for the next 24 hours. You would get anger management issues yourself! This way, and we’re still building on it, we don’t have to go in as often as we used to, which causes less stress with the patient and shortens (preliminary results!) their time of excacerbation. And it reduces stress as well for the healthcare providers, as they know they’re in control more continuously with less blootstelling to danger.
- We are working on an algorythm to enable capacity planning based on the desired day and night rythm of patients. Wouldn’t it be great if they receive the care they need at the moment they need or want it? And not when the caregiver is planned to give it due to standard plannings. In elderly care a pilot with this algorythm showed less waiting moments for the patients, less peak or stress moments for caregivers, and a reduction of costs. We are exploring whether this algorythm could work for our patient population. Technologie is hier op de achtergrond, maar bepaalt het inzetten van zorg op het gewenste moment. Algoritme rekent de capaciteitsplanning van de zorgprofessionals uit op basis van het gewenste ritme van cliënten. De client centraal dus! Rekening houdend met duur van diensten en type aanstelling van de zorgverleners. Doel: wachttijden voor cliënten en piekmomenten voor zorgverleners te verminderen. Leidt tevens – laten eerste gegevens zien – tot een kostenbesparing. Meten: kwaliteit van leven, kwaliteit van zorg, wachttijden, stress bij professionals etc. Bij langere termijn: verzuim en verloop. Want: we hebben straks te weinig zorgmedewerkers. Eerste studie van Dennis Moeke en collega’s laat zien dat wachttijden tijdens spitsuren verminderen. Veelbelovend. Kan betekenen dat voor de optimale capaciteitsplanning met verschillende locaties moet worden samengewerkt. Dus goed in de gaten houden of expertise van professionals voor de verschillende groepen geschikt is.
- Together with various companies that develop robots, we are aiming at creating robots that can fulfill patients needs best. In order to do so, robots in various stages of development are tested by our patients, as well as by patients of partner care organizations. This enables the companies to increase customization towards our target groups. The research is conducted together with our university partners. The team from Subsidie OP-Oost (EFRO) Kennis instellingen: Zuyd Hogeschool, HAN, Roussingh (revalidatietechnologie) Salland (verzekeraar): belang is goede kosten-baten analyse MKB: Tinybots (Tessa), Gable systems, mijnrobot.nl. Vorige week donderdag Kick off.
- I told you befor about the freestyle robopark. We aim to expand this to a support community, where people can share experiences, and practice with their robotic aids. Not only robotic arms, but also care robots, social robots, et cetera. Reisz: Robotica Ervarings- en Informatie Steunpunt naar Zelfstandigheid Kennisbank en community rondom bestaande robotica. Hoe kan je de robots gebruiken, wat zijn voor- en nadelen, waar kan je ze aanschaffen, wat zijn de kosten, kan je kosten vergoed krijgen, hoe gebruiken lotgenoten de robots? et cetera. Waarom? de informatie over mogelijkheden van robotica hulpmiddelen is versnipperd, objectieve informatie over inzet en mogelijkheden is niet vindbaar, er worden geen ervaringen gedeeld over het gebruik van robotica, aanvraag procedures zijn onduidelijk implementatie en trainingstrajecten zijn lastig en schieten er vaak bij in.
- For dementia, but also for people with a learning disability, autism or locked-in
- Using existing technology, like in this case a wake up light and watch to measure sleeping patterns. Directed at helping multiple disabled people to wake up before the caregiver walks into their room, it relieves scary reactions due to sudden entrance of caregivers. Was found to reduce stress for both patient and caregiver, make it easier to get people dressed etc because their spasms reduced, and improve sleeping patterns at night. A pilot was very succesful. We now aim for broader implementation, and research to establish the effects.
- In our game center, various serious games are developd and their effectiveness is studies. For example the “Schakelaar”, aimed at improving focus and concentration in people with acquired brain injury, or an app/game enabling music therapy sessions for aphasia patients in their homes to give them more opportunities to practice. Game center: ook in het nieuwe gebouw: game consoles. Uitproberen en oefenen. Onderzoek! Schakelaar: gericht op focus krijgen en negeren prikkels bij NAH (gemaakt door yellow riders, onderzoek door Donders/Radboud) Eerste ideeën rondom thuis ondersteunen muziektherapie voor afasie patiënten. Aphasia is an inability to comprehend and formulate language because of damage to specific brain regions.
- Siza kept developing and in 2012 we opened the “paswoningen” or model appartments. These are appartments in which we worked together with patients with at least 30 different disabilities and numerous companies, to create innovations all directed at increasing patients’ independence. This goes from doors that can be opened with the blink of an eye (litterally) to a kitchen counter (= aanrecht) that is round and can spin around. We found that if people who are in wheelchairs wanted to cook their own dinner, what was most annoying and tiring to them was having to move their wheelchair up and down the regular kitchen counters. So together with companies and artists we created one that can circle its functions (watertap, stove, kettle et cetera) towards the user.
- Improving independent living for people with disabilities by using technology is our ambition. With smart and affordable solutions. Here a model of the new building – to be delivered by the end of the year - containing appartments for our patients as well as rooms for us to conduct pilots with innovative solotions. Enige plek waar dit gebeurt gericht op de langdurende zorg. Organisatievorm: Onafhankelijke stichting Eigen RvT met personele unie voorzitter en lid RvT en voorzitter RvB Werkmaatschappij Solutionslab Funding: Per succesvol project afdracht aan de Academy Alle partners betalen een fee EFRO Provincie Stichting Het Dorp (garantie) Per project een afdracht aan Academy ……..
- Thanks you for your attention. I am happy to answer your questions now.